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Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers

Hamlet, Claire; Rumsey, Nichola; Williamson, Heidi; Johnson, Karen; Nduka, Charles

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Authors

Claire Hamlet Claire.Hamlet@uwe.ac.uk
Occasional Associate Lecturer - CHSS - HSS

Heidi Williamson Heidi3.Williamson@uwe.ac.uk
Associate Professor in Applied Health Research

Karen Johnson

Charles Nduka



Abstract

Despite the potential negative impact of facial palsy, major gaps in understanding persist surrounding the treatment and care of those affected. This collaborative three-round Delphi process aimed to identify priorities for future facial palsy research, from the perspective of clinicians, researchers, patients and carers. It also determined whether the research priorities of patients and carers aligned with those of health professionals and researchers.
In Round one participants (n=85) were asked to generate research questions via focus groups or an online or postal survey. In Rounds two (n=72) and three (n=78) participants were asked to rate the priorities identified on a 5 point ordinal scale.
36 questions reached the definition of “high priority” consensus. Seven of each groups’ top ten research priorities were shared. Prioritised questions included the provision and pathways of care, the psychosocial impact of living with facial palsy and the effective management of side-effects.
Establishing the research priorities in the field of facial palsy is a significant first step in ensuring the future research agenda is focussed on topics that are considered important by both patients and health professionals.

Journal Article Type Note
Acceptance Date Aug 19, 2018
Online Publication Date Aug 25, 2018
Publication Date Dec 1, 2018
Deposit Date Aug 29, 2018
Publicly Available Date Aug 26, 2019
Journal Journal of Plastic, Reconstructive and Aesthetic Surgery
Print ISSN 1748-6815
Electronic ISSN 1878-0539
Publisher Elsevier
Peer Reviewed Not Peer Reviewed
Volume 71
Issue 12
Pages 1785
DOI https://doi.org/10.1016/j.bjps.2018.08.001
Keywords facial palsy, facial paralysis, delphi study, research, visible difference
priorities, United Kingdom
Public URL https://uwe-repository.worktribe.com/output/855246
Publisher URL https://doi.org/10.1016/j.bjps.2018.08.001
Additional Information Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.1016/j.bjps.2018.08.001.
Contract Date Aug 29, 2018

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