Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers

Hamlet, Claire; Rumsey, Nichola; Williamson, Heidi; Johnson, Karen; Nduka, Charles

Abstract

Despite the potential negative impact of facial palsy, major gaps in understanding persist surrounding the treatment and care of those affected. This collaborative three-round Delphi process aimed to identify priorities for future facial palsy research, from the perspective of clinicians, researchers, patients and carers. It also determined whether the research priorities of patients and carers aligned with those of health professionals and researchers.
In Round one participants (n=85) were asked to generate research questions via focus groups or an online or postal survey. In Rounds two (n=72) and three (n=78) participants were asked to rate the priorities identified on a 5 point ordinal scale.
36 questions reached the definition of “high priority” consensus. Seven of each groups’ top ten research priorities were shared. Prioritised questions included the provision and pathways of care, the psychosocial impact of living with facial palsy and the effective management of side-effects.
Establishing the research priorities in the field of facial palsy is a significant first step in ensuring the future research agenda is focussed on topics that are considered important by both patients and health professionals.

• Journal Article Type: Note
• Acceptance Date: Aug 19, 2018
• Online Publication Date: Aug 25, 2018
• Publication Date: Dec 1, 2018
• Deposit Date: Aug 29, 2018
• Publicly Available Date: Aug 26, 2019
• Journal: Journal of Plastic, Reconstructive and Aesthetic Surgery
• Print ISSN: 1748-6815
• Publisher: Elsevier
• Peer Reviewed: Not Peer Reviewed
• Volume: 71
• Issue: 12
• Pages: 1785
• DOI: https://doi.org/10.1016/j.bjps.2018.08.001
• Keywords: facial palsy, facial paralysis, delphi study, research, visible difference; priorities, United Kingdom
• Public URL: https://uwe-repository.worktribe.com/output/855246
• Publisher URL: https://doi.org/10.1016/j.bjps.2018.08.001
• Additional Information: Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.1016/j.bjps.2018.08.001.
• Contract Date: Aug 29, 2018