Skip to main content

Research Repository

Advanced Search

Outputs (112)

Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives (2022)
Journal Article
Jones, B., Bennett, S. E., Larsson, I., Zangi, H., Boström, C., Van der Elst, K., …Ndosi, M. (2022). Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives. RMD Open, 8(1), Article e002256. https://doi.org/10.1136/rmdopen-2022-002256

OBJECTIVES: To explore patients' agreement and reasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). METHODS: This mixed-method survey collected data using snowbal... Read More about Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives.

Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial (2024)
Journal Article
Knudsen, L. R., Ndosi, M., Hauge, E., Lomborg, K., Dreyer, L., Aaboe, S., …de Thurah, A. (in press). Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial. Rheumatology, https://doi.org/10.1093/rheumatology/keae177

Objectives To evaluate the effectiveness of a novel digital patient education (PE) programme in improving self-management in patients newly diagnosed with rheumatoid arthritis (RA). Methods This was a parallel, open-label, two arms, randomised contro... Read More about Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial.

Beyond aches and pain: The hidden economic burden of musculoskeletal conditions in children and adolescents (2024)
Journal Article
Ndosi, M., & Livermore, P. (in press). Beyond aches and pain: The hidden economic burden of musculoskeletal conditions in children and adolescents. Evidence-Based Nursing, https://doi.org/10.1136/ebnurs-2023-103891

Commentary on: Espirito Santo, C. M. et al. Overview of the economic burden of musculoskeletal pain in children and adolescents: a systematic review with meta-analysis. Pain 165, 296-323 (2024). https://doi.org:10.1097/j.pain.0000000000003037

Personalised care packages for people with rheumatoid arthritis: a mixed-methods study. (2024)
Journal Article
Dey, M., Busby, A., Isaac, J., Pratt, A., Ndosi, M., Young, A., …Nikiphorou, E. (2024). Personalised care packages for people with rheumatoid arthritis: a mixed-methods study. RMD Open, 10(1), Article e003483. https://doi.org/10.1136/rmdopen-2023-003483

Disease management in rheumatoid arthritis (RA) requires holistic assessment. We aimed to design personalised care packages suitable for people with RA. This study was conducted using a mixed-methods approach and exploratory sequential design. Consen... Read More about Personalised care packages for people with rheumatoid arthritis: a mixed-methods study..

Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis (2023)
Journal Article
Sweeney, A. M. T., Flurey, C. A., McCabe, C. S., Robson, J. C., Richards, P., & Ndosi, M. (2023). Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis. Musculoskeletal Care, 21(4), 1651-1661. https://doi.org/10.1002/msc.1844

Aims: To develop an understanding of what comprises nurse-led care in early rheumatoid arthritis from the perspective of rheumatology nurse specialists in England. Design: Qualitative study. Methods: Semi-structured telephone interviews with rheumato... Read More about Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis.

Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO) (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2024). Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO). Annals of the Rheumatic Diseases, 83(3), 394-400. https://doi.org/10.1136/ard-2023-224946

Objectives: Glucocorticoids used in the treatment of inflammatory rheumatic conditions can impact on health-related quality of life. An underpinning qualitative study developed a long-list of candidate items for a treatment-specific patient-reported... Read More about Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).

Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review (2023)
Journal Article
Leach, E., Ndosi, M., Jones, G., Ambler, H., Park, S., & Lewis, J. S. (in press). Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review. Journal of Racial and Ethnic Health Disparities, https://doi.org/10.1007/s40615-023-01803-2

Background: Chronic pain services in the UK are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by minority ethnic groups. Objective: To assess the available eviden... Read More about Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review.

EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis (2023)
Journal Article
Parodis, I., Girard-Guyonvarc'h, C., Arnaud, L., Distler, O., Domján, A., Van den Ende, C. H. M., …Boström, C. (in press). EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis. Annals of the Rheumatic Diseases, https://doi.org/10.1136/ard-2023-224416

Objective: To develop evidence-based recommendations for the non-pharmacological management of systemic lupus erythematosus (SLE) and systemic sclerosis (SSc). Methods: A task force comprising 7 rheumatologists, 15 other healthcare professionals and... Read More about EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis.

Educational readiness among health professionals in rheumatology: Low awareness of EULAR offerings and unfamiliarity with the course content as major barriers—results of a EULAR-funded European survey (2023)
Journal Article
Ritschl, V., Sperl, L., Andrews, M. R., Björk, M., Boström, C., Cappon, J., …Stamm, T. A. (2023). Educational readiness among health professionals in rheumatology: Low awareness of EULAR offerings and unfamiliarity with the course content as major barriers—results of a EULAR-funded European survey. RMD Open, 9(2), https://doi.org/10.1136/rmdopen-2023-003120

BACKGROUND: Ongoing education of health professionals in rheumatology (HPR) is critical for high-quality care. An essential factor is education readiness and a high quality of educational offerings. We explored which factors contributed to education... Read More about Educational readiness among health professionals in rheumatology: Low awareness of EULAR offerings and unfamiliarity with the course content as major barriers—results of a EULAR-funded European survey.

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Bromhead, A., …Robson, J. C. (2024). Validation of a patient-reported outcome measure for giant cell arteritis. Rheumatology, 63(1), 181-189. https://doi.org/10.1093/rheumatology/kead201

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

Evidencing the long-term impact of a musculoskeletal allied health professionals and nurse research internship programme (2023)
Journal Article
Fry, M., Gavin, J., Finney, A., Ndosi, M., Cramp, F., Lewis, J., …Bowen, C. (2023). Evidencing the long-term impact of a musculoskeletal allied health professionals and nurse research internship programme. Rheumatology, 62(Supplement_2), https://doi.org/10.1093/rheumatology/kead104.074

Background/Aims The UK-wide AHP and Nurse Research Internship Programme (2015-2022) is an effective, well-recognised model for building musculoskeletal (MSK) research capacity. The programme aim was to encourage and accelerate early clinical academic... Read More about Evidencing the long-term impact of a musculoskeletal allied health professionals and nurse research internship programme.

E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2023). E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models. Rheumatology, 62(Supplement_2), ii143. https://doi.org/10.1093/rheumatology/kead104.287

Background/Aims Systemic glucocorticoids are key in the management of life- and organ-threatening rheumatic diseases, but have wide-ranging adverse effects of concern to patients and clinicians. We aimed to validate a Patient Reported Outcome (PRO) m... Read More about E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models.

Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure (2023)
Journal Article
Bridgewater, S., Shepherd, M. A., Dawson, J., Richards, P., Silverthorne, C., Ndosi, M., …Robson, J. C. (2023). Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure. Rheumatology, 62(11), 3565–3575. https://doi.org/10.1093/rheumatology/kead081

OBJECTIVES: Glucocorticoids (GCs) ('steroids') are used to treat rheumatic diseases but adverse effects are common. We aimed to explore the impact of GC therapy on health-related quality of life (HRQoL), to inform the development of a treatment-speci... Read More about Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure.

Assessing glucocorticoid toxicity: Are the measures sensitive enough? (2023)
Journal Article
Robson, J. C., Dawson, J., & Ndosi, M. (2023). Assessing glucocorticoid toxicity: Are the measures sensitive enough?. The Lancet Rheumatology, 5(3), e113-e114. https://doi.org/10.1016/S2665-9913%2823%2900037-1

The Glucocorticoid Toxicity Index (GTI) is a composite instrument designed to capture change in glucocorticoid-related morbidity over time.1 It was developed through consensus methods and multi- criteria decisions among 19 medical specialists, with... Read More about Assessing glucocorticoid toxicity: Are the measures sensitive enough?.

Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study (2023)
Journal Article
Silverthorne, C., Daniels, J., Thompson, M., Robson, J. C., Ndosi, M., Swales, C., …Dures, E. (2023). Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study. Musculoskeletal Care, 21(2), 537-544. https://doi.org/10.1002/msc.1730

Background: Patients with inflammatory rheumatic diseases (IRDs) face challenges including pain, fatigue and disease flares. Evidence suggests their levels of anxiety and depression are higher compared to the general population. Rheumatology teams re... Read More about Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study.

Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake (2022)
Journal Article
Loza, E., Carmona, L., Woolf, A., Fautrel, B., Courvoisier, D. S., Verstappen, S., …Carrasco, J. M. (2022). Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake. Annals of the Rheumatic Diseases, 81, 1344-1347. https://doi.org/10.1136/ard-2022-223016

A clinical guideline is a document with the aim of guiding decisions based on evidence regarding diagnosis, management and treatment in specific areas of healthcare. Specific to rheumatic and musculoskeletal diseases (RMDs), adherence to clinical gui... Read More about Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake.

Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models (2022)
Journal Article
Cho, S. K., Kim, H., Song, Y., Nam, E., Jones, B., Ndosi, M., & Sung, Y. K. (2022). Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models. International Journal of Rheumatic Diseases, 25(11), 1270-1278. https://doi.org/10.1111/1756-185X.14419

Objectives: We conducted the cross-cultural adaptation and validation of the Leeds Satisfaction Questionnaire (LSQ) for patients with rheumatoid arthritis (RA) in Korea. Methods: The adaptation of the LSQ from English into Korean was based on guideli... Read More about Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models.

Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2022)
Journal Article
Dures, E., Bridgewater, S., Abbott, B., Adams, J., Berry, A., McCracken, L. M., …Ewings, P. (2022). Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study. BMJ Open, 12(7), e054627. https://doi.org/10.1136/bmjopen-2021-054627

OBJECTIVES: Patients with inflammatory arthritis report that fatigue is challenging to manage. We developed a manualised, one-to-one, cognitive-behavioural intervention, delivered by rheumatology health professionals (RHPs). The Fatigue - Reducing it... Read More about Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries (2022)
Journal Article
Bennett, S., Zangi, H. A., Larsson, I., Beauvais, C., Boström, C., Domján, A., …Ndosi, M. (2022). Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries. Annals of the Rheumatic Diseases, 81, 1348-1357. https://doi.org/10.1136/annrheumdis-2022-222253

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asi... Read More about Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries.

POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis (2022)
Conference Proceeding
Robson, J., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Guly, C., …Ndosi, M. (2022). POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis. . https://doi.org/10.1136/annrheumdis-2022-eular.1769

Background Giant cell arteritis (GCA) is caused by inflammation of the blood vessels of the head and neck; patients can present with cranial, ocular or large vessel vasculitis involvement. Treatment is with glucocorticoids, steroid sparing agents a... Read More about POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis.

P301 Patient reported outcome measure for giant cell arteritis: Clinical testing (2022)
Journal Article
Almeida, C., Guly, C., Mackie, S., Bromhead, A., Stern, S., Dures, E., …Robson, J. C. (2022). P301 Patient reported outcome measure for giant cell arteritis: Clinical testing. Rheumatology, 61(Supplement_1), Article keac133.300. https://doi.org/10.1093/rheumatology/keac133.300

Background/Aims Giant cell arteritis (GCA) presents in people over 50, with headaches, visual involvement and large vessel vasculitis. A 30-item GCA-specific patient reported outcome measure (GCA PRO) was developed and tested in a clinical setting t... Read More about P301 Patient reported outcome measure for giant cell arteritis: Clinical testing.

P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness (2022)
Journal Article
Hulley-Mills, J., Silverthorne, C., Jones, B., Hooper, J., Robson, J., Dures, E., …Ndosi, M. (2022). P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness. Rheumatology, 61(Supplement_1), https://doi.org/10.1093/rheumatology/keac133.288

Background/Aims Autoimmune rheumatic conditions are multisystem chronic disorders associated with increased psychological distress. Consequences include poor medication adherence and high levels of disease activity. Psychological interventions may r... Read More about P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness.

Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol (2022)
Journal Article
Leach, E., Ndosi, M., Ambler, H., Park, S., & Lewis, J. (2022). Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol. Musculoskeletal Care, 20(4), 731-741. https://doi.org/10.1002/msc.1629

Background: Chronic pain services in the United Kingdom are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by Minority Ethnic groups. This protocol describes a sco... Read More about Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol.

Correspondence on “Re-examining remission definitions in rheumatoid arthritis: considering the 28-Joint Disease Activity Score, C-reactive protein level and patient global assessment” by Felson et al. (2022)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Da Silva, J. A. P. (2023). Correspondence on “Re-examining remission definitions in rheumatoid arthritis: considering the 28-Joint Disease Activity Score, C-reactive protein level and patient global assessment” by Felson et al. Annals of the Rheumatic Diseases, 82(8), Article e183. https://doi.org/10.1136/annrheumdis-2021-221917

Correspondence on “Re‐examining remission definitions in rheumatoid arthritis: considering the 28‐Joint Disease Activity Score, C‐reactive protein level and patient global assessment” by Felson et al (2022)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Silva, J. A. P. (2022). Correspondence on “Re‐examining remission definitions in rheumatoid arthritis: considering the 28‐Joint Disease Activity Score, C‐reactive protein level and patient global assessment” by Felson et al. ACR Journal, 4(3), 271-272. https://doi.org/10.1002/acr2.11402

The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study—protocol for a pragmatic randomised controlled trial (2021)
Journal Article
Raunsbæk Knudsen, L., Lomborg, K., Ndosi, M., Hauge, E. M., & de Thurah, A. (2021). The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study—protocol for a pragmatic randomised controlled trial. BMC Rheumatology, 5(1), Article 57. https://doi.org/10.1186/s41927-021-00226-y

Background: Patient education is integral to the treatment and care of patients with rheumatoid arthritis. Change is taking place in the organisation of healthcare systems because of a demographic shift towards ageing populations, an increasing use o... Read More about The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study—protocol for a pragmatic randomised controlled trial.

Reexamining remission definitions in rheumatoid arthritis: Considering the Twenty-Eight–Joint Disease Activity Score, C-reactive protein level, and patient global assessment: Comment on the article by Felson et al (2021)
Journal Article
Ferreira, R. J., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Silva, J. A. P. (2022). Reexamining remission definitions in rheumatoid arthritis: Considering the Twenty-Eight–Joint Disease Activity Score, C-reactive protein level, and patient global assessment: Comment on the article by Felson et al. Arthritis Care and Research, 74(3), 501-502. https://doi.org/10.1002/acr.24843

Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study (2021)
Journal Article
Jones, B., Ndosi, M., Hunt, A., Harcourt, D., & Dures, E. (2021). Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study. Rheumatology Advances in Practice, 5(Supplement_2), ii35-ii44. https://doi.org/10.1093/rap/rkab053

Objectives Patient activation covers the skills, abilities and behaviour that impact how able and willing someone is to take an active role in self-managing their health. This study explored clinical and psychosocial factors associated with patient a... Read More about Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study.

A rare disease patient-reported outcome measure: revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) using the Rasch model (2021)
Journal Article
Kocher, A., Ndosi, M., Denhaerynck, K., Simon, M., Dwyer, A. A., Distler, O., …Nicca, D. (2021). A rare disease patient-reported outcome measure: revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) using the Rasch model. Orphanet Journal of Rare Diseases, 16, Article 356. https://doi.org/10.1186/s13023-021-01944-9

Background: Rare disease patient-reported outcome measures (PROMs) require linguistic adaptation to overcome the challenge of geographically dispersed patient populations. Importantly, PROMs such as health-related quality of life (HRQoL) should accur... Read More about A rare disease patient-reported outcome measure: revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) using the Rasch model.

AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases (2021)
Journal Article
Bridgewater, S., Dawson, J., Ndosi, M., Black, R. J., Cheah, J. T. L., Dures, E., …Robson, J. (2021). AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases. https://doi.org/10.1136/annrheumdis-2021-eular.164

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), Article keab246.025. https://doi.org/10.1093/rheumatology/keab246.025

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure (2021)
Journal Article
Robson, J. C., Almeida, C., Dawson, J., Bromhead, A., Dures, E., Guly, C., …Hill, C. (2021). Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure. Rheumatology, 60(10), 4671-4680. https://doi.org/10.1093/rheumatology/keab076

Objectives: GCA is a large vessel vasculitis (LVV) presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL-6 tocilizumab in refractory disease. The objective of this study w... Read More about Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (2021). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, 30(1-2), 145-160. https://doi.org/10.1111/jocn.15531

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis (2020)
Journal Article
Sung, Y. K., Kim, H., Cha, S. J., Kim, S. H., Ndosi, M., & Cho, S. K. (2021). Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis. Korean Journal of Internal Medicine, 36(4), 1014-1022. https://doi.org/10.3904/kjim.2019.422

Background/aims: This study was performed to undertake cross-cultural adaptation and validation of the Educational Needs Assessment Tool (ENAT) in rheumatoid arthritis (RA) for use in Korea. Methods: The study involved two main phases: cross-cultu... Read More about Developing the Korean Educational Needs Assessment Tool (Korean ENAT) in rheumatoid arthritis: Cross-cultural validation using Rasch analysis.

Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients (2020)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Jacobs, J. W. G., Gossec, L., Ndosi, M., Machado, P. M., …Da Silva, J. A. P. (2021). Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients. Annals of the Rheumatic Diseases, 80(3), 277-279. https://doi.org/10.1136/annrheumdis-2020-217171

Objectives: To determine the impact of excluding patient global assessment (PGA) from the American College of Rheumatology (ACR)/European League Against Rheumatism (EULAR) Boolean remission criteria, on prediction of radiographic and functional outco... Read More about Revisiting the use of remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual meta-analysis of 5792 patients.

Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs (2020)
Journal Article
Favero, M., Ometto, F., Salaffi, F., Belluzzi, E., Ortolan, A., Lorenzin, M., …Ramonda, R. (2020). Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs. Journal of Personalized Medicine, 10(4), 1-14. https://doi.org/10.3390/jpm10040150

The educational needs assessment tool (ENAT) is a seven-domain questionnaire assessing the educational needs (EN) of patients with rheumatoid arthritis (RA). The aim of this study was to validate the Italian version of the ENAT and to identify factor... Read More about Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs.

OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe (2020)
Journal Article
Bennett, S., Zangi, H. A., Van Tubergen, A., & Ndosi, M. (2020). OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe. Annals of the Rheumatic Diseases, 79(S1), 99--99. https://doi.org/10.1136/annrheumdis-2020-eular.3251

Background: EULAR recommendations for patient education for people with inflammatory arthritis (IA) were published in 2015.1 This is the first systematic dissemination and implementation study, reporting qualitative data identifying barriers to imple... Read More about OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe.

Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article
Austin, K., Robson, J. C., Shepherd, M., Harper, L., Ndosi, M., Flurey, C., …Dures, E. (2020). Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives. Rheumatology Advances in Practice, 4(2), Article rkaa016. https://doi.org/10.1093/rap/rkaa016

© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria (2020)
Journal Article
Hirsch, J. K., Toussaint, L., Offenbächer, M., Kohls, N., Hanshans, C., Vallejo, M., …Ndosi, M. (2020). Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria. Musculoskeletal Care, 18(3), 391-396. https://doi.org/10.1002/msc.1474

Introduction Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted g... Read More about Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria.

Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses (2019)
Journal Article
Ferreira, R. J., Santos, E. J., de Wit, M., Marques, A., Barbieri-Figueiredo, M. D. C., Marques, A., …Ndosi, M. (2020). Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses. Musculoskeletal Care, 18(1), 84-91. https://doi.org/10.1002/msc.1443

'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study (2019)
Journal Article
Ferreira, R. J. O., de Wit, M., Henriques, M., Pinto, A. F., Duarte, C., Mateus, E., …Ndosi, M. (2020). 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study. Rheumatology, 59(5), 1137-1147. https://doi.org/10.1093/rheumatology/kez467

OBJECTIVES: Patient global assessment (PGA) is purported to add the patient's perspective in the composite measures of RA. However, PGA is not standardized and it is not known whether patients' interpretation of the measure is consistent with its int... Read More about 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study.

Factors associated with quality of life in systemic sclerosis: a cross-sectional study (2019)
Journal Article
Sierakowska, M., Doroszkiewicz, H., Sierakowska, J., Olesińska, M., Grabowska-Jodkowska, A., Brzosko, M., …Ndosi, M. (2019). Factors associated with quality of life in systemic sclerosis: a cross-sectional study. Quality of Life Research, 28(12), 3347-3354. https://doi.org/10.1007/s11136-019-02284-9

© 2019, The Author(s). Introduction: Systemic sclerosis (SSc) is a connective tissue disease characterized by progressive fibrosis of the skin and internal organs, leading to their failure and disturbances in the morphology and function of blood vess... Read More about Factors associated with quality of life in systemic sclerosis: a cross-sectional study.

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology (2019)
Journal Article
Edelaar, L., Nikiphorou, E., Fragoulis, G. E., Iagnocco, A., Haines, C., Bakkers, M., …Vliet Vlieland, T. P. M. (2020). 2019 EULAR recommendations for the generic core competences of health professionals in rheumatology. Annals of the Rheumatic Diseases, 79(1), 53-60. https://doi.org/10.1136/annrheumdis-2019-215803

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. Background/objectives: To maintain and optimise the quality of care provided by health professionals in rheumatology (HPRs), adequate educati... Read More about 2019 EULAR recommendations for the generic core competences of health professionals in rheumatology.

Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study (2019)
Journal Article
Marques, M. L., Ferreira, R. J. O., Machado, P. M., Marques, A., da Silva, J. A. P., & Ndosi, M. (2020). Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study. Clinical and Experimental Rheumatology, 38(2), 282-288

Objective: To assess the educational needs of people with Ankylosing Spondylitis (AS) and Psoriatic Arthritis (PsA), test differences across patient subgroups and identify factors independently associated with their educational needs. Methods: Thi... Read More about Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study.

2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis (2019)
Journal Article
Bech, B., Primdahl, J., Van Tubergen, A., Voshaar, M., Zangi, H. A., Barbosa, L., …Van Eijk-Hustings, Y. (2020). 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis. Annals of the Rheumatic Diseases, 79(1), 61-68. https://doi.org/10.1136/annrheumdis-2019-215458

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory... Read More about 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.

THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study (2019)
Conference Proceeding
Jackson, L., Murray, N., Plummer, Z., Marshall, R., & Ndosi, M. (in press). THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study. In Health Professionals in Rheumatology Abstracts (648-648). https://doi.org/10.1136/annrheumdis-2019-eular.7638

Background: Patient education is an important part of the management of rheumatic and other diseases. Since patients do not have the same needs, it is crucial to assess needs of a targeted group to be able to tailor educational interventions. Obje... Read More about THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study.

Specialist nursing in rheumatology: The state of play (2019)
Report
Ndosi, M. (2019). Specialist nursing in rheumatology: The state of play. London: British Society for Rheumatology

Rheumatology nurse specialist-led care is effective and safe, and leads to higher patient satisfaction rates than in comparable services. Rheumatology nurse specialists are at the forefront of patient care; in addition to their clinical work, they pr... Read More about Specialist nursing in rheumatology: The state of play.

Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database (2019)
Journal Article
Ferreira, R. J. O., Carvalho, P. D., Ndosi, M., Duarte, C., Chopra, A., Murphy, E., …da Silva, J. A. P. (2019). Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database. Arthritis Care and Research, 71(10), 1317-1325. https://doi.org/10.1002/acr.23866

OBJECTIVE: There is an ongoing debate about excluding patient's global assessment (PtGA) from composite and Boolean-based definitions of rheumatoid arthritis (RA) remission. This study aimed at determining the influence of PtGA on RA disease states,... Read More about Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database.

The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models (2018)
Journal Article
Ferreira, R. J. O., Gossec, L., Duarte, C., Nicklin, J. K., Hewlett, S., da Silva, J. A. P., & Ndosi, M. (2018). The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models. Quality of Life Research, 27(11), 2909-2921. https://doi.org/10.1007/s11136-018-1959-4

© 2018, The Author(s). Purpose: The Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients’ understanding of the Portuguese RAID and evaluate its cross-cultu... Read More about The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models.

International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group (2018)
Journal Article
Oude Voshaar, M. A., Das Gupta, Z., Bijlsma, J. W., Boonen, A., Chau, J., Courvoisier, D. S., …Vonkeman, H. E. (2019). International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group. Arthritis Care and Research, 71(12), 1556-1565. https://doi.org/10.1002/acr.23799

© 2018, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology. Objective: The implementation of value-based health care in inflammatory arthritis requires a standardized set of mod... Read More about International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group.

Dual target strategy: a proposal to mitigate the risk of overtreatment and enhance patient satisfaction in rheumatoid arthritis (2018)
Journal Article
Ferreira, R. J. O., Ndosi, M., de Wit, M., Santos, E. J. F., Duarte, C., Jacobs, J. W. G., …da Silva, J. A. P. (2019). Dual target strategy: a proposal to mitigate the risk of overtreatment and enhance patient satisfaction in rheumatoid arthritis. Annals of the Rheumatic Diseases, 78(10), e109. https://doi.org/10.1136/annrheumdis-2018-214199

Commentary - abstract not available.

Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study (2018)
Journal Article
Sierakowska, M., Sierakowski, S., Sierakowska, J., Krajewska-Kułak, E., & Ndosi, M. (2018). Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study. Rheumatology International, 38(8), 1471-1478. https://doi.org/10.1007/s00296-018-3998-0

© 2018, The Author(s). In the process of the planned and systematic education of patients/families, it is extremely important to identify patients’ health problems as well as their needs and expectations. The objective of this study was to determine... Read More about Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study.

Cross-cultural validation of the educational needs assessment tool into Chinese for use in severe knee osteoarthritis (2018)
Journal Article
Zhao, H., Dong, Z., Xie, F., Wang, G., Wen, Z., Zhang, L., …Luo, W. (2018). Cross-cultural validation of the educational needs assessment tool into Chinese for use in severe knee osteoarthritis. Patient Preference and Adherence, 12(12), 695-705. https://doi.org/10.2147/PPA.S163492

© 2018 Zhao et al. Background: Patient education is an integral part of the management of osteoarthritis. The educational needs assessment tool (ENAT) was developed in the UK to help direct needs-based patient education in rheumatic diseases. Aim: Th... Read More about Cross-cultural validation of the educational needs assessment tool into Chinese for use in severe knee osteoarthritis.

Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review (2018)
Journal Article
Fishpool, K., Jones, B., Hewlett, S., & Ndosi, M. (2018). Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review. Rheumatology, 57(Supp), https://doi.org/10.1093/rheumatology/key075.501

Psychological distress in rheumatoid arthritis (RA) is significantly higher than the general population and impacts disease activity and treatment outcomes. Online interventions have the potential to reach large numbers of patients. This study aimed... Read More about Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review.

Influence of the different “patient global assessment” formulations on disease activity score by different indices in rheumatoid arthritis (2018)
Journal Article
Ferreira, R. J., Eugénio, G., Ndosi, M., Silva, C., Medeiros, C., Duarte, C., & da Silva, J. A. (2018). Influence of the different “patient global assessment” formulations on disease activity score by different indices in rheumatoid arthritis. Clinical Rheumatology, 37(7), 1963-1969. https://doi.org/10.1007/s10067-018-4063-9

© 2018, International League of Associations for Rheumatology (ILAR). Patient global assessment (PGA) is included in almost all rheumatoid arthritis (RA) composite disease activity indices and definitions of remission. However, different PGA formulat... Read More about Influence of the different “patient global assessment” formulations on disease activity score by different indices in rheumatoid arthritis.

Common measure of quality of life for people with systemic sclerosis across seven European countries: A cross-sectional study (2018)
Journal Article
Ndosi, M., Alcacer-Pitarch, B., Allanore, Y., Del galdo, F., Frerix, M., Garcia-Diaz, S., …Redmond, A. (2018). Common measure of quality of life for people with systemic sclerosis across seven European countries: A cross-sectional study. Annals of the Rheumatic Diseases, 77(7), 1032-1038. https://doi.org/10.1136/annrheumdis-2017-212412

© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. Objectives the aim of this study was to adapt the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into six European... Read More about Common measure of quality of life for people with systemic sclerosis across seven European countries: A cross-sectional study.

The educational needs of patients with undifferentiated spondyloarthritis: Validation of the ENAT questionnaire and needs assessment (2018)
Journal Article
Bremander, A., Haglund, E., Bergman, S., & Ndosi, M. (2018). The educational needs of patients with undifferentiated spondyloarthritis: Validation of the ENAT questionnaire and needs assessment. Musculoskeletal Care, 16(2), 313-317. https://doi.org/10.1002/msc.1231

Copyright © 2018 John Wiley & Sons, Ltd. Objectives: The aim of the present study was to validate the Swedish version of the educational needs assessment tool (SwENAT) in undifferentiated spondyloarthritis (USpA) and use it to study the educationa... Read More about The educational needs of patients with undifferentiated spondyloarthritis: Validation of the ENAT questionnaire and needs assessment.

The impact of patient global assessment in the definition of remission as a predictor of long-term radiographic damage in patients with rheumatoid arthritis: protocol for an individual patient data meta-analysis (2018)
Journal Article
Ferreira, R. J. O., Welsing, P. M. J., Gossec, L., Jacobs, J. W. G., Machado, P. M., Ndosi, M., …da Silva, J. A. P. (2018). The impact of patient global assessment in the definition of remission as a predictor of long-term radiographic damage in patients with rheumatoid arthritis: protocol for an individual patient data meta-analysis. Acta Reumatologica Portuguesa, 43(1), 52-60

BACKGROUND: Remission is the target for management of rheumatoid arthritis (RA) and intensification of immunosuppressive therapy is recommended for those that do not achieve this status. Patient global assessment (PGA) is the single patient reported... Read More about The impact of patient global assessment in the definition of remission as a predictor of long-term radiographic damage in patients with rheumatoid arthritis: protocol for an individual patient data meta-analysis.

Prognosis of the infected diabetic foot ulcer: a 12-month prospective observational study (2017)
Journal Article
Ndosi, M., Wright-Hughes, A., Brown, S., Backhouse, M., Lipsky, B. A., Bhogal, M., …Nelson, E. A. (2018). Prognosis of the infected diabetic foot ulcer: a 12-month prospective observational study. Diabetic Medicine, 35(1), 78-88. https://doi.org/10.1111/dme.13537

© 2017 The Authors. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK Aims: To determine clinical outcomes and explore prognostic factors related to ulcer healing in people with a clinically infected diabetic foot ulcer.... Read More about Prognosis of the infected diabetic foot ulcer: a 12-month prospective observational study.

Nursing sensitive outcomes in patients with rheumatoid arthritis: A systematic literature review (2017)
Journal Article
van Eijk Hustings, Y., Minnock, P., McKee, G., Kelly, A., Carter, S. C., Menzies, V., …Ndosi, M. (2018). Nursing sensitive outcomes in patients with rheumatoid arthritis: A systematic literature review. International Journal of Nursing Studies, 77, 115-129. https://doi.org/10.1016/j.ijnurstu.2017.09.005

© 2017 Elsevier Ltd Background Although rheumatology nursing has been shown to be effective in managing patients with rheumatoid arthritis, patient outcomes sensitive to nursing interventions (nursing sensitive outcomes) have not been systematically... Read More about Nursing sensitive outcomes in patients with rheumatoid arthritis: A systematic literature review.

Developing the Korean Leeds Satisfaction Questionnaire (Korean-LSQ) in rheumatoid arthritis: A cross-cultural validation using Rasch analysis (2017)
Presentation / Conference
Cho, S., Kim, D., Cha, S., Yoo, D., Kim, S., Hill, J., …Sung, Y. (2017, June). Developing the Korean Leeds Satisfaction Questionnaire (Korean-LSQ) in rheumatoid arthritis: A cross-cultural validation using Rasch analysis. Poster presented at EULAR Congress, Madrid

Background: The Educational Needs Assessment Tool (ENAT) is a 39-item patient-completed questionnaire designed to help patients identify and prioritize their educational needs. It was originally developed in the UK and validated in 7 rheumatic diseas... Read More about Developing the Korean Leeds Satisfaction Questionnaire (Korean-LSQ) in rheumatoid arthritis: A cross-cultural validation using Rasch analysis.

It can't be zero: A qualitative study of patients' perspective on patient global assessment in rheumatoid arthritis (2017)
Presentation / Conference
Henriques, M., Duarte, C., Ndosi, M., Marques, A., da Silva, J., & Ferreira, R. (2017, June). It can't be zero: A qualitative study of patients' perspective on patient global assessment in rheumatoid arthritis. Presented at EULAR Congress, Madrid, Spain

Background: Patient Global Assessment (PGA) plays an important role in disease activity assessment and treatment decisions in rheumatoid arthritis (RA). However, the meaning of PGA is open to patient interpretation and this may affect the validity an... Read More about It can't be zero: A qualitative study of patients' perspective on patient global assessment in rheumatoid arthritis.

Developing the Korean educational needs assessment tool (Korean-ENAT) in rheumatoid arthritis: A cross-cultural validation using Rasch analysis (2017)
Presentation / Conference
Kim, D., Cha, S., Yoo, D., Kim, S., Ndosi, M., & Cho, S. (2017, June). Developing the Korean educational needs assessment tool (Korean-ENAT) in rheumatoid arthritis: A cross-cultural validation using Rasch analysis. Poster presented at EULAR Congress, Madrid, Spain

Background The Educational Needs Assessment Tool (ENAT) is a 39-item patient-completed questionnaire designed to help patients identify and prioritise their educational needs. It was originally developed in the UK and validated in 7 rheumatic diseas... Read More about Developing the Korean educational needs assessment tool (Korean-ENAT) in rheumatoid arthritis: A cross-cultural validation using Rasch analysis.

National variation in the composition of rheumatology multidisciplinary teams: a cross-sectional study (2017)
Journal Article
Backhouse, M. R., Ndosi, M., Ferguson, R., Bearne, L., Ainsworth, P., Roach, A., …Cherry, L. (2017). National variation in the composition of rheumatology multidisciplinary teams: a cross-sectional study. Rheumatology International, 37(9), 1453-1459. https://doi.org/10.1007/s00296-017-3751-0

© 2017, The Author(s). The objective of this study is to describe the composition of multidisciplinary teams (MDT) working within rheumatology departments across the UK. All rheumatology departments in the United Kingdom (UK) were invited to particip... Read More about National variation in the composition of rheumatology multidisciplinary teams: a cross-sectional study.

Suppressing Inflammation in Rheumatoid Arthritis: Does Patient Global Assessment Blur the Target? A Practice-Based Call for a Paradigm Change (2017)
Journal Article
da Silva, J. A., Ferreira, R. J., Duarte, C., Ndosi, M., de Wit, M., & Gossec, L. (2018). Suppressing Inflammation in Rheumatoid Arthritis: Does Patient Global Assessment Blur the Target? A Practice-Based Call for a Paradigm Change. Arthritis Care and Research, 70(3), 369-378. https://doi.org/10.1002/acr.23284

© 2017, American College of Rheumatology Objective: In current management paradigms of rheumatoid arthritis (RA), patient global assessment (PGA) is crucial to decide whether a patient has attained remission (target) or needs reinforced therapy. We i... Read More about Suppressing Inflammation in Rheumatoid Arthritis: Does Patient Global Assessment Blur the Target? A Practice-Based Call for a Paradigm Change.

Influence of patient global assessment on the disease activity assessment in patients with rheumatoid arthritis: A meteor cross-sectional study (2017)
Journal Article
Ferreira, R., Ndosi, M., Duarte, C., Carvalho, P., Chopra, A., Salomon-Escoto, K., …Van Der Heijde, P. A. D. S. (2017). Influence of patient global assessment on the disease activity assessment in patients with rheumatoid arthritis: A meteor cross-sectional study. Annals of the Rheumatic Diseases, 76(2), 1510-1510. https://doi.org/10.1136/annrheumdis-2017-eular.4695

Background Disease activity indices (DAI) are used to guide immunosuppressive therapy in rheumatoid arthritis (RA). The inclusion of patient global assessment (PGA) in these indices has been questioned as it conveys mainly disease impact rather tha... Read More about Influence of patient global assessment on the disease activity assessment in patients with rheumatoid arthritis: A meteor cross-sectional study.

Concordance in diabetic foot ulceration: A cross-sectional study of agreement between wound swabbing and tissue sampling in infected ulcers (2016)
Journal Article
Nelson, E. A., Wright-Hughes, A., Brown, S., Lipsky, B. A., Backhouse, M., Bhogal, M., …Nixon, J. (2016). Concordance in diabetic foot ulceration: A cross-sectional study of agreement between wound swabbing and tissue sampling in infected ulcers. Health Technology Assessment, 20(82), 1-175. https://doi.org/10.3310/hta20820

© Queen’s Printer and Controller of HMSO 2016. Background: There is inadequate evidence to advise clinicians on the relative merits of swabbing versus tissue sampling of infected diabetic foot ulcers (DFUs). Objectives: To determine (1) concordance b... Read More about Concordance in diabetic foot ulceration: A cross-sectional study of agreement between wound swabbing and tissue sampling in infected ulcers.

Combining nurse-led care with patient self-assessment could enhance tight control of rheumatoid arthritis and management of comorbidities (2016)
Journal Article
Ndosi, M. (2016). Combining nurse-led care with patient self-assessment could enhance tight control of rheumatoid arthritis and management of comorbidities. Evidence-Based Nursing, 19(3), 85-86. https://doi.org/10.1136/eb-2015-102262

Implications for practice and research Patient self-monitoring of disease activity can improve tight control of rheumatoid arthritis (RA). Nurse-led care can be used in the monitoring and management of comorbidities associated with RA. Furth... Read More about Combining nurse-led care with patient self-assessment could enhance tight control of rheumatoid arthritis and management of comorbidities.

The educational needs of people with spondyloarthropathies (AS and PSA): A cross-sectional study (2016)
Presentation / Conference
Marques, M., Ferreira, R., Santiago, M., Marques, A., Machado, P., da Silva, J., & Ndosi, M. (2016, June). The educational needs of people with spondyloarthropathies (AS and PSA): A cross-sectional study. Paper presented at Annual European Congress of Rheumatology, London, England

Abstract available online: http://dx.doi.org/10.1136/annrheumdis-2016-eular.2449

Effects of needs-based patient education on self-efficacy and health outcomes in people with rheumatoid arthritis: A multicentre, single blind, randomised controlled trial (2016)
Journal Article
Ndosi, M., Johnson, D., Young, T., Hardware, B., Hill, J., Hale, C., …Adebajo, A. (2016). Effects of needs-based patient education on self-efficacy and health outcomes in people with rheumatoid arthritis: A multicentre, single blind, randomised controlled trial. Annals of the Rheumatic Diseases, 75(6), 1126-1132. https://doi.org/10.1136/annrheumdis-2014-207171

Objectives The Educational Needs Assessment Tool (ENAT) is a self-completed questionnaire, which allows patients with arthritis to prioritise their educational needs. The aim of this study was to evaluate the effects of needs-based patient education... Read More about Effects of needs-based patient education on self-efficacy and health outcomes in people with rheumatoid arthritis: A multicentre, single blind, randomised controlled trial.

PROMs and patient education (2016)
Book Chapter
Palmer, D., & Ndosi, M. (2016). PROMs and patient education. In Y. El Miedany (Ed.), Patient Reported Outcome Measures in Rheumatic Diseases (389-403). Springer International Publishing. https://doi.org/10.1007/978-3-319-32851-5_16

© 2016 Springer International Publishing Switzerland. Patient education is a core activity in the management of inflammatory arthritic conditions. However, it may be challenging to decide which educational approach is most appropriate to fit with the... Read More about PROMs and patient education.

Assessment of education requirements for patients with rheumatoid arthritis, based on the Polish version of the Educational Needs Assessment Tool (Pol-ENAT), in the light of some health problems – A cross-sectional study (2016)
Journal Article
Sierakowska, M., Klepacka, M., Sierakowski, S., Pawlak-Buś, K., Leszczyński, P., Majdan, M., …Krajewska-Kułak, E. (2016). Assessment of education requirements for patients with rheumatoid arthritis, based on the Polish version of the Educational Needs Assessment Tool (Pol-ENAT), in the light of some health problems – A cross-sectional study. Annals of Agricultural and Environmental Medicine, 23(2), 361-367. https://doi.org/10.5604/12321966.1203906

© 2016, Institute of Agricultural Medicine. All rights reserved. Introduction. Patients with chronic rheumatoid arthritis (RA) need advice in order to face the problems of everyday life, as well as suffering associated with the disease. Health profes... Read More about Assessment of education requirements for patients with rheumatoid arthritis, based on the Polish version of the Educational Needs Assessment Tool (Pol-ENAT), in the light of some health problems – A cross-sectional study.

Nurses’ Role in Cardiovascular Risk Assessment and Management in People with Inflammatory Arthritis: A European Perspective (2015)
Journal Article
Ferreira, R. J., Primdahl, J., Ferreira, R. J. O., Garcia-Diaz, S., Ndosi, M., Palmer, D., & van Eijk-Hustings, Y. (2016). Nurses’ Role in Cardiovascular Risk Assessment and Management in People with Inflammatory Arthritis: A European Perspective. Musculoskeletal Care, 14(3), 133-151. https://doi.org/10.1002/msc.1121

Copyright © 2015 John Wiley & Sons, Ltd. Introduction: Cardiovascular risk (CVR) assessment and management in patients with inflammatory arthritis (IA) is recommended but European nurses’ involvement in this role has not been well studied. Aim: The... Read More about Nurses’ Role in Cardiovascular Risk Assessment and Management in People with Inflammatory Arthritis: A European Perspective.

Patient education in rheumatoid arthritis: is the needs-based approach the way forward? (2015)
Journal Article
Ndosi, M., & Adebajo, A. (2015). Patient education in rheumatoid arthritis: is the needs-based approach the way forward?. Clinical Rheumatology, 34(11), 1827-1829. https://doi.org/10.1007/s10067-015-3063-2

In recent years, the assessment of patients’ needs has become an important area of research for several reasons; expenditure on healthcare has risen faster than the cost increases reported in other sectors of the economy, and medical advances and dem... Read More about Patient education in rheumatoid arthritis: is the needs-based approach the way forward?.

The educational needs of people with systemic sclerosis: a cross-sectional study using the Dutch version of the Educational Needs Assessment Tool (D-ENAT) (2015)
Journal Article
Meesters, J. J., Vliet Vlieland, T. P., Schouffoer, A., Ndosi, M. E., Vliet Vlieland, T. P. M., & Meesters, J. J. L. (2016). The educational needs of people with systemic sclerosis: a cross-sectional study using the Dutch version of the Educational Needs Assessment Tool (D-ENAT). Rheumatology International, 36(2), 289-294. https://doi.org/10.1007/s00296-015-3352-8

© 2015, The Author(s). The Dutch Educational Needs Assessment Tool (D-ENAT) systematically assesses educational needs of patients with rheumatic diseases. The present study aims to describe the educational needs of Dutch patients with systemic sclero... Read More about The educational needs of people with systemic sclerosis: a cross-sectional study using the Dutch version of the Educational Needs Assessment Tool (D-ENAT).

EULAR recommendations for patient education for people with inflammatory arthritis (2015)
Journal Article
Zangi, H. A., Ndosi, M., Adams, J., Andersen, L., Bode, C., Boström, C., …Van Tubergen, A. (2015). EULAR recommendations for patient education for people with inflammatory arthritis. Annals of the Rheumatic Diseases, 74(6), 954-962. https://doi.org/10.1136/annrheumdis-2014-206807

© 2015, BMJ Publishing Group. All rights reserved. Objectives: The task force aimed to: (1) develop evidence-based recommendations for patient education (PE) for people with inflammatory arthritis, (2) identify the need for further research on PE and... Read More about EULAR recommendations for patient education for people with inflammatory arthritis.

AB1213-HPR Nurse Sensitive Outcomes in Patients with Rheumatoid Arthritis (RA) – a Systematic Literature Review (2015)
Journal Article
Kelly, A., McKee, G., van Eijk-Hustings, Y., Ndosi, M., O'Sullivan, D., Menzies, V., …Minnock, P. (2015). AB1213-HPR Nurse Sensitive Outcomes in Patients with Rheumatoid Arthritis (RA) – a Systematic Literature Review. Annals of the Rheumatic Diseases, 74(Suppl), 1340.2-1340. https://doi.org/10.1136/annrheumdis-2015-eular.4837

Background Rheumatology nursing is a practice specialty and contributes significantly to the management of patients with rheumatic musculoskeletal diseases (1, 2). Rheumatology nursing role development follows a worldwide tendency among healthcare pr... Read More about AB1213-HPR Nurse Sensitive Outcomes in Patients with Rheumatoid Arthritis (RA) – a Systematic Literature Review.

Cross-cultural validation of the Portuguese version of the educational needs assessment tool (PORTENAT) (2015)
Journal Article
Cruz, A., Machado, P., Hill, J., Campos, M., Apóstolo, J., Marques, A., …Ndosi, M. (2015). Cross-cultural validation of the Portuguese version of the educational needs assessment tool (PORTENAT). Acta Reumatologica Portuguesa, 2015(3), 242-253

Objectives: To undertake a cross-cultural adaptation and validation of the educational needs assessment tool (ENAT) into Portuguese. Methods: The first phase of this research (cross-cultural adaptation) utilised a well-established translation method... Read More about Cross-cultural validation of the Portuguese version of the educational needs assessment tool (PORTENAT).

Rehabilitation provided to patients with rheumatoid arthritis: A comparison of three different rheumatology clinics in Austria, Sweden and the UK from the perspectives of patients and health professionals (2015)
Journal Article
Prodinger, B., Ndosi, M., Nordenskiöld, U., Stamm, T., Persson, G., Andreasson, I., & Lundgren-Nilsson, Å. (2015). Rehabilitation provided to patients with rheumatoid arthritis: A comparison of three different rheumatology clinics in Austria, Sweden and the UK from the perspectives of patients and health professionals. Journal of Rehabilitation Medicine, 47(2), 174-182. https://doi.org/10.2340/16501977-1914

© 2015 The Authors. © 2015 Foundation of Rehabilitation Information. Objective: To explore patients' and health professionals' views of outpatient rehabilitation services for patients with rheumatoid arthritis in 3 different rheumatology sites across... Read More about Rehabilitation provided to patients with rheumatoid arthritis: A comparison of three different rheumatology clinics in Austria, Sweden and the UK from the perspectives of patients and health professionals.

Patients and nursing staff views of using the education needs assessment tool in rheumatology clinics: A qualitative study (2014)
Journal Article
Hardware, B., Johnson, D., Hale, C., Ndosi, M., & Adebajo, A. (2015). Patients and nursing staff views of using the education needs assessment tool in rheumatology clinics: A qualitative study. Journal of Clinical Nursing, 24(7-8), 1048-1058. https://doi.org/10.1111/jocn.12733

© 2014 John Wiley & Sons Ltd. Aims and objectives: To evaluate the usability of the educational needs assessment tool in clinical practice, from a practitioner and patient perspective and to establish whether patients perceive that they are getting... Read More about Patients and nursing staff views of using the education needs assessment tool in rheumatology clinics: A qualitative study.

Validation of the educational needs assessment tool as a generic instrument for rheumatic diseases in seven European countries (2014)
Journal Article
Zangi, H. A., Vliet Vlieland, T. P., Stamm, T. A., Ndosi, M., Bremander, A., Hamnes, B., …Hill, J. (2014). Validation of the educational needs assessment tool as a generic instrument for rheumatic diseases in seven European countries. Annals of the Rheumatic Diseases, 73(12), 2122-2129. https://doi.org/10.1136/annrheumdis-2013-203461

© 2014, BMJ Publishing Group. All rights reserved. Objectives: To validate the educational needs assessment tool (ENAT) as a generic tool for assessing the educational needs of patients with rheumatic diseases in European Countries. Methods: A conven... Read More about Validation of the educational needs assessment tool as a generic instrument for rheumatic diseases in seven European countries.

The outcome and cost-effectiveness of nurse-led care in people with rheumatoid arthritis: A multicentre randomised controlled trial (2014)
Journal Article
Ndosi, M., Lewis, M., Hale, C., Quinn, H., Ryan, S., Emery, P., …Hill, J. (2014). The outcome and cost-effectiveness of nurse-led care in people with rheumatoid arthritis: A multicentre randomised controlled trial. Annals of the Rheumatic Diseases, 73(11), 1975-1982. https://doi.org/10.1136/annrheumdis-2013-203403

Objective To determine the clinical effectiveness and cost-effectiveness of nurse-led care (NLC) for people with rheumatoid arthritis (RA).Methods In a multicentre pragmatic randomised controlled trial, the assessment of clinical effects followed a n... Read More about The outcome and cost-effectiveness of nurse-led care in people with rheumatoid arthritis: A multicentre randomised controlled trial.

Developing the Polish Educational Needs Assessment Tool (Pol-ENAT) in rheumatoid arthritis and systemic sclerosis: a cross-cultural validation study using Rasch analysis (2014)
Journal Article
Sierakowska, M., Sierakowski, S., Sierakowska, J., Horton, M., & Ndosi, M. (2015). Developing the Polish Educational Needs Assessment Tool (Pol-ENAT) in rheumatoid arthritis and systemic sclerosis: a cross-cultural validation study using Rasch analysis. Quality of Life Research, 24(3), 721-733. https://doi.org/10.1007/s11136-014-0805-6

© 2014, The Author(s). Objectives: To undertake cross-cultural adaptation and validation of the educational needs assessment tool (ENAT) for use with people with rheumatoid arthritis (RA) and systemic sclerosis (SSc) in Poland.Methods: The study invo... Read More about Developing the Polish Educational Needs Assessment Tool (Pol-ENAT) in rheumatoid arthritis and systemic sclerosis: a cross-cultural validation study using Rasch analysis.

Dissemination and evaluation of the European League Against Rheumatism recommendations for the role of the nurse in the management of chronic inflammatory arthritis: Results of a multinational survey among nurses rheumatologists and patients (2014)
Journal Article
Tubergen, A. V., Torre-Aboki, J. D. L., van Eijk-Hustings, Y., Ndosi, M., Buss, B., Fayet, F., …van Tubergen, A. (2014). Dissemination and evaluation of the European League Against Rheumatism recommendations for the role of the nurse in the management of chronic inflammatory arthritis: Results of a multinational survey among nurses rheumatologists and patients. Rheumatology, 53(8), 1491-1496. https://doi.org/10.1093/rheumatology/keu134

Objectives. The aims of this study were to disseminate, assess agreement with, assess the application of and identify potential barriers for implementation of the European League Against Rheumatism (EULAR) recommendations for the role of nurses in th... Read More about Dissemination and evaluation of the European League Against Rheumatism recommendations for the role of the nurse in the management of chronic inflammatory arthritis: Results of a multinational survey among nurses rheumatologists and patients.

Measuring educational needs among patients with systemic lupus erythematosus (SLE) using the Dutch version of the Educational Needs Assessment Tool (D-ENAT) (2014)
Journal Article
Meesters, J. J., Vlieland, T. P., Zirkzee, E. J., Zirkzee, E. J. M., Ndosi, M. E., Vliet Vlieland, T. P. M., & Meesters, J. J. L. (2014). Measuring educational needs among patients with systemic lupus erythematosus (SLE) using the Dutch version of the Educational Needs Assessment Tool (D-ENAT). Lupus, 23(13), 1370-1376. https://doi.org/10.1177/0961203314544188

© The Author(s) 2014 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav. Methods: The D-ENAT was sent to a random sample of 244 SLE patients registered at the outpatient clinic of a university hospital. D-ENAT consists of 39 items in sev... Read More about Measuring educational needs among patients with systemic lupus erythematosus (SLE) using the Dutch version of the Educational Needs Assessment Tool (D-ENAT).

Patient education, disease activity and physical function: Can we be more targeted? A cross sectional study among people with rheumatoid arthritis, psoriatic arthritis and hand osteoarthritis (2013)
Journal Article
Stamm, T. A., Drǎgoi, R. G., Drăgoi, R. G., Ndosi, M., Sadlonova, M., Hill, J., …Stamm, T. A. (2013). Patient education, disease activity and physical function: Can we be more targeted? A cross sectional study among people with rheumatoid arthritis, psoriatic arthritis and hand osteoarthritis. Arthritis Research and Therapy, 15(5), R156. https://doi.org/10.1186/ar4339

Introduction: In order to target educational needs of patients more effectively, an Austrian-German educational needs assessment tool (OENAT) was developed, the educational needs of patients with rheumatoid arthritis (RA), psoriatic arthritis (PsA) a... Read More about Patient education, disease activity and physical function: Can we be more targeted? A cross sectional study among people with rheumatoid arthritis, psoriatic arthritis and hand osteoarthritis.

Cross-cultural adaptation and validation of the Manchester Foot Pain and Disability Index into Spanish (2013)
Journal Article
Gijon-Nogueron, G., Ndosi, M., Luque-Suarez, A., Alcacer-Pitarch, B., Munuera, P. V., Garrow, A., & Redmond, A. C. (2014). Cross-cultural adaptation and validation of the Manchester Foot Pain and Disability Index into Spanish. Quality of Life Research, 23(2), 571-579. https://doi.org/10.1007/s11136-013-0507-5

Purpose: The Manchester Foot Pain and Disability Index (MFPDI) is a self-assessment 19-item questionnaire developed in the UK to measure foot pain and disability. This study aimed at conducting cross-cultural adaptation and validation of the MFPDI fo... Read More about Cross-cultural adaptation and validation of the Manchester Foot Pain and Disability Index into Spanish.

A randomised, controlled study of outcome and cost effectiveness for RA patients attending nurse-led rheumatology clinics: Study protocol of an ongoing nationwide multi-centre study (2011)
Journal Article
Ndosi, M., Lewis, M., Hale, C., Quinn, H., Ryan, S., Emery, P., …Hill, J. (2011). A randomised, controlled study of outcome and cost effectiveness for RA patients attending nurse-led rheumatology clinics: Study protocol of an ongoing nationwide multi-centre study. International Journal of Nursing Studies, 48(8), 995-1001. https://doi.org/10.1016/j.ijnurstu.2011.01.010

Background: The rise in the number of patients with arthritis coupled with understaffing of medical services has seen the deployment of Clinical Nurse Specialists in running nurse-led clinics alongside the rheumatologist clinics. There are no systema... Read More about A randomised, controlled study of outcome and cost effectiveness for RA patients attending nurse-led rheumatology clinics: Study protocol of an ongoing nationwide multi-centre study.

Cross-cultural validation of the Educational Needs Assessment Tool in RA in 7 European countries (2011)
Journal Article
Zangi, H. A., Vliet Vlieland, T. P., Ndosi, M., Tennant, A., Bergsten, U., Kukkurainen, M. L., …Hill, J. (2011). Cross-cultural validation of the Educational Needs Assessment Tool in RA in 7 European countries. BMC Musculoskeletal Disorders, 12(1), https://doi.org/10.1186/1471-2474-12-110

Background: The Educational Needs Assessment Tool (the ENAT) is a 39-item patient questionnaire originally developed in the UK to assess educational needs of patients with rheumatoid arthritis (RA). The objective of this study was to assess the cross... Read More about Cross-cultural validation of the Educational Needs Assessment Tool in RA in 7 European countries.

The effectiveness of nurse-led care in people with rheumatoid arthritis: A systematic review (2011)
Journal Article
Ndosi, M., Vinall, K., Hale, C., Bird, H., & Hill, J. (2011). The effectiveness of nurse-led care in people with rheumatoid arthritis: A systematic review. International Journal of Nursing Studies, 48(5), 642-654. https://doi.org/10.1016/j.ijnurstu.2011.02.007

Objectives: The objective of this systematic review was to determine the effectiveness of nurse-led care in rheumatoid arthritis. Design: Systematic review of effectiveness. Data sources: Electronic databases (AMED, CENTRAL, CINAHL, EMBASE, HMIC, HTA... Read More about The effectiveness of nurse-led care in people with rheumatoid arthritis: A systematic review.

Erratum: Measuring educational needs among patients with rheumatoid arthritis using the Dutch version of the Educational Needs Assessment Tool (DENAT) (Clinical Rheumatology 10.1007/s10067-009-1190-3) (2009)
Journal Article
Meesters, J. J. L., Vliet Vlieland, T. P. M., Hill, J., & Ndosi, M. E. (2009). Erratum: Measuring educational needs among patients with rheumatoid arthritis using the Dutch version of the Educational Needs Assessment Tool (DENAT) (Clinical Rheumatology 10.1007/s10067-009-1190-3). Clinical Rheumatology, 28(11), 1357. https://doi.org/10.1007/s10067-009-1271-3

Response to Watson R (2009) commentary on Ndosi M & Newell R (2009) nurses' knowledge of pharmacology behind drugs they commonly administer. Journal of clinical nursing 18, 570-580 in journal of clinical nursing 18, 620 (2009)
Journal Article
Newell, R. J., & Ndosi, M. E. (2009). Response to Watson R (2009) commentary on Ndosi M & Newell R (2009) nurses' knowledge of pharmacology behind drugs they commonly administer. Journal of clinical nursing 18, 570-580 in journal of clinical nursing 18, 620. Journal of Clinical Nursing, 18(14), 2112. https://doi.org/10.1111/j.1365-2702.2009.02788.x

Editorial - no abstract

Measuring educational needs among patients with rheumatoid arthritis using the Dutch version of the Educational Needs Assessment Tool (DENAT). (2009)
Journal Article
Vliet Vlieland, T. P., Meesters, J. J., Meesters, J. J. L., Vliet Vlieland, T. P. M., Hill, J., & Ndosi, M. E. (2009). Measuring educational needs among patients with rheumatoid arthritis using the Dutch version of the Educational Needs Assessment Tool (DENAT). Clinical Rheumatology, 28(9), 1073-1077. https://doi.org/10.1007/s10067-009-1190-3

The Educational Needs Assessment Tool (ENAT) was developed in the United Kingdom (UK) to systematically assess the educational needs of patients with arthritis. The aim of the present study was to describe the educational needs of Dutch patients with... Read More about Measuring educational needs among patients with rheumatoid arthritis using the Dutch version of the Educational Needs Assessment Tool (DENAT)..

Nurses' knowledge of pharmacology behind drugs they commonly administer (2008)
Journal Article
Ndosi, M. E., & Newell, R. (2009). Nurses' knowledge of pharmacology behind drugs they commonly administer. Journal of Clinical Nursing, 18(4), 570-580. https://doi.org/10.1111/j.1365-2702.2008.02290.x

Aim. To determine if nurses had adequate pharmacology knowledge of the drugs they commonly administer. Background. Literature suggests that nurses have insufficient pharmacology knowledge. We also know that nurses and teachers of pharmacology are not... Read More about Nurses' knowledge of pharmacology behind drugs they commonly administer.