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Outputs (338)

“We should educate the public that cosmetic procedures are as safe as normal medicine”: Understanding corporate social responsibility from the perspective of the cosmetic procedures industry (2022)
Journal Article
Craddock, N., Spotswood, F., Rumsey, N., & Diedrichs, P. C. (2022). “We should educate the public that cosmetic procedures are as safe as normal medicine”: Understanding corporate social responsibility from the perspective of the cosmetic procedures industry. Body Image, 43, 75-86. https://doi.org/10.1016/j.bodyim.2022.08.011

The cosmetic procedures industry is profitable and expanding. Through its premise and promotion, the industry contributes to unrealistic societal appearance pressures considered harmful to body image. In the context of limited regulation, there is an... Read More about “We should educate the public that cosmetic procedures are as safe as normal medicine”: Understanding corporate social responsibility from the perspective of the cosmetic procedures industry.

Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+ (2020)
Journal Article
Stock, N. M., Hammond, V., Hearst, D., Owen, T., Edwards, Z., Ridley, M., & Rumsey, N. (2020). Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+. Cleft Palate-Craniofacial Journal, 57(6), 746-752. https://doi.org/10.1177/1055665619898596

Background: Consensus regarding optimal outcome measurement has been identified as one of the most important, yet most challenging developments for the future of cleft lip and/or palate (CL/P) services. In 2011, a process began to adopt a shared conc... Read More about Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+.

Looking to the future: Priorities for translating research to impact in the field of appearance and body image (2019)
Journal Article
Jankowski, G. S., Alleva, J. M., Atkinson, M., Stock, N., Piran, N., Riley, S., …Williamson, H. (2020). Looking to the future: Priorities for translating research to impact in the field of appearance and body image. Body Image, 32, 53-61. https://doi.org/10.1016/j.bodyim.2019.10.006

© 2019 Elsevier Ltd The field of body image and appearance research and practice is progressing; however, there is still work to be done to ensure broad societal impact. This article consolidates reflections from a range of established and early care... Read More about Looking to the future: Priorities for translating research to impact in the field of appearance and body image.

A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial (2019)
Journal Article
Williamson, H., Hamlet, C., White, P., Marques, E., Paling, T., Cadogan, J., …Harcourt, D. (2019). A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial. JMIR Mental Health, 6(11), Article e14776. https://doi.org/10.2196/14776

Background: Disfigurement (visible difference) from wide-ranging congenital or acquired conditions, injuries, or treatments can negatively impact adolescents’ psychological well-being, education and health behaviours. Alongside medical interventions,... Read More about A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial.

Experiences of living with visible difference: Individual and social reflections (2019)
Journal Article
Sharratt, N. D., Jenkinson, E., Moss, T., Clarke, A., & Rumsey, N. (2019). Experiences of living with visible difference: Individual and social reflections. Health Psychology Update, 28(2),

Many health conditions impact upon an individual’s appearance and result in an altered appearance (“visible difference”). The presence of visible difference is associated with a variety of psychosocial difficulties and challenges, yet calls for an i... Read More about Experiences of living with visible difference: Individual and social reflections.

Systematic review of body image measures (2019)
Journal Article
Kling, J., Kwakkenbos, L., Diedrichs, P. C., Rumsey, N., Frisén, A., Brandão, M. P., …Fitzgerald, A. (2019). Systematic review of body image measures. Body Image, 30, 170-211. https://doi.org/10.1016/j.bodyim.2019.06.006

Copyright © 2019 Elsevier Ltd. All rights reserved. This systematic review synthesizes and critically appraises measurement properties of influential body image measures. Eight measures that met the definition of an assessment of body image (i.e., an... Read More about Systematic review of body image measures.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article
Stock, N. M., Costa, B., White, P., & Rumsey, N. (2020). Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 57(1), 88-98. https://doi.org/10.1177/1055665619862457

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.

The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland (2019)
Journal Article
Stock, N. M., Guest, E., Stoneman, K., Ridley, M., Evans, C., LeRoy, C., …Rumsey, N. (2020). The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland. Cleft Palate-Craniofacial Journal, 57(1), 14-20. https://doi.org/10.1177/1055665619862727

Background: From diagnosis through to adulthood, a cleft lip and/or palate (CL/P) poses a number of challenges for those affected. Alongside the care provided by clinical teams, complementary information and support is offered by charitable organizat... Read More about The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland.

Using Photo-Elicitation to Explore Families’ Experiences of Burn Camp (2018)
Journal Article
Armstrong-James, L., Cadogan, J., Williamson, H., Rumsey, N., & Harcourt, D. (2019). Using Photo-Elicitation to Explore Families’ Experiences of Burn Camp. Journal of Family Nursing, 25(1), 81-108. https://doi.org/10.1177/1074840718817630

© The Author(s) 2018. A qualitative study using photo-elicitation was conducted to investigate the experiences of family members attending a residential burn camp. Six families were provided with cameras and asked to take photographs of their time at... Read More about Using Photo-Elicitation to Explore Families’ Experiences of Burn Camp.

Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS) (2018)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., Clarke, A., & Rumsey, N. (2018, September). Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS). Paper presented at The British Psychological Society Division of Health Psychology Annual Conference, Newscastle, England

Objectives: Whilst participants with an appearance altering condition have expressed distress and anxiety in relation to their capacity to engage in romantic relationships, there exists no measure of the effect of visible difference upon this domain.... Read More about Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS).

Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review (2018)
Journal Article
Lewis-Smith, H., Diedrichs, P. C., Rumsey, N., & Harcourt, D. (2018). Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review. Psycho-Oncology, 27(12), 2687-2699. https://doi.org/10.1002/pon.4870

© 2018 John Wiley & Sons, Ltd. Objective: Body image concerns warrant attention among women who have undergone treatment for breast cancer, due to their significant consequences for psychological and physical health, and interpersonal relationships... Read More about Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review.

Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers (2018)
Journal Article
Hamlet, C., Rumsey, N., Williamson, H., Johnson, K., & Nduka, C. (2018). Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers. Journal of Plastic, Reconstructive and Aesthetic Surgery, 71(12), 1785. https://doi.org/10.1016/j.bjps.2018.08.001

Despite the potential negative impact of facial palsy, major gaps in understanding persist surrounding the treatment and care of those affected. This collaborative three-round Delphi process aimed to identify priorities for future facial palsy resear... Read More about Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers.

Understandings and experiences of visible difference and romantic relationships: A qualitative exploration (2018)
Journal Article
Sharratt, N. D., Jenkinson, E., Moss, T., Clarke, A., & Rumsey, N. (2018). Understandings and experiences of visible difference and romantic relationships: A qualitative exploration. Body Image, 27, 32-42. https://doi.org/10.1016/j.bodyim.2018.08.002

© 2018 Elsevier Ltd The association between disfigurement (‘visible difference’) and romantic relationships has received relatively little consideration in the research literature. This qualitative research, conducted in the United Kingdom, explored... Read More about Understandings and experiences of visible difference and romantic relationships: A qualitative exploration.

Development and initial validation of the CAR romantic relationships and intimacy scale (2018)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., Clarke, A., & Rumsey, N. (2018, June). Development and initial validation of the CAR romantic relationships and intimacy scale. Paper presented at Appearance Matters 8, Bath, UK

Whilst participants with a disfiguring or appearance altering condition have expressed distress, fear, and anxiety in relation to their capacity to engage in physical intimacy and romantic relationships, there exists no measure of the perceived impac... Read More about Development and initial validation of the CAR romantic relationships and intimacy scale.

Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners” (2018)
Journal Article
Stock, N. M., Anwar, H., Sandy, J., & Rumsey, N. (2018). Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”. Cleft Palate-Craniofacial Journal, 55(5), 676-681. https://doi.org/10.1177/1055665617744064

© The Author(s) 2018. Background: Since the implementation of centralized services in the United Kingdom for those affected by cleft lip and/or palate (CL/P), several studies have investigated the impact of service rationalization on the delivery of... Read More about Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”.

An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour (2018)
Journal Article
Armstrong-James, L., Cadogan, J., Williamson, H., Rumsey, N., & Harcourt, D. (2018). An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour. Scars, Burns & Healing, 4, 1-15. https://doi.org/10.1177/2059513118816219

Introduction: This evaluation aimed to assess the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour. Methods: Young people completed the Perceived Stigmatisation Questio... Read More about An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour.

Toward a conceptual and methodological shift in craniofacial research (2017)
Journal Article
Stock, N. M., Feragen, K. B., Moss, T. P., & Rumsey, N. (2018). Toward a conceptual and methodological shift in craniofacial research. Cleft Palate-Craniofacial Journal, 55(1), 105-111. https://doi.org/10.1177/1055665617721925

© The Author(s) 2017. Objective: To date, research investigating the psychological impact of craniofacial conditions has produced variability across outcomes. The aims of this article were to summarize the challenges that may contribute to this varia... Read More about Toward a conceptual and methodological shift in craniofacial research.

Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services (2017)
Journal Article
Zucchelli, F., Rumsey, N., Humphries, K., Bennett, R., Davies, A., Sandy, J., & Stock, N. M. (2018). Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services. Journal of Clinical Nursing, 27(5-6), e787-e797. https://doi.org/10.1111/jocn.14188

© 2017 John Wiley & Sons Ltd Aims and objectives: To explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study. Background: Longitudinal studies are vital to better understand the aetiolog... Read More about Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services.

Being looked at and exposing yourself: Appearance altering conditions and stigma (2017)
Presentation / Conference
Sharratt, N., Jenkinson, E., Moss, T., & Rumsey, N. (2017, September). Being looked at and exposing yourself: Appearance altering conditions and stigma. Paper presented at BPS Division of Health Psychology Annual Conference, 2017, Cardiff, Wales, UK

Accepted conference proceedings from the BPS DHP Annual Conference, 2017: Cardiff.

CLAPA Scotland regional coordinators project: End of year two interim report (2017)
Report
Guest, E., Stock, N. M., Ridley, M., & Rumsey, N. (2017). CLAPA Scotland regional coordinators project: End of year two interim report

During Year Two, the SRC has continued to act as a key contact for people affected by CL/P and their families in the Scotland region. A large number of events aimed at families and young people have been held, in addition to a number of awareness-ra... Read More about CLAPA Scotland regional coordinators project: End of year two interim report.

The Development of the CARe Burn Scales (2017)
Presentation / Conference
Griffiths, C., Guest, E., Grzeda, M., Rumsey, N., & Harcourt, D. (2017, May). The Development of the CARe Burn Scales. Presented at British Burns Association Annual Conference, Royal College of Surgeons, London

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Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study (2017)
Journal Article
Harrad, R. A., Richards, H. S., Jenkinson, E., & Rumsey, N. (2017). Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study. Orbit, 36(3), 147-153. https://doi.org/10.1080/01676830.2017.1279669

© 2017 Taylor & Francis. This qualitative study sought to explore the experiences of patients who had undergone successful ptosis correction surgery. Participants were recruited from Bristol Eye Hospital. Nine participants were interviewed using a... Read More about Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study.

A systematic review of patient-reported outcome measures used in adult burn research (2017)
Journal Article
Pleat, J., Griffiths, C., Guest, E., White, P., Gaskin, E., Rumsey, N., & Harcourt, D. (2017). A systematic review of patient-reported outcome measures used in adult burn research. Journal of Burn Care and Research, 38(2), e521-e541. https://doi.org/10.1097/BCR.0000000000000474

Copyright © 2016 by the American Burn Association. Patient-reported outcome measures (PROMs) are vital for evaluating patient needs and therapeutic progress. This review aimed to identify the PROMs used in adult burn care and establish their quality.... Read More about A systematic review of patient-reported outcome measures used in adult burn research.

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child (2017)
Journal Article
Pedersen, N. H., Boysen, B. M., Johannessen, E. C., Heliövaara, A., Feragen, K. B., Semb, G., …Rumsey, N. (2017). Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child. Journal of Plastic Surgery and Hand Surgery, 51(1), 81-87. https://doi.org/10.1080/2000656X.2016.1254642

© 2017 Acta Chirurgica Scandinavica Society. Background and aim: Few studies have explored children’s emotional and behavioural reactions to cleft surgery and treatment-related stress. The objective was to investigate parents’ evaluations of appearan... Read More about Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child.

Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis (2017)
Journal Article
Pedersen, N. H., Johannessen, E. C., Boysen, B. M., Heliövaara, A., Feragen, K. B., Rumsey, N., …Semb, G. (2017). Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis. Journal of Plastic Surgery and Hand Surgery, 51(1), 73-80. https://doi.org/10.1080/2000656X.2016.1254643

© 2017 Acta Chirurgica Scandinavica Society. Background and aim: Parents of children with a cleft lip and palate may be emotionally affected by the child’s diagnosis. Their experiences and perceptions are important when evaluating the complexity of s... Read More about Scandcleft randomised trials of primary surgery for unilateral cleft lip and Palate: 9. Parental report of social and emotional experiences related to their 5-year-old child’s cleft diagnosis.

Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort (2017)
Journal Article
Mills, S. D., Fox, R. S., Körner, A., Mayes, M. D., Malcarne, V. L., Jewett, L. R., …Fortune, C. (2017). Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort. Body Image, 20, 99-106. https://doi.org/10.1016/j.bodyim.2016.11.007

© 2016 Elsevier Ltd Body concealment is an important component of appearance distress for individuals with disfiguring conditions, including scleroderma. The objective was to replicate the validation study of the Body Concealment Scale for Scleroderm... Read More about Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort.

Body image and quality of life in adolescents with craniofacial conditions (2017)
Journal Article
Kazak, A. E., Sarwer, D. B., Crerand, C. E., Clarke, A., & Rumsey, N. (2017). Body image and quality of life in adolescents with craniofacial conditions. Cleft Palate-Craniofacial Journal, 54(1), 2-12. https://doi.org/10.1597/15-167

© Copyright 2017 American Cleft Palate-Craniofacial Association. Objective: To evaluate body image in adolescents with and without craniofacial conditions and to examine relationships between body image and quality of life. Design: Case-control desig... Read More about Body image and quality of life in adolescents with craniofacial conditions.

The psychological impact of cleft lip and/or palate on unaffected siblings (2016)
Journal Article
Stock, N. M., Stoneman, K., Cunniffe, C., & Rumsey, N. (2016). The psychological impact of cleft lip and/or palate on unaffected siblings. Cleft Palate-Craniofacial Journal, 53(6), 670-682. https://doi.org/10.1597/15-148

BACKGROUND: Sibling relationships are among the most unique social connections, significantly affecting psychosocial adjustment. Previous reviews in the fields of chronic illness and disability have concluded that unaffected siblings of children with... Read More about The psychological impact of cleft lip and/or palate on unaffected siblings.

Perspectives of health professionals on the psychosocial impact of an altered appearance among adolescents treated for cancer and how to improve appearance-related care (2016)
Journal Article
Williamson, H., & Rumsey, N. (2017). Perspectives of health professionals on the psychosocial impact of an altered appearance among adolescents treated for cancer and how to improve appearance-related care. Journal of Psychosocial Oncology, 35(1), 47-60. https://doi.org/10.1080/07347332.2016.1247407

© 2017 Taylor & Francis Group, LLC. An altered appearance can impact the psychosocial well-being of adolescent cancer patients, yet patient reports imply a dearth of appearance-related support. Using a two-phase qualitatively driven mixed method de... Read More about Perspectives of health professionals on the psychosocial impact of an altered appearance among adolescents treated for cancer and how to improve appearance-related care.

Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries (2016)
Journal Article
Marques, E. M., Williamson, H., Hamlet, C., White, P., Marques, E., Cadogan, J., …Harcourt, D. (2016). Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries. BMJ Open, 6(10), Article e012423. https://doi.org/10.1136/bmjopen-2016-012423

© Published by the BMJ Publishing Group Limited. Introduction A significant number of adolescents suffer extensive and enduring difficulties such as social anxiety, body image dissatisfaction, low self-esteem and bullying as a result of conditions or... Read More about Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries.

Randomized controlled trial of an online mother-daughter body image and well-being intervention (2016)
Journal Article
Diedrichs, . P. C., Atkinson, M. J., Garbett, K. M., Williamson, H., Halliwell, E., Rumsey, N., …Barlow, F. K. (2016). Randomized controlled trial of an online mother-daughter body image and well-being intervention. Health Psychology, 35(9), 996-1006. https://doi.org/10.1037/hea0000361

© 2016 American Psychological Association. Objective: Poor body image is a public health issue. Mothers are a key influence on adolescent girls' body image. This study evaluated an accessible, scalable, low-intensity internet-based intervention deliv... Read More about Randomized controlled trial of an online mother-daughter body image and well-being intervention.

Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate (2016)
Journal Article
Stock, N. M., Hammond, V., Owen, T., Kiff, J., Shanly, A., & Rumsey, N. (2016). Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 53(4), 421-426. https://doi.org/10.1597/15-071

Background: Psychological adjustment to cleft lip/palate is multifaceted and can fluctuate over time and across different situations. Consequently, a comprehensive understanding of adjustment is difficult to capture, and the challenge of achieving co... Read More about Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate.

“I’ve always thought that I’m not good enough… why would someone good looking want to be with me?”: A qualitative exploration of the impact of visible differences upon intimacy and intimate relationships (2016)
Presentation / Conference
Sharratt, N., Jenkinson, E., Moss, T., & Rumsey, N. (2016, June). “I’ve always thought that I’m not good enough… why would someone good looking want to be with me?”: A qualitative exploration of the impact of visible differences upon intimacy and intimate relationships. Paper presented at Appearance Matters 7 Conference, Royal College of Surgeons, London, UK

Accepted conference proceedings from Appearance Matters 7, London, 2016

The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups? (2016)
Journal Article
Patel-Kerai, G., Harcourt, D., Rumsey, N., Naqvi, H., & White, P. (2017). The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups?. Psycho-Oncology, 26(4), 515-522. https://doi.org/10.1002/pon.4187

Copyright © 2016 John Wiley & Sons, Ltd. Background: Very little UK-based research has examined breast cancer-related experiences of Black and Minority Ethnic populations, and we do not know whether the psychosocial impact of diagnosis and treatmen... Read More about The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups?.

Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families (2016)
Presentation / Conference
Armstrong-James, L., Cadogan, J., Williamson, H., Rumsey, N., & Harcourt, D. (2016, May). Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families. Presented at British Burn Association Annual Meeting 2016,, Newcastle, UK

Introduction Very little published research has evaluated psychosocial interventions for young people with burn injuries. A recent systematic review of psychosocial interventions for those with a range of appearance-altering conditions and injuries... Read More about Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families.

Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom (2016)
Journal Article
Ho, K. M., Stock, N. M., Humphries, K., St. Pourcain, B., Bailey, M., Persson, M., …Sandy, J. (2016). Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom. Cleft Palate-Craniofacial Journal, 53(3), 317-325. https://doi.org/10.1597/14-306

© Copyright 2016 American Cleft Palate-Craniofacial Association. Background: Cleft lip and/or palate (CL/P) is one of the most common birth conditions in the world, but little is known about its causes. Professional opinion remains divided as to whic... Read More about Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the United Kingdom.

A qualitative exploration of the impact of visible differences upon intimate relationships: Methodological reflections (2016)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., & Rumsey, N. (2016, April). A qualitative exploration of the impact of visible differences upon intimate relationships: Methodological reflections. Paper presented at The British Psychological Society Annual Conference 2016, Nottingham, UK

Accepted conference proceedings from the BPS Annual Conference, 2016: Nottingham. Presented as one of four papers in a symposium entitled "Looking Different: Contemporary research and interventions in appearance psychology"

Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment (2016)
Journal Article
Stock, N. M., Feragen, K. B., & Rumsey, N. (2016). Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment. Cleft Palate-Craniofacial Journal, 53(2), 222-239. https://doi.org/10.1597/14-269

© Copyright 2016 American Cleft Palate-Craniofacial Association. Background: Growing up with a cleft lip and/or palate presents a number of challenges for those affected and their families. Understanding why some individuals cope well while others st... Read More about Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment.

A systematic review of interventions on body image and disordered eating outcomes among women in midlife (2016)
Journal Article
Lewis-Smith, H., Diedrichs, P. C., Rumsey, N., & Harcourt, D. (2016). A systematic review of interventions on body image and disordered eating outcomes among women in midlife. International Journal of Eating Disorders, 49(1), 5-18. https://doi.org/10.1002/eat.22480

© 2015 Wiley Periodicals, Inc. Objective Body dissatisfaction and disordered eating are widely recognized as issues that warrant attention among women in midlife, particularly the development and delivery of effective interventions. This article syst... Read More about A systematic review of interventions on body image and disordered eating outcomes among women in midlife.

CLAPA regional coordinators project: Scotland. Focus group study (2016)
Report
Ridley, M., Stock, N. M., McCarthy, G., Skinner, M., Cunniffe, C., & Rumsey, N. (2016). CLAPA regional coordinators project: Scotland. Focus group study

This report was produced by the Centre for Appearance Research, University of the West of England in Bristol on behalf of the Cleft Lip and Palate Association.

Effectiveness of a brief school-based body image intervention 'Dove Confident Me: Single Session' when delivered by teachers and researchers: Results from a cluster randomised controlled trial (2015)
Journal Article
Garbett, K. M., Steer, R. J., Diedrichs, P. C., Atkinson, M. J., Rumsey, N., & Halliwell, E. (2015). Effectiveness of a brief school-based body image intervention 'Dove Confident Me: Single Session' when delivered by teachers and researchers: Results from a cluster randomised controlled trial. Behaviour Research and Therapy, 74, 94-104. https://doi.org/10.1016/j.brat.2015.09.004

© 2015 The Authors. This study evaluated a 90-min single session school-based body image intervention (Dove Confident Me: Single Session), and investigated if delivery could be task-shifted to teachers. British adolescents (N = 1707; 11-13 years; 50.... Read More about Effectiveness of a brief school-based body image intervention 'Dove Confident Me: Single Session' when delivered by teachers and researchers: Results from a cluster randomised controlled trial.

The psychosocial impact of breast cancer diagnosis and treatment amongst Black, South Asian and White women: Do differences exist between ethnic groups? (2015)
Journal Article
Patel, G., Harcourt, D., Rumsey, N., Naqvi, H., & White, P. (2015). The psychosocial impact of breast cancer diagnosis and treatment amongst Black, South Asian and White women: Do differences exist between ethnic groups?. Diversity and Equality in Health and Care, 12(1),

Breast cancer is the most commonly diagnosed cancer in females, affecting women of all ethnic groups. Until now, very little research has captured the psychosocial impact of the disease amongst Black and Minority Ethnic (BME) women, and that which ha... Read More about The psychosocial impact of breast cancer diagnosis and treatment amongst Black, South Asian and White women: Do differences exist between ethnic groups?.

Influencing change: When theory isn’t enough (2015)
Presentation / Conference
Rumsey, N. (2015, July). Influencing change: When theory isn’t enough. Presented at Centre for the Study of Behaviour Change and Influence Launch Event, Bristol, UK

Psychological consequences of appearance dissatisfaction (2015)
Presentation / Conference
Rumsey, N. (2015, July). Psychological consequences of appearance dissatisfaction. Presented at International Congress of Paediatric Dentistry, Glasgow, Scotland, UK

Psychosocial adjustment to differences in appearance is multifactorial. Current understanding of the factors and processes involved in distress and resilience to appearance concerns will be reviewed and the challenges currently hampering further prog... Read More about Psychological consequences of appearance dissatisfaction.

Shared surgical decision making and youth resilience correlates of satisfaction with clinical outcomes (2015)
Journal Article
Kapp-Simon, K. A., Edwards, T., Ruta, C., Crilly Bellucci, C., Aspirnall, C. L., Strauss, R. P., …Patrick, D. L. (2015). Shared surgical decision making and youth resilience correlates of satisfaction with clinical outcomes. Journal of Craniofacial Surgery, 26(5), 1574-1580. https://doi.org/10.1097/SCS.0000000000001892

Copyright © 2015 by Mutaz B. Habal, MD. The aim of this study was to identify factors associated with youth satisfaction with surgical procedures performed to address oral cleft or craniofacial conditions (CFCs). It was hypothesized that youth mental... Read More about Shared surgical decision making and youth resilience correlates of satisfaction with clinical outcomes.

The importance of integration of stakeholder views in core outcome set development: Otitis Media with Effusion in children with cleft palate (2015)
Journal Article
Parfect, V. H., Hall, P. N., Bennett, A. M., Kirkham, J. J., Bruce, I. A., Harman, N. L., …Williamson, P. (2015). The importance of integration of stakeholder views in core outcome set development: Otitis Media with Effusion in children with cleft palate. PLoS ONE, 10(6), https://doi.org/10.1371/journal.pone.0129514

© 2015 Harman et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are cre... Read More about The importance of integration of stakeholder views in core outcome set development: Otitis Media with Effusion in children with cleft palate.

The challenge of assessing quality of life in craniofacial contexts (2015)
Presentation / Conference
Rumsey, N. (2015, June). The challenge of assessing quality of life in craniofacial contexts. Presented at European Craniofacial Congress, Gothenburg, Sweden

When asked about their motivation for delivering cleft care and optimising treatment outcomes, the majority of clinicians claim that their ultimate aim is to optimise the quality of life of their patients. Furthermore, ‘quality of life’ (QoL) is used... Read More about The challenge of assessing quality of life in craniofacial contexts.

Translating research into practice: Trials and tribulations (2015)
Presentation / Conference
Rumsey, N. (2015, June). Translating research into practice: Trials and tribulations. Paper presented at European Craniofacial Congress, Gothenburg, Sweden

Clinicians are regularly berated by governments for failing to engage in research and regularly reminded that the care they offer their patients should be ‘evidence-based’. Similarly, researchers are increasingly judged on the ‘real-world’ relevance... Read More about Translating research into practice: Trials and tribulations.

I don't like the way I look: The tyranny of normative discontent (2015)
Presentation / Conference
Rumsey, N. (2015, June). I don't like the way I look: The tyranny of normative discontent. Paper presented at Professionals, Practitioners and Beauty Norms: ‘Beauty Demands’ project, Nuffield Council on Bioethics, London, UK

Significant levels of dissatisfaction with appearance have been reported in more than 70% of the population. This talk will offer a brief overview of the evidence relating to the impacts of this 'normative discontent' on the psychological wellbeing... Read More about I don't like the way I look: The tyranny of normative discontent.

Visible difference (2015)
Presentation / Conference
Rumsey, N. (2015, May). Visible difference. Presented at Local Training Day, 'Appearance Matters', Riga, Latvia

Appearance in a social and cultural context (2015)
Presentation / Conference
Rumsey, N. (2015, May). Appearance in a social and cultural context. Presented at Local Training Day, 'Appearance Matters', Riga, Latvia

Psychological care in cleft lip/palate: Then & now (2015)
Presentation / Conference
Rumsey, N. (2015, April). Psychological care in cleft lip/palate: Then & now. Presented at Mercy Hospital Tribute to Dr. Jeff Marsh, Mercy Hospital, St. Louis, Missouri

Appearance matters (2015)
Presentation / Conference
Rumsey, N. (2015, March). Appearance matters. Paper presented at Training Day for Local Practitioners and Researchers, Ponta Delgarda, The Azores

Starting a family: The experience of parents with cleft lip and/or palate (2015)
Journal Article
Stock, N. M., & Rumsey, N. (2015). Starting a family: The experience of parents with cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 52(4), 425-436. https://doi.org/10.1597/13-314

© 2015 American Cleft Palate-Craniofacial Association. Background: One of the key challenges facing young adults with cleft lip and/or palate is making decisions about starting a family, because there is an increased likelihood of their own child bei... Read More about Starting a family: The experience of parents with cleft lip and/or palate.

"It doesn't all just stop at 18": Psychological adjustment and support needs of adults born with cleft lip and/or palate (2015)
Journal Article
Stock, N. M., Feragen, K. B., & Rumsey, N. (2015). "It doesn't all just stop at 18": Psychological adjustment and support needs of adults born with cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 52(5), 543-554. https://doi.org/10.1597/14-178

© Copyright 2015 American Cleft Palate-Craniofacial Association. Background: Cleft in the lip and/or the palate (CL/P) is considered to be a lifelong condition, yet relatively little is known about the long-term outcomes for patients. Existing litera... Read More about "It doesn't all just stop at 18": Psychological adjustment and support needs of adults born with cleft lip and/or palate.

Cleft Care UK study. Part 5: Child psychosocial outcomes and satisfaction with cleft services (2015)
Journal Article
Waylen, A., Ness, A. R., Wills, A. K., Persson, M., Rumsey, N., & Sandy, J. R. (2015). Cleft Care UK study. Part 5: Child psychosocial outcomes and satisfaction with cleft services. Orthodontics and Craniofacial Research, 18(S2), 47-55. https://doi.org/10.1111/ocr.12113

© 2015 John Wiley & Sons A/S. Objectives: To describe the impact of cleft service centralization on parental perceptions of child outcomes and satisfaction with care from the Cleft Care UK (CCUK) study and compare them to the Clinical Standards Adv... Read More about Cleft Care UK study. Part 5: Child psychosocial outcomes and satisfaction with cleft services.

Parenting a child with a cleft: The father's perspective (2015)
Journal Article
Stock, N. M., & Rumsey, N. (2015). Parenting a child with a cleft: The father's perspective. Cleft Palate-Craniofacial Journal, 52(1), 31-43. https://doi.org/10.1597/13-035

Objective: To explore the impact of having a child born with a cleft lip and/or palate from the father's perspective. Design: Individual qualitative telephone interviews. Participants: A total of 15 fathers of children born with cleft lip and/or pala... Read More about Parenting a child with a cleft: The father's perspective.

The effectiveness of psychosocial intervention for individuals with cleft lip and/or palate (2015)
Journal Article
Stock, N., Norman, A., Persson, M., Stock, N. M., Rumsey, N., Sandy, J., …Ness, A. (2015). The effectiveness of psychosocial intervention for individuals with cleft lip and/or palate. Cleft Palate-Craniofacial Journal, 52(3), 301-310. https://doi.org/10.1597/13-276

© Copyright 2015 American Cleft Palate-Craniofacial Association. Objective: The aim of this review was to assess the effectiveness of different psychological interventions for children and adults with cleft lip and/or palate and their parents. Design... Read More about The effectiveness of psychosocial intervention for individuals with cleft lip and/or palate.

Why appearance matters (2014)
Presentation / Conference
Rumsey, N. (2014, November). Why appearance matters. Paper presented at Face Value Erasmus+ Meeting, The Hague, The Netherlands

The routine psychological screening of cosmetic surgery patients (2014)
Journal Article
Paraskeva, N., Clarke, A., & Rumsey, N. (2014). The routine psychological screening of cosmetic surgery patients. Aesthetics, 28-32

In order to improve outcomes, the process of patient selection within the cosmetic industry has received considerable attention from surgeons, psychologists and policy makers. Indeed, as increasing numbers of people are seeking cosmetic procedures it... Read More about The routine psychological screening of cosmetic surgery patients.

A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research (2014)
Journal Article
Harcourt, D., Pleat, J., Rumsey, N., White, P., Armstrong-James, L., Griffiths, C., …Harcourt, D. (2015). A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research. Burns, 41(2), 212-224. https://doi.org/10.1016/j.burns.2014.07.018

Crown Copyright © 2014 Published by Elsevier Ltd and ISBI. All rights reserved. Introduction: Patient reported outcome measures (PROMs) can identify important information about patient needs and therapeutic progress. The aim of this review was to ide... Read More about A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research.

Progress through collaboration (2014)
Presentation / Conference
Rumsey, N. (2014, October). Progress through collaboration. Paper presented at Victorian Society of Health Psychologists, Melbourne, Australia

Using innovative methods in appearance research (2014)
Book Chapter
Harcourt, D. (2014). Using innovative methods in appearance research. In N. Rumsey, & D. Harcourt (Eds.), Oxford Handbook of the Psychology of Appearance. Oxford: Oxford University Press

Where might we go from here? (2014)
Presentation / Conference
Harcourt, D., & Rumsey, N. (2014, July). Where might we go from here?. Paper presented at Appearance Matters 6, Bristol, UK

A photographic exploration of family burn camp (2014)
Presentation / Conference
Armstrong-James, L., Harcourt, D., Rumsey, N., Williamson, H., & Cadogan, J. (2014, July). A photographic exploration of family burn camp. Poster presented at Appearance Matters 6, Bristol, England

Background: The psychosocial impact of a burn may include adjusting to changes in appearance as a result of the injury such as scarring, or in some cases, amputation. There are a number of interventions to help young people manage the challenges of... Read More about A photographic exploration of family burn camp.

The psychology of facial disfigurement: Implications for whole face transplantation (2014)
Journal Article
Rumsey, N. (2014). The psychology of facial disfigurement: Implications for whole face transplantation. Current Otorhinolaryngology Reports, 2(3), 210-216. https://doi.org/10.1007/s40136-014-0058-5

A decade has passed since the publication of the first report from the Royal College of Surgeons in England Working Party on Face Transplantation. Based on evidence available at the time, this report concluded that it was unwise to proceed with whole... Read More about The psychology of facial disfigurement: Implications for whole face transplantation.

Psychosocial predictors, assessment, and outcomes of cosmetic procedures: A systematic rapid evidence assessment (2014)
Journal Article
Brunton, G., Paraskeva, N., Caird, J., Bird, K. S., Kavanagh, J., Kwan, I., …Thomas, J. (2014). Psychosocial predictors, assessment, and outcomes of cosmetic procedures: A systematic rapid evidence assessment. Aesthetic Plastic Surgery, 38(5), 1030-1040. https://doi.org/10.1007/s00266-014-0369-4

Background: Recent breast implant complications led to a UK government policy review of the evidence concerning cosmetic interventions. We synthesised cosmetic intervention research evidence covering psychosocial factors associated with requesting pr... Read More about Psychosocial predictors, assessment, and outcomes of cosmetic procedures: A systematic rapid evidence assessment.

Black and South Asian women’s experiences of breast cancer: A qualitative study (2014)
Journal Article
Patel, G., Harcourt, D., Naqvi, H., & Rumsey, N. (2014). Black and South Asian women’s experiences of breast cancer: A qualitative study. Diversity and Equality in Health and Care, 11(2), 135-149

Breast cancer is one of the most common forms of cancer in the UK, and affects women of all ethnic groups. The psychosocial impact of breast cancer has been well documented. However, research conducted in this area has been primarily focused on white... Read More about Black and South Asian women’s experiences of breast cancer: A qualitative study.

Assessing quality in qualitative data (2014)
Presentation / Conference
Rumsey, N. (2014, April). Assessing quality in qualitative data. Paper presented at Training School: Measures used in Appearance Research, Poznan, Poland

Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression (2014)
Journal Article
Moss, T. P., Lawson, V., White, P., Rumsey, N., Byron-Daniel, J., Charlton, R., …Walsh, E. (2014). Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression. PLoS ONE, 9(2), e88435. https://doi.org/10.1371/journal.pone.0088435

Psychometric measures of appearance salience and valence, CARSAL and CARVAL, have been previously demonstrated to be key factors underpinning appearance related self-consciousness and negative affect in the general population. However, the extent to... Read More about Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression.

The psychological impacts of looking different (2014)
Presentation / Conference
Rumsey, N. (2014, February). The psychological impacts of looking different. Presented at Oneself as Another, Royal Western Academy of Arts, Bristol, UK

The psychological well-being and appearance concerns of patients presenting with ptosis (2014)
Journal Article
White, P., Rumsey, N., Jenkinson, E., Richards, H. S., Jenkinson, E., Rumsey, N., …Harrad, R. A. (2014). The psychological well-being and appearance concerns of patients presenting with ptosis. Eye, 28(3), 296-302. https://doi.org/10.1038/eye.2013.264

PurposePtosis affects both the function and appearance of the eyes and face, because of drooping of the eyelids. Previous research has focused on functional impairment; however, similar appearance altering eye conditions have been demonstrated to hav... Read More about The psychological well-being and appearance concerns of patients presenting with ptosis.

CBT for appearance anxiety (2014)
Book
Clarke, A., Thompson, A. R., Jenkinson, E., Rumsey, N., & Newell, R. (2014). CBT for appearance anxiety. Wiley Blackwell

This clinical manual provides a CBT-based psychosocial intervention for use with individuals distressed about their appearance due to a disfigurement from birth, accident or illness, or those coping with another visible difference. •Contains... Read More about CBT for appearance anxiety.

When there is more than a cleft: Psychological adjustment when a cleft is associated with an additional condition (2014)
Journal Article
Feragen, K. B., Stock, N. M., & Rumsey, N. (2014). When there is more than a cleft: Psychological adjustment when a cleft is associated with an additional condition. Cleft Palate-Craniofacial Journal, 51(1), 5-14. https://doi.org/10.1597/12-328

Background: In spite of studies reporting a relatively high frequency of additional conditions in children with a cleft lip and/or cleft palate (CL/P), almost no research has focused on this clinically important subgroup. The objective of this study... Read More about When there is more than a cleft: Psychological adjustment when a cleft is associated with an additional condition.

The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study (2014)
Journal Article
Richards, H. S., Jenkinson, E., Rumsey, N., & Harrad, R. A. (2014). The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study. Orbit, 33(4), 263-269. https://doi.org/10.3109/01676830.2014.904375

The aim of this qualitative study was to investigate the psychosocial impact of ptosis as a symptom of Myasthenia Gravis (MG). Participants were recruited from a MG patient group on Facebook. 166 participants answered a series of open ended questions... Read More about The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study.

Toward a reconsideration of inclusion and exclusion criteria in cleft lip and palate: Implications for psychological research (2014)
Journal Article
Feragen, K. B., Stock, N. M., & Rumsey, N. (2014). Toward a reconsideration of inclusion and exclusion criteria in cleft lip and palate: Implications for psychological research. Cleft Palate-Craniofacial Journal, 51(5), 569-578. https://doi.org/10.1597/12-326

© 2014 American Cleft Palate-Craniofacial Association. Background: This article investigates the prevalence of conditions that affect cognitive and/or psychosocial functioning in 10-year-old children born with a cleft lip and/or palate (CL/P) and exp... Read More about Toward a reconsideration of inclusion and exclusion criteria in cleft lip and palate: Implications for psychological research.

The emerging adult: Facilitating transition from child to adult services (2013)
Book Chapter
Williamson, H., & Barke, J. (2013). The emerging adult: Facilitating transition from child to adult services. In A. R. Thompson, E. Jenkinson, N. Rumsey, R. J. Newell, & A. Clarke (Eds.), CBT for Appearance Anxiety: Psychosocial Interventions for Anxiety due to Visible Difference (166-175). Wiley Blackwell

The psychological impact of looking different (2013)
Presentation / Conference
Rumsey, N. (2013, September). The psychological impact of looking different. Paper presented at 41st Annual Meeting of the International Society of Pediatric Neurosurgery (ISPN), Mainz, Germany

Living with a cleft: Psychological challenges, support and intervention (2013)
Book Chapter
Rumsey, N., & Stock, N. M. (2013). Living with a cleft: Psychological challenges, support and intervention. In S. Berkowitz (Ed.), Cleft lip and palate: diagnosis and management (907-915). Springer Berlin Heidelberg. https://doi.org/10.1007/978-3-642-30770-6_45

© 2013 Springer-Verlag Berlin Heidelberg. All rights are reserved. Psychological adjustment to living with a cleft and its treatment is now understood to be both complex and labile. While many adjust well, this population has an increased risk for a... Read More about Living with a cleft: Psychological challenges, support and intervention.

The psychology of facial disfigurement (2013)
Presentation / Conference
Rumsey, N. (2013, June). The psychology of facial disfigurement. Presented at British Oculoplastic Surgery Society (BOPSS) 2013, Bristol

Societal challenges facing people with facial differences (2013)
Presentation / Conference
Rumsey, N. (2013, May). Societal challenges facing people with facial differences. Paper presented at 12th International Congress on Cleft Lip / Palate and Related Craniofacial Anomalies, Florida

Young people’s perceptions of visible difference (2013)
Journal Article
Stock, N. M., Whale, K., Jenkinson, E., Rumsey, N., & Fox, F. E. (2013). Young people’s perceptions of visible difference. Diversity and Equality in Health and Care, 10(1), 41-51

Visible facial differences (VFDs) can pose a number of psychosocial challenges for those affected by them. In particular, the experience of being stigmatised may have a harmful effect on the psychological adjustment of the individual concerned. This... Read More about Young people’s perceptions of visible difference.

Why appearance matters (2012)
Presentation / Conference
Rumsey, N. (2012, December). Why appearance matters. Presented at Leonardo da Vinci Project Meeting, Vienna, Austria

Evaluation of the effectiveness of Face IT, a computer-based psychosocial intervention for disfigurement-related distress (2012)
Journal Article
Bessell, A., Brough, V., Clarke, A., Harcourt, D., Moss, T., & Rumsey, N. (2012). Evaluation of the effectiveness of Face IT, a computer-based psychosocial intervention for disfigurement-related distress. Psychology, Health and Medicine, 17(5), 565-577. https://doi.org/10.1080/13548506.2011.647701

Some people who have a visible difference (disfigurement) experience psychosocial adjustment problems that can lead to social anxiety and isolation. The aim of thisstudy was to assess the effectiveness of a new computerised CBT-based intervention (Fa... Read More about Evaluation of the effectiveness of Face IT, a computer-based psychosocial intervention for disfigurement-related distress.

Behaviour change among overweight and socially disadvantaged adults: A longitudinal study of the NHS Health Trainer Service (2012)
Journal Article
Gardner, B., Cane, J., Rumsey, N., & Michie, S. (2012). Behaviour change among overweight and socially disadvantaged adults: A longitudinal study of the NHS Health Trainer Service. Psychology and Health, 27(10), 1178-1193. https://doi.org/10.1080/08870446.2011.652112

Social disadvantage is associated with being overweight, a poor diet and physical inactivity. The NHS Health Trainer Service (HTS) is a national initiative designed to promote behaviour change among socially disadvantaged people in England and Wales.... Read More about Behaviour change among overweight and socially disadvantaged adults: A longitudinal study of the NHS Health Trainer Service.

The romantic experiences of adolescents with a visible difference: Exploring concerns, protective factors and support needs (2012)
Journal Article
Griffiths, C., Williamson, H., & Rumsey, N. (2012). The romantic experiences of adolescents with a visible difference: Exploring concerns, protective factors and support needs. Journal of Health Psychology, 17(7), 1053-1064. https://doi.org/10.1177/1359105311433909

Injuries or conditions that affect appearance can increase adolescents' risk of psychosocial and interpersonal difficulties and may also impact on romantic relationships-an important aspect of adolescent development.A mixed method online approach exp... Read More about The romantic experiences of adolescents with a visible difference: Exploring concerns, protective factors and support needs.

Using service rationalisation to build a research network: Lessons from the centralisation of UK services for children with cleft lip and palate (2012)
Journal Article
Persson, M., Sandy, J., Rumsey, N., Waylen, A., Kilpatrick, N., Ireland, T., & Ness, A. (2012). Using service rationalisation to build a research network: Lessons from the centralisation of UK services for children with cleft lip and palate. British Dental Journal, 212(11), 553-555. https://doi.org/10.1038/sj.bdj.2012.470

In the UK around a thousand children are born annually with a cleft lip and/or palate that requires treatment. In the last decade services have been centralised in the UK reducing the 57 centres operating on these children in 1998, down to 11 centres... Read More about Using service rationalisation to build a research network: Lessons from the centralisation of UK services for children with cleft lip and palate.

When treatment affects appearance (2012)
Book Chapter
Williamson, H., & Wallace, M. (2012). When treatment affects appearance. In N. Rumsey, & D. Harcourt (Eds.), The Oxford Handbook of the Psychology of Appearance (414-438). Oxford: Oxford University Press

The shifting nature of women's experiences and perceptions of ductal carcinoma in situ (2012)
Journal Article
Kennedy, F., Harcourt, D., & Rumsey, N. (2012). The shifting nature of women's experiences and perceptions of ductal carcinoma in situ. Journal of Advanced Nursing, 68(4), 856-867. https://doi.org/10.1111/j.1365-2648.2011.05788.x

Aim. This paper is a report of a descriptive qualitative study of the evolution of women's perceptions and experiences of ductal carcinoma in situ from the period near to diagnosis to 1year later. Background. Ductal carcinoma in situ is a non-invasiv... Read More about The shifting nature of women's experiences and perceptions of ductal carcinoma in situ.

Long-term outcomes: The perspective from psychology (2012)
Presentation / Conference
Rumsey, N. (2012, April). Long-term outcomes: The perspective from psychology. Presented at American Cleft Palate-Craniofacial Association (APCA) Annual Conference, San Jose, USA

Psychological adjustment in adults affected by cleft (2012)
Presentation / Conference
Rumsey, N. (2012, April). Psychological adjustment in adults affected by cleft. Presented at American Cleft Palate-Craniofacial Association (APCA) Annual Conference, San Jose, USA

Psychological assessment (2012)
Presentation / Conference
Rumsey, N. (2012, March). Psychological assessment. Paper presented at Psychology of the Cosmetic Patient symposium at British Cosmetic Dermatology Conference, London, UK

Exercise and appearance (2012)
Book Chapter
Byron-Daniel, J. (2012). Exercise and appearance. In N. Rumsey, & D. Harcourt (Eds.), The Oxford Handbook of the psychology of appearance. Oxford: Oxford University Press

Influence of the media (2012)
Book Chapter
Halliwell, E., & Diedrichs, P. C. (2012). Influence of the media. In N. Rumsey, & D. Harcourt (Eds.), The Oxford Handbook of the Psychology of Appearance (217-238). Oxford University Press

The psychology of appearance: The future (2012)
Book Chapter
Rumsey, N., & Harcourt, D. (2012). The psychology of appearance: The future. In N. Rumsey, & D. Harcourt (Eds.), The Oxford Handbook of Appearance Psychology (679-692). UK: Oxford University Press

Approaching parents to take part in a cleft gene bank: A qualitative pilot study (2012)
Journal Article
Williams, L., Dures, E., Waylen, A., Ireland, T., Rumsey, N., & Sandy, J. (2012). Approaching parents to take part in a cleft gene bank: A qualitative pilot study. Cleft Palate-Craniofacial Journal, 49(4), 425-436. https://doi.org/10.1597/10-086

Objective: A gene bank, comprising genetic material and environmental and family history data, is being established in the United Kingdom to improve the understanding of the etiology of orofacial clefting (OFC). This study aimed to identify factors t... Read More about Approaching parents to take part in a cleft gene bank: A qualitative pilot study.

Adjusting to burn injury: What do we know? (2011)
Presentation / Conference
Rumsey, N. (2011, November). Adjusting to burn injury: What do we know?. Presented at Annual Conference of the South African Burn Society, Cape Town, South Africa

The UK’s National Burn Care Review (NBCR, 2005) concluded that there was “consistent and incontrovertible evidence” that burn injuries can result in considerable psychosocial distress throughout the patient journey, and that support and interventions... Read More about Adjusting to burn injury: What do we know?.

I don’t like the way I look (2011)
Presentation / Conference
Rumsey, N., & Persson, M. (2011, October). I don’t like the way I look. Presented at Invited talk, University of Klaipeda, Lithuania

The psychosocial impact of Epidermolysis bullosa (2011)
Journal Article
Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2011). The psychosocial impact of Epidermolysis bullosa. Qualitative Health Research, 21(6), 771-782. https://doi.org/10.1177/1049732311400431

Epidermolysis bullosa (EB) is a disease in which the skin blisters in response to minimal friction, causing painful wounds. Despite the potentially severe nature of epidermolysis bullosa, research on the psychosocial issues is scarce. The aims of the... Read More about The psychosocial impact of Epidermolysis bullosa.

Psychosocial issues in cleft lip and palate (2011)
Presentation / Conference
Stock, N. M., & Rumsey, N. (2011, April). Psychosocial issues in cleft lip and palate. Paper presented at CFSGBI Annual Scientific Conference, York, UK

Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm (2011)
Journal Article
Gleeson, K., Morris, M., Dures, E., & Rumsey, N. (2011). Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm. Journal of Health Psychology, 16(2), 332-341. https://doi.org/10.1177/1359105310377537

This article has two purposes: to examine why mixed methods is a legitimate approach particularly well suited to health psychology; and to describe the challenges inherent in conducting mixed methods research. First, arguments justifying the status o... Read More about Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm.

Why we study appearance (2011)
Presentation / Conference
Harcourt, D., & Rumsey, N. (2011, February). Why we study appearance. Paper presented at GWR Seminar, University of the West of England, Bristol, UK

Body image: I don't like the way I look (2011)
Presentation / Conference
Rumsey, N. (2011, February). Body image: I don't like the way I look. Presented at Psychology in Action event for GSCE and A-Level students, Disneyland Paris, France

Face transplantation (2011)
Presentation / Conference
Rumsey, N. (2011, February). Face transplantation. Paper presented at AHRB Seminar Series, National Portrait Gallery, London, UK

Appearance concerns in ophthalmic patients (2011)
Journal Article
Williams, E., White, P., Walsh, E., Thompson, A., Saul, K., Newell, R., …Newman, S. (2011). Appearance concerns in ophthalmic patients. Eye, 25(8), 1039-1044. https://doi.org/10.1038/eye.2011.116

Aims This study Aim ed to determine the psychosocial and appearance-related concerns of a sample of ophthalmic patients by measuring a range of psychological, social, and demographic factors. Methods Standardized psychological measures including anxi... Read More about Appearance concerns in ophthalmic patients.

A qualitative study of the experiences of people who identify themselves as having adjusted positively to a visible difference (2011)
Journal Article
Walsh, E., Saul, K., James, H., Williams, E., Jenkinson, E., Byron-Daniel, J., …Rumsey, N. (2011). A qualitative study of the experiences of people who identify themselves as having adjusted positively to a visible difference. Journal of Health Psychology, 16(5), 739-749. https://doi.org/10.1177/1359105310390246

© The Author(s) 2011. Individual and group interviews explored experiences of positive adjustment among 12 people with a range of visible differences. Thematic analysis identified four main themes: importance of appearance; personal growth; relations... Read More about A qualitative study of the experiences of people who identify themselves as having adjusted positively to a visible difference.

Patient reported outcomes (2010)
Presentation / Conference
Rumsey, N. (2010, November). Patient reported outcomes. Paper presented at 6th Skin Cancer Study Day, Royal Exeter Hospital Foundation NHS Trust, UK

Trials & tribulations of appearance research (2010)
Presentation / Conference
Rumsey, N. (2010, November). Trials & tribulations of appearance research. Paper presented at BPS South West Psychology Branch meeting, Exeter, UK

The psychology of appearance (2010)
Presentation / Conference
Rumsey, N. (2010, November). The psychology of appearance. Paper presented at Laing & Buisson Cosmetic Surgery and Treatments conference, London, UK

The psychosocial impact of ductal carcinoma in situ (DCIS): A longitudinal prospective study (2010)
Journal Article
Kennedy, F., Harcourt, D., Rumsey, N., & White, P. (2010). The psychosocial impact of ductal carcinoma in situ (DCIS): A longitudinal prospective study. Breast, 19(5), 382-387. https://doi.org/10.1016/j.breast.2010.03.024

DCIS is a non-invasive breast cancer, increasingly detected through routine breast screening. Patients are reassured that the condition is early and not life-threatening but they undergo surgery similar to that used in the treatment of invasive breas... Read More about The psychosocial impact of ductal carcinoma in situ (DCIS): A longitudinal prospective study.

Incorporating user perspectives in the design of an online intervention tool for people with visible differences: Face IT (2010)
Journal Article
Bessell, A., Clarke, A., Harcourt, D., Moss, T., & Rumsey, N. (2010). Incorporating user perspectives in the design of an online intervention tool for people with visible differences: Face IT. Behavioural and Cognitive Psychotherapy, 38(5), 577-596. https://doi.org/10.1017/S1352465810000305

Background: Individuals with visible differences can experience social anxiety in relation to their appearance. Social skills-based psychosocial interventions have to date shown only limited effectiveness at addressing their concerns. Aims: To incorp... Read More about Incorporating user perspectives in the design of an online intervention tool for people with visible differences: Face IT.

How do young people use disclosure in real-time and non-real-time online groups? (2010)
Journal Article
Fox, F. E., Morris, M., & Rumsey, N. (2010). How do young people use disclosure in real-time and non-real-time online groups?. International Journal of Web Based Communities, 6(4), 337-348. https://doi.org/10.1504/IJWBC.2010.035837

While self-disclosure is an important feature of adolescent peer friendships there is little evidence to identify how disclosure processes are affected by the online environment. A qualitative analysis of two online groups, established for research p... Read More about How do young people use disclosure in real-time and non-real-time online groups?.

Adolescents with and without a facial difference: The role of friendships and social acceptance in perceptions of appearance and emotional resilience (2010)
Journal Article
Feragen, K. B., Kvalem, I. L., Rumsey, N., & Borge, A. I. (2010). Adolescents with and without a facial difference: The role of friendships and social acceptance in perceptions of appearance and emotional resilience. Body Image, 7(4), 271-279. https://doi.org/10.1016/j.bodyim.2010.05.002

This study investigated the role of friendships and social acceptance in self-perceptions of appearance and depressive symptoms, comparing adolescents with and without a facial difference. Adolescents with a visible cleft (n=196) were compared with a... Read More about Adolescents with and without a facial difference: The role of friendships and social acceptance in perceptions of appearance and emotional resilience.

'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa (2010)
Journal Article
Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2010). 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa. Chronic Illness, 6(3), 215-227. https://doi.org/10.1177/1742395310377006

Objectives: Professionals working with people who encounter pain and suffering can experience adverse emotional effects themselves. However, to provide effective support it is necessary to understand specific work-related experiences and contexts. Th... Read More about 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa.

The psychological impact of ptosis (2010)
Presentation / Conference
Harrad, R., Richards, H., Jenkinson, E., Herbett, H., Garrett, H., & Rumsey, N. (2010, June). The psychological impact of ptosis. Paper presented at The Association for Vision and Opthamology Winter Conference, Florida, USA

Attentional and interpretative biases in appearance concern: An investigation of biases in appearance-related information processing (2010)
Journal Article
Rosser, B. A., Moss, T., & Rumsey, N. (2010). Attentional and interpretative biases in appearance concern: An investigation of biases in appearance-related information processing. Body Image, 7(3), 251-254. https://doi.org/10.1016/j.bodyim.2010.02.007

The present study examined associations between high levels of appearance concern and information processing biases in interpretation and attention. An opportunity sample (N = 79) categorised ambiguous stimuli as related or unrelated to appearance. P... Read More about Attentional and interpretative biases in appearance concern: An investigation of biases in appearance-related information processing.

Living with a cleft (2010)
Presentation / Conference
Rumsey, N. (2010, May). Living with a cleft. Presented at CLAPA Annual Conference, Nottingham, UK

Using evidence-based principles to achieve sustained behavior change (2009)
Journal Article
Rumsey, N. (2009). Using evidence-based principles to achieve sustained behavior change. Wounds UK, 21(12),

This narrative review outlines the potential benefits of supporting clients to successfully change existing patterns of behavior in the context of wound care. In acknowledging the complexities involved in changing deeply ingrained patterns of behavio... Read More about Using evidence-based principles to achieve sustained behavior change.

South Asian community views about individuals with a disfigurement (2009)
Journal Article
Hughes, J., Naqvi, H., Saul, K., Williamson, H., Johnson, M., Rumsey, N., & Charlton, R. (2009). South Asian community views about individuals with a disfigurement. Diversity in Health and Care, 6(4), 241-253

There is a paucity of research exploring the views of different cultural and ethnic groups about individuals with a visible difference. This research is a priority area given that issues of disfigurement, stigma and shame may be particularly bound... Read More about South Asian community views about individuals with a disfigurement.

Quality of life and psychosocial adjustment to burn injury: Social functioning, body image, and health policy perspectives (2009)
Journal Article
Corry, N., Pruzinsky, T., & Rumsey, N. (2009). Quality of life and psychosocial adjustment to burn injury: Social functioning, body image, and health policy perspectives. International Review of Psychiatry, 21(6), 539-548. https://doi.org/10.3109/09540260903343901

This paper reviews four major topics related to the long-term psychosocial rehabilitation for burn survivors; (1) Body image adjustment process; (2) Social functioning challenges; (3) Interventions designed to address psychosocial rehabilitation chal... Read More about Quality of life and psychosocial adjustment to burn injury: Social functioning, body image, and health policy perspectives.

Researching body image and size (2009)
Presentation / Conference
Rumsey, N. (2009, June). Researching body image and size. Paper presented at Size Matters Conference, Bristol, UK

Researching appearance and disfigurement (2009)
Presentation / Conference
Rumsey, N. (2009, June). Researching appearance and disfigurement. Paper presented at Joint Seminar of the Centre of Appearance Research and Centre for Child and Adolescent Health, University of Bristol, UK

Perceptions of ductal carcinoma in situ (DCIS) among UK health professionals (2009)
Journal Article
Kennedy, F., Harcourt, D., & Rumsey, N. (2009). Perceptions of ductal carcinoma in situ (DCIS) among UK health professionals. Breast, 18(2), 89-93. https://doi.org/10.1016/j.breast.2009.01.004

Ductal carcinoma in situ (DCIS) is a complex medical entity which presents challenges for the health professionals who manage the treatment and support of the increasing numbers of women diagnosed with the condition. Health professionals' perceptions... Read More about Perceptions of ductal carcinoma in situ (DCIS) among UK health professionals.

Social experience in 10-year-old children born with a cleft: Exploring psychosocial resilience (2009)
Journal Article
Borge, A. I., Feragen, K. B., & Rumsey, N. (2009). Social experience in 10-year-old children born with a cleft: Exploring psychosocial resilience. Cleft Palate-Craniofacial Journal, 46(1), 65-74. https://doi.org/10.1597/07-124.1

Objective: The purposes of this study were to investigate self-reported social experience in 10-year-old children born with a cleft lip and/or palate and to gain a better understanding of variables implicated In psychosocial resilience. Design: Cross... Read More about Social experience in 10-year-old children born with a cleft: Exploring psychosocial resilience.

Living with a cleft (2008)
Presentation / Conference
Rumsey, N. (2008, October). Living with a cleft. Presented at Scancleft, Malmo, Sweden

The psychology of appearance: why health psychologists should “do looks” (2008)
Journal Article
Rumsey, N. (2008). The psychology of appearance: why health psychologists should “do looks”

Societal interest in appearance has a long history, but has never been more prevalent than now. Messages associating physical attractiveness with success and happiness are unremitting; researchers and commentators consider that extensive, and for... Read More about The psychology of appearance: why health psychologists should “do looks”.

Appearance matters: Cancer & appearance (2008)
Presentation / Conference
Harcourt, D., & Rumsey, N. (2008, June). Appearance matters: Cancer & appearance. Paper presented at Researchers in Oncology and Medical Psychology (ROMP) Group, University of Sydney, Australia

Appearance matters: Genetics & appearance (2008)
Presentation / Conference
Harcourt, D., & Rumsey, N. (2008, June). Appearance matters: Genetics & appearance. Paper presented at Paper to Genetic Services Team, Children's Hospital, Melbourne, Australia

Psychosocial aspects of breast reconstruction (2008)
Presentation / Conference
Harcourt, D., & Rumsey, N. (2008, June). Psychosocial aspects of breast reconstruction. Paper presented at Tumour Board Seminar Series, Westmead Hospital, Sydney, Australia

Looking different: Counselling, genetics & visible difference (2008)
Presentation / Conference
Rumsey, N., & Harcourt, D. (2008, June). Looking different: Counselling, genetics & visible difference. Paper presented at Genetic Counselling staff at the Children's Hospital, Melbourne and the MSc Genetic Counselling Programme, Melbourne University, Australia

The challenge of being diagnosed and treated for ductal carcinoma in situ (DCIS) (2008)
Journal Article
Kennedy, F., Harcourt, D., & Rumsey, N. (2008). The challenge of being diagnosed and treated for ductal carcinoma in situ (DCIS). European Journal of Oncology Nursing, 12(2), 103-111. https://doi.org/10.1016/j.ejon.2007.09.007

Following the introduction of the National Health Service Breast Screening Programme (NHSBSP) in the UK increasing numbers of women are diagnosed with ductal carcinoma in situ (DCIS). In DCIS, the cancer cells are confined to the ducts of the breast... Read More about The challenge of being diagnosed and treated for ductal carcinoma in situ (DCIS).

Considerations for the provision of psychosocial services for families following paediatric burn injury-A quantitative study (2008)
Journal Article
Phillips, C., & Rumsey, N. (2008). Considerations for the provision of psychosocial services for families following paediatric burn injury-A quantitative study. Burns, 34(1), 56-62. https://doi.org/10.1016/j.burns.2006.12.003

The purpose of the study was to quantify and report levels of psychosocial distress in a sample of parents of burned children to inform evidence-based recommendations for psychosocial support programmes. This paper reports on the cross-sectional quan... Read More about Considerations for the provision of psychosocial services for families following paediatric burn injury-A quantitative study.

Considerations for psychosocial support following burn injury-A family perspective (2007)
Journal Article
Phillips, C., Fussell, A., & Rumsey, N. (2007). Considerations for psychosocial support following burn injury-A family perspective. Burns, 33(8), 986-994. https://doi.org/10.1016/j.burns.2007.01.010

As part of a larger study involving burned adults and parents of burned children, family members were asked for their views regarding the impact of burn on themselves and the family (N = 50). The aim is to describe the range of psychosocial issues th... Read More about Considerations for psychosocial support following burn injury-A family perspective.

Psychosocial aspects of craniofacial deformity (2007)
Presentation / Conference
Rumsey, N. (2007, November). Psychosocial aspects of craniofacial deformity. Paper presented at Paper to the Royal College of Surgeons Scotland, Edinburgh, Scotland, UK

Managing appearance changes resulting from cancer treatment: Resilience in adolescent females (2007)
Journal Article
Wallace, M. L., Harcourt, D., Rumsey, N., & Foot, A. (2007). Managing appearance changes resulting from cancer treatment: Resilience in adolescent females. Psycho-Oncology, 16(11), 1019-1027. https://doi.org/10.1002/pon.1176

Typically, adolescence is marked by cognitive and physical developments impacting on self-esteem, independence and sexual awareness, often resulting in increased appearance awareness and dissatisfaction. Adolescents with cancer have the additional bu... Read More about Managing appearance changes resulting from cancer treatment: Resilience in adolescent females.

Visible difference amongst children and adolescents: Issues and interventions (2007)
Journal Article
Rumsey, N., & Harcourt, D. (2007). Visible difference amongst children and adolescents: Issues and interventions. Developmental Neurorehabilitation, 10(2), 113-123. https://doi.org/10.1080/13638490701217396

Whether present at birth or acquired later in life, a visible difference (disfigurement) can have considerable psychological ramifications for children and adolescents. Whilst many young people adapt to the demands placed upon them and appear relativ... Read More about Visible difference amongst children and adolescents: Issues and interventions.

"Ur skin is the thing that everyone sees and you cant change it!": Exploring the appearance-related concerns of young people with psoriasis (2007)
Journal Article
Fox, F. E., Rumsey, N., & Morris, M. (2007). "Ur skin is the thing that everyone sees and you cant change it!": Exploring the appearance-related concerns of young people with psoriasis. Developmental Neurorehabilitation, 10(2), 133-141. https://doi.org/10.1080/13638490701217594

Purpose: The failure of research to capture the qualitative experiences of young people who have chronic skin conditions means that their psychosocial needs are poorly understood. Using a grounded theory approach, this study facilitated group discuss... Read More about "Ur skin is the thing that everyone sees and you cant change it!": Exploring the appearance-related concerns of young people with psoriasis.

Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: A qualitative study (2007)
Journal Article
Wallace, M., Harcourt, D., & Rumsey, N. (2007). Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: A qualitative study. Developmental Neurorehabilitation, 10(2), 125-132. https://doi.org/10.1080/13638490701217313

Statement of purpose: Meningococcal Septicaemia (ms) is an acute, life-threatening illness characterized by rapid progression and if not treated swiftly can result in death within hours. Those who survive may require skin grafting or amputation of di... Read More about Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: A qualitative study.

Measuring the quality of life of youth with facial differences (2007)
Journal Article
Patrick, D. L., Topolski, T. D., Edwards, T. C., Aspinall, C. L., Kapp-Simon, K. A., Rumsey, N., …Thomas, C. R. (2007). Measuring the quality of life of youth with facial differences. Cleft Palate-Craniofacial Journal, 44(5), 538-547. https://doi.org/10.1597/06-072.1

Objective: To describe the Facial Differences Module of the Youth Quality of Life Instruments (YQOL-FD) and present results evaluating domain structure, internal consistency, reproducibility, validity, and respondent burden. Design: A multisite obser... Read More about Measuring the quality of life of youth with facial differences.

Life with a cleft lip/palate (2007)
Presentation / Conference
Rumsey, N. (2007, June). Life with a cleft lip/palate. Paper presented at Cleft Lip and Palate Association (CLAPA) Adults Conference, Birmingham, UK

Doing synchronous online focus groups with young people: Methodological reflections (2007)
Journal Article
Fox, F. E., Morris, M., & Rumsey, N. (2007). Doing synchronous online focus groups with young people: Methodological reflections. Qualitative Health Research, 17(4), 539-547. https://doi.org/10.1177/1049732306298754

Although online focus groups are emerging as a worthwhile methodological approach for qualitative researchers, reporting has been constrained in several ways. The majority of studies report asynchronous groups, whereas others employ synchronous excha... Read More about Doing synchronous online focus groups with young people: Methodological reflections.

Face transplantation: A review of the technical, immunological, psychological and clinical issues with recommendations for good practice (2007)
Journal Article
Morris, P., Bradley, A., Doyal, L., Earley, M., Hagen, P., Milling, M., & Rumsey, N. (2007). Face transplantation: A review of the technical, immunological, psychological and clinical issues with recommendations for good practice. Transplantation, 83(2), 109-128. https://doi.org/10.1097/01.tp.0000254201.89012.ae

Three years ago, the Working Party on Facial Transplantation concluded that until there was more information available about risks any potential patient would be exposed to, it would be unwise to proceed with transplantation of the human face. Over t... Read More about Face transplantation: A review of the technical, immunological, psychological and clinical issues with recommendations for good practice.

Appearance concerns in genetic conditions (2006)
Presentation / Conference
Rumsey, N., & Harcourt, D. (2006, December). Appearance concerns in genetic conditions. Paper presented at Paper to Institute of Medical Genetics at Cardiff University, Cardiff, Wales, UK

Face transplantation: Read the small print carefully (2006)
Presentation / Conference
Rumsey, N. (2006, November). Face transplantation: Read the small print carefully. Presented at Surgery unmasked: A public lecture on contemporary issues in facial surgery, Royal College of Surgeons of England, London, UK

The psychology of appearance & cosmetic surgery (2006)
Presentation / Conference
Rumsey, N. (2006, November). The psychology of appearance & cosmetic surgery. Paper presented at Paper to the Centre for Life in Newcastle, Newcastle, UK

The psychosocial benefits of corrective surgery for adults with strabismus (2006)
Journal Article
Morris, M., Jackson, S., Harrad, R. A., & Rumsey, N. (2006). The psychosocial benefits of corrective surgery for adults with strabismus. British Journal of Ophthalmology, 90(7), 883-888. https://doi.org/10.1136/bjo.2005.089516

Background: Few papers have addressed the psychological impact of strabismus in adults, with none comparing preoperative and postoperative data using standardised questionnaires relating surgical results and psychosocial outcomes. Methods: 46 partici... Read More about The psychosocial benefits of corrective surgery for adults with strabismus.

Appearance and cancer (2006)
Presentation / Conference
Rumsey, N. (2006, June). Appearance and cancer. Paper presented at Paper to the National Institute for Cancer, Melbourne, Australia

Are we helping children? Outcome assessments in craniofacial care (2006)
Book Chapter
Mouradian, W. E., Edwards, T. C., Topolski, T. D., Rumsey, N., & Patrick, D. L. (2006). Are we helping children? Outcome assessments in craniofacial care. In E. Parens (Ed.), Surgically Shaping Children: Technology, Ethics and the Pursuit of Normality (141-156). Baltimore, Maryland: John Hopkins University Press

Cosmetic surgery: The case of the face transplant (2006)
Presentation / Conference
Rumsey, N. (2006, April). Cosmetic surgery: The case of the face transplant. Paper presented at Science in Society Lecture Series, University of Ulster, Ulster, Northern Ireland

Responding to a facial difference (2005)
Presentation / Conference
Rumsey, N. (2005, February). Responding to a facial difference. Paper presented at The Face (AHRB funded workshop), The Dana Centre, Science Museum, London, UK

Altered body image (2005)
Book Chapter
Harcourt, D., & Rumsey, N. (2005). Altered body image. In N. Kearney, & A. Richardson (Eds.), Nursing Patients with Cancer: Principles and Practice (701-716). Elsevier

Ignoring it doesn't make it stop: Adolescents, appearance, and bullying (2005)
Journal Article
Lovegrove, E., & Rumsey, N. (2005). Ignoring it doesn't make it stop: Adolescents, appearance, and bullying. Cleft Palate-Craniofacial Journal, 42(1), 33-44. https://doi.org/10.1597/03-097.5.1

Objective: To investigate levels of appearance-related concern in a normative population of adolescents. Design: Action research methodology was used to help adolescents develop a questionnaire that elicited peer views on appearance (Part 1) and to f... Read More about Ignoring it doesn't make it stop: Adolescents, appearance, and bullying.

The Eurocleft study: Intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 1: Introduction and treatment experience (2005)
Journal Article
Semb, G., Brattström, V., Mølsted, K., Prahl-Andersen, B., Rumsey, N., & Shaw, W. C. (2005). The Eurocleft study: Intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 1: Introduction and treatment experience. Cleft Palate-Craniofacial Journal, 42(1), 64-68. https://doi.org/10.1597/02-119.1.1

Objective: To calculate the amount of treatment and associated travel experienced by five groups of patients treated at different centers. (This data is related to outcomes and patient/parent satisfaction in subsequent papers in this series). Design:... Read More about The Eurocleft study: Intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 1: Introduction and treatment experience.

Psychological aspects of face transplantation: Read the small print carefully (2004)
Journal Article
Rumsey, N. (2004). Psychological aspects of face transplantation: Read the small print carefully. American Journal of Bioethics, 4(3), 22-25. https://doi.org/10.1080/15265160490496903

As a member of the Working Party set up by the Royal College of Surgeons (RCS) in England to consider the technical, psychological, medical, and ethical aspects of face transplantation in 2003, I welcome the chance to comment on the article by the p... Read More about Psychological aspects of face transplantation: Read the small print carefully.

Altered body image: Appearance-related concerns of people with visible disfigurement (2004)
Journal Article
Garlick, W., Wyn-Williams, M., Rumsey, N., Clarke, A., & White, P. (2004). Altered body image: Appearance-related concerns of people with visible disfigurement. Journal of Advanced Nursing, 48(5), 443-453. https://doi.org/10.1111/j.1365-2648.2004.03227.x

Aim. The aim of this paper is to report a study to establish the extent and type of psychosocial needs of outpatients attending for treatment of a wide range of disfiguring conditions. Background. Visible disfigurements can be associated with extensi... Read More about Altered body image: Appearance-related concerns of people with visible disfigurement.

Facial transplantation: a working party report from the Royal College of Surgeons of England (2004)
Journal Article
Morris, P. J., Bradley, J., Doyal, L., Earley, M., Hadan, P., Milling, M., & Rumsey, N. (2004). Facial transplantation: a working party report from the Royal College of Surgeons of England. Transplantation, 77(3), 330-338

We are publishing this working party report on facial transplantation from the Royal College of Surgeons, England, in order to get opinions from the transplant community as to whether it is appropriate or not to perform this procedure at this point i... Read More about Facial transplantation: a working party report from the Royal College of Surgeons of England.

Mastectomy patients' decision-making for or against immediate breast reconstruction (2004)
Journal Article
Harcourt, D., & Rumsey, N. (2004). Mastectomy patients' decision-making for or against immediate breast reconstruction. Psycho-Oncology, 13(2), 106-115. https://doi.org/10.1002/pon.711

This multi-centred study examined how 93 women due to undergo mastectomy had elected for (n = 37) or against (n = 56) immediate breast reconstruction. Initial semi-structured interviews were conducted prior to undergoing surgery whilst follow-up inte... Read More about Mastectomy patients' decision-making for or against immediate breast reconstruction.

Body image and disfigurement: Issues and interventions (2004)
Journal Article
Rumsey, N., & Harcourt, D. (2004). Body image and disfigurement: Issues and interventions. Body Image, 1(1), 83-97. https://doi.org/10.1016/S1740-1445%2803%2900005-6

Whether present at birth, congenital or acquired later in life, a visible disfigurement can have a profound psychological impact upon the individual concerned. Difficulties include adverse effects on body image, quality of life, and self-esteem. In a... Read More about Body image and disfigurement: Issues and interventions.

Exploring the psychosocial concerns of out-patients with disfiguring conditions (2003)
Journal Article
Rumsey, N., Clarke, A., & White, P. (2003). Exploring the psychosocial concerns of out-patients with disfiguring conditions. Journal of Wound Care, 12(7), 247-252

Objective: This study was undertaken to establish the extent and type of psychosocial need in outpatients attending for treatment for a variety of disfiguring conditions. Method: A total of 220 outpatients receiving treatment for burns, skin condit... Read More about Exploring the psychosocial concerns of out-patients with disfiguring conditions.

Skin scarring: new insights may make adjustment easier (2003)
Journal Article
Partridge, J., & Rumsey, N. (2003). Skin scarring: new insights may make adjustment easier. BMJ, 326(7392), 765a. https://doi.org/10.1136/bmj.326.7392.765/a

Skin scarring is a clinical problem that can cause many psychological and social difficulties—some as a result of the cause of the scarring (for example, trauma), some related to the effects (for example, itching), and many to the appearance of the s... Read More about Skin scarring: new insights may make adjustment easier.

The psychological effect of mastectomy with or without breast reconstruction: a prospective, multi-centred study (2003)
Journal Article
Harcourt, D., Rumsey, N., Ambler, N. R., Cawthorn, S. J., Reid, C. D., Madox, P. R., …Umpleby, H. C. (2003). The psychological effect of mastectomy with or without breast reconstruction: a prospective, multi-centred study. Plastic and Reconstructive Surgery, 111(3), 1060-1068

A multicenter, prospective study (n = 103) examined the psychological implications of women's decisions for or against breast reconstruction. Recognized measures of anxiety, depression, body image, and quality of life were completed before the operat... Read More about The psychological effect of mastectomy with or without breast reconstruction: a prospective, multi-centred study.

The psychological effect of mastectomy with or without breast reconstruction: A prospective, multicenter study (2003)
Journal Article
Harcourt, D., Rumsey, N., Ambler, N. R., Cawthorn, S. J., Reid, C. D., Maddox, P. R., …Umpleby, H. C. (2003). The psychological effect of mastectomy with or without breast reconstruction: A prospective, multicenter study. Plastic and Reconstructive Surgery, 111(3), 1060-1068. https://doi.org/10.1097/01.PRS.0000046249.33122.76

A multicenter, prospective study (n = 103) examined the psychological implications of women's decisions for or against breast reconstruction. Recognized measures of anxiety, depression, body image, and quality of life were completed before the operat... Read More about The psychological effect of mastectomy with or without breast reconstruction: A prospective, multicenter study.

Disfigurement – neglected in primary care? (2003)
Journal Article
Charlton, R., Rumsey, N., Partridge, J., Barlow, J., & Saul, K. (2003). Disfigurement – neglected in primary care?. British Journal of General Practice, 53(486), 6-8

Psychosocial distress associated with disfiguring eye conditions (2003)
Journal Article
Clarke, A., Rumsey, N., Collin, J. R., & Wyn-Williams, M. (2003). Psychosocial distress associated with disfiguring eye conditions. Eye, 17(1), 35-40. https://doi.org/10.1038/sj.eye.6700234

Purpose of study. Visible disfigurement is associated with a range of psychosocial difficulties; however, the problems encountered by patients with eye conditions are under-researched. This study aimed to establish the extent and type of psychosocial... Read More about Psychosocial distress associated with disfiguring eye conditions.

Investigating the appearance-related concerns of people with hand injuries (2003)
Journal Article
Rumsey, N., Clarke, A., White, P., & Hooper, E. (2003). Investigating the appearance-related concerns of people with hand injuries. British Journal of Hand Therapy, 8(2), 57-61

An investigation of the appearance-related concerns of patients with disfiguring hand conditions was carried out in two out-patient clinics. A considerable proportion of the 122 respondents were experiencing psychosocial problems including anxiety, d... Read More about Investigating the appearance-related concerns of people with hand injuries.

The effectiveness of cognitive-behavioural interventions provided at outlook: A disfigurement support unit (2002)
Journal Article
Kleve, L., Rumsey, N., Wyn-Williams, M., & White, P. (2002). The effectiveness of cognitive-behavioural interventions provided at outlook: A disfigurement support unit. Journal of Evaluation in Clinical Practice, 8(4), 387-395. https://doi.org/10.1046/j.1365-2753.2002.00348.x

Rationale, aims and objectives: The establishment and evaluation of a disfigurement support unit (Outlook), based in a district general hospital is described. Methods: The effectiveness of cognitive-behavioural interventions provided for 36 adults re... Read More about The effectiveness of cognitive-behavioural interventions provided at outlook: A disfigurement support unit.

Body image & congenital conditions with visible differences (2002)
Book Chapter
Rumsey, N. (2002). Body image & congenital conditions with visible differences. In T. F. Cash, & T. Pruzinsky (Eds.), Body Image: A Handbook of Theory, Research, and Clinical Practice. New York, NY: Guilford Press

Body image change in disfiguring congenital conditions (2002)
Book Chapter
Rumsey, N. (2002). Body image change in disfiguring congenital conditions. In T. F. Cash, & T. Pruzinsky (Eds.), Body Image: A Handbook of Theory, Research, and Clinical Practice. New York, NY: Guilford Press

Psychological aspects of breast reconstruction: A review of the literature (2001)
Journal Article
Harcourt, D., & Rumsey, N. (2001). Psychological aspects of breast reconstruction: A review of the literature. Journal of Advanced Nursing, 35(4), 477-487. https://doi.org/10.1046/j.1365-2648.2001.01865.x

Aim. This paper critically examines the research literature relating to the psychological aspects of breast reconstruction. Particular attention is given to the role of specialist breast care nurses in supporting women faced with the decision of whet... Read More about Psychological aspects of breast reconstruction: A review of the literature.

Factors implicated in the decision whether or not to join the tamoxifen trial in women at high familial risk of breast cancer (2000)
Journal Article
Rumsey, N., Lovegrove, E., Lovegrove, E., Rumsey, N., Harcourt, D., & Cawthorn, S. J. (2000). Factors implicated in the decision whether or not to join the tamoxifen trial in women at high familial risk of breast cancer. Psycho-Oncology, 9(3), 193-202. https://doi.org/10.1002/1099-1611%28200005/06%299%3A3%3C193%3A%3AAID-PON454%3E3.0.CO%3B2-P

Why, given similar medical circumstances - high familial risk of breast cancer - will some women elect to join a trial of drugs designed to reduce that risk but others choose not to take part? The aim of this study was to identify measurable differen... Read More about Factors implicated in the decision whether or not to join the tamoxifen trial in women at high familial risk of breast cancer.

Specialist nurses counsellor interventions at the time of diagnosis of breast cancer: Comparing 'advocacy' with a conventional approach (1999)
Journal Article
Ambler, N., Rumsey, N., Harcourt, D., Khan, F., Cawthorn, S., & Barker, J. (1999). Specialist nurses counsellor interventions at the time of diagnosis of breast cancer: Comparing 'advocacy' with a conventional approach. Journal of Advanced Nursing, 29(2), 445-453. https://doi.org/10.1046/j.1365-2648.1999.00902.x

Over recent years, specialist breast care nurses have become increasingly recognized as core members of any breast care team within the UK. Part of the role is to support patients at the highly stressful stage of receiving a diagnosis. This paper des... Read More about Specialist nurses counsellor interventions at the time of diagnosis of breast cancer: Comparing 'advocacy' with a conventional approach.

Same-day diagnosis of symptomatic breast problems: Psychological impact and coping strategies (1999)
Journal Article
Rumsey, N., Harcourt, D., Rumsey, N., & Ambler, N. (1999). Same-day diagnosis of symptomatic breast problems: Psychological impact and coping strategies. Psychology, Health and Medicine, 4(1), 57-71. https://doi.org/10.1080/135485099106405

'One-stop' clinics offering same-day investigation and diagnosis of symptomatic breast problems are becoming increasingly available. This randomized controlled trial compared the one-stop system (n = 416) with conventional arrangements (n = 375) invo... Read More about Same-day diagnosis of symptomatic breast problems: Psychological impact and coping strategies.

Evaluation of a one-stop breast lump clinic: A randomized controlled trial (1998)
Journal Article
Cawthorn, S. J., Ambler, N., Harcourt, D., & Rumsey, N. (1998). Evaluation of a one-stop breast lump clinic: A randomized controlled trial. Breast, 7(6), 314-319. https://doi.org/10.1016/S0960-9776%2898%2990073-X

This randomized controlled trial compared the impact on patients (n = 791) of a one-stop clinic providing same-day diagnosis with a conventional system involving two appointments and a delay before results are available. Semi-structured interviews at... Read More about Evaluation of a one-stop breast lump clinic: A randomized controlled trial.

Visible disfigurement (1998)
Book Chapter
Rumsey, N. (1998). Visible disfigurement. In A. S. Bellack, & M. Hersen (Eds.), Comprehensive Clinical Psychology (575-593). Elsevier Science

Psychological aspects of cleft lip and palate (1998)
Journal Article
Turner, S. R., Rumsey, N., & Sandy, J. R. (1998). Psychological aspects of cleft lip and palate. European Journal of Orthodontics, 20(4), 407-415. https://doi.org/10.1093/ejo/20.4.407

In addition to the influences of family dynamics, educational and vocational factors on the social development and rehabilitation of CLP patients, psychological problems, such as lowered self-esteem and difficulties during social interaction, are als... Read More about Psychological aspects of cleft lip and palate.

Disfigurement & dysmorphology (1997)
Book Chapter
Rumsey, N. (1997). Disfigurement & dysmorphology. In A. Baum, S. Newman, J. Weinmann, R. West, & C. McManus (Eds.), Cambridge Handbook of Psychology, Health and Medicine. Cambridge University Press

Plastic and cosmetic surgery (1997)
Book Chapter
Rumsey, N. (1997). Plastic and cosmetic surgery. In A. Baum, S. Newman, J. Weinmann, R. West, & C. McManus (Eds.), Cambridge Handbook of Psychology, Health and Medicine. Cambridge University Press

Historical & anthropological perspectives on appearance (1997)
Book Chapter
Rumsey, N. (1997). Historical & anthropological perspectives on appearance. In R. Lansdown, N. Rumsey, E. Bradbury, T. Carr, & J. Partridge (Eds.), Visibly Different: Coping with Disfigurement. Hodder Arnold

Psychological outcomes amongst cleft patients and their families (1997)
Journal Article
Rumsey, N., Turner, S. R., Thomas, P. W., Dowell, T., Rumsey, N., & Sandy, J. R. (1997). Psychological outcomes amongst cleft patients and their families. British Journal of Plastic Surgery, 50(1), 1-9. https://doi.org/10.1016/S0007-1226%2897%2991275-3

Our aims were to determine the psychological status of a sample of cleft lip and palate patients and their parents using standardised interviews and to assess subjects' satisfaction with cleft treatment. In all, 242 interviews of 112 patients and 130... Read More about Psychological outcomes amongst cleft patients and their families.

Implementing an advocacy style of nurse counsellor intervention for breast cancer patients in the Conference proceedings for the December 1995 British psychosocial oncology society conference (1996)
Journal Article
Harcourt, D., Rumsey, N., Ambler, N., & Cawthorn, S. (1996). Implementing an advocacy style of nurse counsellor intervention for breast cancer patients in the Conference proceedings for the December 1995 British psychosocial oncology society conference. Psycho-Oncology, 5(4), 352. https://doi.org/10.1002/%28SICI%291099-1611%28199612%295%3A4%3C347%3A%3AAID-PON255%3E3.0.CO%3B2-0

An evaluation of the impact of social interaction skills training for facially disfigured people (1996)
Journal Article
Partridge, J., Rumsey, N., Robinson, E., Robinson, E., Rumsey, N., & Partridge, J. (1996). An evaluation of the impact of social interaction skills training for facially disfigured people. British Journal of Plastic Surgery, 49(5), 281-289. https://doi.org/10.1016/S0007-1226%2896%2990156-3

Facially disfigured people can experience significant psychological problems, commonly relating to difficulties in social interaction. The effect of social interaction, skills workshops on the psychological wellbeing of 64 facially disfigured partici... Read More about An evaluation of the impact of social interaction skills training for facially disfigured people.

Counselling and disfigurement (1991)
Book Chapter
Rumsey, N. (1991). Counselling and disfigurement. In H. Davis, & L. Fallowfield (Eds.), Counselling and Communication in Health Care. Wiley

The Effect of Facial Disfigurement on the Proxemic Behavior of the General Public (1982)
Journal Article
Rumsey, N., Bull, R., & Gahagan, D. (1982). The Effect of Facial Disfigurement on the Proxemic Behavior of the General Public. Journal of Applied Social Psychology, 12(2), 137-150. https://doi.org/10.1111/j.1559-1816.1982.tb00855.x

The personal space afforded to a disfigured or nondisfigured confederate by 450 pedestrians in a busy street was measured. In Condition 1, the confederate had a birthmark under the right eye (permanent disfigurement). In Condition 2, this was replace... Read More about The Effect of Facial Disfigurement on the Proxemic Behavior of the General Public.

Does appearance matter?
Presentation / Conference
Rumsey, N. Does appearance matter?. Paper presented at The Future Laboratory, London

I don’t like the way I look
Presentation / Conference
Rumsey, N. I don’t like the way I look. Paper presented at TedMed Live, Bristol Health Partners, Bristol

Does appearance matter?
Presentation / Conference
Rumsey, N. Does appearance matter?. Presented at Devizes Festival 2013, Devizes

Measuring psychological outcomes
Presentation / Conference
Rumsey, N. Measuring psychological outcomes. Paper presented at Royal Society of Medicine Medicine & Me Series: Cleft Lip & Palate, London

A qualitative study using photo-elicitation to explore the experiences of families at burn camp
Presentation / Conference
Armstrong-James, L., Cadogan, J., Williamson, H., Rumsey, N., & Harcourt, D. A qualitative study using photo-elicitation to explore the experiences of families at burn camp

Aims: To use photo-elicitation to explore the experiences of children with a burn injury and their families attending a family burn camp. Introduction: Burns camps aim to provide children with a fun and supportive environment, in which they carry... Read More about A qualitative study using photo-elicitation to explore the experiences of families at burn camp.

Breast reconstruction: Who has it and why?
Presentation / Conference
Harcourt, D., Rumsey, N., & Ambler, N. Breast reconstruction: Who has it and why?. Paper presented at Psychology Post-Graduate Affairs Group Annual Conference, Derby

'One-stop clinics': A randomised controlled trial examining the psychological impact of same-day diagnosis for women referred to a specialist breast clinic
Presentation / Conference
Harcourt, D., Ambler, N., Rumsey, N., & Cawthorn, S. 'One-stop clinics': A randomised controlled trial examining the psychological impact of same-day diagnosis for women referred to a specialist breast clinic. Paper presented at British Psychological Society, Special Group in Health Psychology Annual Conference, University of Southampton