Sarah Hewlett's Outputs (160)

A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis (2014)
Journal Article

© 2014 Lin et al.; licensee BioMed Central Ltd. Background: Previous studies have not addressed rheumatoid arthritis (RA) patients' help-seeking behaviours for RA flares, and only one small qualitative study has addressed how patients experience dail... Read More about A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis.

It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes (2014)
Journal Article

Objective: The objective of this study was to explore patients' experiences of RA daily life while on modern treatments. Methods: The methods of this study comprised semi-structured interviews with 15 RA patients, analysed using inductive thematic an... Read More about It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes.

Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management (2014)
Journal Article

Background: Self-management of arthritis requires informed, activated patients to manage its physical and psychosocial consequences. Patient activation and self-management can be enhanced through the use of cognitive-behavioural approaches, which hav... Read More about Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management.

Establishing a core domain set to measure rheumatoid arthritis flares: Report of the OMERACT 11 RA flare workshop (2014)
Journal Article

Objective. The OMERACT Rheumatoid Arthritis (RA) Flare Group (FG) is developing a data-driven, patient-inclusive, consensus-based RA flare definition for use in clinical trials, longterm observational studies, and clinical practice. At OMERACT 11, we... Read More about Establishing a core domain set to measure rheumatoid arthritis flares: Report of the OMERACT 11 RA flare workshop.

Updating the omeract filter: Discrimination and feasibility (2014)
Journal Article

The " Discrimination" part of the OMERACT Filter asks whether a measure discriminates between situations that are of interest. " Feasibility" in the OMERACT Filter encompasses the practical considerations of using an instrument, including its ease of... Read More about Updating the omeract filter: Discrimination and feasibility.

Patient involvement in outcome measures for Psoriatic arthritis (2014)
Journal Article

Psoriatic arthritis (PsA) is a heterogeneous inflammatory arthritis with a varied clinical phenotype. There has been considerable international collaboration over recent years to develop and prioritise appropriate disease domains and outcome measures... Read More about Patient involvement in outcome measures for Psoriatic arthritis.

Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets (2014)
Journal Article

Objective. The Outcome Measures in Rheumatology (OMERACT) Filter provides guidelines for the development and validation of outcome measures for use in clinical research. The "Truth" section of the OMERACT Filter presupposes an explicit framework for... Read More about Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets.

Updating the omeract filter: Implications for patient-reported outcomes (2014)
Journal Article

Objective: At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument... Read More about Updating the omeract filter: Implications for patient-reported outcomes.

Updating the OMERACT filter: Implications for imaging and soluble biomarkers (2014)
Journal Article

Objective. The Outcome Measures in Rheumatology (OMERACT) Filter provides a framework for the validation of outcome measures for use in rheumatology clinical research. However, imaging and biochemical measures may face additional validation challenge... Read More about Updating the OMERACT filter: Implications for imaging and soluble biomarkers.

Pain and fatigue (2013)
Book Chapter

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference Contribution

Non-pharmacological interventions for fatigue in rheumatoid arthritis (2013)
Journal Article

© 2013 The Cochrane Collaboration. Background: Fatigue is a common and potentially distressing symptom for people with rheumatoid arthritis with no accepted evidence based management guidelines. Non-pharmacological interventions, such as physical act... Read More about Non-pharmacological interventions for fatigue in rheumatoid arthritis.

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference Contribution

“Back to being normal”: The patient perspective on remission in rheumatoid arthritis. (2013)
Presentation / Conference Contribution

Background: The aim of current rheumatoid arthritis treatment is remission. As treatment should be targeted at patient relevant outcomes, it is important to know how patients perceive remission.

Objectives: The objective of this study was to explo... Read More about “Back to being normal”: The patient perspective on remission in rheumatoid arthritis..

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference Contribution

Will I waste your time? Delays in help-seeking for RA flares (2012)
Presentation / Conference Contribution

"It gets me down every single day": Are men with rheumatoid arthritis getting the support they need? (2012)
Presentation / Conference Contribution

Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus (2012)
Journal Article

Objectives: For rheumatoid arthritis (RA), there is no consensus on how to define and assess flare. Variability in flare definitions impairs understanding of findings across studies and limits ability to pool results. The OMERACT RA Flare Group sough... Read More about Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus.

Exploring the cultural validity of rheumatology outcomes (2012)
Journal Article

In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the inf... Read More about Exploring the cultural validity of rheumatology outcomes.

'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus (2012)
Journal Article

Objectives: The aim of this study was to explore the patient's perception of receiving a diagnosis of systemic lupus erythematosus (lupus) and reports on their experience of the period between onset of symptoms and receiving a definitive diagnosis. M... Read More about 'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus.