Exploring the cultural validity of rheumatology outcomes

Sanderson, Tessa; Hewlett, Sarah; Calnan, Michael; Morris, Marianne; Raza, Karim; Kumar, Kanta

Abstract

In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influence of patients’ ethnic and cultural background on which treatment outcomes are important from a patient perspective. This pilot study identified 74 treatment outcomes from the female Punjabi RA patients, including 21 new ones that were not identified in previous research with White British RA patients. The social impact of RA created significant additional burden for these Punjabi women, with ‘less stigmatisation’ and ‘improved ability to carry out family duties’ generated as important new outcomes. This study illustrates a need to address cultural validity in outcome elicitation and prioritisation, to ensure interventions are evaluated using criteria that have meaning for people with that condition.

• Journal Article Type: Article
• Publication Date: Sep 27, 2012
• Deposit Date: Nov 15, 2012
• Publicly Available Date: Jun 21, 2016
• Journal: British Journal of Nursing
• Print ISSN: 0966-0461
• Publisher: MA Healthcare
• Peer Reviewed: Peer Reviewed
• Volume: 21
• Issue: 17
• Pages: 1015-1023
• Keywords: rheumatoid arthritis, culture, ethnicity, qualitative, patient perspective, stigma
• Public URL: https://uwe-repository.worktribe.com/output/943583
• Publisher URL: http://www.internurse.com/cgi-bin/go.pl/library/abstract.html?uid=94319
• Contract Date: Jun 21, 2016