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Outputs (175)

Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2022)
Journal Article
Dures, E., Bridgewater, S., Abbott, B., Adams, J., Berry, A., McCracken, L. M., …Ewings, P. (2022). Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study. BMJ Open, 12(7), e054627. https://doi.org/10.1136/bmjopen-2021-054627

OBJECTIVES: Patients with inflammatory arthritis report that fatigue is challenging to manage. We developed a manualised, one-to-one, cognitive-behavioural intervention, delivered by rheumatology health professionals (RHPs). The Fatigue - Reducing it... Read More about Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), Article keab246.025. https://doi.org/10.1093/rheumatology/keab246.025

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article
Jones, B., Hunt, A., Hewlett, S., Harcourt, D., & Dures, E. (2022). Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study. Musculoskeletal Care, 20(1), 74-85. https://doi.org/10.1002/msc.1555

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations (2019)
Journal Article
Hewlett, S., Almeida, C., Ambler, N., Blair, P. S., Choy, E., Dures, E., …Pollock, J. (2019). Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations. Health Technology Assessment, 23(57), https://doi.org/10.3310/hta23570

BACKGROUND: Fatigue is a major problem in rheumatoid arthritis (RA). There is evidence for the clinical effectiveness of cognitive-behavioural therapy (CBT) delivered by clinical psychologists, but few rheumatology units have psychologists. OBJECTIVE... Read More about Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations.

Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients (2019)
Journal Article
Dures, E., Bowen, C., Brooke, M., Lord, J., Tillett, W., McHugh, N., & Hewlett, S. (2019). Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients. Rheumatology Advances in Practice, 3(2), Article rkz022. https://doi.org/10.1093/rap/rkz022

Objectives. PsA is an inflammatory condition that can cause pain, fatigue, swelling and joint stiffness. The consequences include impaired physical function, a high psychosocial burden, reduced quality of life and work disability. The presenting sym... Read More about Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients.

Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences (2019)
Journal Article
Dures, E., Rooke, C., Hammond, A., & Hewlett, S. (2019). Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences. Rheumatology Advances in Practice, 3(2), 1-7. https://doi.org/10.1093/rap/rkz032

Objectives. Successful, non-pharmacological research interventions are challenging to implement in clinical practice. The aim of the study was to understand the experiences of rheumatology nurses and occupational therapists (tutors) delivering a nove... Read More about Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences.

Developing a group intervention to manage fatigue in rheumatoid arthritis through modifying physical activity (2019)
Journal Article
Salmon, V. E., Hewlett, S., Walsh, N. E., Kirwan, J. R., Morris, M., Urban, M., & Cramp, F. (2019). Developing a group intervention to manage fatigue in rheumatoid arthritis through modifying physical activity. BMC Musculoskeletal Disorders, 20(1), 1-13. https://doi.org/10.1186/s12891-019-2558-4

© 2019 The Author(s). Background: Fatigue is a major symptom of rheumatoid arthritis (RA). There is some evidence that physical activity (PA) may be effective in reducing RA fatigue. However, few PA interventions have been designed to manage fatigue... Read More about Developing a group intervention to manage fatigue in rheumatoid arthritis through modifying physical activity.

Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT) (2019)
Journal Article
Hewlett, S., Almeida, C., Ambler, N., Blair, P. S., Choy, E. H., Dures, E., …Pollock, J. (2019). Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT). Annals of the Rheumatic Diseases, 78(4), 465-472. https://doi.org/10.1136/annrheumdis-2018-214469

© Author(s) (or their employer(s)) 2019. Objectives To see if a group course delivered by rheumatology teams using cognitive-behavioural approaches, plus usual care, reduced RA fatigue impact more than usual care alone. Methods Multicentre, 2-year ra... Read More about Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT).

Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs (2018)
Journal Article
Hewlett, S., Haig-Ferguson, A., Rose-Parfitt, E., Halls, S., Freke, S., & Creamer, P. (2019). Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs. Musculoskeletal Care, 17(1), 63-71. https://doi.org/10.1002/msc.1367

© 2018 John Wiley & Sons, Ltd. Objective: Successful biologic disease-modifying anti-rheumatic drug (bDMARD) dose reduction appears increasingly possible from clinical trials. The present study aimed to understand the patient perspective of bDMARD... Read More about Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs.

The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models (2018)
Journal Article
Ferreira, R. J. O., Gossec, L., Duarte, C., Nicklin, J. K., Hewlett, S., da Silva, J. A. P., & Ndosi, M. (2018). The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models. Quality of Life Research, 27(11), 2909-2921. https://doi.org/10.1007/s11136-018-1959-4

© 2018, The Author(s). Purpose: The Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients’ understanding of the Portuguese RAID and evaluate its cross-cultu... Read More about The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models.

Keeping physically active with rheumatoid arthritis: semi-structured interviews to explore patient perspectives, experiences and strategies (2018)
Journal Article
Thomas, R., Hewlett, S., Swales, C., & Cramp, F. (2019). Keeping physically active with rheumatoid arthritis: semi-structured interviews to explore patient perspectives, experiences and strategies. Physiotherapy, 105(3), 378-384. https://doi.org/10.1016/j.physio.2018.09.001

© 2018 Chartered Society of Physiotherapy Background: Regular physical activity is safe and beneficial for people with rheumatoid arthritis (RA) but the majority of people with RA are less active than the general population and have a higher risk of... Read More about Keeping physically active with rheumatoid arthritis: semi-structured interviews to explore patient perspectives, experiences and strategies.

Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data (2018)
Journal Article
Erskine, G., Dures, E., McHugh, N., & Hewlett, S. (2018). Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data. Rheumatology Advances in Practice, 2(2), 1-7. https://doi.org/10.1093/rap/rky023

© The Author(s) 2018. Background. PsA is an inflammatory arthritis associated with psoriasis, affecting the joints and connective tissue. According to the common-sense model (CSM), patients develop illness beliefs when faced with new symptoms, which... Read More about Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data.

Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review (2018)
Journal Article
Fishpool, K., Jones, B., Hewlett, S., & Ndosi, M. (2018). Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review. Rheumatology, 57(Supp), https://doi.org/10.1093/rheumatology/key075.501

Psychological distress in rheumatoid arthritis (RA) is significantly higher than the general population and impacts disease activity and treatment outcomes. Online interventions have the potential to reach large numbers of patients. This study aimed... Read More about Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review.

Stiffness is the cardinal symptom of inflammatory musculoskeletal diseases, yet still variably measured: Report from the OMERACT 2016 Stiffness Special Interest Group (2017)
Journal Article
Holt, R. J., Hill, C. L., Bingham, C. O., Bartlett, S. J., Mackie, S. L., Leong, A. L., …Orbai, A. M. (2017). Stiffness is the cardinal symptom of inflammatory musculoskeletal diseases, yet still variably measured: Report from the OMERACT 2016 Stiffness Special Interest Group. Journal of Rheumatology, 44(12), 1904-1910. https://doi.org/10.3899/jrheum.161073

Copyright © 2017. All rights reserved. Objective. The objectives of the Outcome Measures in Rheumatology (OMERACT) Stiffness special interest group (SIG) are to characterize stiffness as an outcome in rheumatic disease and to identify and validate a... Read More about Stiffness is the cardinal symptom of inflammatory musculoskeletal diseases, yet still variably measured: Report from the OMERACT 2016 Stiffness Special Interest Group.

Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis (2017)
Journal Article
Robson, J., Pauling, J. D., Domsic, R. T., Saketkoo, L. A., Almeida, C., Withey, J., …Hewlett, S. (2018). Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis. Arthritis Care and Research, 70(9), 1373-1384. https://doi.org/10.1002/acr.23475

© 2017, American College of Rheumatology Objective: Raynaud's phenomenon (RP) is the most common manifestation of systemic sclerosis (SSc). RP is an episodic phenomenon, not easily assessed in the clinic, leading to reliance on self-report. A thoroug... Read More about Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis.

Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey (2017)
Journal Article
Wilson, O., Hewlett, S., Woodburn, J., Pollock, J., & Kirwan, J. (2017). Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey. Journal of Foot and Ankle Research, 10(1), 46. https://doi.org/10.1186/s13047-017-0229-y

© 2017 The Author(s). Background: Foot symptoms in rheumatoid arthritis (RA) derive from a combination of inflammation, altered foot mechanics, deformity and secondary skin lesions. Guidelines recommend regular review of patients' feet, but the exten... Read More about Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey.

The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries (2017)
Journal Article
Hewlett, S., Kirwan, J., Bode, C., Cramp, F., Carmona, L., Dures, E., …Gossec, L. (2018). The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries. Rheumatology, 57(2), 300-308. https://doi.org/10.1093/rheumatology/kex370

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To evaluate the Bristol Rheumatoid Arthritis Fatigue Multidimensional Questionnaire (BRAFMDQ), the revised Bris... Read More about The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries.

‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach (2017)
Journal Article
Kirwan, J., Rodham, K., White, A., Noddings, R., Flurey, C. A., & Hewlett, S. (2018). ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach. Sociology of Health and Illness, 40(1), 115-129. https://doi.org/10.1111/1467-9566.12628

© 2017 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL. Current literature has overlooked the impact of chronic illness on masculine identity. We therefore aimed to investigate the im... Read More about ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach.

A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis (2017)
Journal Article
Helliwell, P. S., Tillett, W., Dures, E., Hewlett, S., FitzGerald, O., Brooke, M., …McHugh, N. (2017). A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis. Journal of Rheumatology, 44(10), 1445-1452. https://doi.org/10.3899/jrheum.161459

© Copyright 2017 The Journal of Rheumatology. All rights reserved. Objective. To rank outcomes identified as important to patients with psoriatic arthritis (PsA) and examine their representation in existing composite measures. Methods. Seven nominal... Read More about A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis.

Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey (2017)
Journal Article
Flurey, C. A., Hewlett, S., Rodham, K., White, A., Noddings, R., & Kirwan, J. (2018). Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey. Arthritis Care and Research, 70(6), 851-860. https://doi.org/10.1002/acr.23422

© 2017 The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology. Objective: To investigate the existence and distribution of 2 typologies (termed “factors”) of men with rheumatoid... Read More about Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission (2017)
Journal Article
Wells, G. A., Smolen, J. S., Hetland, M. L., Hill, C. L., Sadlonova, M., Van Tuyl, L. H., …Boers, M. (2017). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission. Annals of the Rheumatic Diseases, 76(5), 855-861. https://doi.org/10.1136/annrheumdis-2016-209835

© 2017, BMJ Publishing Group. All rights reserved. Background: Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remissi... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission.

Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure (2017)
Journal Article
Kirwan, J. R., Halls, S., Dures, E., Pollock, J., Baker, G., Edmunds, A., & Hewlett, S. (2018). Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure. Rheumatology, 57(2), 263-272. https://doi.org/10.1093/rheumatology/kex085

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To qualitatively develop and test a set of candidate items for a new RA stiffness patientreported outcome measu... Read More about Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure.

Physical activity interventions for fatigue in rheumatoid arthritis: a systematic review (2017)
Journal Article
Salmon, V. E., Hewlett, S., Walsh, N., Kirwan, J. R., & Cramp, F. A. (2017). Physical activity interventions for fatigue in rheumatoid arthritis: a systematic review. Physical Therapy Reviews, 22(1-2), 12-22. https://doi.org/10.1080/10833196.2016.1277454

© 2017 Informa UK Limited, trading as Taylor & Francis Group. Background: Fatigue is a major symptom of rheumatoid arthritis (RA) and the need for effective interventions is evident. Programmes based upon physical activity (PA) have been shown to i... Read More about Physical activity interventions for fatigue in rheumatoid arthritis: a systematic review.

“You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis (2017)
Journal Article
Kirwan, J. R., Flurey, C. A., Hewlett, S., Rodham, K., White, A., & Noddings, R. (2017). “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis. Arthritis Care and Research, 69(3), 330-337. https://doi.org/10.1002/acr.22951

© 2016, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of the American College of Rheumatology. Objective: To explore the experiences, coping styles, and support preferences of male rheumatoid arthritis (RA) p... Read More about “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis.

Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study (2017)
Journal Article
Tillett, W., Dures, E., Hewlett, S., Lord, J., Bowen, C., & McHugh, N. (2017). Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study. Patient, 10(4), 455-462. https://doi.org/10.1007/s40271-017-0221-4

© 2017, The Author(s). Background: Psoriatic arthritis (PsA) is a variable and complex inflammatory condition. Symptoms can compromise physical function, reduce quality of life, and accrue significant health costs. Commonly used patient-reported outc... Read More about Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study.

The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study (2017)
Journal Article
Kirwan, J., Wilson, O., Dures, E., Quest, E., & Hewlett, S. (2017). The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study. Journal of Foot and Ankle Research, 10(1), https://doi.org/10.1186/s13047-017-0188-3

© 2017 The Author(s). Background: Although foot problems are common in rheumatoid arthritis (RA), the consequences of foot problems from the patient perspective have not been fully explored. The aims of this study were to explore the experience of fo... Read More about The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study.

Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study (2016)
Journal Article
Kirwan, J. R., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. (2016). Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study. BMJ Open, 6(10), https://doi.org/10.1136/bmjopen-2016-012051

© Published by the BMJ Publishing Group Limited. Objective To identify typologies of experiences and coping strategies of men with rheumatoid arthritis (RA). Design Q-methodology (a qualitative and quantitative approach to grouping people according t... Read More about Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study.

International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials (2016)
Journal Article
Christensen, R., Callis Duffin, K., Elmamoun, M., Grieb, S. D., Shea, J. A., De Wit, M., …Ogdie, A. (2017). International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials. Annals of the Rheumatic Diseases, 76(4), 673-680. https://doi.org/10.1136/annrheumdis-2016-210242

© 2017 Published by the BMJ Publishing Group Limited. Objective To identify a core set of domains (outcomes) to be measured in psoriatic arthritis (PsA) clinical trials that represent both patients' and physicians' priorities. Methods We conducted (1... Read More about International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials.

Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey (2016)
Journal Article
Morris, M., Ambler, N., Caesley, J., Peterson, A., Fraser, I., Dures, E., …Pollock, J. (2017). Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey. Musculoskeletal Care, 15(3), 175-185. https://doi.org/10.1002/msc.1159

Copyright © 2016 John Wiley & Sons, Ltd. Objectives: Psychological support for inflammatory arthritis is recommended in rheumatology treatment guidelines. Previous research found that high numbers of patients would access such support but that prov... Read More about Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey.

Biologic interventions for fatigue in rheumatoid arthritis (2016)
Journal Article
Almeida, C., Choy, E. H., Hewlett, S., Kirwan, J. R., Cramp, F., Chalder, T., …Christensen, R. (2016). Biologic interventions for fatigue in rheumatoid arthritis. Cochrane Database of Systematic Reviews, 6, Article CD008334. https://doi.org/10.1002/14651858.CD008334.pub2

BACKGROUND: Fatigue is a common and potentially distressing symptom for patients with rheumatoid arthritis (RA), with no accepted evidence-based management guidelines. Evidence suggests that biologic interventions improve symptoms and signs in RA... Read More about Biologic interventions for fatigue in rheumatoid arthritis.

Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages (2016)
Journal Article
Hagel, S., Bode, C., Hewlett, S., Nicklin, J., Bode, C., Carmona, L., …Gossec, L. (2016). Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages. Rheumatology, 55(6), 1009-1016. https://doi.org/10.1093/rheumatology/kew011

© The Author 2016. Objective. Cross-cultural translation of patient-reported outcome measures (PROMs) is a lengthy process, often performed professionally. Cognitive interviewing assesses patient comprehension of PROMs. The objective was to evaluate... Read More about Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages.

Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures (2016)
Journal Article
Sanderson, T., Kirwan, J., Almeida, C., Morris, M., Noddings, R., & Hewlett, S. (2016). Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures. Patient, 9(2), 103-115. https://doi.org/10.1007/s40271-015-0130-3

© 2015, Springer International Publishing Switzerland. Background: The assessment of rheumatoid arthritis (RA) is dominated by core sets and indices that have been developed by RA professionals. Previous research developed a set of eight priority tre... Read More about Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures.

A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations (2016)
Journal Article
Clarke, J., Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J., & Gooberman-Hill, R. (2016). A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations. BMC Musculoskeletal Disorders, 17(1), 129-137. https://doi.org/10.1186/s12891-016-0984-0

© 2016 Dures et al. Background: Self-management of inflammatory arthritis (IA) requires patients to address the impact of symptoms, treatment, and the psychosocial consequences of a long term condition. There are several possible mechanisms for facil... Read More about A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations.

Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set (2016)
Journal Article
Bykerk, V. P., Bingham, C. O., Choy, E. H., Lin, D., Alten, R., Christensen, R., …Pohl, C. (2016). Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set. RMD Open, 2(1), Article e000225. https://doi.org/10.1136/rmdopen-2015-000225

Objective: To evaluate the reliability of concurrent flare identification using 3 methods (patient, rheumatologist and Disease Activity Score (DAS)28 criteria), and construct validity of candidate items representing the Outcome Measures in Rheumatolo... Read More about Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set.

Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12 (2016)
Journal Article
Hewlett, S. E., Flurey, C., Van Tuyl, L. H., Sadlonova, M., Davis, B., Flurey, C. A., …Boers, M. (2016). Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12. Journal of Rheumatology, 43(1), 203-207. https://doi.org/10.3899/jrheum.141113

The Journal of Rheumatology Copyright © 2016. All rights reserved. Objective. The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health... Read More about Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12.

Patient preferences for psychological support in inflammatory arthritis: A multicentre survey (2016)
Journal Article
Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., …Hewlett, S. (2016). Patient preferences for psychological support in inflammatory arthritis: A multicentre survey. Annals of the Rheumatic Diseases, 75(1), 142-147. https://doi.org/10.1136/annrheumdis-2014-205636

Objectives. Inflammatory arthritis (IA) can lead to anxiety, depression, pain and fatigue. Psychological support can improve quality of life and selfmanagement; and European and American guidelines recommend support be offered. This study examined pa... Read More about Patient preferences for psychological support in inflammatory arthritis: A multicentre survey.

A survey of psychological support provision for people with inflammatory arthritis in secondary care in England (2016)
Journal Article
Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., …Hewlett, S. (2016). A survey of psychological support provision for people with inflammatory arthritis in secondary care in England. Musculoskeletal Care, 12(3), 173-181. https://doi.org/10.1002/msc.1071

© 2014 The Authors. Objectives: The consequences of inflammatory arthritis can include depression, anxiety and low mood, reducing patients' quality of life and increasing pressure on the healthcare system. Treatment guidelines recommend psychological... Read More about A survey of psychological support provision for people with inflammatory arthritis in secondary care in England.

“We all keep schtum”: The experiences and coping styles of men with RA (2015)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2015, November). “We all keep schtum”: The experiences and coping styles of men with RA. Presented at ACR/ARHP Annual Meeting 2015, San Francisco

“We all keep schtum”: The experiences and coping styles of men with RA

Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary (2015)
Journal Article
Bartlett, S. J., Bykerk, V. P., Cooksey, R., Choy, E. H., Alten, R., Christensen, R., …Bingham, C. O. (2015). Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary. Journal of Rheumatology, 42(11), 2185-2189. https://doi.org/10.3899/jrheum.141169

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. The Outcome Measures in Rheumatology (OMERACT) Rheumatoid Arthritis (RA) Flare Group was established to develop an approach to identify and measure RA flares. An overview o... Read More about Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary.

“Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study (2015)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2015, June). “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study. Presented at EULAR 2015, Rome

Background: Research on coping with RA reflects the preponderance of women with the condition (70%). In other long term conditions research suggests men need their own health strategy. Objectives: To explore the experiences and coping styles of me... Read More about “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission (2015)
Presentation / Conference
Van Tuyl, L., Sadlonova, M., Hewlett, S., Davis, B., Flurey, C., Goel, N., …Boers, M. (2015, June). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission. Poster presented at EULAR 2015, Rome

Background: Guidelines suggest treatment in rheumatoid arthritis (RA) should be targeted at remission, in close consultation with the patient. Our recent qualitative study of the patient perspective on remission in RA identified reduction or absence... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission.

The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again' (2015)
Journal Article
van Tuyl, L. H. D., Hewlett, S., Sadlonova, M., Davis, B., Flurey, C. A., Hoogland, W., …Boers, M. (2015). The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'. Annals of the Rheumatic Diseases, 74(6), 1004-1010. https://doi.org/10.1136/annrheumdis-2013-204798

© 2015, BMJ Publishing Group. All rights reserved. Objectives: The aim of rheumatoid arthritis (RA) treatment is remission. As treatment should be targeted at outcomes relevant to patients, it is important to understand how patients perceive remissio... Read More about The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'.

Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review (2015)
Journal Article
Kirwan, J., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. R. (2016). Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review. Journal of Health Psychology, 21(10), 2168-2182. https://doi.org/10.1177/1359105315572452

© SAGE Publications. Rheumatoid arthritis is a chronic disease affecting fewer men than women. We systematically reviewed the literature on impact and self-management of rheumatoid arthritis in men. A total of 28 papers were included and grouped into... Read More about Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review.

More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions (2015)
Journal Article
Woodworth, T. G., March, L., Furst, D. E., Christensen, R., Choy, E. H., Bykerk, V. P., …Bingham III, C. O. (2015). More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions. Journal of Rheumatology, 42(11), 2182-2184. https://doi.org/10.3899/jrheum.141172

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. Stiffness was endorsed within the rheumatoid arthritis (RA) flare core domain set at the previous Outcome Measures in Rheumatology meeting (OMERACT 11). Two stiffness break... Read More about More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions.

Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis (2015)
Journal Article
Cramp, F. A., Withall, J., Haase, A., Walsh, N., Young, A., & Hewlett, S. (2015). Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis. Annals of the Rheumatic Diseases, 74(Supp 2), 1336. https://doi.org/10.1136/annrheumdis-2015-eular.1647

Background People with rheumatoid arthritis (RA) are less physically active (PA) than the general population and lower PA levels are associated with work disability, reduced physical function and co-morbidities. This suggests an urgent need to identi... Read More about Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis.

Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches (2015)
Journal Article
Hewlett, S., Ambler, N., Almeida, C., Blair, P. S., Choy, E., Dures, E., …Pollock, J. (2015). Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches. BMJ Open, 5(8), https://doi.org/10.1136/bmjopen-2015-009061

Introduction: Rheumatoid arthritis (RA) fatigue is distressing, leading to unmanageable physical and cognitive exhaustion impacting on health, leisure and work. Group cognitive-behavioural (CB) therapy delivered by a clinical psychologist demonstrate... Read More about Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches.

Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis (2014)
Journal Article
Kirwan, J., Halls, S., Dures, E., Kirwan, J. R., Pollock, J., Baker, G., …Hewlett, S. (2014). Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis. Rheumatology, 54(4), 615-622. https://doi.org/10.1093/rheumatology/keu379

© The Author 2014. Objective. Stiffness is internationally recognized as an important indicator of inflammatory activity in RA but is poorly understood and difficult to measure. The aim of this study was to explore the experience of stiffness from th... Read More about Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis.

A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis (2014)
Journal Article
Hughes, R., Richards, P., Flurey, C. A., Morris, M., Pollock, J., & Hewlett, S. (2014). A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis. BMC Musculoskeletal Disorders, 15(1), 364. https://doi.org/10.1186/1471-2474-15-364

© 2014 Lin et al.; licensee BioMed Central Ltd. Background: Previous studies have not addressed rheumatoid arthritis (RA) patients' help-seeking behaviours for RA flares, and only one small qualitative study has addressed how patients experience dail... Read More about A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis.

The potential use of physical activity to help manage fatigue in rheumatoid arthritis: Lessons from other long-term conditions (2014)
Journal Article
Salmon, V., Hewlett, S., Walsh, N., Kirwan, J. R., Urban, M., Morris, M., & Cramp, F. (. (2014). The potential use of physical activity to help manage fatigue in rheumatoid arthritis: Lessons from other long-term conditions. Rheumatology, 53(S1), i122. https://doi.org/10.1093/rheumatology/keu106.010

Background: Fatigue is a major symptom of RA and the need for effective interventions is evident. Programmes based upon physical activity (PA) have been shown to improve patient reported fatigue in other long term conditions (LTCs). To inform the dev... Read More about The potential use of physical activity to help manage fatigue in rheumatoid arthritis: Lessons from other long-term conditions.

It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes (2014)
Journal Article
Hughes, R., Flurey, C. A., Morris, M., Richards, P., & Hewlett, S. (2014). It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes. Rheumatology, 53(4), 696-703. https://doi.org/10.1093/rheumatology/ket416

Objective: The objective of this study was to explore patients' experiences of RA daily life while on modern treatments. Methods: The methods of this study comprised semi-structured interviews with 15 RA patients, analysed using inductive thematic an... Read More about It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes.

Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management (2014)
Journal Article
Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J., & Gooberman-Hill, R. (2014). Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management. BMC Musculoskeletal Disorders, 15(1), 108. https://doi.org/10.1186/1471-2474-15-108

Background: Self-management of arthritis requires informed, activated patients to manage its physical and psychosocial consequences. Patient activation and self-management can be enhanced through the use of cognitive-behavioural approaches, which hav... Read More about Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management.

Establishing a core domain set to measure rheumatoid arthritis flares: Report of the OMERACT 11 RA flare workshop (2014)
Journal Article
Orbai, A. M., Bykerk, V. P., Lie, E., Bartlett, S. J., Alten, R., Boonen, A., …Choy, E. H. (2014). Establishing a core domain set to measure rheumatoid arthritis flares: Report of the OMERACT 11 RA flare workshop. Journal of Rheumatology, 41(4), 799-809. https://doi.org/10.3899/jrheum.131252

Objective. The OMERACT Rheumatoid Arthritis (RA) Flare Group (FG) is developing a data-driven, patient-inclusive, consensus-based RA flare definition for use in clinical trials, longterm observational studies, and clinical practice. At OMERACT 11, we... Read More about Establishing a core domain set to measure rheumatoid arthritis flares: Report of the OMERACT 11 RA flare workshop.

Updating the omeract filter: Discrimination and feasibility (2014)
Journal Article
OØstergaard, M., Landewé, R. B., D'Agostino, M. A., OØstergaard, M., Wells, G., Beaton, D. E., …Van Der Heijde, D. M. (2014). Updating the omeract filter: Discrimination and feasibility. Journal of Rheumatology, 41(5), 1005-1010. https://doi.org/10.3899/jrheum.131311

The " Discrimination" part of the OMERACT Filter asks whether a measure discriminates between situations that are of interest. " Feasibility" in the OMERACT Filter encompasses the practical considerations of using an instrument, including its ease of... Read More about Updating the omeract filter: Discrimination and feasibility.

Patient involvement in outcome measures for Psoriatic arthritis (2014)
Journal Article
O'Sullivan, D., Tillett, W., Adebajo, A., Brooke, M., Campbell, W., Coates, L. C., …McHugh, N. (2014). Patient involvement in outcome measures for Psoriatic arthritis. Current Rheumatology Reports, 16(5), 418. https://doi.org/10.1007/s11926-014-0418-7

Psoriatic arthritis (PsA) is a heterogeneous inflammatory arthritis with a varied clinical phenotype. There has been considerable international collaboration over recent years to develop and prioritise appropriate disease domains and outcome measures... Read More about Patient involvement in outcome measures for Psoriatic arthritis.

Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets (2014)
Journal Article
Landewé, R. B., D'Agostino, M. A., Kirwan, J. R., Boers, M., Hewlett, S., Beaton, D., …Tugwell, P. (2014). Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets. Journal of Rheumatology, 41(5), 994-999. https://doi.org/10.3899/jrheum.131309

Objective. The Outcome Measures in Rheumatology (OMERACT) Filter provides guidelines for the development and validation of outcome measures for use in clinical research. The "Truth" section of the OMERACT Filter presupposes an explicit framework for... Read More about Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets.

Updating the omeract filter: Implications for patient-reported outcomes (2014)
Journal Article
Voshaar, M. M., Nikaï, E., Landewé, R. B., Boers, B., Kirwan, J. R., Bartlett, S. J., …Gossec, L. (2014). Updating the omeract filter: Implications for patient-reported outcomes. Journal of Rheumatology, 41(5), 1011-1015. https://doi.org/10.3899/jrheum.131312

Objective: At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument... Read More about Updating the omeract filter: Implications for patient-reported outcomes.

Updating the OMERACT filter: Implications for imaging and soluble biomarkers (2014)
Journal Article
Landewé, R. B., Østergaard, M., D'Agostino, M. A., Boers, M., Kirwan, J., Van Der Heijde, D., …Conaghan, P. G. (2014). Updating the OMERACT filter: Implications for imaging and soluble biomarkers. Journal of Rheumatology, 41(5), 1016-1024. https://doi.org/10.3899/jrheum.131313

Objective. The Outcome Measures in Rheumatology (OMERACT) Filter provides a framework for the validation of outcome measures for use in rheumatology clinical research. However, imaging and biochemical measures may face additional validation challenge... Read More about Updating the OMERACT filter: Implications for imaging and soluble biomarkers.

Pain and fatigue (2013)
Book Chapter
McCabe, C., Haigh, R., Cohen, H., & Hewlett, S. (2013). Pain and fatigue. In R. Watts, P. Conaghan, C. Denton, H. Foster, J. Isaacs, & U. Muller-Ladner (Eds.), Oxford Textbook of Rheumatology (93-99). Oxford: Oxford University Press

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Richards, P., Hughes, R., & Hewlett, S. (2013, October). RA flares: Inflammatory or avalanche?. Poster presented at 2013 American College of Rheumatology Conference, San Diego, CA

Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales (2013)
Journal Article
Nicklin, J. K., Cramp, F. A., Hewlett, S. E., Dures, E. K., Dures, E., Hewlett, S., …Kirwan, J. R. (2013). Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales. Rheumatology, 52(10), 1832-1839. https://doi.org/10.1093/rheumatology/ket218

Objective. To examine the reliability (stability) and sensitivity of the Bristol Rheumatoid Arthritis Fatigue scales (BRAFs) and patient-reported outcome measures (PROMs) developed to capture the fatigue experience. The Multi-Dimensional Questionnair... Read More about Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales.

Non-pharmacological interventions for fatigue in rheumatoid arthritis (2013)
Journal Article
Cramp, F., Cramp, F. (., Hewlett, S., Almeida, C., Kirwan, J. R., Choy, E. H., …Christensen, R. (2013). Non-pharmacological interventions for fatigue in rheumatoid arthritis. Cochrane Database of Systematic Reviews, 2013(8), https://doi.org/10.1002/14651858.CD008322.pub2

© 2013 The Cochrane Collaboration. Background: Fatigue is a common and potentially distressing symptom for people with rheumatoid arthritis with no accepted evidence based management guidelines. Non-pharmacological interventions, such as physical act... Read More about Non-pharmacological interventions for fatigue in rheumatoid arthritis.

“Back to being normal”: The patient perspective on remission in rheumatoid arthritis. (2013)
Presentation / Conference
Van Tuyl, L., Stamm, T., Boers, M., Davis, B., Flurey, C., Hoogland, W., …Hewlett, S. (2013, June). “Back to being normal”: The patient perspective on remission in rheumatoid arthritis. Poster presented at EULAR 2013, Madrid

Background: The aim of current rheumatoid arthritis treatment is remission. As treatment should be targeted at patient relevant outcomes, it is important to know how patients perceive remission. Objectives: The objective of this study was to explo... Read More about “Back to being normal”: The patient perspective on remission in rheumatoid arthritis..

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Richards, P., Hughes, R., & Hewlett, S. (2013, June). RA flares: Inflammatory or avalanche?. Poster presented at EULAR, Madrid

RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Hewlett, S., & Richards, P. (2013, April). RA flares: Inflammatory or avalanche?. Poster presented at BSR/BHPR, Birmingham

Will I waste your time? Delays in help-seeking for RA flares (2012)
Presentation / Conference
Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P., & Hewlett, S. (2012, November). Will I waste your time? Delays in help-seeking for RA flares. Poster presented at ACR/ARHP, Washington, USA

Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus (2012)
Journal Article
Christensen, R., Furst, D. E., Strand, V., Leong, A. L., Bykerk, V., Boonen, A., …Hewlett, S. (2012). Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus. Annals of the Rheumatic Diseases, 71(11), 1855-1860. https://doi.org/10.1136/annrheumdis-2011-201201

Objectives: For rheumatoid arthritis (RA), there is no consensus on how to define and assess flare. Variability in flare definitions impairs understanding of findings across studies and limits ability to pool results. The OMERACT RA Flare Group sough... Read More about Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus.

Exploring the cultural validity of rheumatology outcomes (2012)
Journal Article
Sanderson, T., Hewlett, S., Calnan, M., Morris, M., Raza, K., & Kumar, K. (2012). Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21(17), 1015-1023

In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the inf... Read More about Exploring the cultural validity of rheumatology outcomes.

Cognitiveg-behavioural approaches to self-management in rheumatic disease (2012)
Journal Article
Dures, E., & Hewlett, S. (2012). Cognitiveg-behavioural approaches to self-management in rheumatic disease. Nature Reviews Rheumatology, 8(9), 553-559. https://doi.org/10.1038/nrrheum.2012.108

Patients with rheumatic disease must adjust psychosocially and behaviourally in order to manage the impact of symptoms and treatment on their daily lives, and the emotional consequences of the disease. However, patients can improve their well-being b... Read More about Cognitiveg-behavioural approaches to self-management in rheumatic disease.

'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus (2012)
Journal Article
Mccabe, C. S., Mchugh, N., Elliott, B., Waldron, N., Brown, S. J., & Hewlett, S. (2012). 'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus. Musculoskeletal Care, 10(3), 135-141. https://doi.org/10.1002/msc.1010

Objectives: The aim of this study was to explore the patient's perception of receiving a diagnosis of systemic lupus erythematosus (lupus) and reports on their experience of the period between onset of symptoms and receiving a definitive diagnosis. M... Read More about 'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus.

"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue (2012)
Journal Article
Swinkels, A., Almeida, C., Kitchen, K., Dures, E., Almeida, C., Ambler, N., …Hewlett, S. (2012). "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis and Rheumatism, 64(4), 494-501. https://doi.org/10.1002/acr.21562

Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructu... Read More about "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue.

Exploring the cultural validity of rheumatology outcomes (2012)
Journal Article
Sanderson, T., Hewlett, S., Calnan, M., & Morris, M. (2012). Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21(17), 1015-1023

In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influ... Read More about Exploring the cultural validity of rheumatology outcomes.

Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients (2012)
Journal Article
Sanderson, T., Hewlett, S., Richards, P., Morris, M., & Calnan, M. (2012). Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients. Journal of Health Psychology, 17(1), 132-142. https://doi.org/10.1177/1359105311410758

The nominal group technique generates quantitative data through a process of experts ranking items of interest. This article focuses on the additional collection of qualitative data from nominal groups with rheumatoid arthritis (RA) patients, used to... Read More about Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients.

'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought (2012)
Journal Article
Bartlett, S. J., Pohl, C., Bingham, C. O., Hewlett, S., Sanderson, T., May, J., …Woodworth, T. (2012). 'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought. Rheumatology, 51(1), 69-76. https://doi.org/10.1093/rheumatology/keq455

Objective: People with RA have episodes of worsening disease activity (flares) that prompt them to seek clinical review or medication change. This study explored patients' perspectives of flare that prompts them to seek medication review. Methods: Fo... Read More about 'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought.

'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis (2011)
Journal Article
Waldron, N., Brown, S., Hewlett, S., Elliott, B., McHugh, N., & McCabe, C. (2011). 'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis. Musculoskeletal Care, 9(4), 228-238. https://doi.org/10.1002/msc.221

Objectives: To identify the information needs of patients newly diagnosed with systemic lupus erythematosus (lupus), to inform the design of a future education package. Methods: Focus groups were conducted in seven rheumatology centres in the UK with... Read More about 'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis.

Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi- (2011)
Journal Article
Hewlett, S., Dures, E., & Almeida, C. (2011). Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi-. Arthritis and Rheumatism, 63(SUPPL. 11), S263-S286. https://doi.org/10.1002/acr.20579

Identifying preliminary domains to detect and measure rheumatoid arthritis flares: Report of the OMERACT 10 RA Flare Workshop (2011)
Journal Article
Woodworth, T. G., Strand, V., Sanderson, T. C., Pohl, C., Montie, P., May, J. E., …Hewlett, S. (2011). Identifying preliminary domains to detect and measure rheumatoid arthritis flares: Report of the OMERACT 10 RA Flare Workshop. Journal of Rheumatology, 38(8), 1751-1758. https://doi.org/10.3899/jrheum.110401

Background. While disease flares in rheumatoid arthritis (RA) are a recognized aspect of the disease process, there is limited formative research to describe them. Methods. The Outcome Measures in Rheumatology Clinical Trials (OMERACT) RA Flare Defin... Read More about Identifying preliminary domains to detect and measure rheumatoid arthritis flares: Report of the OMERACT 10 RA Flare Workshop.

OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health (2011)
Journal Article
Dworkin, R. H., Furst, D. E., Singh, J. A., Wells, G. A., Harrison, M. J., Boonen, A., …Hewlett, S. (2011). OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health. Journal of Rheumatology, 38(8), 1728-1734. https://doi.org/10.3899/jrheum.110393

This workshop reviewed progress in a number of areas related to patient perspective outcomes that were not specifically included within other areas of the program. A substantial review of the work of the valuing health outcomes group (the "QALY" work... Read More about OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health.

Patient perspective: Choosing or developing instruments (2011)
Journal Article
Osborne, R. H., Kirwan, J. R., Fries, J. F., & Hewlett, S. (2011). Patient perspective: Choosing or developing instruments. Journal of Rheumatology, 38(8), 1716-1719. https://doi.org/10.3899/jrheum.110390

Previous Outcome Measures in Rheumatology (OMERACT) meetings recognized that patients view outcomes of intervention from a different perspective. This preconference position paper briefly sets out 2 patient-reported outcome (PRO) instrument approache... Read More about Patient perspective: Choosing or developing instruments.

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Journal Article
Leong, A. L., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., Fries, J. F., Kirwan, J. R., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.

Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy (2011)
Journal Article
Hewlett, S., Ambler, N., Almeida, C., Cliss, A., Hammond, A., Kitchen, K., …Pollock, J. (2011). Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy. Annals of the Rheumatic Diseases, 70(6), 1060-1067. https://doi.org/10.1136/ard.2010.144691

Objectives To investigate the effect of group cognitive behavioural therapy (CBT) for fatigue self-management, compared with groups receiving fatigue information alone, on fatigue impact among people with rheumatoid arthritis (RA). Methods Two-arm, p... Read More about Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy.

Men's experiences of rheumatoid arthritis: An inductive thematic analysis (2011)
Journal Article
Noddings, R., Lack, S., & Hewlett, S. (2011). Men's experiences of rheumatoid arthritis: An inductive thematic analysis. Musculoskeletal Care, 9(2), 102-112. https://doi.org/10.1002/msc.203

Objectives. There is a lack of evidence for understanding the clinical needs of men with rheumatoid arthritis (RA). This study investigated the psychosocial experience of this group, to inform clinical practice and generate further research. Methods.... Read More about Men's experiences of rheumatoid arthritis: An inductive thematic analysis.

European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects (2011)
Journal Article
Hewlett, S., Glüsing, B., Bijlsma, J. W., De Wit, M. P., De Witt, M., Berlo, S. E., …Abma, T. A. (2011). European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects. Annals of the Rheumatic Diseases, 70(5), 722-726. https://doi.org/10.1136/ard.2010.135129

Objective: To develop recommendations to enable successful inclusion of the patient perspective in European League Against Rheumatism (EULAR)-funded scientific research projects. Methods: The EULAR standardised operational procedures for guideline de... Read More about European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects.

Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis (2011)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2011). Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociology of Health and Illness, 33(4), 618-633. https://doi.org/10.1111/j.1467-9566.2010.01305.x

Biographical disruption and related concepts have been widely applied in chronic illness. Different conceptualisations of normalisation have also been proposed in order to explain individuals' diverse responses to illness on their biography, but as y... Read More about Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.

Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants (2011)
Journal Article
Dieppe, P., Learmonth, I. D., Wylde, V., & Hewlett, S. (2011). Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants. PAIN, 152(3), 566-572. https://doi.org/10.1016/j.pain.2010.11.023

Persistent postsurgical pain is a prevalent but underacknowledged condition. The aim of this study was to assess the prevalence, sensory qualities, and postoperative determinants of persistent pain at 3 to 4 years after total knee replacement (TKR) a... Read More about Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants.

Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis (2010)
Journal Article
Nicklin, J., Cramp, F., Kirwan, J. R., Urban, M., & Hewlett, S. (2010). Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis. Arthritis Care and Research, 62(11), 1552-1558. https://doi.org/10.1002/acr.20264

Patient-reported outcome measures (PROMs) need to include concepts and language relevant to patients and be easily understood. These studies aimed to develop draft PROMs to measure rheumatoid arthritis (RA) fatigue and its impact by collaborating wit... Read More about Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis.

'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis (2010)
Journal Article
Morris, M., Sanderson, T., Calnan, M., Richards, P., & Hewlett, S. (2010). 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis. Chronic Illness, 6(3), 228-240. https://doi.org/10.1177/1742395310377672

Objectives: The aim of this study was to explore the meaning of 'feeling wellg' for people with rheumatoid arthritis (RA). Methods: In-depth interviews were conducted with 23 RA patients, purposively sampled for medication type, disease duration, dis... Read More about 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis.

Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes (2010)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2010). Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes. Arthritis and Rheumatism, 62(5), 647-656. https://doi.org/10.1002/acr.20151

Objective. Collaboration with patients with rheumatoid arthritis (RA) highlights that outcomes important to them include fatigue, coping, and life enjoyment. However, these are not commonly measured in clinical trials. There is little evidence about... Read More about Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes.

What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set (2010)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2010). What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set. Arthritis and Rheumatism, 62(5), 640-646. https://doi.org/10.1002/acr.20034

Objective. Function, patient global assessment, and pain are routinely measured in rheumatoid arthritis (RA) clinical trials. However, other patient-reported outcomes identified as important to patients in qualitative studies, such as fatigue and qua... Read More about What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set.

Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. (2010)
Journal Article
Wylde, V., Livesey, C., Learmonth, I. D., Blom, A. W., & Hewlett, S. (2010). Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. Musculoskeletal Care, 8(2), 87-98. https://doi.org/10.1002/msc.170

Aim: Measuring facts about disability may not reflect their personal impact. An individualized values instrument has been used to weight difficulty in performing activities of daily living in rheumatoid arthritis, and calculate personal impact (Pers... Read More about Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis..

Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis (2010)
Journal Article
Harcourt, D., & Hewlett, S. (2010). Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis. Musculoskeletal Care, 8(1), 46-54. https://doi.org/10.1002/msc.165

Objectives: Research suggests that rheumatoid arthritis (RA) can have a negative psychosocial impact on partners, as well as patients. However, until now there has been very little in-depth qualitative research in this area. The aim of this study was... Read More about Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis.

The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study (2009)
Journal Article
Sanderson, T., Calnan, M., Morris, M., Richards, P., & Hewlett, S. (2009). The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study. Musculoskeletal Care, 7(3), 194-209. https://doi.org/10.1002/msc.149

Objective: To explore rheumatoid arthritis (RA) patients' experience of access to antitumour necrosis factor (anti-TNF) therapy in the UK, and of switching therapies after an initial failure. Methods: Patients were asked about their experience of acc... Read More about The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study.

Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management (2009)
Journal Article
Repping-Wuts, H., Hewlett, S., Van Riel, P., & Van Achterberg, T. (2009). Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management. Journal of Advanced Nursing, 65(4), 901-911. https://doi.org/10.1111/j.1365-2648.2008.04904.x

Title: Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management. Aim: This paper is a report of a study conducted to compare the knowledge, attitudes and current management of rheumatoid arthritis-r... Read More about Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management.

Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 special interest group) (2009)
Journal Article
Alten, R. E., Strand, C. V., Furst, D. E., Witter, J. P., Rahman, M. U., May, J. E., …Boers, M. (2009). Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 special interest group). Journal of Rheumatology, 36(10), 2335-2341. https://doi.org/10.3899/jrheum.090369

Objective. Traditional outcome measures in randomized controlled trials (RCT) include well-established response criteria as well as ACR EULAR responses using Disease Activity Score 44 (DAS44)/DAS28 to assess improvement; however, a measure to assess... Read More about Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 special interest group).

Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9 (2009)
Journal Article
Sanderson, T. C., Nicklin, J., March, L. M., Wells, G. A., Tugwell, P. S., Kirwan, J. R., …Welch, V. (2009). Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9. Journal of Rheumatology, 36(9), 2071-2076. https://doi.org/10.3899/jrheum.090360

The Patient Perspective Workshop included over 100 researchers and 18 patient participants from 8 countries. Following preconference reading and short plenary presentations, breakout groups considered work undertaken on measurement of sleep, assessin... Read More about Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9.

Nursing support at the onset of rheumatoid arthritis: Time and space for emotions, practicalities and self-management (2008)
Journal Article
Carr, M., Hehir, M., Carr, M., Davis, B., Radford, S., Robertson, L., …Hewlett, S. (2008). Nursing support at the onset of rheumatoid arthritis: Time and space for emotions, practicalities and self-management. Musculoskeletal Care, 6(2), 124-134. https://doi.org/10.1002/msc.115

Background: Following a diagnosis of rheumatoid arthritis (RA), patients have to adapt to lifelong, unpredictable but repeated episodes of pain and disability, potentially leading to permanent loss of function and its consequences on their lives. We... Read More about Nursing support at the onset of rheumatoid arthritis: Time and space for emotions, practicalities and self-management.

Sensitivity to change of the Rheumatoid Arthritis Self-Efficacy scale (RASE) and predictors of change in self-efficacy (2008)
Journal Article
Unsworth, H., Spicer, J., Seaman, N., Read, E., McEachern, C., Maggs, F., …Kirwan, J. (2008). Sensitivity to change of the Rheumatoid Arthritis Self-Efficacy scale (RASE) and predictors of change in self-efficacy. Musculoskeletal Care, 6(1), 49-67. https://doi.org/10.1002/msc.125

Objectives: Patient education in rheumatoid arthritis (RA) aims to improve health outcomes by prompting people to adopt self-management behaviours. One precursor for initiating behaviour change is self-efficacy (SE), a belief that you can do a task.... Read More about Sensitivity to change of the Rheumatoid Arthritis Self-Efficacy scale (RASE) and predictors of change in self-efficacy.

'It's quite hard to grasp the enormity of it': Perceived needs of people upon diagnosis of rheumatoid arthritis (2008)
Journal Article
Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., …Hewlett, S. (2008). 'It's quite hard to grasp the enormity of it': Perceived needs of people upon diagnosis of rheumatoid arthritis. Musculoskeletal Care, 6(3), 155-167. https://doi.org/10.1002/msc.132

Objectives: The diagnosis of rheumatoid arthritis (RA) brings rapid pharmacological and multidisciplinary team interventions to address inflammatory processes and symptom management. However, people may also need support on the journey to self-manage... Read More about 'It's quite hard to grasp the enormity of it': Perceived needs of people upon diagnosis of rheumatoid arthritis.

Return to sport after joint replacement (2008)
Journal Article
Dieppe, P., Wylde, V., Blom, A., Hewlett, S., & Learmonth, I. (2008). Return to sport after joint replacement. Journal of Bone and Joint Surgery, British Volume, 90(7), 920-923. https://doi.org/10.1302/0301-620X.90B7.20614

Our aim was to determine the pre-operative sporting profiles of patients undergoing primary joint replacement and to establish if they were able to return to sport after surgery. A postal survey was completed by 2085 patients between one and three ye... Read More about Return to sport after joint replacement.

Rheumatology education for undergraduate nursing, physiotherapy and occupational therapy students in the UK: Standards, challenges and solutions (2008)
Journal Article
Hewlett, S., Clarke, B., O'Brien, A., Hammond, A., Ryan, S., Kay, L., …Almeida, C. (2008). Rheumatology education for undergraduate nursing, physiotherapy and occupational therapy students in the UK: Standards, challenges and solutions. Rheumatology, 47(7), 1025-1030. https://doi.org/10.1093/rheumatology/ken139

Objectives. Rheumatological conditions are common, thus nurses (Ns) occupational therapists (OTs) and physiotherapists (PTs) require at least basic rheumatology knowledge upon qualifying. The aim of this study was to develop a core set of teaching to... Read More about Rheumatology education for undergraduate nursing, physiotherapy and occupational therapy students in the UK: Standards, challenges and solutions.

Self-efficacy as an appraisal that moderates the coping-emotion relationship: Associations among people with rheumatoid arthritis (2008)
Journal Article
Kirwan, J. R., Cockshott, Z., Lowe, R., Greenwood, R., Almeida, C., Richards, P., & Hewlett, S. (2008). Self-efficacy as an appraisal that moderates the coping-emotion relationship: Associations among people with rheumatoid arthritis. Psychology and Health, 23(2), 155-174. https://doi.org/10.1080/14768320601139160

The way a coping strategy is expressed might depend on the nature of underlying efficacy expectations. For example, a cognitive coping strategy may have different content depending on efficacy beliefs underpinning the strategy's formulation and appli... Read More about Self-efficacy as an appraisal that moderates the coping-emotion relationship: Associations among people with rheumatoid arthritis.

Total knee replacement: Is it really an effective procedure for all? (2007)
Journal Article
Wylde, V., Dieppe, P., Hewlett, S., & Learmonth, I. (2007). Total knee replacement: Is it really an effective procedure for all?. Knee, 14(6), 417-423. https://doi.org/10.1016/j.knee.2007.06.001

Total knee replacement (TKR) is considered an effective intervention for the treatment of chronic knee pain and disability. Yet there is increasing evidence, based on research using patient-based outcome measures, that a significant proportion of pat... Read More about Total knee replacement: Is it really an effective procedure for all?.

Fatigue in rheumatoid arthritis: From apathy to action (2007)
Journal Article
Hewlett, S. (2007). Fatigue in rheumatoid arthritis: From apathy to action. Future Rheumatology, 2(5), 439-442. https://doi.org/10.2217/17460816.2.5.439

Fatigue is a common problem in rheumatoid arthritis (RA), experienced by the majority of patients, with fatigue scores that are often higher than pain scores. Despite this, patients feel fatigue has been largely ignored by clinicians. This article pr... Read More about Fatigue in rheumatoid arthritis: From apathy to action.

Patient perspective workshop: Reasons and methods for measuring fatigue in rheumatoid arthritis (2007)
Journal Article
Kirwan, J. R., & Hewlett, S. (2007). Patient perspective workshop: Reasons and methods for measuring fatigue in rheumatoid arthritis. Journal of Rheumatology, 34, 1171-1173

The experience of fatigue has been reported by a large proportion of people with rheumatoid arthritis (RA), and it is often the most important problem for individual patients. A systematic analysis of patient focus group discussions revealed 3 overar... Read More about Patient perspective workshop: Reasons and methods for measuring fatigue in rheumatoid arthritis.

Emotions and beliefs upon diagnosis of rheumatoid arthritis (2007)
Presentation / Conference
Jenkins, L., Hehir, M., Carr, M., Radford, S., Davis, B., & Hewlett, S. (2007, May). Emotions and beliefs upon diagnosis of rheumatoid arthritis. Poster presented at BSR/BHPR International Conference, Birmingham, UK

Patient perspective workshop: Fatigue as a recommended patient-centred outcome measure in rheumatoid arthritis (2007)
Journal Article
Kirwan, J. R., Minnock, P., Adebajo, A., Bresnihan, B., Choy, E., De Wit, M., …Hewlett, S. (2007). Patient perspective workshop: Fatigue as a recommended patient-centred outcome measure in rheumatoid arthritis. Journal of Rheumatology, 34(5), 1174-1177

The Patient Perspective Workshop at OMERACT 8 considered evidence for the importance of fatigue to patients with rheumatoid arthritis (RA) and whether measurement of fatigue meets the requirements of the OMERACT filter. The workshop participants incl... Read More about Patient perspective workshop: Fatigue as a recommended patient-centred outcome measure in rheumatoid arthritis.

Measuring fatigue in rheumatoid arthritis: A systematic review of scales in use (2007)
Journal Article
Kirwan, J. R., Hehir, M., & Hewlett, S. (2007). Measuring fatigue in rheumatoid arthritis: A systematic review of scales in use. Arthritis and Rheumatism, 57(3), 429-439. https://doi.org/10.1002/art.22611

Objective. Fatigue is an important outcome for patients with rheumatoid arthritis (RA). The purpose of this study was to identify the scales being used to measure RA fatigue, and to systematically examine the evidence for their validation. Methods. A... Read More about Measuring fatigue in rheumatoid arthritis: A systematic review of scales in use.

Current provision of rheumatology education for undergraduate nursing, occupational therapy and physiotherapy students in the UK (2006)
Journal Article
Kay, L., Clarke, B., Almeida, C., O'Brien, A., Hammond, A., Ryan, S., & Hewlett, S. (2006). Current provision of rheumatology education for undergraduate nursing, occupational therapy and physiotherapy students in the UK. Rheumatology, 45(7), 868-873. https://doi.org/10.1093/rheumatology/kel008

Objectives. Rheumatological conditions are common and all health professionals (HPs) therefore need sufficient knowledge and skills to manage patients safely and effectively. The aim of this study was to examine current undergraduate education in rhe... Read More about Current provision of rheumatology education for undergraduate nursing, occupational therapy and physiotherapy students in the UK.

Personal impact of disability in osteoarthritis: patient, professional and public values. (2006)
Journal Article
Cavendish, V. J., Wylde, V., Hewlett, S., & Learmonth, I. (2006). Personal impact of disability in osteoarthritis: patient, professional and public values. Musculoskeletal Care, 4(3), 152-166. https://doi.org/10.1002/msc.86

BACKGROUND: Osteoarthritis (OA) is a leading cause of disability. Numerous tools are available to assess this, but they fail to place a patient value upon disability. In rheumatoid arthritis, research has shown patients have different importance valu... Read More about Personal impact of disability in osteoarthritis: patient, professional and public values..

Rheumatology telephone helplines: patient and health professionals' requirements. (2006)
Journal Article
Carmichael, C. R., Breslin, A. M., McDowell, J. A., McCabe, C. S., Brown, S. J., Hewlett, S., …Stafford, S. (2006). Rheumatology telephone helplines: patient and health professionals' requirements. Musculoskeletal Care, 4(1), 24-37. https://doi.org/10.1002/msc.20

OBJECTIVES: The aim of this study was to ascertain patients' and health professionals' requirements from a rheumatology helpline and how such a service should be delivered. METHODS: Self-completed questionnaires were administered to both users of rhe... Read More about Rheumatology telephone helplines: patient and health professionals' requirements..

Sensitivity to change of the rheumatoid arthritis self-efficacy scale (RASE) (2005)
Presentation / Conference
Hewlett, S., Cockshott, Z., Almeida, C., Richards, P., Lowe, R., Greenwood, R., & Kirwan, J. R. (2005, November). Sensitivity to change of the rheumatoid arthritis self-efficacy scale (RASE). Poster presented at American College of Rheumatology Annual Conference, San Diego, USA

Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment (2005)
Journal Article
Kirwan, J. R., Ahlmen, M., de Wit, M., Heiberg, T., Hehir, M., Hewlett, S., …Richards, P. (2005). Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment. Journal of Rheumatology, 32(11), 2246-2249

The first OMERACT Patient Perspective Workshop took place at OMERACT 6 in 2002. Through a series of meetings and discussion sessions a research agenda emerged and this report outlines progress made on this agenda. Work on identifying novel outcomes,... Read More about Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment.

Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: Progress at OMERACT 7 (2005)
Journal Article
Kirwan, J. R., Hewlett, S., Heiberg, T., Hughes, R., Carr, M., Hehir, M., …Wale, J. (2005). Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: Progress at OMERACT 7. Journal of Rheumatology, 32, 2250-2256

The Patient Perspective Workshop at OMERACT 7 addressed the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease. A particular emphasis at this workshop was placed on... Read More about Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: Progress at OMERACT 7.

Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored (2005)
Journal Article
Hewlett, S., Cockshott, Z., Byron, M., Kitchen, K., Tipler, S., Pope, D., & Hehir, M. (2005). Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored. Arthritis Care and Research, 53(5), 697-702. https://doi.org/10.1002/art.21450

Objective. Fatigue is commonly reported by patients with rheumatoid arthritis (RA) but is rarely a treatment target. The aim of this study was to explore the concept of fatigue as experienced by patients with RA. Methods. Fifteen patients with RA and... Read More about Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored.

Changes in self-efficacy, coping and emotions: Their associations among rheumatoid arthritis patients participating in routine self-management programmes (2005)
Presentation / Conference
Lowe, R., Hewlett, S., Cockshott, Z., Almeida, C., Richards, P., & Kirwan, J. R. (2005, October). Changes in self-efficacy, coping and emotions: Their associations among rheumatoid arthritis patients participating in routine self-management programmes. Poster presented at European Health Psychology Society Annual Conference, Galway, Ireland

Outcomes generated by patients with rheumatoid arthritis: How important are they? (2005)
Journal Article
Hewlett, S., Carr, M., Ryan, S., Kirwan, J. R., Richards, P., Carr, A., & Hughes, R. (2005). Outcomes generated by patients with rheumatoid arthritis: How important are they?. Musculoskeletal Care, 3(3), 131-142. https://doi.org/10.1002/msc.3

Background: It has been shown previously that patients with rheumatoid arthritis (RA) can generate a wide range of outcomes that they consider important in treatment. It is not known if these outcomes are generally important in the wider RA patient c... Read More about Outcomes generated by patients with rheumatoid arthritis: How important are they?.

Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis (2005)
Journal Article
Kirwan, J. R., Hewlett, S., Cockshott, Z., & Barrett, J. (2005). Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis. Musculoskeletal Care, 3(1), 1-16. https://doi.org/10.1002/msc.21

Objective: Evidence that patient education improves outcome in self-selected patients is often based on studies using patients with a mixture of diagnoses (primarily osteoarthritis) and where the education is delivered in a community setting. This st... Read More about Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis.

Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial (2005)
Journal Article
Perry, M. G., Blair, P. S., Kirwan, J., Hewlett, S., Pollock, J., Mitchell, K., …Memel, D. (2005). Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial. BMJ, 330(7484), 171-175. https://doi.org/10.1136/bmj.38265.493773.8F

Objectives: To determine whether direct access to hospital review initiated by patients with rheumatoid arthritis would result in improved clinical and psychological outcome, reduced overall use of healthcare resources, and greater satisfaction with... Read More about Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial.

Rheumatology telephone helplines: Patient and health professional requirements (2004)
Presentation / Conference
Brown, S. J., McCabe, C., Hewlett, S., McDowell, J., Cushnaghan, J., Breslin, A., …Carmichael, C. R. (2004, November). Rheumatology telephone helplines: Patient and health professional requirements. Poster presented at American College of Rheumatology Annual Conference, San Antonio, USA

Patient-initiated review: Specific helpline support is required (2004)
Presentation / Conference
Mitchell, K., Hewlett, S., Kirwan, J. R., Hehir, M., Memel, D., Blair, P., …Pollock, J. (2004, November). Patient-initiated review: Specific helpline support is required. Poster presented at American College of Rheumatology Annual Conference, San Antonio, USA

Welfare rights services for people disabled with arthritis integrated in primary care and hospital settings: Set-up costs and monetary benefits (2004)
Journal Article
Kirwan, J., Means, R., Powell, J., Langley, C., Gubbay, D., Memel, D., …Hewlett, S. (2004). Welfare rights services for people disabled with arthritis integrated in primary care and hospital settings: Set-up costs and monetary benefits. Rheumatology, 43(9), 1167-1172. https://doi.org/10.1093/rheumatology/keh278

Objective. To quantify the set-up costs and monetary benefits of a welfare rights service integrated within an NHS service provider, that selects eligible patients using the Health Assessment Questionnaire (HAQ) and offers welfare rights advice to as... Read More about Welfare rights services for people disabled with arthritis integrated in primary care and hospital settings: Set-up costs and monetary benefits.

Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support (2004)
Journal Article
Langley, C., Memel, D. S., Kirwan, J. R., Pollock, J., Hewlett, S., Gubbay, D., & Powell, J. (2004). Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support. Rheumatology, 43(7), 863-868. https://doi.org/10.1093/rheumatology/keh184

Objectives. To test, in a variety of health settings, the ability of the Health Assessment Questionnaire (HAQ) disability index to predict the eligibility of patients with moderate or severe arthritis for disability living allowance or attendance all... Read More about Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support.

Rheumatology outcomes: The patient's perspective (2003)
Journal Article
Carr, A., Hewlett, S., Hughes, R., Mitchell, H., Ryan, S., Carr, M., & Kirwan, J. R. (2003). Rheumatology outcomes: The patient's perspective. Journal of Rheumatology, 30(4), 880-883

Our aim was to explore the patient's perspective of outcomes in rheumatoid arthritis (RA) to identify which outcomes are important to patients and how patients calibrate what constitutes a meaningful change in those outcomes. A qualitative study was... Read More about Rheumatology outcomes: The patient's perspective.

Patients and clinicians have different perspectives on outcomes in arthritis (2003)
Journal Article
Hewlett, S. (2003). Patients and clinicians have different perspectives on outcomes in arthritis. Journal of Rheumatology, 30(4), 877-879

Outcome measurement in arthritis has undergone a major shift during the past 2 decades, moving from process measures (e.g., plasma viscosity) to patient-centered outcome measures (e.g., pain, function). However, while patients self-report many of the... Read More about Patients and clinicians have different perspectives on outcomes in arthritis.

Outcomes from the patient perspective workshop at OMERACT 6 (2003)
Journal Article
Kirwan, J. R., Heidberg, T., Hewlett, S., Hughes, R., Kvien, T., Ahlmen, M., …Taal, E. (2003). Outcomes from the patient perspective workshop at OMERACT 6. Journal of Rheumatology, 30(4), 868-872

The objective of the Patient Perspective Workshop at OMERACT 6 was to address the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease themselves. This was done by re... Read More about Outcomes from the patient perspective workshop at OMERACT 6.

Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years (2003)
Journal Article
Pollock, J., Hehir, M., Mitchell, K., Kirwan, J. R., Hewlett, S., Pollock, J., …Bennett, B. (2003). Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years. Rheumatology, 42(3), 422-426. https://doi.org/10.1093/rheumatology/keg130

Background. Patients with rheumatoid arthritis (RA) are traditionally seen regularly as out-patients, irrespective of whether it is appropriate or timely to see them. A randomized controlled trial has shown that over 2 yr, seeing patients only when t... Read More about Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years.

MCID/Low disease activity state workshop: Summary, recommendations and research agenda (2003)
Journal Article
Wells, G., Anderson, J., Boers, M., Felson, D., Heilberg, T., Hewlett, S., …Tugwell, P. (2003). MCID/Low disease activity state workshop: Summary, recommendations and research agenda. Journal of Rheumatology, 30(5), 1115-1118

The OMERACT 6 Minimal Clinically Important Difference/Low Disease Activity Workshop was organized with the aim of meeting the many challenges that exist in determining a low disease activity in rheumatoid arthritis (RA). This article presents an over... Read More about MCID/Low disease activity state workshop: Summary, recommendations and research agenda.

Patient priorities for outcomes in rheumatoid arthritis (2002)
Presentation / Conference
Hughes, R., Hewlett, S., Carr, A., Mitchell, K., Ryan, S., Carr, M., & Kirwan, J. R. (2002, November). Patient priorities for outcomes in rheumatoid arthritis. Poster presented at American College Rheumatology Annual Conference, New Orleans, USA

Measuring the meaning of disability in rheumatoid arthritis: The personal impact Health Assessment Questionnaire (PI HAQ) (2002)
Journal Article
Hewlett, S., Smith, A. P., & Kirwan, J. R. (2002). Measuring the meaning of disability in rheumatoid arthritis: The personal impact Health Assessment Questionnaire (PI HAQ). Annals of the Rheumatic Diseases, 61(11), 986-993. https://doi.org/10.1136/ard.61.11.986

Background: Measurement of disability in rheumatoid arthritis is often used to support treatment decisions and outcome assessments, but is used without reference to the impact of disability on individual patients. Objective: To develop and validate a... Read More about Measuring the meaning of disability in rheumatoid arthritis: The personal impact Health Assessment Questionnaire (PI HAQ).

Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis (2002)
Journal Article
Memel, D., Kirwan, J. R., Langley, C., Hewlett, S., & Hehir, M. (2002). Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis. Rheumatology, 41(1), 100-102. https://doi.org/10.1093/rheumatology/41.1.100

Background: Many eligible people with arthritis do not receive disability benefits. Application forms are lengthy and complex, and doctors and nurses are often unsure which patients would qualify. Aim: To investigate how severe disability on the... Read More about Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis.

Development and validation of a self-efficacy scale for use in British patients wih rheumatoid arthritis (RASE) (2001)
Journal Article
Hewlett, S., Cockshott, Z., Kirwan, J. R., Barrett, J., Stamp, J., & Haslock, I. (2001). Development and validation of a self-efficacy scale for use in British patients wih rheumatoid arthritis (RASE). Rheumatology, 40(11), 1221-1230. https://doi.org/10.1093/rheumatology/40.11.1221

Objective: Current arthritis self-efficacy scales have attracted some criticism. Therefore, the aim of this study was to develop and validate a measure of self-efficacy for use in British rheumatoid arthritis patients [Rheumatoid Arthritis Self-effic... Read More about Development and validation of a self-efficacy scale for use in British patients wih rheumatoid arthritis (RASE).

Values for function in rheumatoid arthritis: Patients, professionals, and public (2001)
Journal Article
Kirwan, J. R., Hewlett, S., Hewlett, S., Smith, A. P., & Kirwan, J. R. (2001). Values for function in rheumatoid arthritis: Patients, professionals, and public. Annals of the Rheumatic Diseases, 60(10), 928-933. https://doi.org/10.1136/ard.60.10.928

Background - Although many disability questionnaires measure fact very efficiently, they do not allow for consideration of the relevance of that disability to the patient. Data suggest that professionals misinterpret the relevance of disability for t... Read More about Values for function in rheumatoid arthritis: Patients, professionals, and public.

Patient-initiated hospital follow-up for rheumatoid arthritis (2000)
Journal Article
Hewlett, S., Kirwan, J. R., Mitchell, K., Hogg, J., Korendovych, E., & Paine, T. (2000). Patient-initiated hospital follow-up for rheumatoid arthritis. Rheumatology, 39, 990-997

Objectives: To evaluate the clinical efficacy, cost and acceptability of a shared care system of patient- or general practitioner (GP)-initiated hospital review in rheumatoid arthritis (RA). Methods: A 2-yr randomized controlled trial of routine... Read More about Patient-initiated hospital follow-up for rheumatoid arthritis.

Rheumatology telephone helplines: An activity analysis (2000)
Journal Article
McCabe, C., MacDowell, J., Cushnaghan, J., Butts, S., Hewlett, S., Stafford, S., …Breslin, A. (2000). Rheumatology telephone helplines: An activity analysis. Rheumatology, 39, 1390-1395

Background: Anecdotal evidence suggests that the services offered by rheumatology telephone helplines in the UK vary widely between NHS Trusts because of the lack of national or European guidelines. Objective: To conduct an activity analysis of s... Read More about Rheumatology telephone helplines: An activity analysis.

Consent to clinical research - adequately voluntary or substantially influenced? (1996)
Journal Article
Hewlett, S. (1996). Consent to clinical research - adequately voluntary or substantially influenced?. Journal of Medical Ethics, 22(4), 232-237. https://doi.org/10.1136/jme.22.4.232

In clinical research the giving of consent by the patient often lies within the context of illness or the doctor/patient relationship. On exploration of these issues it would appear unlikely that the patient's consent is free of substantial influence... Read More about Consent to clinical research - adequately voluntary or substantially influenced?.

Rheumatoid arthritis patients cannot accurately report signs of inflammatory activity (1995)
Journal Article
Hewlett, S., Haynes, J., Shepstone, L., & Kirwan, J. R. (1995). Rheumatoid arthritis patients cannot accurately report signs of inflammatory activity. Rheumatology, 34, 547-553

If patients with rheumatoid arthritis (RA) could self-report symptoms in a manner which correlated with laboratory measures of inflammation this would be a valuable research or clinical tool. Developing such a tool means ensuring that the questions a... Read More about Rheumatoid arthritis patients cannot accurately report signs of inflammatory activity.

Dissatisfaction, disability, and rheumatoid arthritis (1995)
Journal Article
Kirwan, J., Young, P., Hewlett, S., Young, P., & Kirwan, J. R. (1995). Dissatisfaction, disability, and rheumatoid arthritis. Arthritis and Rheumatism, 8(1), 4-9. https://doi.org/10.1002/art.1790080104

Objectives. To investigate dissatisfaction with function in patients with rheumatoid arthritis [RA], and to see if dissatisfaction can be adequately explained by level of function. Methods. Fifty patients with RA were assessed for disease activity, p... Read More about Dissatisfaction, disability, and rheumatoid arthritis.