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Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients

Dures, Emma; Bowen, Clive; Brooke, Mel; Lord, Jane; Tillett, William; McHugh, Neil; Hewlett, Sarah

Authors

Emma Dures Emma2.Dures@uwe.ac.uk
Associate Professor in Rheumatology and Self-management

Clive Bowen

Mel Brooke

Jane Lord

William Tillett

Neil McHugh



Abstract

Objectives. PsA is an inflammatory condition that can cause pain, fatigue, swelling and joint stiffness.
The consequences include impaired physical function, a high psychosocial burden, reduced quality of life and work disability. The presenting symptoms can be non-specific and varied, leading to
delays in diagnosis or referral to specialist teams. The aim of this study was to explore patients’ experiences of being diagnosed and the initial management of PsA.

Methods. The study used a qualitative design, with data collected in one-to-one, face-to-face semistructured interviews.

Results. Fifteen newly diagnosed patients (less than 24 months) from three hospital sites in the southwest of England participated. Interviews were transcribed, anonymized and analysed using inductive thematic
analysis. The following two main themes with sub-themes represent the data: symptom onset to specialist care: ‘it was the blind leading the blind’ (making sense of symptoms; mis-diagnosis and missed
opportunities; and fast and easy access to expertise); and diagnosis as a turning point: ‘having somebody say you’ve got something wrong with you, I was euphoric’ (validation and reassurance; weighing
up treatment options; taking on self-management; and acknowledging loss and change).

Conclusion. Participants were already dealing with functional limitations and were highly distressed and anxious by the time they received their diagnosis. Physical and mental outcomes could be improved by the implementation of existing psoriasis management guidelines and strategies for earlier referral from primary care to rheumatology and by the development of guidelines on educational, selfmanagement and psychological support provision soon after diagnosis.

Citation

Dures, E., Bowen, C., Brooke, M., Lord, J., Tillett, W., McHugh, N., & Hewlett, S. (2019). Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients. Rheumatology Advances in Practice, 3(2), https://doi.org/10.1093/rap/rkz022

Journal Article Type Article
Acceptance Date Jul 8, 2019
Online Publication Date Aug 26, 2019
Publication Date Aug 26, 2019
Deposit Date Oct 16, 2019
Publicly Available Date Oct 17, 2019
Journal Rheumatology Advances in Practice
Print ISSN 2514-1775
Electronic ISSN 2514-1775
Publisher Oxford University Press
Peer Reviewed Peer Reviewed
Volume 3
Issue 2
Article Number rkz022
DOI https://doi.org/10.1093/rap/rkz022
Keywords qualitative, diagnosis, psoriatic arthritis, rheumatology, specialist care, psychological distress, self-management, treatment decisions.
Public URL https://uwe-repository.worktribe.com/output/2715262

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Diagnosis and initial management in psoriatic arthritis: a qualitative study with patients (249 Kb)
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Licence
http://creativecommons.org/licenses/by/4.0/

Publisher Licence URL
http://creativecommons.org/licenses/by/4.0/

Copyright Statement
Copyright The Author(s) 2019. Published by Oxford University Press on behalf of the British Society for Rheumatology.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.





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