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All Outputs (100)

Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis (2019)
Journal Article

Objective: Long-term outcomes of patients born with a cleft lip and palate (CLP) are scarcely investigated. Yet, this patient group is of particular interest, as they can provide a valuable retrospective view upon their treatment experiences and psyc... Read More about Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis.

Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate (2019)
Journal Article

Background: Receiving the news that their child has a health condition, such as a cleft lip and/or palate (CL/P), can have a considerable psychological impact on parents. Yet previous research has highlighted parental dissatisfaction and service-rela... Read More about Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate.

In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care (2018)
Journal Article

Copyright © 2018 by Mutaz B. Habal, MD This study describes stressors, resources, and recommendations related to craniofacial microsomia (CFM) care from the perspective of caregivers of children with CFM and adults with CFM to inform improved quality... Read More about In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care.

Falling through the gap: Dental treatment experiences of patients affected by cleft lip and/or palate (2018)
Journal Article

© 2018, Nature Publishing Group. All rights reserved. Introduction In the UK, one in 600–700 infants is born with a cleft lip and/or palate (CL/P). Previous research has identified patients with CL/P to be at high risk of long-term oral health issues... Read More about Falling through the gap: Dental treatment experiences of patients affected by cleft lip and/or palate.

The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom (2018)
Journal Article

© 2018, American Cleft Palate-Craniofacial Association. Background: As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation of cost-effective multicenter audit and research projects. The... Read More about The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom.

Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention (2018)
Journal Article

© 2018, American Cleft Palate-Craniofacial Association. Although cleft lip and/or palate (CL/P) has been a focus of psychological research for a number of years, investigation of adjustment to other, rarer craniofacial anomalies (CFAs) has been scarc... Read More about Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention.

The provision of specialist psychosocial support for people with visible differences: A European survey (2018)
Journal Article

© 2018 A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are n... Read More about The provision of specialist psychosocial support for people with visible differences: A European survey.

Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives (2018)
Journal Article

© 2018 Elsevier B.V. Objective: Craniofacial microsomia (CFM) is primarily characterized by underdevelopment of the ear and mandible, with several additional possible congenital anomalies. Despite the potential burden of care and impact of CFM on mul... Read More about Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives.

Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development (2018)
Journal Article

Satisfaction with appearance is of central importance for psychological well-being and health. For individuals with an unusual appearance, such as congenital craniofacial anomalies (CFA), appearance evaluations could be especially important. However,... Read More about Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development.

Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners” (2018)
Journal Article

© The Author(s) 2018. Background: Since the implementation of centralized services in the United Kingdom for those affected by cleft lip and/or palate (CL/P), several studies have investigated the impact of service rationalization on the delivery of... Read More about Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”.

Setting up a cohort study in speech and language therapy: Lessons from The UK Cleft Collective Speech and Language (CC-SL) Study (2017)
Journal Article

Background: Efforts to increase the evidence base in speech and language therapy are often limited by methodological factors which have restricted the strength of the evidence to the lower levels on the evidence hierarchy. Where higher graded studies... Read More about Setting up a cohort study in speech and language therapy: Lessons from The UK Cleft Collective Speech and Language (CC-SL) Study.

Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting (2017)
Journal Article

© The Author(s) 2017. Background: During the school years, a cleft of the lip and/or palate (CL/P) may pose a risk to educational achievement. To further understand this multifaceted association, and to offer suggestions as to how young people’s educ... Read More about Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting.

Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services (2017)
Journal Article

© 2017 John Wiley & Sons Ltd Aims and objectives: To explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study. Background: Longitudinal studies are vital to better understand the aetiolog... Read More about Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services.