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All Outputs (97)

Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate (2019)
Journal Article
Costa, B., Williams, J., Martindale, A., & Stock, N. M. (2019). Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate. British Journal of Midwifery, 27(3), 151-160. https://doi.org/10.12968/bjom.2019.27.3.151

Background: Receiving the news that their child has a health condition, such as a cleft lip and/or palate (CL/P), can have a considerable psychological impact on parents. Yet previous research has highlighted parental dissatisfaction and service-rela... Read More about Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate.

Delivering effective genetic services for patients and families affected by cleft lip and/or palate (2019)
Journal Article
Stock, N., MacLeod, R., & Clayton-Smith, J. (2019). Delivering effective genetic services for patients and families affected by cleft lip and/or palate. European Journal of Human Genetics, 27(7), 1018-1025. https://doi.org/10.1038/s41431-018-0333-x

Genetic services for individuals affected by cleft lip and/or palate (CL/P) and their families are an important aspect of clinical care; yet debate exists as to how this service should be offered. This study explored the utility, acceptability, and... Read More about Delivering effective genetic services for patients and families affected by cleft lip and/or palate.

In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care (2018)
Journal Article
Johns, A. L., Luquetti, D. V., Brajcich, M. R., Aspinall, C., Heike, C. L., & Stock, N. M. (2018). In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care. Journal of Craniofacial Surgery, 29(8), 2198-2205. https://doi.org/10.1097/SCS.0000000000004867

Copyright © 2018 by Mutaz B. Habal, MD This study describes stressors, resources, and recommendations related to craniofacial microsomia (CFM) care from the perspective of caregivers of children with CFM and adults with CFM to inform improved quality... Read More about In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care.

Parental views of antenatal testing and termination following a diagnosis of cleft lip (2018)
Journal Article
Stock, N. M., Costa, B., Williams, J., & Martindale, A. (2019). Parental views of antenatal testing and termination following a diagnosis of cleft lip. Psychology, Health and Medicine, 24(4), 456-469. https://doi.org/10.1080/13548506.2018.1529328

© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Fetal anomaly screening at 18–21weeks now routinely includes cleft lip. If detected, the manner in which the diagnosis is communicated can considerably influence prospective pare... Read More about Parental views of antenatal testing and termination following a diagnosis of cleft lip.

Falling through the gap: Dental treatment experiences of patients affected by cleft lip and/or palate (2018)
Journal Article
Stock, N. M., Sharratt, N. D., Heath, J., Nankivell, D., Martindale, A., Ridley, M., …Cunniffe, C. (2018). Falling through the gap: Dental treatment experiences of patients affected by cleft lip and/or palate. British Dental Journal, 225(3), 218-222. https://doi.org/10.1038/sj.bdj.2018.542

© 2018, Nature Publishing Group. All rights reserved. Introduction In the UK, one in 600–700 infants is born with a cleft lip and/or palate (CL/P). Previous research has identified patients with CL/P to be at high risk of long-term oral health issues... Read More about Falling through the gap: Dental treatment experiences of patients affected by cleft lip and/or palate.

The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom (2018)
Journal Article
Sainsbury, D. C., Davies, A., Wren, Y., Southby, L., Chadha, A., Slator, R., & Stock, N. M. (2019). The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom. Cleft Palate-Craniofacial Journal, 56(4), 502-507. https://doi.org/10.1177/1055665618790174

© 2018, American Cleft Palate-Craniofacial Association. Background: As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation of cost-effective multicenter audit and research projects. The... Read More about The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom.

Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention (2018)
Journal Article
Stock, N. M., & Feragen, K. B. (2019). Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention. Cleft Palate-Craniofacial Journal, 56(6), 766-772. https://doi.org/10.1177/1055665618770183

© 2018, American Cleft Palate-Craniofacial Association. Although cleft lip and/or palate (CL/P) has been a focus of psychological research for a number of years, investigation of adjustment to other, rarer craniofacial anomalies (CFAs) has been scarc... Read More about Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention.

Teachers’ Perspectives on the Impact of Cleft Lip and/or Palate During the School Years (2018)
Journal Article
Stock, N. M., Ridley, M., & Guest, E. (2019). Teachers’ Perspectives on the Impact of Cleft Lip and/or Palate During the School Years. Cleft Palate-Craniofacial Journal, 56(2), 204-209. https://doi.org/10.1177/1055665618770191

© 2018, American Cleft Palate-Craniofacial Association. Background: Cleft lip and/or palate (CL/P) poses many challenges for those affected throughout the school years, with recent studies pointing to a trend in poor educational outcomes. Previous re... Read More about Teachers’ Perspectives on the Impact of Cleft Lip and/or Palate During the School Years.

#CleftProud: A content analysis and online survey of 2 cleft lip and palate facebook groups (2018)
Journal Article
Stock, N. M., Martindale, A., & Cunniffe, C. (2018). #CleftProud: A content analysis and online survey of 2 cleft lip and palate facebook groups. Cleft Palate-Craniofacial Journal, 55(10), 1339-1349. https://doi.org/10.1177/1055665618764737

© 2018, American Cleft Palate-Craniofacial Association. Background: More than 2 billion people worldwide now use social networking sites, with an increasing number of users accessing these sites to obtain health information and engage in emotional su... Read More about #CleftProud: A content analysis and online survey of 2 cleft lip and palate facebook groups.

The provision of specialist psychosocial support for people with visible differences: A European survey (2018)
Journal Article
Harcourt, D., Hamlet, C., Feragen, K. B., Garcia-Lopez, L. J., Masnari, O., Mendes, J., …Williamson, H. (2018). The provision of specialist psychosocial support for people with visible differences: A European survey. Body Image, 25, 35-39. https://doi.org/10.1016/j.bodyim.2018.02.001

© 2018 A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are n... Read More about The provision of specialist psychosocial support for people with visible differences: A European survey.

Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives (2018)
Journal Article
Luquetti, D., Brajcich, M., Stock, N. M., Carrie, H., & Johns, A. (2018). Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives. International Journal of Pediatric Otorhinolaryngology, 107, 164-175. https://doi.org/10.1016/j.ijporl.2018.02.007

© 2018 Elsevier B.V. Objective: Craniofacial microsomia (CFM) is primarily characterized by underdevelopment of the ear and mandible, with several additional possible congenital anomalies. Despite the potential burden of care and impact of CFM on mul... Read More about Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives.

Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development (2018)
Journal Article
Feragen, K. B., & Stock, N. M. (2018). Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development. Body Image, 24, 124-136. https://doi.org/10.1016/j.bodyim.2017.12.005

Satisfaction with appearance is of central importance for psychological well-being and health. For individuals with an unusual appearance, such as congenital craniofacial anomalies (CFA), appearance evaluations could be especially important. However,... Read More about Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development.

Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners” (2018)
Journal Article
Stock, N. M., Anwar, H., Sandy, J., & Rumsey, N. (2018). Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”. Cleft Palate-Craniofacial Journal, 55(5), 676-681. https://doi.org/10.1177/1055665617744064

© The Author(s) 2018. Background: Since the implementation of centralized services in the United Kingdom for those affected by cleft lip and/or palate (CL/P), several studies have investigated the impact of service rationalization on the delivery of... Read More about Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”.

Setting up a cohort study in speech and language therapy: Lessons from The UK Cleft Collective Speech and Language (CC-SL) Study (2017)
Journal Article
Wren, Y., Humphries, K., Stock, N. M., Rumsey, N., Lewis, S., Davies, A., …Sandy, J. (2018). Setting up a cohort study in speech and language therapy: Lessons from The UK Cleft Collective Speech and Language (CC-SL) Study. International Journal of Language and Communication Disorders, 53(3), 421-430. https://doi.org/10.1111/1460-6984.12364

Background: Efforts to increase the evidence base in speech and language therapy are often limited by methodological factors which have restricted the strength of the evidence to the lower levels on the evidence hierarchy. Where higher graded studies... Read More about Setting up a cohort study in speech and language therapy: Lessons from The UK Cleft Collective Speech and Language (CC-SL) Study.

Toward a conceptual and methodological shift in craniofacial research (2017)
Journal Article
Stock, N. M., Feragen, K. B., Moss, T. P., & Rumsey, N. (2018). Toward a conceptual and methodological shift in craniofacial research. Cleft Palate-Craniofacial Journal, 55(1), 105-111. https://doi.org/10.1177/1055665617721925

© The Author(s) 2017. Objective: To date, research investigating the psychological impact of craniofacial conditions has produced variability across outcomes. The aims of this article were to summarize the challenges that may contribute to this varia... Read More about Toward a conceptual and methodological shift in craniofacial research.

Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting (2017)
Journal Article
Stock, N. M., & Ridley, M. (2018). Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting. Cleft Palate-Craniofacial Journal, 55(4), 607-614. https://doi.org/10.1177/1055665617734991

© The Author(s) 2017. Background: During the school years, a cleft of the lip and/or palate (CL/P) may pose a risk to educational achievement. To further understand this multifaceted association, and to offer suggestions as to how young people’s educ... Read More about Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting.

Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services (2017)
Journal Article
Zucchelli, F., Rumsey, N., Humphries, K., Bennett, R., Davies, A., Sandy, J., & Stock, N. M. (2018). Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services. Journal of Clinical Nursing, 27(5-6), e787-e797. https://doi.org/10.1111/jocn.14188

© 2017 John Wiley & Sons Ltd Aims and objectives: To explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study. Background: Longitudinal studies are vital to better understand the aetiolog... Read More about Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services.

Speech, language, and reading in 10-year-olds with cleft: Associations with teasing, satisfaction with speech, and psychological adjustment (2017)
Journal Article
Særvold, T. K., Feragen, K. B., Aukner, R., & Stock, N. M. (2017). Speech, language, and reading in 10-year-olds with cleft: Associations with teasing, satisfaction with speech, and psychological adjustment. Cleft Palate-Craniofacial Journal, 54(2), 153-165. https://doi.org/10.1597/14-242

© 2017 American Cleft Palate-Craniofacial Association. Background: Despite the use of multidisciplinary services, little research has addressed issues involved in the care of those with cleft lip and/or palate across disciplines. The aim was to inves... Read More about Speech, language, and reading in 10-year-olds with cleft: Associations with teasing, satisfaction with speech, and psychological adjustment.

Psychological adjustment to craniofacial conditions (excluding oral clefts): A review of the literature (2016)
Journal Article
Feragen, K. B., & Stock, N. M. (2017). Psychological adjustment to craniofacial conditions (excluding oral clefts): A review of the literature. Psychology and Health, 32(3), 253-288. https://doi.org/10.1080/08870446.2016.1247838

© 2016 Informa UK Limited, trading as Taylor & Francis Group. Objective: A congenital craniofacial anomaly (CFA) is expected to impact upon several domains of psychological, emotional and social functioning, yet no recent reviews have comprehensive... Read More about Psychological adjustment to craniofacial conditions (excluding oral clefts): A review of the literature.

The psychological impact of cleft lip and/or palate on unaffected siblings (2016)
Journal Article
Stock, N. M., Stoneman, K., Cunniffe, C., & Rumsey, N. (2016). The psychological impact of cleft lip and/or palate on unaffected siblings. Cleft Palate-Craniofacial Journal, 53(6), 670-682. https://doi.org/10.1597/15-148

BACKGROUND: Sibling relationships are among the most unique social connections, significantly affecting psychosocial adjustment. Previous reviews in the fields of chronic illness and disability have concluded that unaffected siblings of children with... Read More about The psychological impact of cleft lip and/or palate on unaffected siblings.