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Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting

Stock, Nicola Marie; Ridley, Matthew


Nicola Stock
Occasional Associate Lecturer - HAS - HSS

Matthew Ridley


© The Author(s) 2017. Background: During the school years, a cleft of the lip and/or palate (CL/P) may pose a risk to educational achievement. To further understand this multifaceted association, and to offer suggestions as to how young people’s educational experiences might be improved, qualitative investigation is warranted. Design: Semi-structured telephone interviews were conducted with young people born with CL/P (n = 10; aged 10-16 years) and their parents (n = 10). The resulting data were subjected to inductive thematic analysis. Results: Negative social interactions, cleft-related treatment, the presence of an additional condition, and a lack of appropriate support from teachers was found to influence young people’s educational experience. Methods for promoting diversity, support from clinical teams, facilitation of positive school transitions, implementation of training for teachers, and a holistic approach to the measurement of “success” were suggested by participants as potential ways of improving this experience. Conclusions: The findings of this study point to a need for a range of school-focused interventions, as well as the inclusion of a number of potentially impactful variables within future quantitative research.


Stock, N. M., & Ridley, M. (2018). Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting. Cleft Palate-Craniofacial Journal, 55(4), 607-614.

Journal Article Type Article
Acceptance Date Aug 1, 2017
Online Publication Date Dec 14, 2017
Publication Date Jan 1, 2018
Deposit Date Sep 11, 2017
Publicly Available Date Jan 15, 2018
Journal Cleft Palate-Craniofacial Journal
Print ISSN 1055-6656
Electronic ISSN 1545-1569
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
Volume 55
Issue 4
Pages 607-614
Keywords cleft lip and palate, education, school, bullying, treatment, transition, visible difference
Public URL
Publisher URL
Additional Information Additional Information : © 2018. Reprinted by permission of SAGE Publications


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