The Cleft Multidisciplinary Collaborative: Establishing a network to support cleft lip and palate research in the United Kingdom
Sainsbury, DC; Davies, A; Wren, Y; Southby, L; Chadha, A; Slator, R; Stock, Nicola Marie
Nicola Stock Nicola2.Stock@uwe.ac.uk
Senior Research Fellow
Background: As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation of cost-effective multicentre audit and research projects. The aims of the present article are to outline and discuss the establishment of a multidisciplinary collaborative in the context of cleft lip and/or palate (CL/P).
Methods: The Cleft Multidisciplinary Collaborative (CMC) was formed in April 2016 under the overarching supervision of the National Institute for Health Research. Membership of the CMC is open to all members of the CL/P multidisciplinary team, who are encouraged to submit ideas for new research projects which will benefit clinical practice.
Results: To date, 48 clinical participants are involved in the CMC. These participants represent all 17 cleft teams from the UK and encompass a wide range of disciplines. The CMC has undertaken two major projects thus far. The first involved collection of phenotype data to support a national cohort study. The second, still in progress, is a systematic review investigating factors associated with outcomes for velopharyngeal competence following cleft palate repair.
Conclusions: The concept of a multidisciplinary collaborative in CL/P has been demonstrated, through the generation of a UK-wide network of committed clinicians and researchers, and the effective undertaking of two large research projects. As the CMC gathers momentum, it hopes to attract funding to support its activities, to promote more involvement from the allied health and nursing professions, to encourage a more ingrained research culture within the CL/P community, and to promote the wider ambition of a global collaborative.
Key words: trainee, collaboration, multicentre, research, audit, multidisciplinary
|Journal Article Type||Article|
|Publication Date||Apr 1, 2019|
|Journal||Cleft Palate-Craniofacial Journal|
|Peer Reviewed||Peer Reviewed|
|APA6 Citation||Sainsbury, D., Davies, A., Wren, Y., Southby, L., Chadha, A., Slator, R., & Stock, N. M. (2019). The Cleft Multidisciplinary Collaborative: Establishing a network to support cleft lip and palate research in the United Kingdom. Cleft Palate-Craniofacial Journal, 56(4), 502-507. https://doi.org/10.1177/1055665618790174|
|Keywords||trainee, collaboration, multicentre, research, audit, multidisciplinary, visible difference|
|Additional Information||Additional Information : © 2019. Reprinted by permission of SAGE Publications|
CMC paper with minor revisions v2.docx
CMC paper with minor revisions v2.pdf
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