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Experiences of living with visible difference: Individual and social reflections (2019)
Journal Article
Sharratt, N. D., Jenkinson, E., Moss, T., Clarke, A., & Rumsey, N. (2019). Experiences of living with visible difference: Individual and social reflections. Health Psychology Update, 28(2),

Many health conditions impact upon an individual’s appearance and result in an altered appearance (“visible difference”). The presence of visible difference is associated with a variety of psychosocial difficulties and challenges, yet calls for an i... Read More about Experiences of living with visible difference: Individual and social reflections.

Postcards from researchers (2019)
Presentation / Conference
Holt, N. J., Jenkinson, E., & Clarke, V. (2019, July). Postcards from researchers. Presented at Exploring the potential for creative and arts-based methods for applied psychological research

A workshop, drawing on guerrilla kindness craftivism, to share inspiration and research ideas gained from the BPS creative methods seminar.

Lived experience of Silver-Russell syndrome: Implications for management during childhood and into adulthood (2019)
Journal Article
Ballard, L. M., Jenkinson, E., Byrne, C. D., Child, J. C., Davies, J. H., Inskip, H., …Fenwick, A. (2019). Lived experience of Silver-Russell syndrome: Implications for management during childhood and into adulthood. Archives of Disease in Childhood, 104(1), 76-82. https://doi.org/10.1136/archdischild-2018-314952

© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2019. All rights reserved. No commercial use is permitted unless otherwise expressly granted. Objective There is limited information on the psychosocial imp... Read More about Lived experience of Silver-Russell syndrome: Implications for management during childhood and into adulthood.

Living with alopecia areata: an online qualitative survey study (2018)
Journal Article
Davey, L., Clarke, V., & Jenkinson, E. (2019). Living with alopecia areata: an online qualitative survey study. British Journal of Dermatology, 180(6), 1377-1389. https://doi.org/10.1111/bjd.17463

© 2018 British Association of Dermatologists Background: Living with alopecia areata (AA) totalis and universalis (collectively referred to here as AA) involves unpredictable, sometimes rapid hair loss. There is currently no effective treatment and p... Read More about Living with alopecia areata: an online qualitative survey study.

Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS) (2018)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., Clarke, A., & Rumsey, N. (2018, September). Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS). Paper presented at The British Psychological Society Division of Health Psychology Annual Conference

Objectives: Whilst participants with an appearance altering condition have expressed distress and anxiety in relation to their capacity to engage in romantic relationships, there exists no measure of the effect of visible difference upon this domain.... Read More about Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS).

Understandings and experiences of visible difference and romantic relationships: A qualitative exploration (2018)
Journal Article
Sharratt, N. D., Jenkinson, E., Moss, T., Clarke, A., & Rumsey, N. (2018). Understandings and experiences of visible difference and romantic relationships: A qualitative exploration. Body Image, 27, 32-42. https://doi.org/10.1016/j.bodyim.2018.08.002

© 2018 Elsevier Ltd The association between disfigurement (‘visible difference’) and romantic relationships has received relatively little consideration in the research literature. This qualitative research, conducted in the United Kingdom, explored... Read More about Understandings and experiences of visible difference and romantic relationships: A qualitative exploration.

Development and initial validation of the CAR romantic relationships and intimacy scale (2018)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., Clarke, A., & Rumsey, N. (2018, June). Development and initial validation of the CAR romantic relationships and intimacy scale. Paper presented at Appearance Matters 8

Whilst participants with a disfiguring or appearance altering condition have expressed distress, fear, and anxiety in relation to their capacity to engage in physical intimacy and romantic relationships, there exists no measure of the perceived impac... Read More about Development and initial validation of the CAR romantic relationships and intimacy scale.

Being looked at and exposing yourself: Appearance altering conditions and stigma (2017)
Presentation / Conference
Sharratt, N., Jenkinson, E., Moss, T., & Rumsey, N. (2017, September). Being looked at and exposing yourself: Appearance altering conditions and stigma. Paper presented at BPS Division of Health Psychology Annual Conference, 2017

Accepted conference proceedings from the BPS DHP Annual Conference, 2017: Cardiff.

Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study (2017)
Journal Article
Harrad, R. A., Richards, H. S., Richards, H. S., Jenkinson, E., Rumsey, N., & Harrad, R. A. (2017). Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study. Orbit, 36(3), 147-153. https://doi.org/10.1080/01676830.2017.1279669

© 2017 Taylor & Francis. This qualitative study sought to explore the experiences of patients who had undergone successful ptosis correction surgery. Participants were recruited from Bristol Eye Hospital. Nine participants were interviewed using a... Read More about Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study.

“I’ve always thought that I’m not good enough… why would someone good looking want to be with me?”: A qualitative exploration of the impact of visible differences upon intimacy and intimate relationships (2016)
Presentation / Conference
Sharratt, N., Jenkinson, E., Moss, T., & Rumsey, N. (2016, June). “I’ve always thought that I’m not good enough… why would someone good looking want to be with me?”: A qualitative exploration of the impact of visible differences upon intimacy and intimate relationships. Paper presented at Appearance Matters 7 Conference

Accepted conference proceedings from Appearance Matters 7, London, 2016

A qualitative exploration of the impact of visible differences upon intimate relationships: Methodological reflections (2016)
Presentation / Conference
Sharratt, N., Moss, T., Jenkinson, E., & Rumsey, N. (2016, April). A qualitative exploration of the impact of visible differences upon intimate relationships: Methodological reflections. Paper presented at The British Psychological Society Annual Conference 2016

Accepted conference proceedings from the BPS Annual Conference, 2016: Nottingham. Presented as one of four papers in a symposium entitled "Looking Different: Contemporary research and interventions in appearance psychology"

Waterpipe tobacco use in the United Kingdom: A cross-sectional study among university students and Stop Smoking practitioners (2016)
Journal Article
Gorlova, O. Y., Jawad, M., Choaie, E., Brose, L., Dogar, O., Grant, A., …Shahab, L. (2016). Waterpipe tobacco use in the United Kingdom: A cross-sectional study among university students and Stop Smoking practitioners. PLoS ONE, 11(1), e0146799. https://doi.org/10.1371/journal.pone.0146799

Introduction Despite cigarette-like adverse health outcomes associated with waterpipe tobacco smoking and increase in its use among youth, it is a much underexplored research area. We aimed to measure the prevalence and patterns of waterpipe tobacco... Read More about Waterpipe tobacco use in the United Kingdom: A cross-sectional study among university students and Stop Smoking practitioners.

The psychological impact of dependency in adults with chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration (2016)
Journal Article
chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration. Journal of Health Psychology, https://doi.org/10.1177/1359105316643376

Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic... Read More about The psychological impact of dependency in adults with chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration.

Systematic review: Psychosocial interventions for children and young people with visible differences resulting from appearance altering conditions, injury, or treatment effects (2015)
Journal Article
Jenkinson, E., Williamson, H., Byron-Daniel, J., & Moss, T. (2015). Systematic review: Psychosocial interventions for children and young people with visible differences resulting from appearance altering conditions, injury, or treatment effects. Journal of Pediatric Psychology, 40(10), 1017-1033. https://doi.org/10.1093/jpepsy/jsv048

© 2015 The Author 2015. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. Objective Evaluate critically the evidence of the effectiveness of psychosocial interventions for children/young peopl... Read More about Systematic review: Psychosocial interventions for children and young people with visible differences resulting from appearance altering conditions, injury, or treatment effects.

How can cognitive behavioural therapy help patients with appearance anxiety? (2014)
Journal Article
Jenkinson, E. (2014). How can cognitive behavioural therapy help patients with appearance anxiety?. Journal of Aesthetic Nursing, 3(9), 446-449. https://doi.org/10.12968/joan.2014.3.9.446

A growing body of research and clinical observations is showing that people with visible differences or disfigurements are prone to developing anxiety and social anxiety related to their appearance. In severe cases, this can result in social withdraw... Read More about How can cognitive behavioural therapy help patients with appearance anxiety?.

Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression (2014)
Journal Article
Walsh, E., Thompson, A., Saul, K., Newman, S., Newell, R., Lindenmeyer, A., …UWE Collaborators, . (2014). Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression. PLoS ONE, 9(2), e88435. https://doi.org/10.1371/journal.pone.0088435

Psychometric measures of appearance salience and valence, CARSAL and CARVAL, have been previously demonstrated to be key factors underpinning appearance related self-consciousness and negative affect in the general population. However, the extent to... Read More about Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression.

The psychosocial impact of living with an ocular prosthesis (2014)
Journal Article
Lindenmeyer, A., Jenkinson, E., Harcourt, D., Moss, T., Clarke, S. A., Newell, R., …Newman, S. P. (2014). The psychosocial impact of living with an ocular prosthesis. Orbit, 33(1), 39-44. https://doi.org/10.3109/01676830.2013.851251

Objective: Many patients are satisfied with their ocular prosthesis, but some describe problems with social interactions, body image and self-esteem. Although both clinical practice and research suggest that the severity of a disfiguring condition do... Read More about The psychosocial impact of living with an ocular prosthesis.

The psychological well-being and appearance concerns of patients presenting with ptosis (2014)
Journal Article
White, P., Rumsey, N., Jenkinson, E., Richards, H. S., Jenkinson, E., Rumsey, N., …Harrad, R. A. (2014). The psychological well-being and appearance concerns of patients presenting with ptosis. Eye, 28(3), 296-302. https://doi.org/10.1038/eye.2013.264

PurposePtosis affects both the function and appearance of the eyes and face, because of drooping of the eyelids. Previous research has focused on functional impairment; however, similar appearance altering eye conditions have been demonstrated to hav... Read More about The psychological well-being and appearance concerns of patients presenting with ptosis.

The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study (2014)
Journal Article
Richards, H. S., Jenkinson, E., Rumsey, N., & Harrad, R. A. (2014). The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study. Orbit, 33(4), 263-269. https://doi.org/10.3109/01676830.2014.904375

The aim of this qualitative study was to investigate the psychosocial impact of ptosis as a symptom of Myasthenia Gravis (MG). Participants were recruited from a MG patient group on Facebook. 166 participants answered a series of open ended questions... Read More about The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study.