All Outputs (42)

Public contributor and stakeholder research priority setting for cancer survivors with chronic cancer-related pain Figure 1: Development of clinical recommendations (2025)
Presentation / Conference Contribution

Introduction: Chronic pain is a common side effect of cancer treatment. To better support people with chronic cancer-related pain, a set of evidence-based clinical recommendations have been generated. These are summarised as: PAINS: Prepare and inf... Read More about Public contributor and stakeholder research priority setting for cancer survivors with chronic cancer-related pain Figure 1: Development of clinical recommendations.

Research prioritisation of clinical recommendations for cancer survivors living with chronic pain post cancer treatment (2025)
Presentation / Conference Contribution

Introduction: Chronic pain is a common side effect of cancer treatment and is frequently cited as a top concern and unmet need for cancer survivors with wide ranging impacts. To better support people with chronic pain as a long-term or late side ef... Read More about Research prioritisation of clinical recommendations for cancer survivors living with chronic pain post cancer treatment.

Provision of multidisciplinary specialist pain services for people with chronic cancer-related late effects pain across England (2025)
Presentation / Conference Contribution

Introduction: Pain can be a significant problem for cancer survivors. The provision of pain services in England for people with cancer-related late effects pain, and the epidemiology of service users, is poorly understood.(1–3)
Aim: To identify th... Read More about Provision of multidisciplinary specialist pain services for people with chronic cancer-related late effects pain across England.

Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey (2024)
Journal Article

Introduction: Healthcare professionals are vital in preparing people living with and beyond cancer about the risks of chronic pain after cancer treatment. To do so, healthcare professionals need to be knowledgeable and confident about chronic pain af... Read More about Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey.

Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain (2023)
Presentation / Conference Contribution

Background. Patient and Public Involvement (PPI) can help shape research. It is important to capture the impacts that PPI have on cancer nursing doctoral research.
Methods: Two Public Contributors, who were cancer survivors living with chronic post... Read More about Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain.

Chronic post cancer treatment pain – how can we increase unity across pathways? (2023)
Presentation / Conference Contribution

Background: Chronic post cancer treatment pain is pain that persists or recurs for longer than three months and is caused by surgery, chemotherapy and/or radiotherapy . It can occur months or years after cancer treatment has finished. Limited knowl... Read More about Chronic post cancer treatment pain – how can we increase unity across pathways?.

Is there a role for citizen science in death and dying research? (2023)
Journal Article

The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of... Read More about Is there a role for citizen science in death and dying research?.

'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK (2023)
Journal Article

Aim: To explore cancer survivors’ experiences of living with chronic pain after curative cancer treatment in England, UK. Methods: A qualitative study using telephone interviews with adult cancer survivors experiencing chronic pain after curative can... Read More about 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK.

The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer (2023)
Presentation / Conference Contribution

Title: The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer
Objectives/purpose: Development of clinical recommendations to improve experiences of chronic... Read More about The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer.

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study (2023)
Journal Article

OBJECTIVE: To assess the degree of resilience in patients with complex regional pain syndrome (CRPS) 1, to explore the relationship between resilience and patient-related outcome measurements and to describe a pattern of clinical manifestations assoc... Read More about Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study.

Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians (2023)
Journal Article

Introduction: Complex Regional Pain Syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. Guidelines recommend early referral for therapies that promote movem... Read More about Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians.

Robotics technology for pain treatment and management: A review (2023)
Presentation / Conference Contribution

The use of robots for pain management is a new and active research field. The aim of this scoping review is to identify current research, which groups or conditions are being targeted for treatment, which devices are being used, and how effective the... Read More about Robotics technology for pain treatment and management: A review.

The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives (2022)
Presentation / Conference Contribution

Background and Aims
Complex Regional Pain Syndrome (CRPS) is a severe chronic pain condition which usually occurs following limb trauma[1] and causes significant burden to individuals and society. The UK has a small number of specialist CRPS centres... Read More about The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives.

Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank (2022)
Journal Article

ABSTRACT: Complex regional pain syndrome (CRPS) clinical trials have historically captured a diverse range of outcomes. A minimum set of CRPS patient-reported outcomes has been agreed for inclusion in a future CRPS international clinical research reg... Read More about Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank.

‘It’s there, it’s in front of your face if you put on the radio or the TV’: COVID-19, perceptions of death and dying and the context of public engagement (2022)
Presentation / Conference Contribution

Background/aims:
The COVID-19 pandemic has brought conversations about death and dying to the fore. Prior studies indicate that holding conversations about the future and end of life planning is beneficial but can be very difficult. Therefore, it is... Read More about ‘It’s there, it’s in front of your face if you put on the radio or the TV’: COVID-19, perceptions of death and dying and the context of public engagement.

Allied healthcare professionals interventions for complex regional pain syndrome - which work? A systematic review of the literature (2022)
Journal Article

Background/Aims
Complex regional pain syndrome (CRPS) is a severe chronic pain condition which usually occurs following limb trauma. Also associated with a range of signs and symptoms, including limb oedema, sensitivity to touch, skin colour and tem... Read More about Allied healthcare professionals interventions for complex regional pain syndrome - which work? A systematic review of the literature.

Health care professionals’ views regarding chronic post cancer treatment pain in cancer survivors: understanding, experience and confidence (2021)
Presentation / Conference Contribution

Introduction:
Chronic post-cancer treatment pain (CPCTP) is pain caused by cancer treatments, such as chemotherapy, radiotherapy or surgery (1). The prevalence of CPCTP affects many cancer ranges from 24 to 48% of people who have finished cancer t... Read More about Health care professionals’ views regarding chronic post cancer treatment pain in cancer survivors: understanding, experience and confidence.

An exploration into the experience, needs and service provision for cancer survivors living with persistent pain (2021)
Presentation / Conference Contribution

The role of non-medical therapeutic approaches in the rehabilitation of Complex Regional Pain Syndrome (2020)
Journal Article

Purpose of the review: Non-medical therapeutic approaches are fundamental to the management of Complex Regional Pain Syndrome (CRPS) in order to promote the best outcome for patients. This review focuses on three key approaches underpinning CRPS reha... Read More about The role of non-medical therapeutic approaches in the rehabilitation of Complex Regional Pain Syndrome.