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Outputs (4051)

Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases (2025)
Journal Article

Objectives To explore patients’ perspectives on the impact of appearance changes attributed to glucocorticoid treatment. Methods We conducted a secondary inductive thematic analysis of the ‘Steroid PRO’ semi-structured interviews with patients with r... Read More about Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases.

Parental engagement with complementary feeding information and their information-seeking behaviours in the United Kingdom (2025)
Thesis

Background - Complementary feeding describes the transition from milk to family foods from around six months until two years of age. Parents often seek information about complementary feeding to guide their feeding behaviours.

Aims - To explore ho... Read More about Parental engagement with complementary feeding information and their information-seeking behaviours in the United Kingdom.

Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German (2025)
Journal Article

Objective
Patient education is a cornerstone of rheumatology care, enabling patients to effectively and safely manage their condition. Standardized patient knowledge assessments are essential for benchmarking care quality and tailoring education to... Read More about Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German.

Shame, Psychology and ME (2025)
Presentation / Conference Contribution

In 2008, when she was 15, Katharine Cheston became ill with Myalgic Encephalomyelitis or ME. Over the next decade and more Katharine, and ourselves as a family, encountered many different psychological ideas and therapies, often being offered by non-... Read More about Shame, Psychology and ME.

Exploring the impact of climate change on respiratory health in Nigeria: A scoping review of current research, government policies and programs (2025)
Journal Article

Climate change significantly impacts health globally, especially in densely populated, rapidly industrialising and ecologically diverse countries like Nigeria. We analysed climate change policies, studies, programs, and events at the national and sub... Read More about Exploring the impact of climate change on respiratory health in Nigeria: A scoping review of current research, government policies and programs.

Impact of glucocorticoids on patients’ quality of life: A qualitative study assessing face validity and feasibility of the Steroid PRO in patients with inflammatory gastroenterology, respiratory and dermatology conditions (2025)
Journal Article

Objectives The Steroid PRO is a treatment-specific patient-reported outcome questionnaire which measures the impact of glucocorticoids on health-related quality of life. It has 15 items grouped into 4 domains (Social impact, Impact on Appearance, Psy... Read More about Impact of glucocorticoids on patients’ quality of life: A qualitative study assessing face validity and feasibility of the Steroid PRO in patients with inflammatory gastroenterology, respiratory and dermatology conditions.

Measuring the impact of managing incontinence on people with dementia and informal caregivers: Cognitive debriefing interviews of ‘ICIQ-Cog’ (English translation) (2025)
Journal Article

Aim:
The ICIQ-Cog questionnaire was developed in German to measure the impact of incontinence and/or toilet use problems on people living with dementia and their paid carers and unpaid caregivers; it has been translated into English. This study aime... Read More about Measuring the impact of managing incontinence on people with dementia and informal caregivers: Cognitive debriefing interviews of ‘ICIQ-Cog’ (English translation).

Exploring patient experience of rehabilitation within the surgical pathway for lower limb soft tissue sarcoma in the UK: A single-centre study (2025)
Journal Article

The primary treatment for localised soft tissue sarcoma (STS) is surgery. Surgery for lower limb sarcoma is associated with poorer functional outcomes than other anatomical sites. Rehabilitation is essential, yet provision is not standardised, and pa... Read More about Exploring patient experience of rehabilitation within the surgical pathway for lower limb soft tissue sarcoma in the UK: A single-centre study.

Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study (2025)
Journal Article

Purpose: To compare treatment utilisation for osteoarthritis (OA) and satisfaction with OA management between individuals with and without comorbid metabolic conditions (e.g., diabetes, obesity, dyslipidaemia, hypertension). Methods: Secondary analys... Read More about Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study.

Do we have sufficient evidence to derive innovative approaches to assessing unmet need, delivering education on bladder and bowel continence health, and providing a better environment for joint decision-making? ICI-RS 2024 (2025)
Journal Article

Context: Improved continence outcomes are reliant on identification of unmet need, education delivery, and shared decision‐making. The evidence base on which to derive innovative approaches in these areas was unclear.

Methods: A debate held at the... Read More about Do we have sufficient evidence to derive innovative approaches to assessing unmet need, delivering education on bladder and bowel continence health, and providing a better environment for joint decision-making? ICI-RS 2024.

Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review (2024)
Journal Article

Introduction
The use of Janus kinase inhibitors (JAKis) in immune-mediated inflammatory diseases (IMIDs) beyond licence is expanding rapidly. The aim of this scoping review was to identify and present the available evidence on the efficacy of JAKis... Read More about Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review.

What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol (2024)
Journal Article

Background: Fibromyalgia Syndrome (FMS) is characterised by widespread and persistent pain, intrusive fatigue and cognitive issues, affecting approximately 5.4% of the UK population. Non‐pharmacological therapies and education are current management... Read More about What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol.

Psoriatic arthritis priority setting partnership: Patient and clinician informed considerations for future UK health service delivery (2024)
Journal Article

Little is known about the ideal service delivery model and shortcomings in patient experiences in the NHS for patients with Psoriatic Arthritis (PsA). To identify unmet needs perceived within the current health service delivery model for PsA from the... Read More about Psoriatic arthritis priority setting partnership: Patient and clinician informed considerations for future UK health service delivery.

Development and refinement of patient care recommendations in brachytherapy for locally advanced cervical cancer using nominal group technique workshops (2024)
Journal Article

Purpose: Patient experiences of brachytherapy for locally advanced cervical cancer (LACC) are widely variable, with reports of difficult and traumatic experiences and aspects of care requiring improvement. The aim of this study was to develop patient... Read More about Development and refinement of patient care recommendations in brachytherapy for locally advanced cervical cancer using nominal group technique workshops.

Facilitators and barriers to access to midwife-led birth settings for racialized women in the UK: A scoping review (2024)
Journal Article

Background
In UK maternity care, racialized women have worse experiences and clinical outcomes than White women. Midwife-led birth settings (MLBS), including home births and midwife-led units, both freestanding and alongside hospitals, are all avail... Read More about Facilitators and barriers to access to midwife-led birth settings for racialized women in the UK: A scoping review.