Sarah Mackie's Outputs (12)
Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article
OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.
CO7 Patient reported outcome measure for giant cell arteritis: cross-sectional validation study (2022)
Presentation / Conference Contribution
POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis (2022)
Presentation / Conference Contribution
Background
Giant cell arteritis (GCA) is caused by inflammation of the blood vessels of the head and neck; patients can present with cranial, ocular or large vessel vasculitis involvement. Treatment is with glucocorticoids, steroid sparing agents a... Read More about POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis.
P301 Patient reported outcome measure for giant cell arteritis: Clinical testing (2022)
Presentation / Conference Contribution
Background/Aims
Giant cell arteritis (GCA) presents in people over 50, with headaches, visual involvement and large vessel vasculitis. A 30-item GCA-specific patient reported outcome measure (GCA PRO) was developed and tested in a clinical setting t... Read More about P301 Patient reported outcome measure for giant cell arteritis: Clinical testing.
OA23 Patient-reported outcome measure for giant cell arteritis: Cross-sectional validation study (2022)
Presentation / Conference Contribution
Development and validation of a patient reported outcome measure for giant cell arteritis (2021)
Presentation / Conference Contribution
Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data (2021)
Journal Article
Objective: To explore patient perceptions of physical activity in giant cell arteritis (GCA). Methods: This was a multinational qualitative study, analyzing interview data collected from participants from the UK (n=25) and Australia (n=11) with a def... Read More about Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data.
Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure (2021)
Journal Article
Objectives: GCA is a large vessel vasculitis (LVV) presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL-6 tocilizumab in refractory disease. The objective of this study w... Read More about Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure.
Patient reported outcomes in large vessel vasculitides (2021)
Journal Article
Purpose of Review: The goal of this paper is to review current and future uses of patient-reported outcomes in large vessel vasculitis. The large vessel vasculitides comprise Giant Cell Arteritis and Takayasu arteritis; both are types of systemic vas... Read More about Patient reported outcomes in large vessel vasculitides.
Advancing stiffness measurement in rheumatic disease: Report from the stiffness special interest group at OMERACT 2018 (2019)
Journal Article
Objective. To improve measurement of stiffness in rheumatic disease.
Methods. Data presented included (1) 2 qualitative projects, (2) the rheumatoid arthritis (RA) stiffness patient-reported outcome measure (RAST), and (3) 3 items assessing stiffn... Read More about Advancing stiffness measurement in rheumatic disease: Report from the stiffness special interest group at OMERACT 2018.
Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018 (2019)
Journal Article
OBJECTIVE:
The OMERACT Vasculitis Working Group seeks to develop validated outcome measures for use in trials for large-vessel vasculitis (LVV).
METHODS:
An international Delphi exercise conducted among investigators identified items considered... Read More about Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018.