All Outputs (111)

Emotional Skills Groups: A qualitative study exploring client experiences of online emotional skills group interventions in an NHS Talking Therapies service (2025)
Journal Article

Background: Many people treated in Talking Therapies services have highly complex needs which are not always met by the treatment offered. Emotional skills groups based on adaptations of Dialectical Behavioural Therapy (DBT) have been offered to mee... Read More about Emotional Skills Groups: A qualitative study exploring client experiences of online emotional skills group interventions in an NHS Talking Therapies service.

Patients’ experiences of managing their rare rheumatic disease (2025)
Journal Article

Objectives
The rare autoimmune rheumatic diseases (RAIRDs) include systemic lupus erythematosus (lupus), systemic vasculitis, inflammatory myositis, systemic sclerosis, and Sjögren’s Disease. The objective of the study is to understand patients’ exp... Read More about Patients’ experiences of managing their rare rheumatic disease.

OA34 The contributions of Patient and Public Involvement and Engagement groups to the conduct of a scoping review of non-pharmacological interventions for reducing fatigue in children and young people with musculoskeletal conditions (2025)
Journal Article

Background/Aims Fatigue is an important symptom for people of all ages with musculoskeletal (MSK) conditions. This includes the 234,000 children and young people (CYP) in England and Scotland currently living with conditions such as juvenile inflamma... Read More about OA34 The contributions of Patient and Public Involvement and Engagement groups to the conduct of a scoping review of non-pharmacological interventions for reducing fatigue in children and young people with musculoskeletal conditions.

Pain management training for people with persistent pain and their informal carers (JOINT SUPPORT): Multicentre randomised controlled feasibility trial with embedded qualitative study in English musculoskeletal services (2025)
Journal Article

Objectives: To assess the feasibility of conducting a pragmatic, multicentre randomised controlled trial (RCT) to test the clinical and cost-effectiveness of a pain management training intervention to support people with persistent musculoskeletal pa... Read More about Pain management training for people with persistent pain and their informal carers (JOINT SUPPORT): Multicentre randomised controlled feasibility trial with embedded qualitative study in English musculoskeletal services.

Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases (2025)
Journal Article

Objectives To explore patients’ perspectives on the impact of appearance changes attributed to glucocorticoid treatment. Methods We conducted a secondary inductive thematic analysis of the ‘Steroid PRO’ semi-structured interviews with patients with r... Read More about Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases.

Impact of glucocorticoids on patients’ quality of life: A qualitative study assessing face validity and feasibility of the Steroid PRO in patients with inflammatory gastroenterology, respiratory and dermatology conditions (2025)
Journal Article

Objectives The Steroid PRO is a treatment-specific patient-reported outcome questionnaire which measures the impact of glucocorticoids on health-related quality of life. It has 15 items grouped into 4 domains (Social impact, Impact on Appearance, Psy... Read More about Impact of glucocorticoids on patients’ quality of life: A qualitative study assessing face validity and feasibility of the Steroid PRO in patients with inflammatory gastroenterology, respiratory and dermatology conditions.

Early detection to improve outcome in people with undiagnosed psoriatic arthritis: the PROMPT research programme with RCT (2025)
Report

Psoriatic arthritis priority setting partnership: Patient and clinician informed considerations for future UK health service delivery (2024)
Journal Article

Little is known about the ideal service delivery model and shortcomings in patient experiences in the NHS for patients with Psoriatic Arthritis (PsA). To identify unmet needs perceived within the current health service delivery model for PsA from the... Read More about Psoriatic arthritis priority setting partnership: Patient and clinician informed considerations for future UK health service delivery.

Development and refinement of patient care recommendations in brachytherapy for locally advanced cervical cancer using nominal group technique workshops (2024)
Journal Article

Purpose: Patient experiences of brachytherapy for locally advanced cervical cancer (LACC) are widely variable, with reports of difficult and traumatic experiences and aspects of care requiring improvement. The aim of this study was to develop patient... Read More about Development and refinement of patient care recommendations in brachytherapy for locally advanced cervical cancer using nominal group technique workshops.

Pain management in people with inflammatory arthritis: British Society for Rheumatology guideline scope (2024)
Journal Article

Lay Summary: What does this mean for patients? Inflammatory arthritis includes conditions causing swollen and painful joints. The main types are rheumatoid arthritis, psoriatic arthritis, axial spondyloarthritis and juvenile idiopathic arthritis. It... Read More about Pain management in people with inflammatory arthritis: British Society for Rheumatology guideline scope.

Priorities for physical activity among under-served populations with musculoskeletal conditions: Findings from a Q-methodology study (2024)
Presentation / Conference Contribution

Background:
Twenty million individuals (in UK) have a musculoskeletal (MSK) condition, for which physical activity (PA) is a core treatment. People from minority ethnic communities are disproportionately impacted, experiencing higher levels of pain... Read More about Priorities for physical activity among under-served populations with musculoskeletal conditions: Findings from a Q-methodology study.

Supporting people with musculoskeletal conditions from underserved communities in the United Kingdom to engage with physical activity: A realist synthesis and Q-methodology study (2024)
Journal Article

In the United Kingdom, 20 million individuals suffer from a musculoskeletal condition, for which physical activity (PA) is a core treatment. Minority ethnic communities experience a disproportionate impact, experiencing higher levels of pain and enga... Read More about Supporting people with musculoskeletal conditions from underserved communities in the United Kingdom to engage with physical activity: A realist synthesis and Q-methodology study.

AB1429 Sociodemographic and clinical factors associated with health-related quality of life in patients with inflammatory rheumatic diseases treated with glucocorticoids: A cross-sectional study (2024)
Presentation / Conference Contribution

Background: Glucocorticoids (GCs) play a pivotal role in the management of inflammatory rheumatic conditions but they can adversely impact on patients in different ways. Conversely, there are certain patient charact... Read More about AB1429 Sociodemographic and clinical factors associated with health-related quality of life in patients with inflammatory rheumatic diseases treated with glucocorticoids: A cross-sectional study.

Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol. (2024)
Journal Article

Fatigue is an important and distressing symptom for many people living with chronic musculoskeletal (MSK) conditions. Many non-pharmacological interventions have been investigated in recent years and some have been demonstrated to be effective in red... Read More about Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol..

P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study (2024)
Presentation / Conference Contribution

Background/Aims Glucocorticoids (GCs) used in the treatment of inflammatory rheumatic conditions can impact on patients in different ways. The objective of this study was to identify socio-demographic and clinical factors associated with health-relat... Read More about P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study.

P186 Impact of glucocorticoids on appearance and sense of self in rheumatic diseases (2024)
Presentation / Conference Contribution

Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs (2024)
Journal Article

Objective: Many clinically extremely vulnerable rheumatology patients have only recently ceased shielding from COVID-19, while some continue to minimise in-person contact. The objective of this study was to understand the impact of shielding and asso... Read More about Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs.

Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population (2024)
Journal Article

Background
The Chalder Fatigue Scale, also known as the Chalder Fatigue Questionnaire (CFQ) is a Patient Reported Outcome Measure (PROM) comprising 11 items designed to measure physical and cognitive fatigue. It is widely used with people with myalg... Read More about Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population.

Patient experiences of brachytherapy for locally advanced cervical cancer: Hearing the patient voice through qualitative interviews (2023)
Journal Article

Purpose: Brachytherapy for gynecological cancer is reported to cause pain, anxiety, and distress with no clear guidance for optimizing patient experiences. The aim of this study was to explore patient experiences of brachytherapy and views on improve... Read More about Patient experiences of brachytherapy for locally advanced cervical cancer: Hearing the patient voice through qualitative interviews.

Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol (2023)
Journal Article

Introduction Fatigue is the most prevalent symptom for patients with a primary brain tumour (PBT), significantly reducing quality of life and limiting daily activities. Currently, there are limited options for managing cancer-related fatigue (CRF) in... Read More about Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol.