Outputs (163)

Outcomes from the patient perspective workshop at OMERACT 6 (2003)
Journal Article

The objective of the Patient Perspective Workshop at OMERACT 6 was to address the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease themselves. This was done by re... Read More about Outcomes from the patient perspective workshop at OMERACT 6.

Rheumatology outcomes: The patient's perspective (2003)
Journal Article

Our aim was to explore the patient's perspective of outcomes in rheumatoid arthritis (RA) to identify which outcomes are important to patients and how patients calibrate what constitutes a meaningful change in those outcomes. A qualitative study was... Read More about Rheumatology outcomes: The patient's perspective.

Patients and clinicians have different perspectives on outcomes in arthritis (2003)
Journal Article

Outcome measurement in arthritis has undergone a major shift during the past 2 decades, moving from process measures (e.g., plasma viscosity) to patient-centered outcome measures (e.g., pain, function). However, while patients self-report many of the... Read More about Patients and clinicians have different perspectives on outcomes in arthritis.

Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years (2003)
Journal Article

Background. Patients with rheumatoid arthritis (RA) are traditionally seen regularly as out-patients, irrespective of whether it is appropriate or timely to see them. A randomized controlled trial has shown that over 2 yr, seeing patients only when t... Read More about Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years.

MCID/Low disease activity state workshop: Summary, recommendations and research agenda (2003)
Journal Article

The OMERACT 6 Minimal Clinically Important Difference/Low Disease Activity Workshop was organized with the aim of meeting the many challenges that exist in determining a low disease activity in rheumatoid arthritis (RA). This article presents an over... Read More about MCID/Low disease activity state workshop: Summary, recommendations and research agenda.

Patient priorities for outcomes in rheumatoid arthritis (2002)
Presentation / Conference Contribution

How do patients with rheumatoid arthritis decide that a treatment is working? (2002)
Presentation / Conference Contribution

Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis (2002)
Journal Article

Background: Many eligible people with arthritis do not receive disability benefits. Application forms are lengthy and complex, and doctors and nurses are often unsure which patients would qualify.

Aim: To investigate how severe disability on the... Read More about Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis.

Measuring the meaning of disability in rheumatoid arthritis: The personal impact Health Assessment Questionnaire (PI HAQ) (2002)
Journal Article

Background: Measurement of disability in rheumatoid arthritis is often used to support treatment decisions and outcome assessments, but is used without reference to the impact of disability on individual patients. Objective: To develop and validate a... Read More about Measuring the meaning of disability in rheumatoid arthritis: The personal impact Health Assessment Questionnaire (PI HAQ).

Development and validation of a self-efficacy scale for use in British patients wih rheumatoid arthritis (RASE) (2001)
Journal Article

Objective: Current arthritis self-efficacy scales have attracted some criticism. Therefore, the aim of this study was to develop and validate a measure of self-efficacy for use in British rheumatoid arthritis patients [Rheumatoid Arthritis Self-effic... Read More about Development and validation of a self-efficacy scale for use in British patients wih rheumatoid arthritis (RASE).

Values for function in rheumatoid arthritis: Patients, professionals, and public (2001)
Journal Article

Background - Although many disability questionnaires measure fact very efficiently, they do not allow for consideration of the relevance of that disability to the patient. Data suggest that professionals misinterpret the relevance of disability for t... Read More about Values for function in rheumatoid arthritis: Patients, professionals, and public.

Rheumatology telephone helplines: An activity analysis (2000)
Journal Article

Background: Anecdotal evidence suggests that the services offered by rheumatology telephone helplines in the UK vary widely between NHS Trusts because of the lack of national or European guidelines.

Objective: To conduct an activity analysis of s... Read More about Rheumatology telephone helplines: An activity analysis.

Patient-initiated hospital follow-up for rheumatoid arthritis (2000)
Journal Article

Objectives: To evaluate the clinical efficacy, cost and acceptability of a shared care system of patient- or general practitioner (GP)-initiated hospital review in rheumatoid arthritis (RA).

Methods: A 2-yr randomized controlled trial of routine... Read More about Patient-initiated hospital follow-up for rheumatoid arthritis.

Rheumatology - the whole is more than the sum of the parts (1997)
Journal Article

Consent to clinical research - adequately voluntary or substantially influenced? (1996)
Journal Article

In clinical research the giving of consent by the patient often lies within the context of illness or the doctor/patient relationship. On exploration of these issues it would appear unlikely that the patient's consent is free of substantial influence... Read More about Consent to clinical research - adequately voluntary or substantially influenced?.

Is consent to participate in research voluntary? (1996)
Journal Article

Dissatisfaction with function in rheumatoid arthritis (1995)
Journal Article

Dissatisfaction, disability, and rheumatoid arthritis (1995)
Journal Article

Objectives. To investigate dissatisfaction with function in patients with rheumatoid arthritis [RA], and to see if dissatisfaction can be adequately explained by level of function. Methods. Fifty patients with RA were assessed for disease activity, p... Read More about Dissatisfaction, disability, and rheumatoid arthritis.

Rheumatoid arthritis patients cannot accurately report signs of inflammatory activity (1995)
Journal Article

If patients with rheumatoid arthritis (RA) could self-report symptoms in a manner which correlated with laboratory measures of inflammation this would be a valuable research or clinical tool. Developing such a tool means ensuring that the questions a... Read More about Rheumatoid arthritis patients cannot accurately report signs of inflammatory activity.

Patients' views of changing disability (1994)
Journal Article