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Outputs (163)

Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2022)
Journal Article

OBJECTIVES: Patients with inflammatory arthritis report that fatigue is challenging to manage. We developed a manualised, one-to-one, cognitive-behavioural intervention, delivered by rheumatology health professionals (RHPs). The Fatigue - Reducing it... Read More about Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Presentation / Conference Contribution

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

Developing a group intervention to manage fatigue in rheumatoid arthritis through modifying physical activity (2019)
Journal Article

© 2019 The Author(s). Background: Fatigue is a major symptom of rheumatoid arthritis (RA). There is some evidence that physical activity (PA) may be effective in reducing RA fatigue. However, few PA interventions have been designed to manage fatigue... Read More about Developing a group intervention to manage fatigue in rheumatoid arthritis through modifying physical activity.

Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT) (2019)
Journal Article

© Author(s) (or their employer(s)) 2019. Objectives To see if a group course delivered by rheumatology teams using cognitive-behavioural approaches, plus usual care, reduced RA fatigue impact more than usual care alone. Methods Multicentre, 2-year ra... Read More about Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT).

Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs (2018)
Journal Article

© 2018 John Wiley & Sons, Ltd. Objective: Successful biologic disease-modifying anti-rheumatic drug (bDMARD) dose reduction appears increasingly possible from clinical trials. The present study aimed to understand the patient perspective of bDMARD... Read More about Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs.

The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models (2018)
Journal Article

© 2018, The Author(s). Purpose: The Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients’ understanding of the Portuguese RAID and evaluate its cross-cultu... Read More about The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models.

Keeping physically active with rheumatoid arthritis: semi-structured interviews to explore patient perspectives, experiences and strategies (2018)
Journal Article

© 2018 Chartered Society of Physiotherapy Background: Regular physical activity is safe and beneficial for people with rheumatoid arthritis (RA) but the majority of people with RA are less active than the general population and have a higher risk of... Read More about Keeping physically active with rheumatoid arthritis: semi-structured interviews to explore patient perspectives, experiences and strategies.

Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data (2018)
Journal Article

© The Author(s) 2018. Background. PsA is an inflammatory arthritis associated with psoriasis, affecting the joints and connective tissue. According to the common-sense model (CSM), patients develop illness beliefs when faced with new symptoms, which... Read More about Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data.

Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review (2018)
Journal Article

Psychological distress in rheumatoid arthritis (RA) is significantly higher than the general population and impacts disease activity and treatment outcomes. Online interventions have the potential to reach large numbers of patients. This study aimed... Read More about Online interventions for addressing psychological distress in people with rheumatoid arthritis and other long-term conditions: A systematic review.

Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis (2017)
Journal Article

© 2017, American College of Rheumatology Objective: Raynaud's phenomenon (RP) is the most common manifestation of systemic sclerosis (SSc). RP is an episodic phenomenon, not easily assessed in the clinic, leading to reliance on self-report. A thoroug... Read More about Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis.

Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey (2017)
Journal Article

© 2017 The Author(s). Background: Foot symptoms in rheumatoid arthritis (RA) derive from a combination of inflammation, altered foot mechanics, deformity and secondary skin lesions. Guidelines recommend regular review of patients' feet, but the exten... Read More about Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey.

The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries (2017)
Journal Article

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To evaluate the Bristol Rheumatoid Arthritis Fatigue Multidimensional Questionnaire (BRAFMDQ), the revised Bris... Read More about The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries.

A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis (2017)
Journal Article

© Copyright 2017 The Journal of Rheumatology. All rights reserved. Objective. To rank outcomes identified as important to patients with psoriatic arthritis (PsA) and examine their representation in existing composite measures. Methods. Seven nominal... Read More about A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission (2017)
Journal Article

© 2017, BMJ Publishing Group. All rights reserved. Background: Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remissi... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission.

The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study (2017)
Journal Article

© 2017 The Author(s). Background: Although foot problems are common in rheumatoid arthritis (RA), the consequences of foot problems from the patient perspective have not been fully explored. The aims of this study were to explore the experience of fo... Read More about The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study.

International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials (2016)
Journal Article

© 2017 Published by the BMJ Publishing Group Limited. Objective To identify a core set of domains (outcomes) to be measured in psoriatic arthritis (PsA) clinical trials that represent both patients' and physicians' priorities. Methods We conducted (1... Read More about International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials.

Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey (2016)
Journal Article

Copyright © 2016 John Wiley & Sons, Ltd. Objectives: Psychological support for inflammatory arthritis is recommended in rheumatology treatment guidelines. Previous research found that high numbers of patients would access such support but that prov... Read More about Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey.