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Outputs (16)

Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes? (2023)
Journal Article

Having a visible difference caused by an appearance-altering condition or injury can impact psychosocial wellbeing. It remains unestablished whether the time at which a visible difference manifests, namely pre-memory (congenital) or later (acquired),... Read More about Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?.

‘Your face freezes and so does your life’: A qualitative exploration of adults’ psychosocial experiences of living with acquired facial palsy (2021)
Journal Article

Objectives: Facial palsy (FP) is a highly visible appearance-affecting condition and can have a significant impact on facial function. Qualitative research focussing on adults’ experiences of living with acquired FP is limited. This study aimed to ex... Read More about ‘Your face freezes and so does your life’: A qualitative exploration of adults’ psychosocial experiences of living with acquired facial palsy.

A systematic review of the psychosocial adjustment of children and adolescents with facial palsy: The impact of Moebius syndrome (2020)
Journal Article

Introduction: Facial palsy is often associated with impaired facial function and altered appearance. However, the literature with regards to the psychological adjustment of children and adolescents with facial palsy has not been systematically review... Read More about A systematic review of the psychosocial adjustment of children and adolescents with facial palsy: The impact of Moebius syndrome.

Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers (2018)
Journal Article

Despite the potential negative impact of facial palsy, major gaps in understanding persist surrounding the treatment and care of those affected. This collaborative three-round Delphi process aimed to identify priorities for future facial palsy resear... Read More about Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers.

The provision of specialist psychosocial support for people with visible differences: A European survey (2018)
Journal Article

© 2018 A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are n... Read More about The provision of specialist psychosocial support for people with visible differences: A European survey.

Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences (2017)
Journal Article

© Cambridge University Press 2017. Background: Qualitative research methods embedded within feasibility trials are of significant value as they can provide important information for a definitive trial, often unable to be fulfilled by quantitative met... Read More about Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences.

Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries (2016)
Journal Article

© Published by the BMJ Publishing Group Limited. Introduction A significant number of adolescents suffer extensive and enduring difficulties such as social anxiety, body image dissatisfaction, low self-esteem and bullying as a result of conditions or... Read More about Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries.

Older adults' experiences of living with cleft lip and palate: A qualitative study exploring aging and appearance (2015)
Journal Article

© Copyright 2015 American Cleft Palate-Craniofacial Association. Objective: To explore older adults' experiences of living with cleft lip and/or palate (CL/P), focusing on aging and appearance. Design: An exploratory-descriptive qualitative study. Pa... Read More about Older adults' experiences of living with cleft lip and palate: A qualitative study exploring aging and appearance.