Outputs (17)

The visibility of research within mandatory National Health Service Trust Induction programmes in England: An exploratory survey study (2023)
Journal Article

Background: Mandatory NHS Trust induction programmes are an integral part of staff orientation processes. Although research is recognised as fundamental to high-quality care, little data exist regarding whether research information is included within... Read More about The visibility of research within mandatory National Health Service Trust Induction programmes in England: An exploratory survey study.

Participatory design of an infographic to help support the care of people living with complex regional pain syndrome (2023)
Journal Article

Background: Complex regional pain syndrome (CRPS) can be a debilitating pain condition with enduring physical, psychological and social impacts. CRPS is often poorly understood by healthcare professionals and management needs to be tailored to each i... Read More about Participatory design of an infographic to help support the care of people living with complex regional pain syndrome.

An international study to explore the feasibility of collecting standardised outcome data for Complex Regional Pain Syndrome: Recommendations for an international clinical research registry (2023)
Journal Article

Introduction: Complex Regional Pain Syndrome (CRPS) is a persistent pain condition with low prevalence. Multi-centre collaborative research is needed to attain sufficient sample sizes for meaningful studies. This international observational study: (1... Read More about An international study to explore the feasibility of collecting standardised outcome data for Complex Regional Pain Syndrome: Recommendations for an international clinical research registry.

The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research (2023)
Journal Article

We present a framework for the study of states of chronic pain and transitions between those states. We capture in the framework the dynamic nature of pain: people live with pain that changes over time. First, we offer definitions of both acute and c... Read More about The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research.

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study (2023)
Journal Article

OBJECTIVE: To assess the degree of resilience in patients with complex regional pain syndrome (CRPS) 1, to explore the relationship between resilience and patient-related outcome measurements and to describe a pattern of clinical manifestations assoc... Read More about Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study.

Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank (2022)
Journal Article

ABSTRACT: Complex regional pain syndrome (CRPS) clinical trials have historically captured a diverse range of outcomes. A minimum set of CRPS patient-reported outcomes has been agreed for inclusion in a future CRPS international clinical research reg... Read More about Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank.

Complex regional pain syndrome: Practical diagnostic and treatment guidelines, 5th edition (2022)
Journal Article

There have been some modest recent advancements in the research of Complex Regional Pain Syndrome, yet the amount and quality of the work in this complicated multifactorial disease remains low (with some notable exceptions; e.g., the recent work on t... Read More about Complex regional pain syndrome: Practical diagnostic and treatment guidelines, 5th edition.

Improving health outcomes in complex regional pain syndrome to inform chronic pain practice (2020)
Thesis

The research presented in this thesis focuses on improving health outcomes in the field of complex regional pain syndrome (CRPS) to inform chronic pain practice. Eight publications are presented, each accompanied by a critical commentary to evidence... Read More about Improving health outcomes in complex regional pain syndrome to inform chronic pain practice.

The role of non-medical therapeutic approaches in the rehabilitation of Complex Regional Pain Syndrome (2020)
Journal Article

Purpose of the review: Non-medical therapeutic approaches are fundamental to the management of Complex Regional Pain Syndrome (CRPS) in order to promote the best outcome for patients. This review focuses on three key approaches underpinning CRPS reha... Read More about The role of non-medical therapeutic approaches in the rehabilitation of Complex Regional Pain Syndrome.

Complex regional pain syndrome: An international survey of clinical practice (2019)
Journal Article

Background: Published guidelines promote best practice in complex regional pain syndrome (CRPS) treatment and management; however, these recommendations are not always applied in clinical practice. Understanding existing care internationally will hel... Read More about Complex regional pain syndrome: An international survey of clinical practice.

Protocol: An e-Delphi study to define internationally agreed core clinical outcome measures for Complex Regional Pain Syndrome clinical research studies (2019)
Presentation / Conference Contribution

Background & objectives: Complex Regional Pain Syndrome (CRPS) is a severe chronic pain condition characterised by a wide range of sensory, motor and autonomic abnormalities, usually in a single limb. CRPS clinical studies have historically used a... Read More about Protocol: An e-Delphi study to define internationally agreed core clinical outcome measures for Complex Regional Pain Syndrome clinical research studies.

Sensory disturbances induced by sensorimotor conflicts are higher in complex regional pain syndrome and fibromyalgia compared to arthritis and healthy people, and positively relate to pain intensity (2018)
Journal Article

© 2018 European Pain Federation - EFIC® Background: Sensorimotor conflicts are well known to induce sensory disturbances. However, explanations as to why patients with chronic pain are more sensitive to sensorimotor conflicts remain elusive. The main... Read More about Sensory disturbances induced by sensorimotor conflicts are higher in complex regional pain syndrome and fibromyalgia compared to arthritis and healthy people, and positively relate to pain intensity.

Complex Regional Pain Syndrome: An international survey of clinical practice (2018)
Presentation / Conference Contribution

AIM OF INVESTIGATION Complex Regional Pain Syndrome (CRPS) is a highly distressing, persistent pain condition that occurs in a limb predominantly after trauma. There is no cure but early intervention should significantly improve outcomes1. Currently... Read More about Complex Regional Pain Syndrome: An international survey of clinical practice.

Recommendations for a first Core Outcome Measurement set for complex regional PAin syndrome Clinical sTudies (COMPACT) (2017)
Journal Article

© 2017 by the International Association for the Study of Pain. Complex regional pain syndrome (CRPS) is a persistent pain condition that remains incompletely understood and challenging to treat. Historically, a wide range of different outcome measure... Read More about Recommendations for a first Core Outcome Measurement set for complex regional PAin syndrome Clinical sTudies (COMPACT).

'What I Really Needed Was the Truth'. Exploring the Information Needs of People with Complex Regional Pain Syndrome (2015)
Journal Article

© 2016 John Wiley & Sons, Ltd. Background: UK guidelines indicate that individuals with complex regional pain syndrome (CRPS) require information and education to support self-management. The present qualitative study explored the specific informat... Read More about 'What I Really Needed Was the Truth'. Exploring the Information Needs of People with Complex Regional Pain Syndrome.

What outcome measures are commonly used for Complex Regional Pain Syndrome clinical trials? A systematic review of the literature (2015)
Journal Article

© 2015 European Pain Federation - EFIC®. Background and objective Complex Regional Pain Syndrome (CRPS) is a chronic pain condition, often triggered by trauma to a limb and characterized by sensory, motor, autonomic and trophic changes within the aff... Read More about What outcome measures are commonly used for Complex Regional Pain Syndrome clinical trials? A systematic review of the literature.