All Outputs (99)

Reliability and validity testing of the persian version of the derriford appearance scale 24 in a sample of individuals with craniofacial irregularity and amputation (2023)
Journal Article

BACKGROUND: Despite the recent advancements in the design and manufacture of prostheses for individuals with craniofacial irregularity and amputation, these individuals tend to become self-conscious about their appearance. The aim of this study was t... Read More about Reliability and validity testing of the persian version of the derriford appearance scale 24 in a sample of individuals with craniofacial irregularity and amputation.

Exploring Endocrinologists' views about new ways of working with hypothyroidism − a qualitative study in the UK (2021)
Journal Article

Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory (2021)
Journal Article

Purpose: Hypermobility Spectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS) are heritable connective tissue disorders associated with joint instability and pain, but with scant guidance for supporting patients. The aim was to determ... Read More about Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory.

Validating a scale to measure engineers’ perceived self-efficacy for engineering education outreach (2019)
Journal Article

Education outreach in schools has been identified as a critical route to influence children's perceptions and capabilities for Science, Technology, Engineering, and Mathematics careers. Evidence suggests that providing non-teaching professionals like... Read More about Validating a scale to measure engineers’ perceived self-efficacy for engineering education outreach.

Experiences of living with visible difference: Individual and social reflections (2019)
Journal Article

Many health conditions impact upon an individual’s appearance and result in an altered appearance (“visible difference”). The presence of visible difference is associated with a variety of psychosocial difficulties and challenges, yet calls for an i... Read More about Experiences of living with visible difference: Individual and social reflections.

Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study (2019)
Journal Article

Purpose: Little attention has been paid to psychosocial factors in Joint Hypermobility Syndrome and Ehlers–Danlos Syndrome (hypermobility type). This study sought to identify the psychosocial impact by examining participants’ lived experiences; and i... Read More about Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study.

The lived experience of Joint Hypermobility and Ehlers-Danlos Syndromes: a systematic review and thematic synthesis (2019)
Journal Article

© 2019, © 2019 Informa UK Limited, trading as Taylor & Francis Group. Background: Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome (EDS) are heritable connective tissue disorders characterised by joint instability, pain, anxiety, depre... Read More about The lived experience of Joint Hypermobility and Ehlers-Danlos Syndromes: a systematic review and thematic synthesis.

Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS) (2018)
Presentation / Conference Contribution

Objectives: Whilst participants with an appearance altering condition have expressed distress and anxiety in relation to their capacity to engage in romantic relationships, there exists no measure of the effect of visible difference upon this domain.... Read More about Initial validation of the CAR Romantic Relationships and Intimacy Scale (CARRIS).

Understandings and experiences of visible difference and romantic relationships: A qualitative exploration (2018)
Journal Article

© 2018 Elsevier Ltd The association between disfigurement (‘visible difference’) and romantic relationships has received relatively little consideration in the research literature. This qualitative research, conducted in the United Kingdom, explored... Read More about Understandings and experiences of visible difference and romantic relationships: A qualitative exploration.

The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study (2018)
Presentation / Conference Contribution

Background: Existing research examining those with Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome (Hypermobility Type) (EDS-HT) has predominately focused on factors such as pain, range of movement and physical function. However psychos... Read More about The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study.

Development and initial validation of the CAR romantic relationships and intimacy scale (2018)
Presentation / Conference Contribution

Whilst participants with a disfiguring or appearance altering condition have expressed distress, fear, and anxiety in relation to their capacity to engage in physical intimacy and romantic relationships, there exists no measure of the perceived impac... Read More about Development and initial validation of the CAR romantic relationships and intimacy scale.

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study (2018)
Journal Article

© 2018 Article author(s) (or their employer(s) unless otherwise stated in the text of the article). All rights reserved. Objective Valid measures of appearance concern are needed in systemic sclerosis (SSc), a rare, disfiguring autoimmune disease. Th... Read More about Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

A systematic review of the traits and cognitions associated with use of and belief in complementary and alternative medicine (CAM) (2018)
Journal Article

© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Complementary and alternative medicine (CAM) use is widespread despite the controversy over its effectiveness. Although previous reviews have examined the demographics and attitu... Read More about A systematic review of the traits and cognitions associated with use of and belief in complementary and alternative medicine (CAM).

A Systematic Review of the Effectiveness of Acceptance and Commitment Therapy (ACT) for Body Image Dissatisfaction and Weight Self-Stigma in Adults (2018)
Journal Article

© 2018, The Author(s). Body image dissatisfaction (BID) and weight self-stigma are prevalent and associated with physical and psychological ill-health. Acceptance and Commitment Therapy (ACT) is increasingly employed for both, yet little is known abo... Read More about A Systematic Review of the Effectiveness of Acceptance and Commitment Therapy (ACT) for Body Image Dissatisfaction and Weight Self-Stigma in Adults.

Toward a conceptual and methodological shift in craniofacial research (2017)
Journal Article

© The Author(s) 2017. Objective: To date, research investigating the psychological impact of craniofacial conditions has produced variability across outcomes. The aims of this article were to summarize the challenges that may contribute to this varia... Read More about Toward a conceptual and methodological shift in craniofacial research.

Being looked at and exposing yourself: Appearance altering conditions and stigma (2017)
Presentation / Conference Contribution

Accepted conference proceedings from the BPS DHP Annual Conference, 2017: Cardiff.

The impact of treatment for head and neck cancer on positive psychological change within a year of completing treatment (2017)
Journal Article

© 2017 International Association of Oral and Maxillofacial Surgeons Head and neck cancer carries a high level of morbidity and mortality. So why could anyone find having such a disease a positive event? The adversity hypothesis of “what doesn't kill... Read More about The impact of treatment for head and neck cancer on positive psychological change within a year of completing treatment.

The role of psychological inflexibility in the tripartite influence model for women: A single body image inflexibility pathway to disordered eating behaviours (2017)
Presentation / Conference Contribution

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Real-time paediatric respiratory tract infection (RTI) community surveillance: A qualitative interview study of clinicians’ perspectives on the use, design and potential impact of a planned intervention (2017)
Presentation / Conference Contribution

Rationale
Over-prescription of antibiotics in primary care is a contributor to burgeoning problem of antimicrobial resistance. Children with respiratory tract infections (RTI) represent a substantial proportion of primary care consultations and anti... Read More about Real-time paediatric respiratory tract infection (RTI) community surveillance: A qualitative interview study of clinicians’ perspectives on the use, design and potential impact of a planned intervention.

Psychosocial interventions for quality of life and wellbeing in adults with neuromuscular disorders: Systematic review (2016)
Presentation / Conference Contribution

Background and Aim
Neuromuscular disorders (NMDs) are a heterogeneous group of acquired and inherited conditions affecting the neuromuscular system1. Most NMDS are progressive and incurable and are associated with many adverse psychosocial outcomes,... Read More about Psychosocial interventions for quality of life and wellbeing in adults with neuromuscular disorders: Systematic review.