All Outputs (126)

Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs (2020)
Journal Article

The educational needs assessment tool (ENAT) is a seven-domain questionnaire assessing the educational needs (EN) of patients with rheumatoid arthritis (RA). The aim of this study was to validate the Italian version of the ENAT and to identify factor... Read More about Validation of the Italian version of the educational needs assessment tool in rheumatoid arthritis patients and factors associated with educational needs.

SAT0643-HPR Nurse-led care from the perspective of people with early rheumatoid arthritis: A qualitative systematic review (2020)
Journal Article

Background: Nurse-led care has been shown to be clinically effective and cost effective in rheumatoid arthritis (RA) but the role of the nurse in early RA is not well defined. Evidence for processes of care in RA is... Read More about SAT0643-HPR Nurse-led care from the perspective of people with early rheumatoid arthritis: A qualitative systematic review.

Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe (2020)
Presentation / Conference Contribution

Background: EULAR recommendations for patient education for people with inflammatory arthritis (IA) were published in 2015.1 This is the first systematic dissemination and implementation study, reporting qualitative data identifying barriers to imple... Read More about Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe.

Revisiting the remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual patient meta-analysis including 5792 patients (2020)
Presentation / Conference Contribution

Background: Remission nowadays is the guiding target of management of rheumatoid arthritis (RA). However, no gold standard definition of remission exists and the inclusion of patient global assessment (PGA) in remis... Read More about Revisiting the remission criteria for rheumatoid arthritis by excluding patient global assessment: An individual patient meta-analysis including 5792 patients.

Revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) with Mokken scale analysis (2020)
Presentation / Conference Contribution

In the validation study, German-speaking SSc patients included in the Swiss MANagement Of Systemic Sclerosis (MANOSS) cross-sectional study completed the revised (polytomous) SScQoL. Mokken model was used to test the construct valid... Read More about Revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) with Mokken scale analysis.

Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article

© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria (2020)
Journal Article

Introduction
Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted g... Read More about Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria.

Shared decision-making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses (2019)
Journal Article

'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study (2019)
Journal Article

OBJECTIVES: Patient global assessment (PGA) is purported to add the patient's perspective in the composite measures of RA. However, PGA is not standardized and it is not known whether patients' interpretation of the measure is consistent with its int... Read More about 'It can't be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study.

Factors associated with quality of life in systemic sclerosis: a cross-sectional study (2019)
Journal Article

© 2019, The Author(s). Introduction: Systemic sclerosis (SSc) is a connective tissue disease characterized by progressive fibrosis of the skin and internal organs, leading to their failure and disturbances in the morphology and function of blood vess... Read More about Factors associated with quality of life in systemic sclerosis: a cross-sectional study.

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology (2019)
Journal Article

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. Background/objectives: To maintain and optimise the quality of care provided by health professionals in rheumatology (HPRs), adequate educati... Read More about 2019 EULAR recommendations for the generic core competences of health professionals in rheumatology.

Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study (2019)
Journal Article

Objective: To assess the educational needs of people with Ankylosing Spondylitis (AS) and Psoriatic Arthritis (PsA), test differences across patient subgroups and identify factors independently associated with their educational needs.

Methods: Thi... Read More about Educational needs in people with ankylosing spondylitis and psoriatic arthritis: A cross-sectional study.

2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis (2019)
Journal Article

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory... Read More about 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.

THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study (2019)
Presentation / Conference Contribution

Background: Patient education is an important part of the management of rheumatic and other diseases. Since patients do not have the same needs, it is crucial to assess needs of a targeted group to be able to tailor educational interventions.

Obje... Read More about THU0702-HPR Patient understanding of risks of methotrexate and anti-TNF therapy: A cross-sectional study.

Specialist nursing in rheumatology: The state of play (2019)
Report

Rheumatology nurse specialist-led care is effective and safe, and leads to higher patient satisfaction rates than in comparable services. Rheumatology nurse specialists are at the forefront of patient care; in addition to their clinical work, they pr... Read More about Specialist nursing in rheumatology: The state of play.

Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database (2019)
Journal Article

OBJECTIVE: There is an ongoing debate about excluding patient's global assessment (PtGA) from composite and Boolean-based definitions of rheumatoid arthritis (RA) remission. This study aimed at determining the influence of PtGA on RA disease states,... Read More about Impact of patient global assessment on achieving remission in patients with rheumatoid arthritis: A multinational study using the METEOR database.

The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models (2018)
Journal Article

© 2018, The Author(s). Purpose: The Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients’ understanding of the Portuguese RAID and evaluate its cross-cultu... Read More about The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models.

International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group (2018)
Journal Article

© 2018, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology. Objective: The implementation of value-based health care in inflammatory arthritis requires a standardized set of mod... Read More about International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group.

Dual target strategy: a proposal to mitigate the risk of overtreatment and enhance patient satisfaction in rheumatoid arthritis (2018)
Journal Article

Commentary - abstract not available.

Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study (2018)
Journal Article

© 2018, The Author(s). In the process of the planned and systematic education of patients/families, it is extremely important to identify patients’ health problems as well as their needs and expectations. The objective of this study was to determine... Read More about Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study.