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Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study

Sierakowska, Matylda; Sierakowski, Stanisław; Sierakowska, Justyna; Krajewska-Kułak, Elżbieta; Ndosi, Mwidimi

Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study Thumbnail


Authors

Matylda Sierakowska

Stanisław Sierakowski

Justyna Sierakowska

Elżbieta Krajewska-Kułak

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Dr Mwidimi Ndosi Mwidimi.Ndosi@uwe.ac.uk
Associate Professor in Nursing Rheumatology



Abstract

© 2018, The Author(s). In the process of the planned and systematic education of patients/families, it is extremely important to identify patients’ health problems as well as their needs and expectations. The objective of this study was to determine the relationship between functional disability, health problems and perceived educational needs in people with systemic sclerosis (SSc). This was a cross-sectional analytic study conducted in six rheumatology centers in Poland. Functional disability was measured using HAQ-DI, and the magnitude of other health problems (pain, fatigue, intestinal problems, breathing problems, Raynaud’s phenomenon, finger ulcerations) was measured using 0–100mm visual analogue scales. The educational needs were measured using the Polish version of the Educational Needs Assessment Tool (Pol-ENAT). Spearman’s correlation coefficient (rs) was used to report associations. The sample comprised 140 patients, 125 (89.28%) were women. They had a mean (SD) age of 54 (14.23) and disease duration of 11 (10.27) years. The median (IQR) HAQ-DI was 1.12 (0.62–1.62) and mean ENAT score was 71.54 (SD 27.72). Patients needed to know more about the disease process, self-help measures and managing pain. All health problems had significant correlations with the overall educational needs, pain, functional disability and fatigue having the highest rs=0.359, p < 0.0001; rs=0.314, p < 0.001 and rs=0.270, p = 0.001, respectively. Health problems in people with SSc are associated with considerable educational needs; therefore, health professionals should take this into account when planning patient education. Group interventions should consider providing patient education related to disease process as a minimum.

Citation

Sierakowska, M., Sierakowski, S., Sierakowska, J., Krajewska-Kułak, E., & Ndosi, M. (2018). Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis: a cross-sectional study. Rheumatology International, 38(8), 1471-1478. https://doi.org/10.1007/s00296-018-3998-0

Journal Article Type Article
Acceptance Date Feb 17, 2018
Publication Date Aug 1, 2018
Deposit Date Mar 1, 2018
Publicly Available Date Mar 29, 2024
Journal Rheumatology International
Print ISSN 0172-8172
Electronic ISSN 1437-160X
Publisher Springer Verlag
Peer Reviewed Peer Reviewed
Volume 38
Issue 8
Pages 1471-1478
DOI https://doi.org/10.1007/s00296-018-3998-0
Keywords systemic sclerosis, educational needs, disability, pain, fatigue, Raynaud’s phenomenon
Public URL https://uwe-repository.worktribe.com/output/875919
Publisher URL http://dx.doi.org/10.1007/s00296-018-3998-0

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