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All Outputs (124)

Women’s initial experiences of their appearance after mastectomy and/or breast reconstruction: A qualitative study (2019)
Journal Article

Objective: Surgical procedures intended to treat breast cancer or reduce risk of developing the disease typically result in changes to appearance and scarring of the breast area, and any donor sites. The longer-term impact of these changes on body i... Read More about Women’s initial experiences of their appearance after mastectomy and/or breast reconstruction: A qualitative study.

Body image issues and attitudes towards exercise amongst men undergoing androgen deprivation therapy (ADT) following diagnosis of prostate cancer (2019)
Journal Article

© 2019 John Wiley & Sons, Ltd. Background: Androgen deprivation therapy (ADT) is an established treatment for prostate cancer (PCa), but its side-effects can affect body appearance and functioning. However, research into the impact of ADT on body i... Read More about Body image issues and attitudes towards exercise amongst men undergoing androgen deprivation therapy (ADT) following diagnosis of prostate cancer.

The effectiveness of interventions aiming to promote positive body image in adults: A systematic review (2019)
Journal Article

© 2019 Elsevier Ltd Theory suggests promoting positive body image (PBI)through interventions would have a significant impact on health and well-being. However, little is known about the effectiveness of existing interventions. This review aimed to id... Read More about The effectiveness of interventions aiming to promote positive body image in adults: A systematic review.

Supporting children with burns: Developing a UK parent-focused peer-informed website to support families of burn-injured children (2019)
Journal Article

© 2019 Elsevier B.V. Background: Children's burn injuries can have a significant psychosocial impact on parents. However, the stress involved in caring for a child following a burn can often go unrecognized and does not necessarily prompt help seekin... Read More about Supporting children with burns: Developing a UK parent-focused peer-informed website to support families of burn-injured children.

The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury (2019)
Journal Article

Introduction: Patient Reported Outcome Measures (PROMs) identify vital information about patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale - Adult Form: a PROM that assesses quality of... Read More about The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury.

First look: A mixed methods study exploring women's initial experiences of their appearance after mastectomy and/or breast reconstruction (2019)
Journal Article

Objectives: Increasing numbers of women are undergoing appearance-altering surgery for the treatment and/or prevention of breast cancer. However, women’s experiences of seeing the results of their breast surgery for the first time, and the support a... Read More about First look: A mixed methods study exploring women's initial experiences of their appearance after mastectomy and/or breast reconstruction.

“It's just more personal”: Using multiple methods of qualitative data collection to facilitate participation in research focusing on sensitive subjects (2018)
Journal Article

© 2018 Elsevier Inc. Background: Often researchers use only one interview method within a single study. However, it is increasingly common for a variety of interview methods to be employed within a project. Providing choice to participants may facili... Read More about “It's just more personal”: Using multiple methods of qualitative data collection to facilitate participation in research focusing on sensitive subjects.

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study (2018)
Journal Article

© 2018 Article author(s) (or their employer(s) unless otherwise stated in the text of the article). All rights reserved. Objective Valid measures of appearance concern are needed in systemic sclerosis (SSc), a rare, disfiguring autoimmune disease. Th... Read More about Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

The provision of specialist psychosocial support for people with visible differences: A European survey (2018)
Journal Article

© 2018 A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are n... Read More about The provision of specialist psychosocial support for people with visible differences: A European survey.

Parent-perceived isolation and barriers to psychosocial support: A qualitative study to investigate how peer support might help parents of burn-injured children (2018)
Journal Article

Introduction: Burn injuries can be traumatic and distressing for the affected child and family, with a prolonged period of recovery. This research explores parents’ experiences of support following their child’s injury and their thoughts on peer supp... Read More about Parent-perceived isolation and barriers to psychosocial support: A qualitative study to investigate how peer support might help parents of burn-injured children.

A qualitative exploration of psychosocial specialists’ experiences of providing support in U.K. burn care services (2018)
Journal Article

Introduction: A burn can have a significant and long-lasting psychosocial impact on a patient and their family. The National Burn Care Standards (2013) recommend psychosocial support should be available in all U.K. burn services, however little is kn... Read More about A qualitative exploration of psychosocial specialists’ experiences of providing support in U.K. burn care services.

An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour (2018)
Journal Article

Introduction: This evaluation aimed to assess the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour. Methods: Young people completed the Perceived Stigmatisation Questio... Read More about An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour.

Supporting patients with body dissatisfaction: A survey of the experiences and training needs of european multi-disciplinary healthcare professionals (2018)
Journal Article

© 2018 The Authors Appearance-related concerns resulting from disfigurement or pressure to conform to beauty ideals, indiscriminately affect patients’ mental and physical health. Healthcare professionals face the challenge of addressing patients’ sup... Read More about Supporting patients with body dissatisfaction: A survey of the experiences and training needs of european multi-disciplinary healthcare professionals.

A qualitative study of health professionals’ views on using iPads to facilitate distraction during paediatric burn dressing changes (2018)
Journal Article

Introduction: Distraction is a non-pharmacologic pain management technique commonly used to avert a person’s attention from procedural pain and distress during stressful procedures such as treatment after a burn injury. In recent years, computer tabl... Read More about A qualitative study of health professionals’ views on using iPads to facilitate distraction during paediatric burn dressing changes.

A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual (2017)
Journal Article

© 2017 The Author(s). Background: Increasingly, women elect breast reconstruction after mastectomy. However, their expectations of surgery are often not met, and dissatisfaction with outcome and ongoing psychosocial concerns and distress are common.... Read More about A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual.

Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences (2017)
Journal Article

© Cambridge University Press 2017. Background: Qualitative research methods embedded within feasibility trials are of significant value as they can provide important information for a definitive trial, often unable to be fulfilled by quantitative met... Read More about Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences.

Qualitatively understanding patients' and health professionals' experiences of the BRECONDA breast reconstruction decision aid (2017)
Journal Article

Copyright © 2016 John Wiley & Sons, Ltd. Objective: Women diagnosed with breast cancer or ductal carcinoma in situ and those with a genetic susceptibility to developing this disease face the challenging decision of whether or not to undergo breast... Read More about Qualitatively understanding patients' and health professionals' experiences of the BRECONDA breast reconstruction decision aid.