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Shared surgical decision making and youth resilience correlates of satisfaction with clinical outcomes

Kapp-Simon, Kathleen A.; Edwards, Todd; Ruta, Caroline; Crilly Bellucci, Claudia; Aspirnall, Cassandra L.; Strauss, Ronald P.; Topolski, Tari D.; Rumsey, Nichola; Patrick, Donald L.

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Kathleen A. Kapp-Simon

Todd Edwards

Caroline Ruta

Claudia Crilly Bellucci

Cassandra L. Aspirnall

Ronald P. Strauss

Tari D. Topolski

Donald L. Patrick


Copyright © 2015 by Mutaz B. Habal, MD. The aim of this study was to identify factors associated with youth satisfaction with surgical procedures performed to address oral cleft or craniofacial conditions (CFCs). It was hypothesized that youth mental health, participation in decision making, perceived consequences of living with a CFC, and coping strategies would be associated with satisfaction with past surgeries. A total of 203 youth between the ages of 11 and 18 years (mean age=14.5, standard deviation=2.0, 61% male participants, 78% oral cleft) completed a series of questionnaires measuring depression, selfesteem, participation in decision making, condition severity, negative and positive consequences of having a CFC, coping, and satisfaction with past surgeries. Multiple regression analysis using boot-strapping techniques found that youth participation in decision making, youth perception of positive consequences of having a CFC, and coping accounted for 32% of the variance in satisfaction with past surgeries (P

Journal Article Type Article
Publication Date Jul 1, 2015
Deposit Date Aug 12, 2015
Publicly Available Date Aug 1, 2016
Journal Journal of Craniofacial Surgery
Print ISSN 1049-2275
Electronic ISSN 1536-3732
Publisher Lippincott, Williams & Wilkins
Peer Reviewed Peer Reviewed
Volume 26
Issue 5
Pages 1574-1580
Keywords oral cleft, craniofacial conditions, resilience, decision-making, surgery satisfaction, visible difference
Public URL
Publisher URL
Additional Information Additional Information : This is the post-peer review, pre-copy edited version of an article published in the Journal of Craniofacial Surgery in July 2015. The published version can be found online at:
Contract Date May 19, 2016


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