Jo Robson's Outputs (35)

Health related quality of life in ANCA associated vasculitis and item generation for a disease specific patient reported outcome measure (2018)
Journal Article

ABSTRACT
Objective: The anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitides (AAVs) are multisystem diseases of the small blood vessels. Patients experience irreversible damage and psychological effects from AAV and its treatment. An... Read More about Health related quality of life in ANCA associated vasculitis and item generation for a disease specific patient reported outcome measure.

Development of a core set of outcome measures for large-vessel vasculitis: Report from OMERACT 2016 (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective. Among the challenges in conducting clinical trials in large-vessel vasculitis (LVV), including both giant cell arteritis (GCA) and Takayasu arteritis (TA), is the lack of standardized and meaningful o... Read More about Development of a core set of outcome measures for large-vessel vasculitis: Report from OMERACT 2016.

Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis (2017)
Journal Article

© 2017, American College of Rheumatology Objective: Raynaud's phenomenon (RP) is the most common manifestation of systemic sclerosis (SSc). RP is an episodic phenomenon, not easily assessed in the clinic, leading to reliance on self-report. A thoroug... Read More about Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis.

Patient perceptions of glucocorticoids in anti-neutrophil cytoplasmic antibody-associated vasculitis (2017)
Journal Article

© 2017, The Author(s). Granulomatosis with polyangiitis (GPA), microscopic polyangiitis (MPA), and eosinophilic granulomatosis with polyangiitis (EGPA) are multisystem diseases of small blood vessels, collectively known as the anti-neutrophil cytopla... Read More about Patient perceptions of glucocorticoids in anti-neutrophil cytoplasmic antibody-associated vasculitis.

A patient-reported outcome measure for effect of glucocorticoid therapy in adults with inflammatory diseases is needed: Report from the OMERACT 2016 special interest group (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective: The need for a standardized instrument to measure the effect of glucocorticoid (GC) therapy has been well documented in the literature. The aim of the first GC Special Interest Group was to define a r... Read More about A patient-reported outcome measure for effect of glucocorticoid therapy in adults with inflammatory diseases is needed: Report from the OMERACT 2016 special interest group.

OMERACT endorsement of patient-reported outcome instruments in antineutrophil cytoplasmic antibody-associated vasculitis (2017)
Journal Article

© Copyright 2017 The Journal of Rheumatology. All rights reserved. Objective. The antineutrophil cytoplasmic antibody-associated vasculitides (AAV) are multiorgan diseases. Patients with AAV report impairment in their health-related quality of life (... Read More about OMERACT endorsement of patient-reported outcome instruments in antineutrophil cytoplasmic antibody-associated vasculitis.

Are the 1990 American College of Rheumatology vasculitis classification criteria still valid? (2017)
Journal Article

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objectives. Advances in diagnostic techniques have led to better distinction between types of vasculitis, potentially affe... Read More about Are the 1990 American College of Rheumatology vasculitis classification criteria still valid?.

The global burden of anti-neutrophil cytoplasmic antibody vasculitis (2016)
Journal Article

The global burden of anti-neutrophil cytoplasmic antibody vasculitis is high but currently unquantified

The association of vascular risk factors with visual loss in giant cell arteritis (2016)
Journal Article

© The Author 2016. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. Blindness is a recognized complication of GCA; however, the frequency of and risk factors for this complication... Read More about The association of vascular risk factors with visual loss in giant cell arteritis.

Which patients with giant cell arteritis will develop cardiovascular or cerebrovascular disease? A clinical practice research datalink study (2016)
Journal Article

Copyright © 2016. All rights reserved. Objective. To evaluate the risk of cerebrovascular disease and cardiovascular disease (CVD) in patients with giant cell arteritis (GCA), and to identify predictors. Methods. The UK Clinical Practice Research Dat... Read More about Which patients with giant cell arteritis will develop cardiovascular or cerebrovascular disease? A clinical practice research datalink study.

Update on outcome measure development for large vessel vasculitis: Report from OMERACT 12 (2015)
Journal Article

© Copyright 2015 The Journal of Rheumatology. All rights reserved. Objective. The rarity of large vessel vasculitis (LVV) is a major factor limiting randomized controlled trials in LVV, resulting in treatment choices in these diseases that are guided... Read More about Update on outcome measure development for large vessel vasculitis: Report from OMERACT 12.

Exploration, development, and validation of patient-reported outcomes in antineutrophil cytoplasmic antibody-associated vasculitis using the OMERACT process (2015)
Journal Article

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. Antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) is a group of linked multisystem life- and organ-threatening diseases. The Outcome Measures in Rheuma... Read More about Exploration, development, and validation of patient-reported outcomes in antineutrophil cytoplasmic antibody-associated vasculitis using the OMERACT process.

Glucocorticoid treatment and damage in the anti-neutrophil cytoplasm antibody-associated vasculitides: Long-term data from the European Vasculitis Study Group trials (2014)
Journal Article

Objective. Granulomatosis with polyangiitis and microscopic polyangiitis are ANCA-associated vasculitides (AAVs). The Vasculitis Damage Index (VDI) quantifies damage. This study aims to determine the factors associated with long-term damage in the AA... Read More about Glucocorticoid treatment and damage in the anti-neutrophil cytoplasm antibody-associated vasculitides: Long-term data from the European Vasculitis Study Group trials.

Damage in the ANCA-associated vasculitides: Long-term data from the European Vasculitis Study Group (EUVAS) therapeutic trials (2013)
Journal Article

Objectives To describe short-term (up to 12 months) and long-term (up to 7 years) damage in patients with newly diagnosed antineutrophil-cytoplasm antibody-associated vasculitis (AAV).

Methods Data were combined from six European Vasculitis Study... Read More about Damage in the ANCA-associated vasculitides: Long-term data from the European Vasculitis Study Group (EUVAS) therapeutic trials.

The relative risk of aortic aneurysm in patients with giant cell arteritis compared with the general population of the UK (2013)
Journal Article

Objectives: To evaluate the risk of aortic aneurysm in patients with giant cell arteritis (GCA) compared with age-, gender- and location-matched controls.

Methods: A UK General Practice Research Database (GPRD) parallel cohort study of 6999 patien... Read More about The relative risk of aortic aneurysm in patients with giant cell arteritis compared with the general population of the UK.