Dr Nicola Stock's Outputs (86)

Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program (2023)
Journal Article

Objective: Craniofacial microsomia (CFM) is a broad clinical term used to describe a congenital condition most commonly involving the underdevelopment of the external ear, mandible, soft tissues, and facial nerve. Despite medical advances, understand... Read More about Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program.

Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions (2023)
Journal Article

Objectives: Few evidence-based psychosocial programs exist within craniofacial care. This study (a) assessed feasibility and acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) intervention among caregivers of children wit... Read More about Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions.

Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences? (2022)
Journal Article

Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Individuals born with CL/P will embark on a long-term treatment pathway throughout childhood and often into adulthood. As they grow older, young people become m... Read More about Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?.

Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care (2022)
Journal Article

Background/Aims Despite published standards of care, inequities and variations in specialist care delivery in the UK have been identified. Using cleft lip and palate services as an example, this study aims to identify potential facilitators and commo... Read More about Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care.

Raising a child with Craniosynostosis: Psychosocial adjustment in parents (2022)
Journal Article

Objective: While knowledge of the psychosocial impact of craniofacial conditions is growing, literature regarding the impact on parents remains limited. Parents of children born with a health condition may be at risk of experiencing a range of psycho... Read More about Raising a child with Craniosynostosis: Psychosocial adjustment in parents.

Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study (2022)
Journal Article

Background: Burn injuries affect more than 60,000 children every year in the UK, with many experiencing scarring as a result. Scarring can be highly variable, and research is required to explore the factors that may influence variability, as well as... Read More about Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study.

Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades (2022)
Journal Article

Objective: This paper describes 20 years of microtia and craniofacial microsomia (CFM) psychosocial and healthcare studies and suggests directions for clinical care and research. Design: A narrative review of papers January 2000 to July 2021 related... Read More about Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades.

The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives (2022)
Journal Article

Objectives
Professionals in the United Kingdom providing care to new families affected by cleft lip and/or palate (CL/P) had to adapt to ensure families’ needs were met during a time of uncertainty due to Covid-19. The aims of this study were to exp... Read More about The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives.

Psychological and physical health outcomes in adults with craniosynostosis (2021)
Journal Article

Objectives: Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified two key questions in this area: 1) What are the long-term phys... Read More about Psychological and physical health outcomes in adults with craniosynostosis.

Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic (2021)
Journal Article

Objectives: Previous literature finds that having a child with a cleft lip and/or palate (CL/P) may pose social and emotional challenges for parents. For parents of children born during the Covid-19 pandemic, such challenges may be heightened. Furthe... Read More about Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic.

“Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference (2021)
Journal Article

To investigate parents’ reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three the... Read More about “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference.

Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom (2021)
Journal Article

Objectives: Research has identified adults born with cleft lip and/or palate (CL/P) to be at risk of poorer psychological outcomes compared to the general population. This study investigated factors that may contribute to positive and negative adjust... Read More about Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom.

Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme (2021)
Journal Article

Background: The largest group of people living with repaired cleft lip and/or palate (CL/P) are adults. Previous research has identified unmet treatment and psychosocial needs, yet few interventions exist. This article outlines 3 interventions develo... Read More about Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme.

Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care (2021)
Journal Article

Aim: Despite published standards of care, inequities and variations in specialist care delivery in the United Kingdom have been identified. Using cleft lip and palate (CL/P) care as an example, this study aimed to identify common barriers to deliver... Read More about Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care.

‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss (2021)
Journal Article

The psychological and social impact of hair loss and its ongoing treatment can be considerable. Medical treatments are not always successful, and alternative treatments, such as medical tattooing, are growing in popularity. The aims of this study wer... Read More about ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss.

Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2021)
Journal Article

Objectives: Previous research has suggested that adults with a cleft lip and/or palate (CL/P) may find their familial, friend, collegial, and/or romantic relationships impacted by their condition. Building on this prior work, this study examined the... Read More about Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article

Objectives: Adults with cleft lip and/or palate (CL/P) may report dissatisfaction with aesthetic and/or functional outcomes and express desire for further treatment. Although medical intervention can improve quality of life, surgical procedures requi... Read More about Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort (2020)
Journal Article

Background: One of the most common congenital conditions in the world, cleft lip and/or palate (CL/P) has been shown to potentially impact long-term physical and developmental outcomes in affected children. However, little is known about the factors... Read More about Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort.

Microtia and craniofacial microsomia: Content analysis of facebook groups (2020)
Journal Article

Objective An increasing number of patients use social media for health-related information and social support. This study’s objective was to describe the content posted on Facebook groups for individuals with microtia and/or craniofacial microsomia (... Read More about Microtia and craniofacial microsomia: Content analysis of facebook groups.

Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article

Objectives Previous research in the field of cleft lip and/or palate (CL/P) has indicated a high prevalence of common health concerns, functional difficulties, and additional conditions known to affect long-term physical health, cognitive development... Read More about Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.