Outputs (9)

Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries (2024)
Journal Article

Alongside typical parenting challenges, initial condition-specific research suggests that parents of children with different visible differences may experience similar psychosocial difficulties. Despite this, large-scale cross-condition research to i... Read More about Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries.

Parental concerns about genital differences in children with congenital adrenal (2024)
Journal Article

Background Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal.

Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention (2024)
Journal Article

BACKGROUND: Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention.

“It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives (2024)
Journal Article

Objectives Treatment for cleft lip and/or palate (CL/P) in the United Kingdom is administered on a standardised pathway from diagnosis to early adulthood, with options to be re-referred in later life. At age 16, patients become responsible for their... Read More about “It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives.

Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences? (2022)
Journal Article

Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Individuals born with CL/P will embark on a long-term treatment pathway throughout childhood and often into adulthood. As they grow older, young people become m... Read More about Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?.

Developing psychosocial support for parents and carers of children and young people with an appearance-affecting condition or injury (2022)
Thesis

Children and young people with appearance-affecting conditions and injuries report common pervasive psychosocial difficulties, regardless of cause or nature of their visible difference. When present alongside the typical challenges of parenting (e.g.... Read More about Developing psychosocial support for parents and carers of children and young people with an appearance-affecting condition or injury.

"I listen to my body now": A qualitative exploration of positive body image in breast cancer survivors (2021)
Journal Article

Objective: Existing research has identified the high prevalence of body image concerns among female breast cancer survivors. However, it has neglected to explore the experience of positive body image among this group, despite its potential utility fo... Read More about "I listen to my body now": A qualitative exploration of positive body image in breast cancer survivors.

"Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury (2021)
Journal Article

Children and young people (CYP) with appearance-affecting conditions/injuries report common pervasive psychosocial difficulties, regardless of cause, nature or extent of their visible differences. Parents or carers can also experience psychosocial di... Read More about "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury.

The effectiveness of interventions to improve psychosocial outcomes in parents of children with appearance-affecting health conditions: A systematic review (2020)
Journal Article

Background: Although many cope well, the impact of supporting a child with an Appearance-Affecting Health Condition (AAHC) can place a significant demand on parents. As such, it is vital that families have access to appropriate psychosocial support t... Read More about The effectiveness of interventions to improve psychosocial outcomes in parents of children with appearance-affecting health conditions: A systematic review.