Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9

Tugwell, Peter S.; Wells, George A.; March, Lyn M.; Nicklin, Jo; Sanderson, Tessa C.; Kirwan, John R.; Newman, Stanton; Hewlett, Sarah; Idzera, Leanne; Nicklin, Joanna; Laslo, Britta; Minnock, Patricia; Montie, Pam; Rader, Tamara; Richards, Pamela; Suarez-Almazor, Maria; Tanjong-Ghogomu, Elizabeth; Ueffing, Erin; Welch, Vivian

doi:10.3899/jrheum.090360

All Outputs (7)

“You make your own luck”: Three different perceptions of living with RA: A Q-methodological study (2012)
Presentation / Conference Contribution

Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy (2011)
Journal Article

Objectives To investigate the effect of group cognitive behavioural therapy (CBT) for fatigue self-management, compared with groups receiving fatigue information alone, on fatigue impact among people with rheumatoid arthritis (RA). Methods Two-arm, p... Read More about Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy.

Fatigue in rheumatoid arthritis: time for a conceptual model. (2011)
Journal Article

Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis (2010)
Journal Article

Patient-reported outcome measures (PROMs) need to include concepts and language relevant to patients and be easily understood. These studies aimed to develop draft PROMs to measure rheumatoid arthritis (RA) fatigue and its impact by collaborating wit... Read More about Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis.

Biologic interventions for fatigue in rheumatoid arthritis (2010)
Journal Article

Non-pharmacological interventions for fatigue in rheumatoid arthritis (Protocol) (2010)
Journal Article

Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9 (2009)
Presentation / Conference Contribution

The Patient Perspective Workshop included over 100 researchers and 18 patient participants from 8 countries. Following preconference reading and short plenary presentations, breakout groups considered work undertaken on measurement of sleep, assessin... Read More about Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9.