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All Outputs (102)

Psoriatic arthritis priority setting partnership: Patient and clinician informed considerations for future UK health service delivery (2024)
Journal Article

Little is known about the ideal service delivery model and shortcomings in patient experiences in the NHS for patients with Psoriatic Arthritis (PsA). To identify unmet needs perceived within the current health service delivery model for PsA from the... Read More about Psoriatic arthritis priority setting partnership: Patient and clinician informed considerations for future UK health service delivery.

Development and refinement of patient care recommendations in brachytherapy for locally advanced cervical cancer using nominal group technique workshops (2024)
Journal Article

Purpose: Patient experiences of brachytherapy for locally advanced cervical cancer (LACC) are widely variable, with reports of difficult and traumatic experiences and aspects of care requiring improvement. The aim of this study was to develop patient... Read More about Development and refinement of patient care recommendations in brachytherapy for locally advanced cervical cancer using nominal group technique workshops.

Pain management in people with inflammatory arthritis: British Society for Rheumatology guideline scope (2024)
Journal Article

Lay Summary: What does this mean for patients? Inflammatory arthritis includes conditions causing swollen and painful joints. The main types are rheumatoid arthritis, psoriatic arthritis, axial spondyloarthritis and juvenile idiopathic arthritis. It... Read More about Pain management in people with inflammatory arthritis: British Society for Rheumatology guideline scope.

Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol. (2024)
Journal Article

Fatigue is an important and distressing symptom for many people living with chronic musculoskeletal (MSK) conditions. Many non-pharmacological interventions have been investigated in recent years and some have been demonstrated to be effective in red... Read More about Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol..

P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study (2024)
Presentation / Conference Contribution

Background/Aims Glucocorticoids (GCs) used in the treatment of inflammatory rheumatic conditions can impact on patients in different ways. The objective of this study was to identify socio-demographic and clinical factors associated with health-relat... Read More about P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study.

Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs (2024)
Journal Article

Objective: Many clinically extremely vulnerable rheumatology patients have only recently ceased shielding from COVID-19, while some continue to minimise in-person contact. The objective of this study was to understand the impact of shielding and asso... Read More about Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs.

Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population (2024)
Journal Article

Background
The Chalder Fatigue Scale, also known as the Chalder Fatigue Questionnaire (CFQ) is a Patient Reported Outcome Measure (PROM) comprising 11 items designed to measure physical and cognitive fatigue. It is widely used with people with myalg... Read More about Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population.

Patient experiences of brachytherapy for locally advanced cervical cancer: Hearing the patient voice through qualitative interviews (2023)
Journal Article

Purpose: Brachytherapy for gynecological cancer is reported to cause pain, anxiety, and distress with no clear guidance for optimizing patient experiences. The aim of this study was to explore patient experiences of brachytherapy and views on improve... Read More about Patient experiences of brachytherapy for locally advanced cervical cancer: Hearing the patient voice through qualitative interviews.

Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol (2023)
Journal Article

Introduction Fatigue is the most prevalent symptom for patients with a primary brain tumour (PBT), significantly reducing quality of life and limiting daily activities. Currently, there are limited options for managing cancer-related fatigue (CRF) in... Read More about Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol.

2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article

Objectives Fatigue is prevalent in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and recognised as one of the most challenging symptoms to manage. The existence of multiple factors associated with driving and maintaining fa... Read More about 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

Efficacy of pharmacological interventions: A systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article

ObjectiveTo identify the best evidence on the efficacy of pharmacological interventions in reducing fatigue in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and to summarise their safety in the identified studies to inform... Read More about Efficacy of pharmacological interventions: A systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset (2023)
Journal Article

Objective: Jaw symptoms can be a vital clue to the diagnosis of GCA. Guidelines recommend more intensive treatment if jaw claudication is present. We sought to explore how patients with GCA described their jaw symptoms. Methods: We carried out a seco... Read More about Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset.

Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article

Objective: To identify the best evidence on the efficacy of non-pharmacological interventions in reducing fatigue in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and to summarise their safety in the identified studies to i... Read More about Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models (2023)
Presentation / Conference Contribution

Background/Aims Systemic glucocorticoids are key in the management of life- and organ-threatening rheumatic diseases, but have wide-ranging adverse effects of concern to patients and clinicians. We aimed to validate a Patient Reported Outcome (PRO) m... Read More about E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models.

Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases (2023)
Journal Article

OBJECTIVES: To estimate the cost-effectiveness of a cognitive behavioural approach (CBA) or a personalized exercise programme (PEP), alongside usual care (UC), in patients with inflammatory rheumatic diseases who report chronic, moderate to severe fa... Read More about Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases.

Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure (2023)
Journal Article

OBJECTIVES: Glucocorticoids (GCs) ('steroids') are used to treat rheumatic diseases but adverse effects are common. We aimed to explore the impact of GC therapy on health-related quality of life (HRQoL), to inform the development of a treatment-speci... Read More about Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure.