All Outputs (276)

Public contributor and stakeholder research priority setting for cancer survivors with chronic cancer-related pain Figure 1: Development of clinical recommendations (2025)
Presentation / Conference Contribution

Introduction: Chronic pain is a common side effect of cancer treatment. To better support people with chronic cancer-related pain, a set of evidence-based clinical recommendations have been generated. These are summarised as: PAINS: Prepare and inf... Read More about Public contributor and stakeholder research priority setting for cancer survivors with chronic cancer-related pain Figure 1: Development of clinical recommendations.

Research prioritisation of clinical recommendations for cancer survivors living with chronic pain post cancer treatment (2025)
Presentation / Conference Contribution

Introduction: Chronic pain is a common side effect of cancer treatment and is frequently cited as a top concern and unmet need for cancer survivors with wide ranging impacts. To better support people with chronic pain as a long-term or late side ef... Read More about Research prioritisation of clinical recommendations for cancer survivors living with chronic pain post cancer treatment.

Exploring UK healthcare professionals’ experiences and perceptions of the support needs of men with breast cancer and their informal carers (2025)
Journal Article

Introduction:
This study aimed to explore UK healthcare professionals’ perspectives on support for male breast cancer patients and their informal carers, and to identify avenues for improvement.

Methods:
UK-based HCPs involved in the care... Read More about Exploring UK healthcare professionals’ experiences and perceptions of the support needs of men with breast cancer and their informal carers.

The visible difference parenting toolkit: Development of an ACT-based intervention to improve the wellbeing of parents and caregivers of children with appearance-affecting conditions and injuries (2025)
Journal Article

Objectives: Caregivers of children with appearance-affecting conditions or injuries can experience common psychosocial challenges, regardless of the cause or nature of their child’s visible difference. Despite these common challenges, there is a lack... Read More about The visible difference parenting toolkit: Development of an ACT-based intervention to improve the wellbeing of parents and caregivers of children with appearance-affecting conditions and injuries.

Moving beyond the individual: The impact and importance of sociocultural influences on visible difference (2025)
Journal Article

This paper examines sociocultural factors that shape the experiences of people living with visible differences, highlighting the impact of stigma, societal judgment and appearance-based discrimination, traditional and social media, and the importance... Read More about Moving beyond the individual: The impact and importance of sociocultural influences on visible difference.

The validation of the ‘CARe Burn Scale: Parent/Caregiver Form’ - a Patient Reported Outcome Measure (PROM) using Rasch Measurement Theory (RMT) to assess quality of life for parents or caregivers supporting a child with a burn injury (2025)
Journal Article

A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A liter... Read More about The validation of the ‘CARe Burn Scale: Parent/Caregiver Form’ - a Patient Reported Outcome Measure (PROM) using Rasch Measurement Theory (RMT) to assess quality of life for parents or caregivers supporting a child with a burn injury.

Body image and appearance distress among military veterans and civilians with an injury-related visible difference: A comparison study (2025)
Journal Article

Injuries sustained during military conflict can significantly impact appearance. Yet, little is known about the psychosocial experiences of veterans with conflict-related appearance-altering injuries (AAI) and whether current civilian interventions a... Read More about Body image and appearance distress among military veterans and civilians with an injury-related visible difference: A comparison study.

Accepting your Body after Cancer (ABC), a group-based online intervention for women treated for breast cancer: Study protocol for a feasibility randomised controlled trial (2025)
Journal Article

Introduction Breast cancer is the most common cancer among women worldwide. While increasing numbers of women are living beyond breast cancer, treatment-related body image concerns are common and associated with adverse consequences. Nonetheless, rig... Read More about Accepting your Body after Cancer (ABC), a group-based online intervention for women treated for breast cancer: Study protocol for a feasibility randomised controlled trial.

Supporting individuals with a visible difference: A UK survey of needs and preferences (2024)
Journal Article

Individuals with visible differences, resulting from injuries, health conditions, or treatment, can face varied and lasting psychosocial effects. Existing psychosocial interventions are limited, with inconsistent support noted by specialists. Improve... Read More about Supporting individuals with a visible difference: A UK survey of needs and preferences.

"Make sure that everybody feels there is a space for them": Understanding and promoting appearance inclusivity at university (2024)
Journal Article

Appearance concerns are a pervasive issue affecting many university students and contributing to poor psychosocial and academic outcomes. To combat these, action is needed by universities to promote appearance inclusivity. The current study used indu... Read More about "Make sure that everybody feels there is a space for them": Understanding and promoting appearance inclusivity at university.

A multi‐centre prospective cohort study investigating the roles of psychological flexibility and self‐compassion in appearance concerns after burn injuries (2024)
Journal Article

Objectives: Appearance concerns following burn injuries are common. Psychological factors are important in maintaining such concerns. However, there is a lack of longitudinal or prospective research investigating their development. This study investi... Read More about A multi‐centre prospective cohort study investigating the roles of psychological flexibility and self‐compassion in appearance concerns after burn injuries.

Early appearance concerns after burns: Investigating the roles of psychological flexibility and self-compassion (2024)
Journal Article

Few qualitative studies have explored appearance concerns soon after burn injuries. This study aimed to understand the early experiences of appearance concerns after burns, through the lens of psychological flexibility and self-compassion. Template a... Read More about Early appearance concerns after burns: Investigating the roles of psychological flexibility and self-compassion.

The acceptability of early psychological interventions for adults with appearance concerns after burns (2024)
Journal Article

Introduction
Appearance concerns are common following burns. However, there is a lack of research investigating early psychological interventions for appearance concerns. This qualitative study explored the acceptability of early psychological inter... Read More about The acceptability of early psychological interventions for adults with appearance concerns after burns.

‘Plan Z and then off the edge of a cliff’: An interpretative phenomenological analysis of mothers’ experience of living with a slow-to-heal Caesarean wound (2024)
Journal Article

Background: Studies indicate that complex postsurgical wound healing can significantly alter biopsychological markers responsible for recovery. Yet, there is a lack of research investigating women's experience of living with slow-to-heal Caesarean bi... Read More about ‘Plan Z and then off the edge of a cliff’: An interpretative phenomenological analysis of mothers’ experience of living with a slow-to-heal Caesarean wound.

Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries (2024)
Journal Article

Alongside typical parenting challenges, initial condition-specific research suggests that parents of children with different visible differences may experience similar psychosocial difficulties. Despite this, large-scale cross-condition research to i... Read More about Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries.

Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey (2024)
Journal Article

Introduction: Healthcare professionals are vital in preparing people living with and beyond cancer about the risks of chronic pain after cancer treatment. To do so, healthcare professionals need to be knowledgeable and confident about chronic pain af... Read More about Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey.

More than my appearance: A pilot evaluation of the Expand Your Horizon online functionality-based writing programme for adults with visible differences (2024)
Journal Article

Background: Adults with conditions that affect their appearance, known as visible differences, can experience appearance concerns, social anxiety, and depression. Interventions have been developed for this population to facilitate adjustment and copi... Read More about More than my appearance: A pilot evaluation of the Expand Your Horizon online functionality-based writing programme for adults with visible differences.

Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues (2024)
Journal Article

Combat-related physical injuries not only affect the individual but also close family members. Emerging evidence indicates that injuries that change appearance, such as limb loss and physical scarring, may create additional psychosocial challenges fo... Read More about Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues.

Parental concerns about genital differences in children with congenital adrenal (2024)
Journal Article

Background
Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal.

Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention (2024)
Journal Article

BACKGROUND: Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention.