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All Outputs (56)

“I couldn't carry on taking a drug like that”: A qualitative study of patient perspectives on side effects from rheumatology drugs (2024)
Journal Article

Objectives There is growing interest in collecting outcome information directly from patients in clinical trials. This study evaluates what patients with rheumatic and musculoskeletal diseases (RMDs) consider important to know about symptomatic side... Read More about “I couldn't carry on taking a drug like that”: A qualitative study of patient perspectives on side effects from rheumatology drugs.

Associations of gender with sexual functioning, loneliness, depression, fatigue and physical function amongst patients suffering from rheumatoid arthritis with a particular focus on methotrexate usage (2024)
Journal Article

There is a lack of knowledge regarding methotrexate (MTX) usage in patients with rheumatoid arthritis (RA) and its possible links with gender, disease characterization and sexual functioning, loneliness, fatigue and depression. We, therefore, investi... Read More about Associations of gender with sexual functioning, loneliness, depression, fatigue and physical function amongst patients suffering from rheumatoid arthritis with a particular focus on methotrexate usage.

‘Do I cry or just carry on’: A story completion study of healthcare professionals’ anticipated responses to experiencing chest pain (2024)
Journal Article

Healthcare professionals may experience barriers to seeking healthcare that differ from the general population. We explored healthcare professionals’ anticipated responses to experiencing chest pain following a period of stress using qualitative stor... Read More about ‘Do I cry or just carry on’: A story completion study of healthcare professionals’ anticipated responses to experiencing chest pain.

Stakeholder endorsement advancing the implementation of a patient-reported domain for harms in rheumatology clinical trials: Outcome of the OMERACT Safety Working Group (2023)
Journal Article

Objectives: To develop an understanding of the concept of safety/harms experienced by patients involved in clinical trials for their rheumatic and musculoskeletal diseases (RMDs) and to seek input from the OMERACT community before moving forward to d... Read More about Stakeholder endorsement advancing the implementation of a patient-reported domain for harms in rheumatology clinical trials: Outcome of the OMERACT Safety Working Group.

Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: A systematic review of qualitative studies to inform the work of the OMERACT foot and ankle working group (2023)
Journal Article

Objectives: This study aimed to determine outcome domains of importance to patients living with foot and ankle disorders in rheumatic and musculoskeletal diseases (RMDs), by exploring the symptoms and impact of these disorders reported in existing qu... Read More about Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: A systematic review of qualitative studies to inform the work of the OMERACT foot and ankle working group.

Developing a core outcome set for foot and ankle disorders in rheumatic and musculoskeletal diseases: A scoping review and report from the OMERACT 2022 foot and ankle special interest group session (2023)
Journal Article

Objectives: Foot and ankle involvement is common in rheumatic and musculoskeletal diseases, yet high-quality evidence assessing the effectiveness of treatments for these disorders is lacking. The Outcome Measures in Rheumatology (OMERACT) Foot and An... Read More about Developing a core outcome set for foot and ankle disorders in rheumatic and musculoskeletal diseases: A scoping review and report from the OMERACT 2022 foot and ankle special interest group session.

P041 Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: a thematic synthesis of qualitative studies to inform the work of the Outcome Measures in Rheumatology (OMERACT) Foot and Ankle Working Group (2023)
Presentation / Conference Contribution

Background/Aims Foot and ankle involvement is common in rheumatic and musculoskeletal diseases (RMDs), but high-quality evidence is lacking to determine the effectiveness of foot and ankle treatments. Heterogeneity in the outcomes used across clinica... Read More about P041 Living with foot and ankle disorders in rheumatic and musculoskeletal diseases: a thematic synthesis of qualitative studies to inform the work of the Outcome Measures in Rheumatology (OMERACT) Foot and Ankle Working Group.

Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol (2023)
Journal Article

Background: Foot and ankle involvement is common in rheumatic and musculoskeletal diseases (RMDs). High-quality evidence is lacking to determine the effectiveness of treatments for these disorders. Heterogeneity in the outcomes used across clinical t... Read More about Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol.

Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group (2022)
Journal Article

Aims: The Outcome Measures in Rheumatology Trials (OMERACT) Remission in Rheumatoid Arthritis (RA) patient perspective working group has previously found that patients prioritised independence, pain, and fatigue as key domains of remission in RA. How... Read More about Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group.

"I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis (2022)
Journal Article

OBJECTIVES: Men with SSc have a more severe clinical phenotype and reduced survival compared with women. No previous psychosocial studies have focused solely on men with SSc. This study aimed to explore experiences, coping strategies and support pref... Read More about "I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis.

Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report (2021)
Journal Article

Objective: To determine how best to incorporate the patient perspective into rheumatoid arthritis remission criteria. Methods: At OMERACT 2020, several studies, including a longitudinal multi-centre study testing the validity of adding patient-valued... Read More about Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report.

OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study (2021)
Journal Article

Objectives: To develop an operational definition of contextual factors (CF) [1]. Methods: Based on previously conducted interviews, we presented three CF types in a Delphi survey; Effect Modifying -, Outcome Influencing - and Measurement Affecting CF... Read More about OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group (2020)
Journal Article

Objectives: The Outcome Measures in Rheumatology (OMERACT) Initiative established the Contextual Factors Working Group (CFWG) to guide the understanding, identification, and handling of contextual factors for clinical trials. In clinical research, di... Read More about Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group.

Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article

© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.