All Outputs (91)

A malevolent force: A qualitative exploration of perceptions of changes in bodily function and sensations in complex regional pain syndrome (2025)
Journal Article

Research has established that people with complex regional pain syndrome (CRPS) experience profound changes in bodily function and sensations. However, the subjective perceptions of these changes to bodily function and sensations h... Read More about A malevolent force: A qualitative exploration of perceptions of changes in bodily function and sensations in complex regional pain syndrome.

Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey (2024)
Journal Article

Introduction: Healthcare professionals are vital in preparing people living with and beyond cancer about the risks of chronic pain after cancer treatment. To do so, healthcare professionals need to be knowledgeable and confident about chronic pain af... Read More about Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey.

Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis (2023)
Journal Article

Aims: To develop an understanding of what comprises nurse-led care in early rheumatoid arthritis from the perspective of rheumatology nurse specialists in England. Design: Qualitative study. Methods: Semi-structured telephone interviews with rheumato... Read More about Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis.

Is there a role for citizen science in death and dying research? (2023)
Journal Article

The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of... Read More about Is there a role for citizen science in death and dying research?.

The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research (2023)
Journal Article

We present a framework for the study of states of chronic pain and transitions between those states. We capture in the framework the dynamic nature of pain: people live with pain that changes over time. First, we offer definitions of both acute and c... Read More about The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research.

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study (2023)
Journal Article

OBJECTIVE: To assess the degree of resilience in patients with complex regional pain syndrome (CRPS) 1, to explore the relationship between resilience and patient-related outcome measurements and to describe a pattern of clinical manifestations assoc... Read More about Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study.

Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians (2023)
Journal Article

Introduction: Complex Regional Pain Syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. Guidelines recommend early referral for therapies that promote movem... Read More about Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians.

Hospital practitioner views on the benefits of continence education and best ways to provide training (2023)
Journal Article

Aim: The aim of the study was to explore practitioners' experiences and perspectives on continence training, in order to understand its relevance to practice and how take-up of, and engagement with, such training may be improved. Design: 27 qualitati... Read More about Hospital practitioner views on the benefits of continence education and best ways to provide training.

Prognostic factors for persistent pain after a distal radius fracture: A systematic review (2022)
Journal Article

Introduction: The aim of this systematic review was to synthesize the evidence regarding prognostic factors for persistent pain, including Complex Regional Pain Syndrome (CRPS), after a distal radius fracture (DRF), a common condition after which per... Read More about Prognostic factors for persistent pain after a distal radius fracture: A systematic review.

Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank (2022)
Journal Article

ABSTRACT: Complex regional pain syndrome (CRPS) clinical trials have historically captured a diverse range of outcomes. A minimum set of CRPS patient-reported outcomes has been agreed for inclusion in a future CRPS international clinical research reg... Read More about Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank.

Complex regional pain syndrome: Practical diagnostic and treatment guidelines, 5th edition (2022)
Journal Article

There have been some modest recent advancements in the research of Complex Regional Pain Syndrome, yet the amount and quality of the work in this complicated multifactorial disease remains low (with some notable exceptions; e.g., the recent work on t... Read More about Complex regional pain syndrome: Practical diagnostic and treatment guidelines, 5th edition.

Practitioner suggestions for improving continence care in hospitals (2022)
Journal Article

Difficulties with bladder control affect one in five people in the UK and bowel problems affect one in ten. The quality of continence care can be poor and is then associated with increased admission to nursing or residential homes. Our study, which... Read More about Practitioner suggestions for improving continence care in hospitals.

Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study (2021)
Journal Article

Objective
Painful diabetic neuropathy (PDN) is a common complication of diabetes. This study explored the experience and impact of living with PDN.
Design
People with PDN were recruited through local NHS clinics and by national advertisement in di... Read More about Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study.

Virtual reality-induced sensorimotor conflict evokes limb-specific sensory disturbances in complex regional pain syndrome (2021)
Journal Article

The origin of sensory disturbances in complex regional pain syndrome (CRPS) remains unclear. It has been hypothesized that such disturbances are due to attentional effects and/or sensorimotor integration deficits. If sensory disturbances are explaine... Read More about Virtual reality-induced sensorimotor conflict evokes limb-specific sensory disturbances in complex regional pain syndrome.

‘We tend to get pad happy’: A qualitative study of health practitioners’ perspectives on the quality of continence care for older people in hospital (2021)
Journal Article

Bladder and bowel control difficulties affect 20% and 10% of the UK population, respectively, touch all age groups and are particularly prevalent in the older (65+ years) population. However, the quality of continence care is often poor, compromising... Read More about ‘We tend to get pad happy’: A qualitative study of health practitioners’ perspectives on the quality of continence care for older people in hospital.

Florence Nightingale's legacy for clinical academics: A framework analysis of a clinical professorial network and a model for clinical academia (2021)
Journal Article

Background: Clinical academic nursing roles are rare, and clinical academic leadership positions even more scarce. Amongst the United Kingdom (UK) academia, only 3% of nurses who are employed within universities are clinically active. Furthermore, ac... Read More about Florence Nightingale's legacy for clinical academics: A framework analysis of a clinical professorial network and a model for clinical academia.

Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial (2021)
Journal Article

Background: Effective treatment of longstanding Complex Regional Pain Syndrome (CRPS) is a challenge, as causal mechanisms remain elusive. People with CRPS frequently report distorted subjective perceptions of their affected limb. Evidence of pain re... Read More about Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial.

The Valencia consensus-based adaptation of the IASP complex regional pain syndrome diagnostic criteria (2021)
Journal Article

Physical appearance and well-being in adults with incurable cancer: A thematic analysis (2020)
Journal Article

Objectives: Existing research has established the importance of appearance concerns for individuals with cancer and identified appearance as an important factor in dying with dignity. No research, however, has explored in depth the role of appearance... Read More about Physical appearance and well-being in adults with incurable cancer: A thematic analysis.