Outputs (163)

A model for collaboration between researchers and patients (2006)
Presentation / Conference Contribution

Rheumatology telephone helplines: patient and health professionals' requirements. (2006)
Journal Article

OBJECTIVES: The aim of this study was to ascertain patients' and health professionals' requirements from a rheumatology helpline and how such a service should be delivered. METHODS: Self-completed questionnaires were administered to both users of rhe... Read More about Rheumatology telephone helplines: patient and health professionals' requirements..

Personal impact of disability in osteoarthritis: patient, professional and public values. (2006)
Journal Article

BACKGROUND: Osteoarthritis (OA) is a leading cause of disability. Numerous tools are available to assess this, but they fail to place a patient value upon disability. In rheumatoid arthritis, research has shown patients have different importance valu... Read More about Personal impact of disability in osteoarthritis: patient, professional and public values..

Implementing a patient-led service for chronic conditions (2005)
Journal Article

Sensitivity to change of the rheumatoid arthritis self-efficacy scale (RASE) (2005)
Presentation / Conference Contribution

Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment (2005)
Journal Article

The first OMERACT Patient Perspective Workshop took place at OMERACT 6 in 2002. Through a series of meetings and discussion sessions a research agenda emerged and this report outlines progress made on this agenda. Work on identifying novel outcomes,... Read More about Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment.

Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: Progress at OMERACT 7 (2005)
Journal Article

The Patient Perspective Workshop at OMERACT 7 addressed the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease. A particular emphasis at this workshop was placed on... Read More about Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: Progress at OMERACT 7.

Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored (2005)
Journal Article

Objective. Fatigue is commonly reported by patients with rheumatoid arthritis (RA) but is rarely a treatment target. The aim of this study was to explore the concept of fatigue as experienced by patients with RA. Methods. Fifteen patients with RA and... Read More about Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored.

Changes in self-efficacy, coping and emotions: Their associations among rheumatoid arthritis patients participating in routine self-management programmes (2005)
Presentation / Conference Contribution

Outcomes generated by patients with rheumatoid arthritis: How important are they? (2005)
Journal Article

Background: It has been shown previously that patients with rheumatoid arthritis (RA) can generate a wide range of outcomes that they consider important in treatment. It is not known if these outcomes are generally important in the wider RA patient c... Read More about Outcomes generated by patients with rheumatoid arthritis: How important are they?.

Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis (2005)
Journal Article

Objective: Evidence that patient education improves outcome in self-selected patients is often based on studies using patients with a mixture of diagnoses (primarily osteoarthritis) and where the education is delivered in a community setting. This st... Read More about Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis.

Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial (2005)
Journal Article

Objectives: To determine whether direct access to hospital review initiated by patients with rheumatoid arthritis would result in improved clinical and psychological outcome, reduced overall use of healthcare resources, and greater satisfaction with... Read More about Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial.

Pain is not always the priority: Rheumatoid arthritis patients value other outcomes (2004)
Presentation / Conference Contribution

Rheumatology telephone helplines: Patient and health professional requirements (2004)
Presentation / Conference Contribution

Patient-initiated review: Specific helpline support is required (2004)
Presentation / Conference Contribution

Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support (2004)
Journal Article

Objectives. To test, in a variety of health settings, the ability of the Health Assessment Questionnaire (HAQ) disability index to predict the eligibility of patients with moderate or severe arthritis for disability living allowance or attendance all... Read More about Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support.

Patients and professionals as research partners: Challenges, practicalities and benefits (2004)
Presentation / Conference Contribution

Consent to research in arthritis: Quantity of information versus quality (2003)
Journal Article

Invited Editorial

Social support in rheumatoid arthritis: Self-esteem, mood and life dissatisfaction (2003)
Presentation / Conference Contribution

Perceived and actual change in disability in rheumatoid arthritis: Dissatisfaction and impact (2003)
Presentation / Conference Contribution