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Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment

Kirwan, John R.; Ahlmen, Monica; de Wit, Marteen; Heiberg, Turid; Hehir, Maggie; Hewlett, Sarah; Katz, Patricia; Minnock, Patricia; Quest, Enid; Richards, Pam


John R. Kirwan

Monica Ahlmen

Marteen de Wit

Turid Heiberg

Maggie Hehir

Patricia Katz

Patricia Minnock

Enid Quest

Pam Richards


The first OMERACT Patient Perspective Workshop took place at OMERACT 6 in 2002. Through a series of meetings and discussion sessions a research agenda emerged and this report outlines progress made on this agenda. Work on identifying novel outcomes, instruments, and methods has shown similarities across European countries in the importance patients with rheumatoid arthritis (RA) attach to specific outcomes, in particular fatigue. Validation of an appropriate instrument to measure fatigue in patients with RA is currently being investigated. Frequent or repeated real-time assessment of symptoms such as pain and fatigue is becoming possible using electronic systems. An OMERACT Patient Panel has been established, and has produced a glossary for patients involved in supporting clinical research. In some centers, efforts are being made to provide Patient Research Partners with knowledge and skills that will enhance their contribution, and some of these approaches will be incorporated into OMERACT 7. The research agenda that was developed during the first Patient Perspective Workshop has stimulated new work in several areas. In addition, international attention has been drawn to the need to make sure that the patient's perspective is not lost among the technical expertise of rheumatology.


Kirwan, J. R., Ahlmen, M., de Wit, M., Heiberg, T., Hehir, M., Hewlett, S., …Richards, P. (2005). Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment. Journal of Rheumatology, 32(11), 2246-2249

Journal Article Type Article
Publication Date Nov 1, 2005
Journal Journal of Rheumatology
Print ISSN 0315-162X
Publisher Journal of Rheumatology
Peer Reviewed Peer Reviewed
Volume 32
Issue 11
Pages 2246-2249
Keywords rheumatoid arthriits, patient perspective
Public URL
Publisher URL