Outputs (75)

Cognitiveg-behavioural approaches to self-management in rheumatic disease (2012)
Journal Article

Patients with rheumatic disease must adjust psychosocially and behaviourally in order to manage the impact of symptoms and treatment on their daily lives, and the emotional consequences of the disease. However, patients can improve their well-being b... Read More about Cognitiveg-behavioural approaches to self-management in rheumatic disease.

"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue (2012)
Journal Article

Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructu... Read More about "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue.

Approaching parents to take part in a cleft gene bank: A qualitative pilot study (2012)
Journal Article

Objective: A gene bank, comprising genetic material and environmental and family history data, is being established in the United Kingdom to improve the understanding of the etiology of orofacial clefting (OFC). This study aimed to identify factors t... Read More about Approaching parents to take part in a cleft gene bank: A qualitative pilot study.

Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi- (2011)
Journal Article

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Presentation / Conference Contribution

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.

The psychosocial impact of Epidermolysis bullosa (2011)
Journal Article

Epidermolysis bullosa (EB) is a disease in which the skin blisters in response to minimal friction, causing painful wounds. Despite the potentially severe nature of epidermolysis bullosa, research on the psychosocial issues is scarce. The aims of the... Read More about The psychosocial impact of Epidermolysis bullosa.

Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm (2011)
Journal Article

This article has two purposes: to examine why mixed methods is a legitimate approach particularly well suited to health psychology; and to describe the challenges inherent in conducting mixed methods research. First, arguments justifying the status o... Read More about Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm.

The impact triad (severity, importance, self-management) as a method of enhancing measurement of personal life impact of rheumatic diseases (2011)
Journal Article

Fatigue in rheumatoid arthritis: time for a conceptual model. (2011)
Journal Article

'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa (2010)
Journal Article

Objectives: Professionals working with people who encounter pain and suffering can experience adverse emotional effects themselves. However, to provide effective support it is necessary to understand specific work-related experiences and contexts. Th... Read More about 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa.

Evaluating instruments developed from a patient perspective (2010)
Presentation / Conference Contribution

The psychosocial impact of epidermolysis bullosa: The professionals' perspective (2008)
Presentation / Conference Contribution

Theoretical and practical approaches to working with people with visible differences (2007)
Presentation / Conference Contribution

Fluctuations of body image states in daily life: an exploration of women’s experiences (2006)
Journal Article

Survey of contemporary health professional views on arthroplasty surveillance
Presentation / Conference Contribution

Survey of contemporary health professional views on arthroplasty surveillance

A. Rose, E. Dures and L. K. Smith
Musculoskeletal Research Unit, Translational Health Sciences, Bristol Medical School, University of Bristol, Learning and Research Bui... Read More about Survey of contemporary health professional views on arthroplasty surveillance.