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Outputs (99)

AB1429 Sociodemographic and clinical factors associated with health-related quality of life in patients with inflammatory rheumatic diseases treated with glucocorticoids: A cross-sectional study (2024)
Conference Proceeding
Lim, K. W., Janagan, S., Bhogal, R., Bridgewater, S., Silverthorne, C., Richards, P., …Robson, J. C. (2024). AB1429 Sociodemographic and clinical factors associated with health-related quality of life in patients with inflammatory rheumatic diseases treated with glucocorticoids: A cross-sectional study. In Annals of the Rheumatic Diseases (ARD) (2070). https://doi.org/10.1136/annrheumdis-2024-eular.3928

Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol. (2024)
Journal Article
Fishpool, K., Young, G., Ciurtin, C., Cramp, F., Erhieyovwe, E. O., Farisogullari, B., …Dures, E. (2024). Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol. BMJ Open, 14(5), Article e082555. https://doi.org/10.1136/bmjopen-2023-082555

Fatigue is an important and distressing symptom for many people living with chronic musculoskeletal (MSK) conditions. Many non-pharmacological interventions have been investigated in recent years and some have been demonstrated to be effective in red... Read More about Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol..

P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study (2024)
Conference Proceeding
Janagan, S., Lim, K. W., Bhogal, R., Bridgewater, S., Silverthorne, C., Richards, P., …Robson, J. C. (2024). P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study. . https://doi.org/10.1093/rheumatology/keae163.083

Background/Aims Glucocorticoids (GCs) used in the treatment of inflammatory rheumatic conditions can impact on patients in different ways. The objective of this study was to identify socio-demographic and clinical factors associated with health-relat... Read More about P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study.

Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs (2024)
Journal Article
Silverthorne, C. A., Jones, B., Brooke, M., Coates, L. C., Orme, J., Robson, J. C., …Dures, E. (2024). Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs. BMJ Open, 14(4), Article e075871. https://doi.org/10.1136/bmjopen-2023-075871

Objective: Many clinically extremely vulnerable rheumatology patients have only recently ceased shielding from COVID-19, while some continue to minimise in-person contact. The objective of this study was to understand the impact of shielding and asso... Read More about Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs.

Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population (2024)
Journal Article
Gladwell, P., Harland, M., Adrissi, A., Kershaw, S., & Dures, E. (2024). Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population. Fatigue: Biomedicine, Health and Behavior, 12(3), 217-237. https://doi.org/10.1080/21641846.2024.2335861

Background The Chalder Fatigue Scale, also known as the Chalder Fatigue Questionnaire (CFQ) is a Patient Reported Outcome Measure (PROM) comprising 11 items designed to measure physical and cognitive fatigue. It is widely used with people with myalg... Read More about Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population.

Patient experiences of brachytherapy for locally advanced cervical cancer: hearing the patient voice through qualitative interviews (2023)
Journal Article
Humphrey, P., Dures, E., Hoskin, P., & Cramp, F. (2024). Patient experiences of brachytherapy for locally advanced cervical cancer: hearing the patient voice through qualitative interviews. International Journal of Radiation Oncology - Biology - Physics, 119(3), 902-911. https://doi.org/10.1016/j.ijrobp.2023.12.016

Purpose: Brachytherapy for gynecological cancer is reported to cause pain, anxiety, and distress with no clear guidance for optimizing patient experiences. The aim of this study was to explore patient experiences of brachytherapy and views on improve... Read More about Patient experiences of brachytherapy for locally advanced cervical cancer: hearing the patient voice through qualitative interviews.

Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol (2023)
Journal Article
Simms-Moore, R., Dures, E., Barua, N., & Cramp, F. (2023). Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol. BMJ Open, 13(12), Article e078183. https://doi.org/10.1136/bmjopen-2023-078183

Introduction Fatigue is the most prevalent symptom for patients with a primary brain tumour (PBT), significantly reducing quality of life and limiting daily activities. Currently, there are limited options for managing cancer-related fatigue (CRF) in... Read More about Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol.

Efficacy of pharmacological interventions: A systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article
Farisogullari, B., Santos, E. J. F., Dures, E., Geenen, R., & Machado, P. M. (2023). Efficacy of pharmacological interventions: A systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases. RMD Open, 9(4), Article e003349. https://doi.org/10.1136/rmdopen-2023-003349

ObjectiveTo identify the best evidence on the efficacy of pharmacological interventions in reducing fatigue in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and to summarise their safety in the identified studies to inform... Read More about Efficacy of pharmacological interventions: A systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article
Dures, E., Farisoğulları, B., Santos, E. J. F., Molto, A., Feldthusen, C., Harris, C., …Machado, P. M. (in press). 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases. Annals of the Rheumatic Diseases, https://doi.org/10.1136/ard-2023-224514

Objectives Fatigue is prevalent in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and recognised as one of the most challenging symptoms to manage. The existence of multiple factors associated with driving and maintaining fa... Read More about 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO) (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2024). Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO). Annals of the Rheumatic Diseases, 83(3), 394-400. https://doi.org/10.1136/ard-2023-224946

Objectives: Glucocorticoids used in the treatment of inflammatory rheumatic conditions can impact on health-related quality of life. An underpinning qualitative study developed a long-list of candidate items for a treatment-specific patient-reported... Read More about Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).

Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset (2023)
Journal Article
Lim, J., Dures, E., Bailey, L. F., Almeida, C., Ruediger, C., Hill, C., …MacKie, S. L. (2024). Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset. Rheumatology Advances in Practice, 8(1), Article rkad082. https://doi.org/10.1093/rap/rkad082

Objective: Jaw symptoms can be a vital clue to the diagnosis of GCA. Guidelines recommend more intensive treatment if jaw claudication is present. We sought to explore how patients with GCA described their jaw symptoms. Methods: We carried out a seco... Read More about Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset.

Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article
Santos, E. J. F., Farisogullari, B., Dures, E., Geenen, R., & Machado, P. M. (2023). Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases. RMD Open, 9(3), e003350. https://doi.org/10.1136/rmdopen-2023-003350

Objective: To identify the best evidence on the efficacy of non-pharmacological interventions in reducing fatigue in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and to summarise their safety in the identified studies to i... Read More about Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Bromhead, A., …Robson, J. C. (2024). Validation of a patient-reported outcome measure for giant cell arteritis. Rheumatology, 63(1), 181-189. https://doi.org/10.1093/rheumatology/kead201

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2023). E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models. Rheumatology, 62(Supplement_2), ii143. https://doi.org/10.1093/rheumatology/kead104.287

Background/Aims Systemic glucocorticoids are key in the management of life- and organ-threatening rheumatic diseases, but have wide-ranging adverse effects of concern to patients and clinicians. We aimed to validate a Patient Reported Outcome (PRO) m... Read More about E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models.

Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases (2023)
Journal Article
Chong, H. Y., McNamee, P., Bachmair, E. M., Martin, K., Aucott, L., Dhaun, N., …Basu, N. (2023). Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases. Rheumatology, 62(12), 3819-3827. https://doi.org/10.1093/rheumatology/kead157

OBJECTIVES: To estimate the cost-effectiveness of a cognitive behavioural approach (CBA) or a personalized exercise programme (PEP), alongside usual care (UC), in patients with inflammatory rheumatic diseases who report chronic, moderate to severe fa... Read More about Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases.

Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure (2023)
Journal Article
Bridgewater, S., Shepherd, M. A., Dawson, J., Richards, P., Silverthorne, C., Ndosi, M., …Robson, J. C. (2023). Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure. Rheumatology, 62(11), 3565–3575. https://doi.org/10.1093/rheumatology/kead081

OBJECTIVES: Glucocorticoids (GCs) ('steroids') are used to treat rheumatic diseases but adverse effects are common. We aimed to explore the impact of GC therapy on health-related quality of life (HRQoL), to inform the development of a treatment-speci... Read More about Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure.

Robotics technology for pain treatment and management: A review (2023)
Conference Proceeding
Higgins, A., Llewellyn, A., Dures, E., & Caleb-Solly, P. (2023). Robotics technology for pain treatment and management: A review. In F. Cavallo, O. Cabibihan, L. Fiorini, A. Sorrentino, H. He, X. Liu, …. S. S. Ge (Eds.), Social Robotics: 14th International Conference, ICSR 2022, Florence, Italy, December 13–16, 2022, Proceedings, Part I (534-545). https://doi.org/10.1007/978-3-031-24667-8_47

The use of robots for pain management is a new and active research field. The aim of this scoping review is to identify current research, which groups or conditions are being targeted for treatment, which devices are being used, and how effective the... Read More about Robotics technology for pain treatment and management: A review.

Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): Protocol for a feasibility randomised controlled trial (2023)
Journal Article
Smith, T., Khoury, R., Ashford, P., Hanson, S., Welsh, A., Clark, A., …Adams, J. (2023). Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): Protocol for a feasibility randomised controlled trial. BMJ Open, 13(1), Article e070865

Introduction: Chronic musculoskeletal (bone, joint or muscle) pain is disabling. People with it frequently have difficulties in managing everyday activities. Individuals may rely on family members or friends to support them. These people are known as... Read More about Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): Protocol for a feasibility randomised controlled trial.

Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study (2023)
Journal Article
Silverthorne, C., Daniels, J., Thompson, M., Robson, J. C., Ndosi, M., Swales, C., …Dures, E. (2023). Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study. Musculoskeletal Care, 21(2), 537-544. https://doi.org/10.1002/msc.1730

Background: Patients with inflammatory rheumatic diseases (IRDs) face challenges including pain, fatigue and disease flares. Evidence suggests their levels of anxiety and depression are higher compared to the general population. Rheumatology teams re... Read More about Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study.

Caregiving for older people living with chronic pain: Analysis of the English longitudinal study of ageing and health survey for England (2022)
Journal Article
Smith, T., Mansfield, M., Hanson, S., Welsh, A., Khoury, R., Clark, A., …Adams, J. (in press). Caregiving for older people living with chronic pain: Analysis of the English longitudinal study of ageing and health survey for England. British Journal of Pain, 204946372211442. https://doi.org/10.1177/20494637221144250

Background: Chronic pain is a disabling condition. Many people with chronic pain seek informal support for everyday activities of daily living (ADL). However, there remains uncertainty on the type of people with chronic pain who access this support,... Read More about Caregiving for older people living with chronic pain: Analysis of the English longitudinal study of ageing and health survey for England.

Therapists’ experiences of remotely delivering cognitive-behavioural or graded-exercise interventions for fatigue: A qualitative evaluation (2022)
Journal Article
Bennett, S. E., Almeida, C., Bachmair, E., Gray, S. R., Lovell, K., Paul, L., …Dures, E. (2022). Therapists’ experiences of remotely delivering cognitive-behavioural or graded-exercise interventions for fatigue: A qualitative evaluation. Rheumatology Advances in Practice, 6(3), Article rkac083. https://doi.org/10.1093/rap/rkac083

Objective: Fatigue is a challenging feature of all inflammatory rheumatic diseases. LIFT (Lessening the Impact of Fatigue in inflammatory rheumatic diseases: a randomized Trial) included remotely delivered personalized exercise programme (PEP) or cog... Read More about Therapists’ experiences of remotely delivering cognitive-behavioural or graded-exercise interventions for fatigue: A qualitative evaluation.

A qualitative study of patients’ experiences of screening for psoriatic arthritis (2022)
Journal Article
Silverthorne, C. A., Bowen, C., Lord, J., McHugh, N., Tillett, W., Dures, E., & Lissina, A. (in press). A qualitative study of patients’ experiences of screening for psoriatic arthritis. British Journal of Dermatology, https://doi.org/10.1111/bjd.21825

Psoriatic arthritis (PsA) is a chronic inflammatory arthritis which can cause pain, fatigue, swelling and stiffness in the joints, and result in limited physical function and a high psychosocial burden. Patients with psoriasis are at greater risk... Read More about A qualitative study of patients’ experiences of screening for psoriatic arthritis.

Acceptability of a brief fatigue intervention for inflammatory arthritis: A qualitative process evaluation (2022)
Journal Article
Berry, A., Bridgewater, S., Abbott, B., Adams, J., & Dures, E. (2022). Acceptability of a brief fatigue intervention for inflammatory arthritis: A qualitative process evaluation. Rheumatology Advances in Practice, 6(2), Article rkac064. https://doi.org/10.1093/rap/rkac064

Objectives: We developed a brief cognitive behavioural, one-to-one intervention to reduce fatigue impact for patients with inflammatory arthritis. This qualitative process evaluation explored intervention acceptability and potential refinements from... Read More about Acceptability of a brief fatigue intervention for inflammatory arthritis: A qualitative process evaluation.

Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2022)
Journal Article
Dures, E., Bridgewater, S., Abbott, B., Adams, J., Berry, A., McCracken, L. M., …Ewings, P. (2022). Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study. BMJ Open, 12(7), e054627. https://doi.org/10.1136/bmjopen-2021-054627

OBJECTIVES: Patients with inflammatory arthritis report that fatigue is challenging to manage. We developed a manualised, one-to-one, cognitive-behavioural intervention, delivered by rheumatology health professionals (RHPs). The Fatigue - Reducing it... Read More about Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Remotely delivered cognitive behavioural and personalised exercise interventions for fatigue severity and impact in inflammatory rheumatic diseases (LIFT): a multicentre, randomised, controlled, open-label, parallel-group trial (2022)
Journal Article
Bachmair, E. M., Martin, K., Aucott, L., Dhaun, N., Dures, E., Emsley, R., …Basu, N. (2022). Remotely delivered cognitive behavioural and personalised exercise interventions for fatigue severity and impact in inflammatory rheumatic diseases (LIFT): a multicentre, randomised, controlled, open-label, parallel-group trial. The Lancet Rheumatology, 4(8), e534-e545. https://doi.org/10.1016/S2665-9913%2822%2900156-4

Background: Chronic fatigue is a poorly managed problem in people with inflammatory rheumatic diseases. Cognitive behavioural approaches (CBA) and personalised exercise programmes (PEP) can be effective, but they are not often implemented because the... Read More about Remotely delivered cognitive behavioural and personalised exercise interventions for fatigue severity and impact in inflammatory rheumatic diseases (LIFT): a multicentre, randomised, controlled, open-label, parallel-group trial.

Remotely delivered cognitive-behavioural and personalized exercise interventions to lessen the impact of fatigue: A qualitative evaluation (2022)
Journal Article
Bennett, S. E., Almeida, C., Bachmair, E. M., Gray, S. R., Lovell, K., Paul, L., …Dures, E. (2022). Remotely delivered cognitive-behavioural and personalized exercise interventions to lessen the impact of fatigue: A qualitative evaluation. Rheumatology Advances in Practice, 6(2), Article rkac051. https://doi.org/10.1093/rap/rkac051

Objectives: Fatigue can be a disabling symptom of inflammatory rheumatic diseases. LIFT (Lessening the Impact of Fatigue in inflammatory rheumatic diseases: a randomized Trial) is a randomized trial of remotely delivered cognitive-behavioural approac... Read More about Remotely delivered cognitive-behavioural and personalized exercise interventions to lessen the impact of fatigue: A qualitative evaluation.

POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis (2022)
Conference Proceeding
Robson, J., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Guly, C., …Ndosi, M. (2022). POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis. . https://doi.org/10.1136/annrheumdis-2022-eular.1769

Background Giant cell arteritis (GCA) is caused by inflammation of the blood vessels of the head and neck; patients can present with cranial, ocular or large vessel vasculitis involvement. Treatment is with glucocorticoids, steroid sparing agents a... Read More about POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis.

P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness (2022)
Journal Article
Hulley-Mills, J., Silverthorne, C., Jones, B., Hooper, J., Robson, J., Dures, E., …Ndosi, M. (2022). P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness. Rheumatology, 61(Supplement_1), https://doi.org/10.1093/rheumatology/keac133.288

Background/Aims Autoimmune rheumatic conditions are multisystem chronic disorders associated with increased psychological distress. Consequences include poor medication adherence and high levels of disease activity. Psychological interventions may r... Read More about P289 The effectiveness of interventions to reduce psychological distress in patients with autoimmune rheumatic conditions: A systematic review of effectiveness.

P301 Patient reported outcome measure for giant cell arteritis: Clinical testing (2022)
Journal Article
Almeida, C., Guly, C., Mackie, S., Bromhead, A., Stern, S., Dures, E., …Robson, J. C. (2022). P301 Patient reported outcome measure for giant cell arteritis: Clinical testing. Rheumatology, 61(Supplement_1), Article keac133.300. https://doi.org/10.1093/rheumatology/keac133.300

Background/Aims Giant cell arteritis (GCA) presents in people over 50, with headaches, visual involvement and large vessel vasculitis. A 30-item GCA-specific patient reported outcome measure (GCA PRO) was developed and tested in a clinical setting t... Read More about P301 Patient reported outcome measure for giant cell arteritis: Clinical testing.

Patient preferences for long-term follow-up after hip replacement (2021)
Journal Article
Smith, L., Turner, E., & Dures, E. (2022). Patient preferences for long-term follow-up after hip replacement. Annals of The Royal College of Surgeons of England, 104(1), 34-37

Abstract Introduction As the demand for hip replacement continues to grow and the resources for health care are in high demand, it is necessary to reconsider historical recommendations for long-term follow-up of all patients. This study explored... Read More about Patient preferences for long-term follow-up after hip replacement.

Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study (2021)
Journal Article
Jones, B., Ndosi, M., Hunt, A., Harcourt, D., & Dures, E. (2021). Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study. Rheumatology Advances in Practice, 5(Supplement_2), ii35-ii44. https://doi.org/10.1093/rap/rkab053

Objectives Patient activation covers the skills, abilities and behaviour that impact how able and willing someone is to take an active role in self-managing their health. This study explored clinical and psychosocial factors associated with patient a... Read More about Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study.

Fatigue in inflammatory rheumatic diseases: Current knowledge and areas for future research (2021)
Journal Article
Davies, K., Dures, E., & Ng, W. F. (2021). Fatigue in inflammatory rheumatic diseases: Current knowledge and areas for future research. Nature Reviews Rheumatology, 17, 651–664. https://doi.org/10.1038/s41584-021-00692-1

Fatigue is a complex phenomenon and an important health concern for many people with chronic inflammatory rheumatic diseases, such as rheumatoid arthritis, psoriatic arthritis, primary Sjögren syndrome and systemic lupus erythematosus. Although some... Read More about Fatigue in inflammatory rheumatic diseases: Current knowledge and areas for future research.

Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data (2021)
Journal Article
Austin, K., Dures, E., Almeida, C., Cramp, F., Guly, C. M., Hill, C. L., …Robson, J. C. (2022). Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data. Arthritis Care and Research, 74(1), 99-106. https://doi.org/10.1002/acr.24800

Objective: To explore patient perceptions of physical activity in giant cell arteritis (GCA). Methods: This was a multinational qualitative study, analyzing interview data collected from participants from the UK (n=25) and Australia (n=11) with a def... Read More about Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data.

Rheumatic Conditions (2021)
Book Chapter
Dures, E., & Jones, B. (2021). Rheumatic Conditions. In Reference Module in Neuroscience and Biobehavioral Psychology. Elsevier

Rheumatic conditions are a range of long-term, physical health conditions that affect the joints, bones, and connective tissues. These conditions can have substantial psychological impact and wide-reaching effects on patients' lives. These conditions... Read More about Rheumatic Conditions.

AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases (2021)
Journal Article
Bridgewater, S., Dawson, J., Ndosi, M., Black, R. J., Cheah, J. T. L., Dures, E., …Robson, J. (2021). AB0834 Development of a conceptual framework for a patient reported outcome measure to capture patients’ perceptions of glucocorticoid therapy during treatment for rheumatic diseases. https://doi.org/10.1136/annrheumdis-2021-eular.164

P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation (2021)
Journal Article
Berry, A., Bridgewater, S., Abbott, B., Adams, J., & Dures, E. (2021). P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation. Rheumatology, 60(S1), https://doi.org/10.1093/rheumatology/keab247.195

Abstract Background/Aims  Patients with inflammatory arthritis report fatigue as a primary symptom that affects everyday life. FREE-IA (Fatigue - Reducing its Effects through individualised support Episodes in Inflammatory Arthritis) is a feasibi... Read More about P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation.

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), Article keab246.025. https://doi.org/10.1093/rheumatology/keab246.025

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article
Jones, B., Hunt, A., Hewlett, S., Harcourt, D., & Dures, E. (2022). Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study. Musculoskeletal Care, 20(1), 74-85. https://doi.org/10.1002/msc.1555

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support (2021)
Journal Article
Humphrey, P., Dures, E., Hoskin, P., & Cramp, F. (2021). Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support. Radiotherapy and Oncology, 159, 60-66. https://doi.org/10.1016/j.radonc.2021.03.007

Background and purpose: Gynaecological brachytherapy can cause anxiety, distress and discomfort. It is not known how variation in delivery impacts women's experiences. To inform future research an online survey was carried out to identify variations... Read More about Brachytherapy for locally advanced cervical cancer: A survey of UK provision of care and support.

Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure (2021)
Journal Article
Robson, J. C., Almeida, C., Dawson, J., Bromhead, A., Dures, E., Guly, C., …Hill, C. (2021). Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure. Rheumatology, 60(10), 4671-4680. https://doi.org/10.1093/rheumatology/keab076

Objectives: GCA is a large vessel vasculitis (LVV) presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL-6 tocilizumab in refractory disease. The objective of this study w... Read More about Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure.

2020 EULAR points to consider for the prevention, screening, assessment and management of non-adherence to treatment in people with rheumatic and musculoskeletal diseases for use in clinical practice (2020)
Journal Article
Ritschl, V., Stamm, T. A., Aletaha, D., Bijlsma, J. W. J., Böhm, P., Dragoi, R. G., …Carmona, L. (2021). 2020 EULAR points to consider for the prevention, screening, assessment and management of non-adherence to treatment in people with rheumatic and musculoskeletal diseases for use in clinical practice. Annals of the Rheumatic Diseases, 80(6), 707-713. https://doi.org/10.1136/annrheumdis-2020-218986

Background Non-adherence to treatment could preclude reaching an optimal outcome. Thirty to 80% of patients with rheumatic and musculoskeletal diseases (RMDs) do not adhere to the agreed treatment. Objectives The objective was to establish points to... Read More about 2020 EULAR points to consider for the prevention, screening, assessment and management of non-adherence to treatment in people with rheumatic and musculoskeletal diseases for use in clinical practice.

Prevention, screening, assessing and managing of non-adherent behaviour in people with rheumatic and musculoskeletal diseases: Systematic reviews informing the 2020 EULAR points to consider (2020)
Journal Article
Ritschl, V., Stamm, T. A., Aletaha, D., Bijlsma, J. W. J., Böhm, P., Dragoi, R., …de Thurah, A. (2020). Prevention, screening, assessing and managing of non-adherent behaviour in people with rheumatic and musculoskeletal diseases: Systematic reviews informing the 2020 EULAR points to consider. RMD Open, 6(3), e001432. https://doi.org/10.1136/rmdopen-2020-001432

© Objective To analyse how non-adherence to prescribed treatments might be prevented, screened, assessed and managed in people with rheumatic and musculoskeletal diseases (RMDs). Methods An overview of systematic reviews (SR) was performed in four b... Read More about Prevention, screening, assessing and managing of non-adherent behaviour in people with rheumatic and musculoskeletal diseases: Systematic reviews informing the 2020 EULAR points to consider.

Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article
Austin, K., Robson, J. C., Shepherd, M., Harper, L., Ndosi, M., Flurey, C., …Dures, E. (2020). Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives. Rheumatology Advances in Practice, 4(2), Article rkaa016. https://doi.org/10.1093/rap/rkaa016

© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.

Mixed methods study of clinicians' perspectives on barriers to implementation of treat to target in psoriatic arthritis (2020)
Journal Article
Dures, E., Taylor, J., Shepperd, S., Mukherjee, S., Robson, J., Vlaev, I., …Coates, L. C. (2020). Mixed methods study of clinicians' perspectives on barriers to implementation of treat to target in psoriatic arthritis. Annals of the Rheumatic Diseases, 79(8), 1031-1036. https://doi.org/10.1136/annrheumdis-2020-217301

Objectives: In treat to target (T2T), the patient is treated to reach and maintain specified and sequentially measured goals, such as remission or low disease activity. T2T in psoriatic arthritis (PsA) has demonstrated improved clinical and patient-r... Read More about Mixed methods study of clinicians' perspectives on barriers to implementation of treat to target in psoriatic arthritis.

Fatigue in inflammatory arthritis (2020)
Journal Article
Dures, E., Cramp, F., Hackett, K., & Primdahl, J. (2020). Fatigue in inflammatory arthritis. Best Practice and Research: Clinical Rheumatology, 34(2), Article 101526. https://doi.org/10.1016/j.berh.2020.101526

Fatigue is highly prevalent in inflammatory arthritis, and people living with the symptom have described it as overwhelming and a challenge to manage. In this article, we explore the experience, impact and non-pharmacological management of fatigue fr... Read More about Fatigue in inflammatory arthritis.

Treat-to-target in PsA: methods and necessity (2020)
Journal Article
Dures, E., Shepperd, S., Mukherjee, S., Robson, J., Vlaev, I., Walsh, N., & Coates, L. C. (2020). Treat-to-target in PsA: methods and necessity. RMD Open, 6(1), Article e001083. https://doi.org/10.1136/rmdopen-2019-001083

© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. With increasing recognition of the high burden and impact of psoriatic arthritis (PsA) and the growing numbe... Read More about Treat-to-target in PsA: methods and necessity.

Hip and knee replacements: Should we follow them up? A survey of orthopaedic health professionals (2020)
Journal Article
Rose, A., Dures, E., & Smith, L. K. (2020). Hip and knee replacements: Should we follow them up? A survey of orthopaedic health professionals. Musculoskeletal Care, 18(1), 74-80. https://doi.org/10.1002/msc.1427

The aim of this study was to collect evidence on the current view of orthopaedic health professionals on follow-up services after hip or knee replacement. It consisted of a short survey that was distributed, following ethical approval, at the British... Read More about Hip and knee replacements: Should we follow them up? A survey of orthopaedic health professionals.

A biopsychosocial network model of fatigue in rheumatoid arthritis: A systematic review (2019)
Journal Article
Geenen, R., & Dures, E. (2019). A biopsychosocial network model of fatigue in rheumatoid arthritis: A systematic review. Rheumatology, 58(Supplement_5), v10-v21. https://doi.org/10.1093/rheumatology/kez403

Fatigue in RA is prevalent, intrusive and disabling. We propose a network model of fatigue encompassing multiple and mutually interacting biological, psychological and social factors. Guided by this model, we reviewed the literature to offer a compre... Read More about A biopsychosocial network model of fatigue in rheumatoid arthritis: A systematic review.

Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations (2019)
Journal Article
Hewlett, S., Almeida, C., Ambler, N., Blair, P. S., Choy, E., Dures, E., …Pollock, J. (2019). Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations. Health Technology Assessment, 23(57), https://doi.org/10.3310/hta23570

BACKGROUND: Fatigue is a major problem in rheumatoid arthritis (RA). There is evidence for the clinical effectiveness of cognitive-behavioural therapy (CBT) delivered by clinical psychologists, but few rheumatology units have psychologists. OBJECTIVE... Read More about Group cognitive–behavioural programme to reduce the impact of rheumatoid arthritis fatigue: The RAFT RCT with economic and qualitative evaluations.

Hip arthroplasty surveillance: Is it really needed? (2019)
Conference Proceeding
Smith, L., Powell, J., Dures, E., Palmer, S., Lenguerrand, E., Beswick, A., & Blom, A. (2019). Hip arthroplasty surveillance: Is it really needed?

Abstract for BOA 2019 Although long-term follow up of joint replacement is advocated, in a national audit of 42 orthopaedic units, only 43% were continuing follow up beyond 5 years. Four studies were conducted using mixed methods research to address... Read More about Hip arthroplasty surveillance: Is it really needed?.

Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients (2019)
Journal Article
Dures, E., Bowen, C., Brooke, M., Lord, J., Tillett, W., McHugh, N., & Hewlett, S. (2019). Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients. Rheumatology Advances in Practice, 3(2), Article rkz022. https://doi.org/10.1093/rap/rkz022

Objectives. PsA is an inflammatory condition that can cause pain, fatigue, swelling and joint stiffness. The consequences include impaired physical function, a high psychosocial burden, reduced quality of life and work disability. The presenting sym... Read More about Diagnosis and initial management in psoriatic arthritis: A qualitative study with patients.

Systematic review of the clinical effectiveness for long-term follow-up of total hip arthroplasty (2019)
Journal Article
Smith, L. K., Dures, E., & Beswick, A. (2019). Systematic review of the clinical effectiveness for long-term follow-up of total hip arthroplasty. Orthopedic Research and Reviews, 11, 69-78. https://doi.org/10.2147/ORR.S199183

Objectives Total hip arthroplasty (THA) is highly successful but national registries indicate that average age has lowered and that younger patients are at higher risk of revision. Long-term follow-up of THA was historically recommended to identify... Read More about Systematic review of the clinical effectiveness for long-term follow-up of total hip arthroplasty.

Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences (2019)
Journal Article
Dures, E., Rooke, C., Hammond, A., & Hewlett, S. (2019). Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences. Rheumatology Advances in Practice, 3(2), 1-7. https://doi.org/10.1093/rap/rkz032

Objectives. Successful, non-pharmacological research interventions are challenging to implement in clinical practice. The aim of the study was to understand the experiences of rheumatology nurses and occupational therapists (tutors) delivering a nove... Read More about Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences.

The experience of people with rheumatoid arthritis living with fatigue: A qualitative metasynthesis (2019)
Journal Article
Primdahl, J., Hegelund, A., Lorenzen, A. G., Løppenthin, K., Dures, E., & Esbensen, B. A. (2019). The experience of people with rheumatoid arthritis living with fatigue: A qualitative metasynthesis. BMJ Open, 9(3), Article e024338. https://doi.org/10.1136/bmjopen-2018-024338

Objectives To identify, appraise and synthesise qualitative studies on the experience of living with rheumatoid arthritis (RA)-related fatigue. Methods We conducted a qualitative metasynthesis encompassing a systematic literature search in Febr... Read More about The experience of people with rheumatoid arthritis living with fatigue: A qualitative metasynthesis.

Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT) (2019)
Journal Article
Hewlett, S., Almeida, C., Ambler, N., Blair, P. S., Choy, E. H., Dures, E., …Pollock, J. (2019). Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT). Annals of the Rheumatic Diseases, 78(4), 465-472. https://doi.org/10.1136/annrheumdis-2018-214469

© Author(s) (or their employer(s)) 2019. Objectives To see if a group course delivered by rheumatology teams using cognitive-behavioural approaches, plus usual care, reduced RA fatigue impact more than usual care alone. Methods Multicentre, 2-year ra... Read More about Reducing arthritis fatigue impact: Two-year randomised controlled trial of cognitive behavioural approaches by rheumatology teams (RAFT).

Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data (2018)
Journal Article
Erskine, G., Dures, E., McHugh, N., & Hewlett, S. (2018). Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data. Rheumatology Advances in Practice, 2(2), 1-7. https://doi.org/10.1093/rap/rky023

© The Author(s) 2018. Background. PsA is an inflammatory arthritis associated with psoriasis, affecting the joints and connective tissue. According to the common-sense model (CSM), patients develop illness beliefs when faced with new symptoms, which... Read More about Exploring the illness representations of people with psoriatic arthritis: A secondary analysis of focus group data.

Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis (2017)
Journal Article
Robson, J., Pauling, J. D., Domsic, R. T., Saketkoo, L. A., Almeida, C., Withey, J., …Hewlett, S. (2018). Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis. Arthritis Care and Research, 70(9), 1373-1384. https://doi.org/10.1002/acr.23475

© 2017, American College of Rheumatology Objective: Raynaud's phenomenon (RP) is the most common manifestation of systemic sclerosis (SSc). RP is an episodic phenomenon, not easily assessed in the clinic, leading to reliance on self-report. A thoroug... Read More about Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis.

The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries (2017)
Journal Article
Hewlett, S., Kirwan, J., Bode, C., Cramp, F., Carmona, L., Dures, E., …Gossec, L. (2018). The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries. Rheumatology, 57(2), 300-308. https://doi.org/10.1093/rheumatology/kex370

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To evaluate the Bristol Rheumatoid Arthritis Fatigue Multidimensional Questionnaire (BRAFMDQ), the revised Bris... Read More about The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries.

A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis (2017)
Journal Article
Helliwell, P. S., Tillett, W., Dures, E., Hewlett, S., FitzGerald, O., Brooke, M., …McHugh, N. (2017). A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis. Journal of Rheumatology, 44(10), 1445-1452. https://doi.org/10.3899/jrheum.161459

© Copyright 2017 The Journal of Rheumatology. All rights reserved. Objective. To rank outcomes identified as important to patients with psoriatic arthritis (PsA) and examine their representation in existing composite measures. Methods. Seven nominal... Read More about A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis.

Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure (2017)
Journal Article
Kirwan, J. R., Halls, S., Dures, E., Pollock, J., Baker, G., Edmunds, A., & Hewlett, S. (2018). Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure. Rheumatology, 57(2), 263-272. https://doi.org/10.1093/rheumatology/kex085

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To qualitatively develop and test a set of candidate items for a new RA stiffness patientreported outcome measu... Read More about Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure.

Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study (2017)
Journal Article
Tillett, W., Dures, E., Hewlett, S., Lord, J., Bowen, C., & McHugh, N. (2017). Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study. Patient, 10(4), 455-462. https://doi.org/10.1007/s40271-017-0221-4

© 2017, The Author(s). Background: Psoriatic arthritis (PsA) is a variable and complex inflammatory condition. Symptoms can compromise physical function, reduce quality of life, and accrue significant health costs. Commonly used patient-reported outc... Read More about Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study.

The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study (2017)
Journal Article
Kirwan, J., Wilson, O., Dures, E., Quest, E., & Hewlett, S. (2017). The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study. Journal of Foot and Ankle Research, 10(1), https://doi.org/10.1186/s13047-017-0188-3

© 2017 The Author(s). Background: Although foot problems are common in rheumatoid arthritis (RA), the consequences of foot problems from the patient perspective have not been fully explored. The aims of this study were to explore the experience of fo... Read More about The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study.

International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials (2016)
Journal Article
Christensen, R., Callis Duffin, K., Elmamoun, M., Grieb, S. D., Shea, J. A., De Wit, M., …Ogdie, A. (2017). International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials. Annals of the Rheumatic Diseases, 76(4), 673-680. https://doi.org/10.1136/annrheumdis-2016-210242

© 2017 Published by the BMJ Publishing Group Limited. Objective To identify a core set of domains (outcomes) to be measured in psoriatic arthritis (PsA) clinical trials that represent both patients' and physicians' priorities. Methods We conducted (1... Read More about International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials.

Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey (2016)
Journal Article
Morris, M., Ambler, N., Caesley, J., Peterson, A., Fraser, I., Dures, E., …Pollock, J. (2017). Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey. Musculoskeletal Care, 15(3), 175-185. https://doi.org/10.1002/msc.1159

Copyright © 2016 John Wiley & Sons, Ltd. Objectives: Psychological support for inflammatory arthritis is recommended in rheumatology treatment guidelines. Previous research found that high numbers of patients would access such support but that prov... Read More about Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey.

Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages (2016)
Journal Article
Hagel, S., Bode, C., Hewlett, S., Nicklin, J., Bode, C., Carmona, L., …Gossec, L. (2016). Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages. Rheumatology, 55(6), 1009-1016. https://doi.org/10.1093/rheumatology/kew011

© The Author 2016. Objective. Cross-cultural translation of patient-reported outcome measures (PROMs) is a lengthy process, often performed professionally. Cognitive interviewing assesses patient comprehension of PROMs. The objective was to evaluate... Read More about Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages.

A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations (2016)
Journal Article
Clarke, J., Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J., & Gooberman-Hill, R. (2016). A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations. BMC Musculoskeletal Disorders, 17(1), 129-137. https://doi.org/10.1186/s12891-016-0984-0

© 2016 Dures et al. Background: Self-management of inflammatory arthritis (IA) requires patients to address the impact of symptoms, treatment, and the psychosocial consequences of a long term condition. There are several possible mechanisms for facil... Read More about A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations.

A survey of psychological support provision for people with inflammatory arthritis in secondary care in England (2016)
Journal Article
Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., …Hewlett, S. (2016). A survey of psychological support provision for people with inflammatory arthritis in secondary care in England. Musculoskeletal Care, 12(3), 173-181. https://doi.org/10.1002/msc.1071

© 2014 The Authors. Objectives: The consequences of inflammatory arthritis can include depression, anxiety and low mood, reducing patients' quality of life and increasing pressure on the healthcare system. Treatment guidelines recommend psychological... Read More about A survey of psychological support provision for people with inflammatory arthritis in secondary care in England.

Patient preferences for psychological support in inflammatory arthritis: A multicentre survey (2016)
Journal Article
Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., …Hewlett, S. (2016). Patient preferences for psychological support in inflammatory arthritis: A multicentre survey. Annals of the Rheumatic Diseases, 75(1), 142-147. https://doi.org/10.1136/annrheumdis-2014-205636

Objectives. Inflammatory arthritis (IA) can lead to anxiety, depression, pain and fatigue. Psychological support can improve quality of life and selfmanagement; and European and American guidelines recommend support be offered. This study examined pa... Read More about Patient preferences for psychological support in inflammatory arthritis: A multicentre survey.

Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches (2015)
Journal Article
Hewlett, S., Ambler, N., Almeida, C., Blair, P. S., Choy, E., Dures, E., …Pollock, J. (2015). Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches. BMJ Open, 5(8), https://doi.org/10.1136/bmjopen-2015-009061

Introduction: Rheumatoid arthritis (RA) fatigue is distressing, leading to unmanageable physical and cognitive exhaustion impacting on health, leisure and work. Group cognitive-behavioural (CB) therapy delivered by a clinical psychologist demonstrate... Read More about Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches.

Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis (2014)
Journal Article
Kirwan, J., Halls, S., Dures, E., Kirwan, J. R., Pollock, J., Baker, G., …Hewlett, S. (2014). Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis. Rheumatology, 54(4), 615-622. https://doi.org/10.1093/rheumatology/keu379

© The Author 2014. Objective. Stiffness is internationally recognized as an important indicator of inflammatory activity in RA but is poorly understood and difficult to measure. The aim of this study was to explore the experience of stiffness from th... Read More about Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis.

Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management (2014)
Journal Article
Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J., & Gooberman-Hill, R. (2014). Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management. BMC Musculoskeletal Disorders, 15(1), 108. https://doi.org/10.1186/1471-2474-15-108

Background: Self-management of arthritis requires informed, activated patients to manage its physical and psychosocial consequences. Patient activation and self-management can be enhanced through the use of cognitive-behavioural approaches, which hav... Read More about Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management.

Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales (2013)
Journal Article
Nicklin, J. K., Cramp, F. A., Hewlett, S. E., Dures, E. K., Dures, E., Hewlett, S., …Kirwan, J. R. (2013). Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales. Rheumatology, 52(10), 1832-1839. https://doi.org/10.1093/rheumatology/ket218

Objective. To examine the reliability (stability) and sensitivity of the Bristol Rheumatoid Arthritis Fatigue scales (BRAFs) and patient-reported outcome measures (PROMs) developed to capture the fatigue experience. The Multi-Dimensional Questionnair... Read More about Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales.

Cognitiveg-behavioural approaches to self-management in rheumatic disease (2012)
Journal Article
Dures, E., & Hewlett, S. (2012). Cognitiveg-behavioural approaches to self-management in rheumatic disease. Nature Reviews Rheumatology, 8(9), 553-559. https://doi.org/10.1038/nrrheum.2012.108

Patients with rheumatic disease must adjust psychosocially and behaviourally in order to manage the impact of symptoms and treatment on their daily lives, and the emotional consequences of the disease. However, patients can improve their well-being b... Read More about Cognitiveg-behavioural approaches to self-management in rheumatic disease.

"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue (2012)
Journal Article
Swinkels, A., Almeida, C., Kitchen, K., Dures, E., Almeida, C., Ambler, N., …Hewlett, S. (2012). "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis and Rheumatism, 64(4), 494-501. https://doi.org/10.1002/acr.21562

Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructu... Read More about "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue.

Approaching parents to take part in a cleft gene bank: A qualitative pilot study (2012)
Journal Article
Williams, L., Dures, E., Waylen, A., Ireland, T., Rumsey, N., & Sandy, J. (2012). Approaching parents to take part in a cleft gene bank: A qualitative pilot study. Cleft Palate-Craniofacial Journal, 49(4), 425-436. https://doi.org/10.1597/10-086

Objective: A gene bank, comprising genetic material and environmental and family history data, is being established in the United Kingdom to improve the understanding of the etiology of orofacial clefting (OFC). This study aimed to identify factors t... Read More about Approaching parents to take part in a cleft gene bank: A qualitative pilot study.

Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi- (2011)
Journal Article
Hewlett, S., Dures, E., & Almeida, C. (2011). Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi-. Arthritis and Rheumatism, 63(SUPPL. 11), S263-S286. https://doi.org/10.1002/acr.20579

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Journal Article
Leong, A. L., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., Fries, J. F., Kirwan, J. R., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.

The psychosocial impact of Epidermolysis bullosa (2011)
Journal Article
Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2011). The psychosocial impact of Epidermolysis bullosa. Qualitative Health Research, 21(6), 771-782. https://doi.org/10.1177/1049732311400431

Epidermolysis bullosa (EB) is a disease in which the skin blisters in response to minimal friction, causing painful wounds. Despite the potentially severe nature of epidermolysis bullosa, research on the psychosocial issues is scarce. The aims of the... Read More about The psychosocial impact of Epidermolysis bullosa.

Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm (2011)
Journal Article
Gleeson, K., Morris, M., Dures, E., & Rumsey, N. (2011). Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm. Journal of Health Psychology, 16(2), 332-341. https://doi.org/10.1177/1359105310377537

This article has two purposes: to examine why mixed methods is a legitimate approach particularly well suited to health psychology; and to describe the challenges inherent in conducting mixed methods research. First, arguments justifying the status o... Read More about Mixed methods in health psychology: Theoretical and practical considerations of the third paradigm.

'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa (2010)
Journal Article
Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2010). 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa. Chronic Illness, 6(3), 215-227. https://doi.org/10.1177/1742395310377006

Objectives: Professionals working with people who encounter pain and suffering can experience adverse emotional effects themselves. However, to provide effective support it is necessary to understand specific work-related experiences and contexts. Th... Read More about 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa.

Survey of contemporary health professional views on arthroplasty surveillance
Presentation / Conference
Rose, A., Dures, E., & Smith, L. K. Survey of contemporary health professional views on arthroplasty surveillance

Survey of contemporary health professional views on arthroplasty surveillance A. Rose, E. Dures and L. K. Smith Musculoskeletal Research Unit, Translational Health Sciences, Bristol Medical School, University of Bristol, Learning and Research Bui... Read More about Survey of contemporary health professional views on arthroplasty surveillance.