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Outputs (258)

Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries (2024)
Journal Article

Alongside typical parenting challenges, initial condition-specific research suggests that parents of children with different visible differences may experience similar psychosocial difficulties. Despite this, large-scale cross-condition research to i... Read More about Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries.

Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey (2024)
Journal Article

Introduction: Healthcare professionals are vital in preparing people living with and beyond cancer about the risks of chronic pain after cancer treatment. To do so, healthcare professionals need to be knowledgeable and confident about chronic pain af... Read More about Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey.

More than my appearance: A pilot evaluation of the Expand Your Horizon online functionality-based writing programme for adults with visible differences (2024)
Journal Article

Background: Adults with conditions that affect their appearance, known as visible differences, can experience appearance concerns, social anxiety, and depression. Interventions have been developed for this population to facilitate adjustment and copi... Read More about More than my appearance: A pilot evaluation of the Expand Your Horizon online functionality-based writing programme for adults with visible differences.

Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues (2024)
Journal Article

Combat-related physical injuries not only affect the individual but also close family members. Emerging evidence indicates that injuries that change appearance, such as limb loss and physical scarring, may create additional psychosocial challenges fo... Read More about Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues.

Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention (2024)
Journal Article

BACKGROUND: Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention.

Mothers’ experiences of their sons’ appearance-altering combat injuries: Distressed and unsupported (2023)
Journal Article

Emerging evidence indicates that combat injuries that change appearance, such as limb loss and physical scarring, can impact psychosocial wellbeing of injured military veterans. Parents of young children with a visibly different appearance may experi... Read More about Mothers’ experiences of their sons’ appearance-altering combat injuries: Distressed and unsupported.

Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition (2023)
Journal Article

Adolescents with the rare birthmarks congenital melanocytic naevi (CMN) experience physical and psychosocial challenges, many of which stem from looking different from the ‘norm’. However, some adjust and have positive experiences. Understanding the... Read More about Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition.

Congenital Melanocytic Naevus (CMN) through the lens: Using photo- elicitation interviews to explore adjustment in adolescents with a rare birthmark condition (2023)
Journal Article

Adolescents with the rare birthmarks congenital melanocytic naevi (CMN) experience physical and psychosocial challenges, many of which stem from looking different from the ‘norm’. However, some adjust and have positive experiences. Understanding the... Read More about Congenital Melanocytic Naevus (CMN) through the lens: Using photo- elicitation interviews to explore adjustment in adolescents with a rare birthmark condition.

Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain (2023)
Presentation / Conference Contribution

Background. Patient and Public Involvement (PPI) can help shape research. It is important to capture the impacts that PPI have on cancer nursing doctoral research. Methods: Two Public Contributors, who were cancer survivors living with chronic post... Read More about Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain.

‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary (2023)
Journal Article

Introduction Those with an altered appearance as a result of injury, health condition or treatment can face stigma, which may contribute to adverse psychosocial outcomes. However, current research tends to focus on supporting individuals themselve... Read More about ‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary.

'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK (2023)
Journal Article

Aim: To explore cancer survivors’ experiences of living with chronic pain after curative cancer treatment in England, UK. Methods: A qualitative study using telephone interviews with adult cancer survivors experiencing chronic pain after curative can... Read More about 'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK.

The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer (2023)
Presentation / Conference Contribution

Title: The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer Objectives/purpose: Development of clinical recommendations to improve experiences of chronic... Read More about The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer.

Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes? (2023)
Journal Article

Having a visible difference caused by an appearance-altering condition or injury can impact psychosocial wellbeing. It remains unestablished whether the time at which a visible difference manifests, namely pre-memory (congenital) or later (acquired),... Read More about Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?.

Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects (2022)
Journal Article

Purpose: Head and neck cancer (HNC) patients are at risk of long-term body image distress (BID). We aimed to investigate the severity of BID in long-term HNC survivors and to explore the associations between sociodemographic and clinical factors, pat... Read More about Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects.

What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review (2022)
Journal Article

Aim: To identify and review the success of non-pharmaceutical, non-surgical biopsychosocial interventions in individuals with endometriosis, in managing pain and improving body image. Methods: Cochrane, EBSCO, IBSS, NICE, Open Grey, OVID, Proquest, S... Read More about What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review.

The impact of hegemonic masculine ideals on self-esteem in prostate cancer patients undergoing androgen deprivation therapy (ADT) compared to ADT-naïve patients (2022)
Journal Article

Purpose: Androgen deprivation therapy (ADT) for Prostate Cancer (PCa) is associated with side effects that could lead to negative body image and low masculine self-esteem of survivors. We compared a group of PCa survivors following ADT with ADT-naïve... Read More about The impact of hegemonic masculine ideals on self-esteem in prostate cancer patients undergoing androgen deprivation therapy (ADT) compared to ADT-naïve patients.

Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study (2022)
Journal Article

Background: Burn injuries affect more than 60,000 children every year in the UK, with many experiencing scarring as a result. Scarring can be highly variable, and research is required to explore the factors that may influence variability, as well as... Read More about Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study.

A systematic review of interventions aiming to promote positive body image in children and adolescents (2022)
Journal Article

Evidence shows interventions can improve positive body image in adult women. This systematic review examined the evidence of efficacy of interventions that aimed to increase positive body image in children and young people aged under 18 years. The au... Read More about A systematic review of interventions aiming to promote positive body image in children and adolescents.

Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study (2022)
Journal Article

Purpose: The provision of practical and emotional support for men who have been diagnosed with breast cancer in the UK falls primarily on their partners, close family members or friends. However, informal carers’ experiences are omitted from the rese... Read More about Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study.

Body image and psychosocial well-being among UK military personnel and veterans who sustained appearance-altering conflict injuries (2022)
Journal Article

A modest but significant number of military personnel sustained injuries during deployments resulting in an altered-appearance (e.g., limb loss and/or scarring). Civilian research indicates that appearance-altering injuries can affect psychosocial we... Read More about Body image and psychosocial well-being among UK military personnel and veterans who sustained appearance-altering conflict injuries.

The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury (2022)
Journal Article

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adu... Read More about The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury.

Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers (2021)
Journal Article

Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.

Health care professionals’ views regarding chronic post cancer treatment pain in cancer survivors: understanding, experience and confidence (2021)
Presentation / Conference Contribution

Introduction: Chronic post-cancer treatment pain (CPCTP) is pain caused by cancer treatments, such as chemotherapy, radiotherapy or surgery (1). The prevalence of CPCTP affects many cancer ranges from 24 to 48% of people who have finished cancer t... Read More about Health care professionals’ views regarding chronic post cancer treatment pain in cancer survivors: understanding, experience and confidence.

Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study (2021)
Journal Article

Objectives Patient activation covers the skills, abilities and behaviour that impact how able and willing someone is to take an active role in self-managing their health. This study explored clinical and psychosocial factors associated with patient a... Read More about Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study.

"Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury (2021)
Journal Article

Children and young people (CYP) with appearance-affecting conditions/injuries report common pervasive psychosocial difficulties, regardless of cause, nature or extent of their visible differences. Parents or carers can also experience psychosocial di... Read More about "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss (2021)
Journal Article

The psychological and social impact of hair loss and its ongoing treatment can be considerable. Medical treatments are not always successful, and alternative treatments, such as medical tattooing, are growing in popularity. The aims of this study wer... Read More about ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss.

A qualitative investigation of the acceptability and feasibility of a urinary tract infection patient information leaflet for older adults and their carers (2021)
Journal Article

Urinary tract infections (UTIs) can be life threatening in older adults. The aim of this study was to primarily understand the acceptability and feasibility of using a UTI leaflet for older adults in care homes and the community. Qualitative intervie... Read More about A qualitative investigation of the acceptability and feasibility of a urinary tract infection patient information leaflet for older adults and their carers.

‘Everybody’s Different: The Appearance Game’. A randomised controlled trial evaluating an appearance-related board game intervention with children aged 9-11 years (2020)
Journal Article

This study evaluated the effectiveness of an educational board game aimed at increasing knowledge of appearance-related issues, positive body image, media literacy, and acceptance of appearance diversity with British school children. Two hundred and... Read More about ‘Everybody’s Different: The Appearance Game’. A randomised controlled trial evaluating an appearance-related board game intervention with children aged 9-11 years.

Psychological and sociocultural influences on body image among midlife women with and without a history of breast cancer: Testing the Tripartite Influence Model of Body Image (2020)
Journal Article

Body image concerns are common among breast cancer survivors and women in midlife. However, effective interventions are lacking for breast cancer survivors. This may be related to prior research having examined non-modifiable and medicalised influenc... Read More about Psychological and sociocultural influences on body image among midlife women with and without a history of breast cancer: Testing the Tripartite Influence Model of Body Image.

The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury (2020)
Journal Article

Purpose: Patient-reported outcome measures (PROMs) identify patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale: Child Form, a parent-proxy-reported outcome measure that assesses quality o... Read More about The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury.

Body image concerns and psychological wellbeing among injured combat veterans with scars and limb loss: A review of the literature (2020)
Journal Article

A narrative literature review aimed to determine the nature and prevalence of body image and psychosocial concerns and associated support needs among veterans with combat-related appearance-altering injuries. A systematic approach to a narrative revi... Read More about Body image concerns and psychological wellbeing among injured combat veterans with scars and limb loss: A review of the literature.

A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial (2019)
Journal Article

Background: Disfigurement (visible difference) from wide-ranging congenital or acquired conditions, injuries, or treatments can negatively impact adolescents’ psychological well-being, education and health behaviours. Alongside medical interventions,... Read More about A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial.

Women’s initial experiences of their appearance after mastectomy and/or breast reconstruction: A qualitative study (2019)
Journal Article

Objective: Surgical procedures intended to treat breast cancer or reduce risk of developing the disease typically result in changes to appearance and scarring of the breast area, and any donor sites. The longer-term impact of these changes on body i... Read More about Women’s initial experiences of their appearance after mastectomy and/or breast reconstruction: A qualitative study.

Body image issues and attitudes towards exercise amongst men undergoing androgen deprivation therapy (ADT) following diagnosis of prostate cancer (2019)
Journal Article

© 2019 John Wiley & Sons, Ltd. Background: Androgen deprivation therapy (ADT) is an established treatment for prostate cancer (PCa), but its side-effects can affect body appearance and functioning. However, research into the impact of ADT on body i... Read More about Body image issues and attitudes towards exercise amongst men undergoing androgen deprivation therapy (ADT) following diagnosis of prostate cancer.

The effectiveness of interventions aiming to promote positive body image in adults: A systematic review (2019)
Journal Article

© 2019 Elsevier Ltd Theory suggests promoting positive body image (PBI)through interventions would have a significant impact on health and well-being. However, little is known about the effectiveness of existing interventions. This review aimed to id... Read More about The effectiveness of interventions aiming to promote positive body image in adults: A systematic review.

Supporting children with burns: Developing a UK parent-focused peer-informed website to support families of burn-injured children (2019)
Journal Article

© 2019 Elsevier B.V. Background: Children's burn injuries can have a significant psychosocial impact on parents. However, the stress involved in caring for a child following a burn can often go unrecognized and does not necessarily prompt help seekin... Read More about Supporting children with burns: Developing a UK parent-focused peer-informed website to support families of burn-injured children.

The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury (2019)
Journal Article

Introduction: Patient Reported Outcome Measures (PROMs) identify vital information about patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale - Adult Form: a PROM that assesses quality of... Read More about The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury.

The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis (2019)
Presentation / Conference Contribution

Background Nearly 40% of cancer survivors have persistent pain, however, little is known about their experiences1. This is increasingly recognised in psychosocial oncology and persistent pain is a National Cancer Research Institute top 10 research... Read More about The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis.

First look: A mixed methods study exploring women's initial experiences of their appearance after mastectomy and/or breast reconstruction (2019)
Journal Article

Objectives: Increasing numbers of women are undergoing appearance-altering surgery for the treatment and/or prevention of breast cancer. However, women’s experiences of seeing the results of their breast surgery for the first time, and the support a... Read More about First look: A mixed methods study exploring women's initial experiences of their appearance after mastectomy and/or breast reconstruction.

Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review (2018)
Journal Article

© 2018 John Wiley & Sons, Ltd. Objective: Body image concerns warrant attention among women who have undergone treatment for breast cancer, due to their significant consequences for psychological and physical health, and interpersonal relationships... Read More about Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review.

“It's just more personal”: Using multiple methods of qualitative data collection to facilitate participation in research focusing on sensitive subjects (2018)
Journal Article

© 2018 Elsevier Inc. Background: Often researchers use only one interview method within a single study. However, it is increasingly common for a variety of interview methods to be employed within a project. Providing choice to participants may facili... Read More about “It's just more personal”: Using multiple methods of qualitative data collection to facilitate participation in research focusing on sensitive subjects.

Assessing the effectiveness of interventions to support patient decision making about breast reconstruction: A systematic review (2018)
Journal Article

© 2018 Elsevier Ltd Background: Decision making about breast reconstruction (BR) following a diagnosis of breast cancer, Ductal Carcinoma in Situ (DCIS), or to reduce future breast cancer risk, is difficult and complex. This paper systematically revi... Read More about Assessing the effectiveness of interventions to support patient decision making about breast reconstruction: A systematic review.

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study (2018)
Journal Article

© 2018 Article author(s) (or their employer(s) unless otherwise stated in the text of the article). All rights reserved. Objective Valid measures of appearance concern are needed in systemic sclerosis (SSc), a rare, disfiguring autoimmune disease. Th... Read More about Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

The provision of specialist psychosocial support for people with visible differences: A European survey (2018)
Journal Article

© 2018 A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are n... Read More about The provision of specialist psychosocial support for people with visible differences: A European survey.

An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour (2018)
Journal Article

Introduction: This evaluation aimed to assess the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour. Methods: Young people completed the Perceived Stigmatisation Questio... Read More about An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour.

Supporting patients with body dissatisfaction: A survey of the experiences and training needs of european multi-disciplinary healthcare professionals (2018)
Journal Article

© 2018 The Authors Appearance-related concerns resulting from disfigurement or pressure to conform to beauty ideals, indiscriminately affect patients’ mental and physical health. Healthcare professionals face the challenge of addressing patients’ sup... Read More about Supporting patients with body dissatisfaction: A survey of the experiences and training needs of european multi-disciplinary healthcare professionals.

A qualitative study of health professionals’ views on using iPads to facilitate distraction during paediatric burn dressing changes (2018)
Journal Article

Introduction: Distraction is a non-pharmacologic pain management technique commonly used to avert a person’s attention from procedural pain and distress during stressful procedures such as treatment after a burn injury. In recent years, computer tabl... Read More about A qualitative study of health professionals’ views on using iPads to facilitate distraction during paediatric burn dressing changes.

A qualitative exploration of psychosocial specialists’ experiences of providing support in U.K. burn care services (2018)
Journal Article

Introduction: A burn can have a significant and long-lasting psychosocial impact on a patient and their family. The National Burn Care Standards (2013) recommend psychosocial support should be available in all U.K. burn services, however little is kn... Read More about A qualitative exploration of psychosocial specialists’ experiences of providing support in U.K. burn care services.

Parent-perceived isolation and barriers to psychosocial support: A qualitative study to investigate how peer support might help parents of burn-injured children (2018)
Journal Article

Introduction: Burn injuries can be traumatic and distressing for the affected child and family, with a prolonged period of recovery. This research explores parents’ experiences of support following their child’s injury and their thoughts on peer supp... Read More about Parent-perceived isolation and barriers to psychosocial support: A qualitative study to investigate how peer support might help parents of burn-injured children.

Post-surgical cliff after bariatric surgery: Accounts of patients and their healthcare practitioners (2017)
Presentation / Conference Contribution

The superiority of bariatric surgery for improving medical outcomes in severely obese individuals when compared to other weight loss interventions remains undisputed. However, knowledge about the psychological impact of the procedure on people’s live... Read More about Post-surgical cliff after bariatric surgery: Accounts of patients and their healthcare practitioners.

A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual (2017)
Journal Article

© 2017 The Author(s). Background: Increasingly, women elect breast reconstruction after mastectomy. However, their expectations of surgery are often not met, and dissatisfaction with outcome and ongoing psychosocial concerns and distress are common.... Read More about A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual.

Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences (2017)
Journal Article

© Cambridge University Press 2017. Background: Qualitative research methods embedded within feasibility trials are of significant value as they can provide important information for a definitive trial, often unable to be fulfilled by quantitative met... Read More about Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences.

Qualitatively understanding patients' and health professionals' experiences of the BRECONDA breast reconstruction decision aid (2017)
Journal Article

Copyright © 2016 John Wiley & Sons, Ltd. Objective: Women diagnosed with breast cancer or ductal carcinoma in situ and those with a genetic susceptibility to developing this disease face the challenging decision of whether or not to undergo breast... Read More about Qualitatively understanding patients' and health professionals' experiences of the BRECONDA breast reconstruction decision aid.

Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort (2017)
Journal Article

© 2016 Elsevier Ltd Body concealment is an important component of appearance distress for individuals with disfiguring conditions, including scleroderma. The objective was to replicate the validation study of the Body Concealment Scale for Scleroderm... Read More about Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort.

Facilitating shared decision-making with breast augmentation patients: Acceptability of the PEGASUS intervention (2016)
Journal Article

© 2016 British Association of Plastic, Reconstructive and Aesthetic Surgeons Background PEGASUS is an intervention to facilitate shared decision-making by helping prospective patients consider their expectations of surgery, so that surgeons have a cl... Read More about Facilitating shared decision-making with breast augmentation patients: Acceptability of the PEGASUS intervention.

Examination of the association of sex and race/ethnicity with appearance concerns: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study (2016)
Journal Article

Objective: Appearance concerns are common in systemic sclerosis (SSc) and have been linked to younger age and more severe disease. No study has examined their association with sex or race/ethnicity. Methods: SSc patients were sampled from the Scl... Read More about Examination of the association of sex and race/ethnicity with appearance concerns: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

The Role of Appearance in Adolescents’ Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents (2016)
Journal Article

© 2016, National Society of Genetic Counselors, Inc. Neurofibromatosis type 1 (NF1) is a genetic condition which can result in varying degrees of visible difference (disfigurement). Adolescence is a time when appearance concerns become more salient f... Read More about The Role of Appearance in Adolescents’ Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents.

Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries (2016)
Journal Article

© Published by the BMJ Publishing Group Limited. Introduction A significant number of adolescents suffer extensive and enduring difficulties such as social anxiety, body image dissatisfaction, low self-esteem and bullying as a result of conditions or... Read More about Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries.

Reducing Decisional Conflict and Enhancing Satisfaction with Information among Women Considering Breast Reconstruction following Mastectomy: Results from the BRECONDA Randomized Controlled Trial (2016)
Presentation / Conference Contribution

Background: Deciding whether or not to have breast reconstruction following breast cancer diagnosis is a complex decision process. This randomized controlled trial assessed the impact of an online decision aid [Breast RECONstruction Decision Aid (BRE... Read More about Reducing Decisional Conflict and Enhancing Satisfaction with Information among Women Considering Breast Reconstruction following Mastectomy: Results from the BRECONDA Randomized Controlled Trial.

The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups? (2016)
Journal Article

Copyright © 2016 John Wiley & Sons, Ltd. Background: Very little UK-based research has examined breast cancer-related experiences of Black and Minority Ethnic populations, and we do not know whether the psychosocial impact of diagnosis and treatmen... Read More about The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups?.

Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families (2016)
Presentation / Conference Contribution

Introduction Very little published research has evaluated psychosocial interventions for young people with burn injuries. A recent systematic review of psychosocial interventions for those with a range of appearance-altering conditions and injuries... Read More about Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families.

A survey of burn professionals regarding the mental health services available to burn survivors in the United States and United Kingdom (2016)
Journal Article

© 2016 Elsevier Ltd and ISBI. All rights reserved. This investigation surveyed burn health professionals in the UK and US to investigate the psychosocial issues facing burn survivors and the psychological services available to them through their burn... Read More about A survey of burn professionals regarding the mental health services available to burn survivors in the United States and United Kingdom.

The acceptability of PEGASUS: An intervention to facilitate shared decision-making with women contemplating breast reconstruction (2016)
Journal Article

© 2015 The Author(s). Published by Taylor & Francis. Good practice guidelines recommend that women who undergo mastectomy are offered reconstructive surgery. However, many who choose this option report a degree of decisional regret and dissatisfact... Read More about The acceptability of PEGASUS: An intervention to facilitate shared decision-making with women contemplating breast reconstruction.

A systematic review of interventions on body image and disordered eating outcomes among women in midlife (2016)
Journal Article

© 2015 Wiley Periodicals, Inc. Objective Body dissatisfaction and disordered eating are widely recognized as issues that warrant attention among women in midlife, particularly the development and delivery of effective interventions. This article syst... Read More about A systematic review of interventions on body image and disordered eating outcomes among women in midlife.

Looking age-appropriate while growing old gracefully: A qualitative study of ageing and body image among older adults (2016)
Journal Article

© SAGE Publications. Body dissatisfaction can be significantly detrimental to wellbeing. Little is known about older adults' body image, despite the fact that ageing causes unique bodily changes and that sociocultural pressures to resist these change... Read More about Looking age-appropriate while growing old gracefully: A qualitative study of ageing and body image among older adults.

The experiences of older adults living with an appearance altering burn injury: An exploratory qualitative study (2015)
Journal Article

© The Author(s) 2015. Advances in medical treatment mean more older people are living with burn injuries. However, little is known about experiences and support needs of this group. Interpretative Phenomenological Analysis of semi-structured intervie... Read More about The experiences of older adults living with an appearance altering burn injury: An exploratory qualitative study.

The psychosocial impact of breast cancer diagnosis and treatment amongst Black, South Asian and White women: Do differences exist between ethnic groups? (2015)
Journal Article

Breast cancer is the most commonly diagnosed cancer in females, affecting women of all ethnic groups. Until now, very little research has captured the psychosocial impact of the disease amongst Black and Minority Ethnic (BME) women, and that which ha... Read More about The psychosocial impact of breast cancer diagnosis and treatment amongst Black, South Asian and White women: Do differences exist between ethnic groups?.

Developing young person’s Face IT: Online psychosocial support for adolescents struggling with conditions or injuries affecting their appearance (2015)
Journal Article

© The Author(s) 2015. A participatory action approach with potential users and clinical experts was employed to design and evaluate the acceptability of young person’s Face IT (YP Face IT), an online intervention incorporating cognitive behavioural t... Read More about Developing young person’s Face IT: Online psychosocial support for adolescents struggling with conditions or injuries affecting their appearance.

Older adults' experiences of living with cleft lip and palate: A qualitative study exploring aging and appearance (2015)
Journal Article

© Copyright 2015 American Cleft Palate-Craniofacial Association. Objective: To explore older adults' experiences of living with cleft lip and/or palate (CL/P), focusing on aging and appearance. Design: An exploratory-descriptive qualitative study. Pa... Read More about Older adults' experiences of living with cleft lip and palate: A qualitative study exploring aging and appearance.

A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research (2014)
Journal Article

Crown Copyright © 2014 Published by Elsevier Ltd and ISBI. All rights reserved. Introduction: Patient reported outcome measures (PROMs) can identify important information about patient needs and therapeutic progress. The aim of this review was to ide... Read More about A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research.

Appearance concerns and psychosocial adjustment following head and neck cancer: A cross-sectional study and nine-month follow-up (2014)
Journal Article

Psychosocial difficulties have been reported in head and neck cancer (HNC) patients, yet only few studies have assessed the impact of altered appearance following HNC treatment using theoretically selected measures of appearance-related distress. Thi... Read More about Appearance concerns and psychosocial adjustment following head and neck cancer: A cross-sectional study and nine-month follow-up.

Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression (2014)
Journal Article

Psychometric measures of appearance salience and valence, CARSAL and CARVAL, have been previously demonstrated to be key factors underpinning appearance related self-consciousness and negative affect in the general population. However, the extent to... Read More about Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression.

'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1 (2014)
Journal Article

Aims: To explore the day-to-day experience of young people living with neurofibromatosis type 1 in the UK, focusing on the role that appearance plays in this experience. Background: neurofibromatosis type 1 is a genetic condition, which is highly var... Read More about 'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1.

Happy being me in the UK: A controlled evaluation of a school-based body image intervention with pre-adolescent children (2013)
Journal Article

This study evaluated an adapted version of 'Happy Being Me', a school-based body image intervention, with girls and boys aged 10-11 years. Forty-three children participated in a three-week intervention, and 45 children formed a control group. Both gr... Read More about Happy being me in the UK: A controlled evaluation of a school-based body image intervention with pre-adolescent children.

Evaluation of the effectiveness of Face IT, a computer-based psychosocial intervention for disfigurement-related distress (2012)
Journal Article

Some people who have a visible difference (disfigurement) experience psychosocial adjustment problems that can lead to social anxiety and isolation. The aim of thisstudy was to assess the effectiveness of a new computerised CBT-based intervention (Fa... Read More about Evaluation of the effectiveness of Face IT, a computer-based psychosocial intervention for disfigurement-related distress.

Understanding normality: A qualitative analysis of breast cancer patients concepts of normality after mastectomy and reconstructive surgery (2011)
Journal Article

Background: As survival rates increase, many people have to adjust to life after cancer. This includes adjusting to life after surgery. While previous research suggests that patients commonly strive to be 'normal' after mastectomy and reconstructive... Read More about Understanding normality: A qualitative analysis of breast cancer patients concepts of normality after mastectomy and reconstructive surgery.

Body dissatisfaction: Can a short media literacy message reduce negative media exposure effects amongst adolescent girls? (2011)
Journal Article

Objectives. This experimental study examined whether a brief video intervention identifying the artificial nature of media images could protect adolescent girls from negative media exposure effects and body dissatisfaction. Design. A 2 (intervention... Read More about Body dissatisfaction: Can a short media literacy message reduce negative media exposure effects amongst adolescent girls?.

A qualitative study of the experiences of people who identify themselves as having adjusted positively to a visible difference (2011)
Journal Article

© The Author(s) 2011. Individual and group interviews explored experiences of positive adjustment among 12 people with a range of visible differences. Thematic analysis identified four main themes: importance of appearance; personal growth; relations... Read More about A qualitative study of the experiences of people who identify themselves as having adjusted positively to a visible difference.

Incorporating user perspectives in the design of an online intervention tool for people with visible differences: Face IT (2010)
Journal Article

Background: Individuals with visible differences can experience social anxiety in relation to their appearance. Social skills-based psychosocial interventions have to date shown only limited effectiveness at addressing their concerns. Aims: To incorp... Read More about Incorporating user perspectives in the design of an online intervention tool for people with visible differences: Face IT.

Vitiligo linked to stigmatization in British South Asian women: A qualitative study of the experiences of living with vitiligo (2010)
Journal Article

Background Vitiligo is a visible condition that is more noticeable in darker-skinned people. Beliefs about illness have been linked to psychosocial adjustment. There is some evidence that such beliefs may be influenced by cultural factors. Surprising... Read More about Vitiligo linked to stigmatization in British South Asian women: A qualitative study of the experiences of living with vitiligo.

Adolescents' and parents' experiences of managing the psychosocial impact of appearance change during cancer treatment (2010)
Journal Article

Using combined qualitative data from multiple case study interviews and an online survey, this study explored the impact of appearance change on 22 adolescents receiving cancer treatment aged 13 to 18 years and six of their parents. Data were analyze... Read More about Adolescents' and parents' experiences of managing the psychosocial impact of appearance change during cancer treatment.

Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis (2010)
Journal Article

Objectives: Research suggests that rheumatoid arthritis (RA) can have a negative psychosocial impact on partners, as well as patients. However, until now there has been very little in-depth qualitative research in this area. The aim of this study was... Read More about Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis.

Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: A qualitative study (2007)
Journal Article

Statement of purpose: Meningococcal Septicaemia (ms) is an acute, life-threatening illness characterized by rapid progression and if not treated swiftly can result in death within hours. Those who survive may require skin grafting or amputation of di... Read More about Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: A qualitative study.

Psychological distress surrounding diagnosis of malignant and nonmalignant skin lesions at a pigmented lesion clinic (2006)
Journal Article

This study aimed prospectively to investigate psychological distress throughout the diagnostic process in an outpatient pigmented lesion clinic (PLC). Psychological distress was measured at pre clinical diagnosis, post clinical diagnosis, pre histolo... Read More about Psychological distress surrounding diagnosis of malignant and nonmalignant skin lesions at a pigmented lesion clinic.

The psychological effect of mastectomy with or without breast reconstruction: a prospective, multi-centred study (2003)
Journal Article

A multicenter, prospective study (n = 103) examined the psychological implications of women's decisions for or against breast reconstruction. Recognized measures of anxiety, depression, body image, and quality of life were completed before the operat... Read More about The psychological effect of mastectomy with or without breast reconstruction: a prospective, multi-centred study.

The psychological effect of mastectomy with or without breast reconstruction: A prospective, multicenter study (2003)
Journal Article

A multicenter, prospective study (n = 103) examined the psychological implications of women's decisions for or against breast reconstruction. Recognized measures of anxiety, depression, body image, and quality of life were completed before the operat... Read More about The psychological effect of mastectomy with or without breast reconstruction: A prospective, multicenter study.

Factors implicated in the decision whether or not to join the tamoxifen trial in women at high familial risk of breast cancer (2000)
Journal Article

Why, given similar medical circumstances - high familial risk of breast cancer - will some women elect to join a trial of drugs designed to reduce that risk but others choose not to take part? The aim of this study was to identify measurable differen... Read More about Factors implicated in the decision whether or not to join the tamoxifen trial in women at high familial risk of breast cancer.

Specialist nurses counsellor interventions at the time of diagnosis of breast cancer: Comparing 'advocacy' with a conventional approach (1999)
Journal Article

Over recent years, specialist breast care nurses have become increasingly recognized as core members of any breast care team within the UK. Part of the role is to support patients at the highly stressful stage of receiving a diagnosis. This paper des... Read More about Specialist nurses counsellor interventions at the time of diagnosis of breast cancer: Comparing 'advocacy' with a conventional approach.