RA flares: Inflammatory or avalanche?
(2013)
Presentation / Conference Contribution
All Outputs (175)
Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales (2013)
Journal Article
Objective. To examine the reliability (stability) and sensitivity of the Bristol Rheumatoid Arthritis Fatigue scales (BRAFs) and patient-reported outcome measures (PROMs) developed to capture the fatigue experience. The Multi-Dimensional Questionnair... Read More about Reliability and sensitivity to change of the bristol rheumatoid arthritis fatigue scales.
Non-pharmacological interventions for fatigue in rheumatoid arthritis (2013)
Journal Article
© 2013 The Cochrane Collaboration. Background: Fatigue is a common and potentially distressing symptom for people with rheumatoid arthritis with no accepted evidence based management guidelines. Non-pharmacological interventions, such as physical act... Read More about Non-pharmacological interventions for fatigue in rheumatoid arthritis.
RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference Contribution
“Back to being normal”: The patient perspective on remission in rheumatoid arthritis. (2013)
Presentation / Conference Contribution
Background: The aim of current rheumatoid arthritis treatment is remission. As treatment should be targeted at patient relevant outcomes, it is important to know how patients perceive remission.
Objectives: The objective of this study was to explo... Read More about “Back to being normal”: The patient perspective on remission in rheumatoid arthritis..
RA flares: Inflammatory or avalanche? (2013)
Presentation / Conference Contribution
Will I waste your time? Delays in help-seeking for RA flares (2012)
Presentation / Conference Contribution
"It gets me down every single day": Are men with rheumatoid arthritis getting the support they need? (2012)
Presentation / Conference Contribution
Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus (2012)
Journal Article
Objectives: For rheumatoid arthritis (RA), there is no consensus on how to define and assess flare. Variability in flare definitions impairs understanding of findings across studies and limits ability to pool results. The OMERACT RA Flare Group sough... Read More about Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus.
Exploring the cultural validity of rheumatology outcomes (2012)
Journal Article
In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the inf... Read More about Exploring the cultural validity of rheumatology outcomes.
Cognitiveg-behavioural approaches to self-management in rheumatic disease (2012)
Journal Article
Patients with rheumatic disease must adjust psychosocially and behaviourally in order to manage the impact of symptoms and treatment on their daily lives, and the emotional consequences of the disease. However, patients can improve their well-being b... Read More about Cognitiveg-behavioural approaches to self-management in rheumatic disease.
Furthering our understanding of fatigue in rheumatoid arthritis (2012)
Journal Article
'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus (2012)
Journal Article
Objectives: The aim of this study was to explore the patient's perception of receiving a diagnosis of systemic lupus erythematosus (lupus) and reports on their experience of the period between onset of symptoms and receiving a definitive diagnosis. M... Read More about 'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus.
Will I waste your time? Delays in help-seeking for RA flares (2012)
Presentation / Conference Contribution
Will I waste your time? Delays in help-seeking for RA flares (2012)
Presentation / Conference Contribution
“You make your own luck”: Three different perceptions of living with RA: A Q-methodological study (2012)
Presentation / Conference Contribution
"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue (2012)
Journal Article
Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructu... Read More about "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue.
Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients (2012)
Journal Article
The nominal group technique generates quantitative data through a process of experts ranking items of interest. This article focuses on the additional collection of qualitative data from nominal groups with rheumatoid arthritis (RA) patients, used to... Read More about Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients.
'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought (2012)
Journal Article
Objective: People with RA have episodes of worsening disease activity (flares) that prompt them to seek clinical review or medication change. This study explored patients' perspectives of flare that prompts them to seek medication review. Methods: Fo... Read More about 'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought.
Exploring the cultural validity of rheumatology outcomes (2012)
Journal Article
In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influ... Read More about Exploring the cultural validity of rheumatology outcomes.