All Outputs (85)

Knowledge brokers or relationship brokers? The role of an embedded knowledge mobilisation team (2017)
Journal Article

Aim: Policymaking decisions are often uninformed by research and research is rarely influenced by policymakers. To bridge this ‘know-do’ gap, a boundary-spanning knowledge mobilisation (KM) team was created by embedding researchers-in-residence and l... Read More about Knowledge brokers or relationship brokers? The role of an embedded knowledge mobilisation team.

Enteral Feeding Practices in Infants with Congenital Heart Disease Across European PICUs: A European Society of Pediatric and Neonatal Intensive Care Survey (2017)
Journal Article

© Copyright 2017 by the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies. Objectives: To describe enteral feeding practices in pre and postoperative infants with congenital heart disease in... Read More about Enteral Feeding Practices in Infants with Congenital Heart Disease Across European PICUs: A European Society of Pediatric and Neonatal Intensive Care Survey.

Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome (2017)
Journal Article

© 2017 European Pain Federation - EFIC® Background: Complex Regional Pain Syndrome (CRPS) symptoms can significantly differ between patients, fluctuate over time, disappear or persist. This leads to problems in defining recovery and in evaluating the... Read More about Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome.

54 Paediatric traumatic cardiac arrest in England and Wales a 10 year epidemiological study (2017)
Journal Article

© 2017, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions. INTRODUCTION: Traumatic cardiac arrest (TCA) has traditiona... Read More about 54 Paediatric traumatic cardiac arrest in England and Wales a 10 year epidemiological study.

49 Paediatric traumatic cardiac arrest - the development of a treatment algorithm (2017)
Journal Article

© 2017, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions. INTRODUCTION: Paediatric Traumatic Cardiac Arrest (TCA) is... Read More about 49 Paediatric traumatic cardiac arrest - the development of a treatment algorithm.

Development of a core set of outcome measures for large-vessel vasculitis: Report from OMERACT 2016 (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective. Among the challenges in conducting clinical trials in large-vessel vasculitis (LVV), including both giant cell arteritis (GCA) and Takayasu arteritis (TA), is the lack of standardized and meaningful o... Read More about Development of a core set of outcome measures for large-vessel vasculitis: Report from OMERACT 2016.

Practice variation in acute bronchiolitis: A pediatric emergency research networks study (2017)
Journal Article

© Copyright 2017 by the American Academy of Pediatrics. BACKGROUND AND OBJECTIVES: Studies characterizing hospitalizations in bronchiolitis did not identify patients receiving evidence-based supportive therapies (EBSTs). We aimed to evaluate intersit... Read More about Practice variation in acute bronchiolitis: A pediatric emergency research networks study.

51 Paediatric emergency clinicians are rarely exposed to non-airway critical procedures: a predict/PERN study (2017)
Journal Article

© 2017, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions. BACKGROUND: Recent studies suggest that approximately one p... Read More about 51 Paediatric emergency clinicians are rarely exposed to non-airway critical procedures: a predict/PERN study.

Stiffness is the cardinal symptom of inflammatory musculoskeletal diseases, yet still variably measured: Report from the OMERACT 2016 Stiffness Special Interest Group (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective. The objectives of the Outcome Measures in Rheumatology (OMERACT) Stiffness special interest group (SIG) are to characterize stiffness as an outcome in rheumatic disease and to identify and validate a... Read More about Stiffness is the cardinal symptom of inflammatory musculoskeletal diseases, yet still variably measured: Report from the OMERACT 2016 Stiffness Special Interest Group.

Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis (2017)
Journal Article

© 2017, American College of Rheumatology Objective: Raynaud's phenomenon (RP) is the most common manifestation of systemic sclerosis (SSc). RP is an episodic phenomenon, not easily assessed in the clinic, leading to reliance on self-report. A thoroug... Read More about Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis.

Patient perceptions of glucocorticoids in anti-neutrophil cytoplasmic antibody-associated vasculitis (2017)
Journal Article

© 2017, The Author(s). Granulomatosis with polyangiitis (GPA), microscopic polyangiitis (MPA), and eosinophilic granulomatosis with polyangiitis (EGPA) are multisystem diseases of small blood vessels, collectively known as the anti-neutrophil cytopla... Read More about Patient perceptions of glucocorticoids in anti-neutrophil cytoplasmic antibody-associated vasculitis.

A patient-reported outcome measure for effect of glucocorticoid therapy in adults with inflammatory diseases is needed: Report from the OMERACT 2016 special interest group (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective: The need for a standardized instrument to measure the effect of glucocorticoid (GC) therapy has been well documented in the literature. The aim of the first GC Special Interest Group was to define a r... Read More about A patient-reported outcome measure for effect of glucocorticoid therapy in adults with inflammatory diseases is needed: Report from the OMERACT 2016 special interest group.

Data quality and 30-day survival for out-of-hospital cardiac arrest in the UK out-of-hospital cardiac arrest registry: A data linkage study (2017)
Journal Article

© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2017. All rights reserved. No commercial use is permitted unless otherwise expressly granted. Objectives The Out-of-Hospital Cardiac Arrest Outcomes (OHCAO)... Read More about Data quality and 30-day survival for out-of-hospital cardiac arrest in the UK out-of-hospital cardiac arrest registry: A data linkage study.

Prognosis of the infected diabetic foot ulcer: a 12-month prospective observational study (2017)
Journal Article

© 2017 The Authors. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK Aims: To determine clinical outcomes and explore prognostic factors related to ulcer healing in people with a clinically infected diabetic foot ulcer.... Read More about Prognosis of the infected diabetic foot ulcer: a 12-month prospective observational study.

Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey (2017)
Journal Article

© 2017 The Author(s). Background: Foot symptoms in rheumatoid arthritis (RA) derive from a combination of inflammation, altered foot mechanics, deformity and secondary skin lesions. Guidelines recommend regular review of patients' feet, but the exten... Read More about Prevalence, impact and care of foot problems in people with rheumatoid arthritis: Results from a United Kingdom based cross-sectional survey.

The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries (2017)
Journal Article

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To evaluate the Bristol Rheumatoid Arthritis Fatigue Multidimensional Questionnaire (BRAFMDQ), the revised Bris... Read More about The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: Validation in six countries.

A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis (2017)
Journal Article

© Copyright 2017 The Journal of Rheumatology. All rights reserved. Objective. To rank outcomes identified as important to patients with psoriatic arthritis (PsA) and examine their representation in existing composite measures. Methods. Seven nominal... Read More about A multicenter nominal group study to rank outcomes important to patients, and their representation in existing composite outcome measures for psoriatic arthritis.

The midwife–woman relationship in a South Wales community: Experiences of midwives and migrant Pakistani women in early pregnancy (2017)
Journal Article

Background: In 2015, 27.5% of births in England and Wales were to mothers born outside of the UK. Compared to their White British peers, minority ethnic and migrant women are at a significantly higher risk of maternal and perinatal mortality, along w... Read More about The midwife–woman relationship in a South Wales community: Experiences of midwives and migrant Pakistani women in early pregnancy.

Development of a core set of outcome measures for OAB treatment (2017)
Journal Article

© 2017, The Author(s). Introduction and hypothesis: Standardized measures enable the comparison of outcomes across providers and treatments giving valuable information for improving care quality and efficacy. The aim of this project was to define a m... Read More about Development of a core set of outcome measures for OAB treatment.

Routine gastric residual volume measurement and energy target achievement in the PICU: A comparison study (2017)
Journal Article

Critically ill children frequently fail to achieve adequate energy intake and some care practices, such as the measurement of gastric residual volume (GRV) may contribute to this problem. We compared outcomes in two similar European Pediatric Intensi... Read More about Routine gastric residual volume measurement and energy target achievement in the PICU: A comparison study.