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All Outputs (26)

Magnet ingestion in children in the United Kingdom: A national prospective observational surveillance study (2025)
Journal Article

Background
Magnet ingestion in children and young people (CYP) associates with significant harm. The incidence and circumstances of magnet ingestions in CYP are unknown in the United Kingdom (UK). We aimed to determine these and report associated ou... Read More about Magnet ingestion in children in the United Kingdom: A national prospective observational surveillance study.

What is currently known about female genital mutilation and incontinence: A narrative literature review (2025)
Journal Article

Background: An estimated 230 million girls and women are living with female genital mutilation (FGM) which causes ongoing physical and psychological harm. This review aims to explore what is known about FGM and incontinence, including the underexamin... Read More about What is currently known about female genital mutilation and incontinence: A narrative literature review.

Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: The SPIN-CLEAR Trials (2025)
Journal Article

Background
Research results are often not communicated to study participants or others with relevant lived experience. Effective communication of research results would help study participants understand their contribution to research and could impr... Read More about Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: The SPIN-CLEAR Trials.

OA34 The contributions of Patient and Public Involvement and Engagement groups to the conduct of a scoping review of non-pharmacological interventions for reducing fatigue in children and young people with musculoskeletal conditions (2025)
Presentation / Conference Contribution

Background/Aims Fatigue is an important symptom for people of all ages with musculoskeletal (MSK) conditions. This includes the 234,000 children and young people (CYP) in England and Scotland currently living with conditions such as juvenile inflamma... Read More about OA34 The contributions of Patient and Public Involvement and Engagement groups to the conduct of a scoping review of non-pharmacological interventions for reducing fatigue in children and young people with musculoskeletal conditions.

Assessing barriers and opportunities for the improvement of laboratory performance and robust surveillance of antimicrobial resistance in Nigeria– a quantitative study (2025)
Journal Article

Background: Good quality data is essential in optimising containment strategies for antimicrobial resistance, a global public health threat estimated to cause around 10 million deaths yearly and up-to 5% loss in GDP by 2050 if left unaddressed. The l... Read More about Assessing barriers and opportunities for the improvement of laboratory performance and robust surveillance of antimicrobial resistance in Nigeria– a quantitative study.

Heart failure and participation in physical activity (The HAPPY + study): Health professional support and availability of community physical activity services (2025)
Presentation / Conference Contribution

Abstract

Background Nearly 1 million people in the UK are living with heart failure (HF). Most people diagnosed with HF are managed in primary care. Physical activity can increase wellbeing, reduce hospitalisation and improve mortality rates for... Read More about Heart failure and participation in physical activity (The HAPPY + study): Health professional support and availability of community physical activity services.

Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases (2025)
Journal Article

Objectives To explore patients’ perspectives on the impact of appearance changes attributed to glucocorticoid treatment. Methods We conducted a secondary inductive thematic analysis of the ‘Steroid PRO’ semi-structured interviews with patients with r... Read More about Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases.

Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German (2025)
Journal Article

Objective
Patient education is a cornerstone of rheumatology care, enabling patients to effectively and safely manage their condition. Standardized patient knowledge assessments are essential for benchmarking care quality and tailoring education to... Read More about Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German.

Measuring the impact of managing incontinence on people with dementia and informal caregivers: Cognitive debriefing interviews of ‘ICIQ-Cog’ (English translation) (2025)
Journal Article

Aim:
The ICIQ-Cog questionnaire was developed in German to measure the impact of incontinence and/or toilet use problems on people living with dementia and their paid carers and unpaid caregivers; it has been translated into English. This study aime... Read More about Measuring the impact of managing incontinence on people with dementia and informal caregivers: Cognitive debriefing interviews of ‘ICIQ-Cog’ (English translation).

Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study (2025)
Journal Article

Purpose: To compare treatment utilisation for osteoarthritis (OA) and satisfaction with OA management between individuals with and without comorbid metabolic conditions (e.g., diabetes, obesity, dyslipidaemia, hypertension). Methods: Secondary analys... Read More about Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study.

Do we have sufficient evidence to derive innovative approaches to assessing unmet need, delivering education on bladder and bowel continence health, and providing a better environment for joint decision-making? ICI-RS 2024 (2025)
Journal Article

Context: Improved continence outcomes are reliant on identification of unmet need, education delivery, and shared decision‐making. The evidence base on which to derive innovative approaches in these areas was unclear.

Methods: A debate held at the... Read More about Do we have sufficient evidence to derive innovative approaches to assessing unmet need, delivering education on bladder and bowel continence health, and providing a better environment for joint decision-making? ICI-RS 2024.

Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review (2024)
Journal Article

Introduction
The use of Janus kinase inhibitors (JAKis) in immune-mediated inflammatory diseases (IMIDs) beyond licence is expanding rapidly. The aim of this scoping review was to identify and present the available evidence on the efficacy of JAKis... Read More about Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review.

What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol (2024)
Journal Article

Background: Fibromyalgia Syndrome (FMS) is characterised by widespread and persistent pain, intrusive fatigue and cognitive issues, affecting approximately 5.4% of the UK population. Non‐pharmacological therapies and education are current management... Read More about What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol.

Facilitators and barriers to access to midwife-led birth settings for racialized women in the UK: A scoping review (2024)
Journal Article

Background
In UK maternity care, racialized women have worse experiences and clinical outcomes than White women. Midwife-led birth settings (MLBS), including home births and midwife-led units, both freestanding and alongside hospitals, are all avail... Read More about Facilitators and barriers to access to midwife-led birth settings for racialized women in the UK: A scoping review.

What is “good” co-production in the context of planetary health research, and how is it enabled? (2024)
Journal Article

Involvement of non-academic stakeholders in research is essential when seeking to address global challenges, yet there is considerable uncertainty on how to do this well given the complexity. This paper aims to define more clearly what ‘good’ co-prod... Read More about What is “good” co-production in the context of planetary health research, and how is it enabled?.

Rotator cuff-related shoulder pain (RCRSP): Semistructured patient interviews to explore the barriers and enablers to rehabilitation exercises (2024)
Journal Article

This study aimed to explore the barriers and enablers to physiotherapist-prescribed rehabilitation exercises for people with rotator cuff-related shoulder pain (RCRSP) and to guide the development of a theoretically informed intervention for people w... Read More about Rotator cuff-related shoulder pain (RCRSP): Semistructured patient interviews to explore the barriers and enablers to rehabilitation exercises.

The lycra arm sleeve for treatment of glenohumeral subluxation in people with sub-acute stroke: A randomised controlled (RC) feasibility study (2024)
Journal Article

Background: A Lycra arm sleeve has the potential to reduce glenohumeral subluxation (GHS) in people with stroke (PwS). Aims were 1) to provide feasibility data to inform a future fully powered randomised controlled trial 2) to understand whether pati... Read More about The lycra arm sleeve for treatment of glenohumeral subluxation in people with sub-acute stroke: A randomised controlled (RC) feasibility study.

"How can you think about losing your mind?": A reflexive thematic analysis of adapting the LivDem group intervention for couples and families living with dementia (2024)
Journal Article

Introduction: Despite the psychological challenges that dementia creates, comparatively little attention has been paid to how individuals or families can be helped to adjust to dementia. One of the few interventions to do this is the Living well with... Read More about "How can you think about losing your mind?": A reflexive thematic analysis of adapting the LivDem group intervention for couples and families living with dementia.