Development and psychometric evaluation of The ICIQ-LTCqol: A self-report quality of life questionnaire for long-term indwelling catheter users

Cotterill, N; Fowler, S; Avery, M; Cottenden, A; Wilde, M; Long, A; Fader, M

doi:10.1002/nau.2272

Outcomes of a noninferiority randomised controlled trial of surgery for men with urodynamic stress incontinence after prostate surgery (MASTER) (2021)
Journal Article
Abrams, P., Constable, L. D., Cooper, D., MacLennan, G., Drake, M. J., Harding, C., …Glazener, C. (2021). Outcomes of a noninferiority randomised controlled trial of surgery for men with urodynamic stress incontinence after prostate surgery (MASTER). European Urology, 79(6), 812-823. https://doi.org/10.1016/j.eururo.2021.01.024

Background Stress urinary incontinence (SUI) is common after radical prostatectomy and likely to persist despite conservative treatment. The sling is an emerging operation for persistent SUI, but randomised controlled trial (RCT) comparison with the... Read More about Outcomes of a noninferiority randomised controlled trial of surgery for men with urodynamic stress incontinence after prostate surgery (MASTER).

Thulium laser transurethral vaporesection of the prostate versus transurethral resection of the prostate for men with lower urinary tract symptoms or urinary retention (UNBLOCS): A randomised controlled trial (2020)
Journal Article
Hashim, H., Worthington, J., Abrams, P., Young, G., Taylor, H., Noble, S. M., …Lane, J. A. (2020). Thulium laser transurethral vaporesection of the prostate versus transurethral resection of the prostate for men with lower urinary tract symptoms or urinary retention (UNBLOCS): A randomised controlled trial. Lancet, 396(10243), 50-61. https://doi.org/10.1016/S0140-6736%2820%2930537-7

Background: Transurethral resection of the prostate (TURP) is the standard operation for benign prostatic obstruction. Thulium laser transurethral vaporesection of the prostate (ThuVARP) is a technique with suggested advantages over TURP, including r... Read More about Thulium laser transurethral vaporesection of the prostate versus transurethral resection of the prostate for men with lower urinary tract symptoms or urinary retention (UNBLOCS): A randomised controlled trial.

The International Consultation on Incontinence Questionnaires (ICIQ): An update on status and direction (2020)
Journal Article
Uren, A. D., Uren, A., Cotterill, N., Pardoe, M., & Abrams, P. (2020). The International Consultation on Incontinence Questionnaires (ICIQ): An update on status and direction. Neurourology and Urodynamics, 39(6), 1889-1896. https://doi.org/10.1002/nau.24437

Aims: In its 22nd year, the International Consultation on Incontinence Questionnaire (ICIQ) project continues to promote its primary objective; the development and dissemination of patient completed questionnaires for the standardized, high-quality a... Read More about The International Consultation on Incontinence Questionnaires (ICIQ): An update on status and direction.

Grading severity and bother using the International Prostate Symptom Score and International Consultation on Incontinence Questionnaire Male Lower Urinary Tract Symptoms Score in men seeking lower urinary tract symptoms therapy (2020)
Journal Article
Ito, H., Young, G. J., Lewis, A. L., Blair, P. S., Cotterill, N., Lane, J. A., …Abrams, P. (2020). Grading severity and bother using the International Prostate Symptom Score and International Consultation on Incontinence Questionnaire Male Lower Urinary Tract Symptoms Score in men seeking lower urinary tract symptoms therapy. Journal of Urology, The, 204(5), 1003-1011. https://doi.org/10.1097/JU.0000000000001149

PURPOSE: We established severity banding ranges, bother assessment and key item content in principal patient reported outcomes measures in men seeking therapy for lower urinary tract symptoms. MATERIALS AND METHODS: Data for International Prostate Sy... Read More about Grading severity and bother using the International Prostate Symptom Score and International Consultation on Incontinence Questionnaire Male Lower Urinary Tract Symptoms Score in men seeking lower urinary tract symptoms therapy.

International Consultation on Incontinence Questionnaire-Satisfaction: psychometric testing of a new patient-reported outcome measure for the evaluation of satisfaction after urological surgery (2020)
Journal Article
Uren, A. D., Cotterill, N., Hashim, H., Worthington, J., Kapoor, D., & Abrams, P. (2020). International Consultation on Incontinence Questionnaire-Satisfaction: psychometric testing of a new patient-reported outcome measure for the evaluation of satisfaction after urological surgery. BJU International, 126(2), 286-291. https://doi.org/10.1111/bju.15091

Objectives: To evaluate the psychometric properties of a new patient-reported outcome measure (PROM), the International Consultation on Incontinence Questionnaire-Satisfaction (ICIQ-S), to assess satisfaction after urological surgery. Subjects/Patien... Read More about International Consultation on Incontinence Questionnaire-Satisfaction: psychometric testing of a new patient-reported outcome measure for the evaluation of satisfaction after urological surgery.

TReatIng Urinary symptoms in Men in Primary Healthcare using non-pharmacological and non-surgical interventions (TRIUMPH) compared with usual care: Study protocol for a cluster randomised controlled trial (2019)
Journal Article
Frost, J., Lane, J. A., Cotterill, N., Fader, M., Hackshaw-McGeagh, L., Hashim, H., …Worthington, J. (2019). TReatIng Urinary symptoms in Men in Primary Healthcare using non-pharmacological and non-surgical interventions (TRIUMPH) compared with usual care: Study protocol for a cluster randomised controlled trial. Trials, 20, Article 546. https://doi.org/10.1186/s13063-019-3648-1

Background: Lower urinary tract symptoms (LUTS) can relate to urinary storage or voiding. In men, the prevalence and severity of LUTS increases with age, with a significant impact on quality of life. The majority of men presenting with LUTS are manag... Read More about TReatIng Urinary symptoms in Men in Primary Healthcare using non-pharmacological and non-surgical interventions (TRIUMPH) compared with usual care: Study protocol for a cluster randomised controlled trial.

The development of the ICIQ-UAB: A patient reported outcome measure for underactive bladder (2019)
Journal Article
Uren, A. D., Cotterill, N., Harding, C., Hillary, C., Chapple, C., Lasch, K., …Abrams, P. (2019). The development of the ICIQ-UAB: A patient reported outcome measure for underactive bladder. Neurourology and Urodynamics, 38(3), 996-1004. https://doi.org/10.1002/nau.23947

Aims: To present the development of the International Consultation on Incontinence Questionnaire-underactive bladder (ICIQ-UAB) as the first patient reported outcome measure for the assessment of the symptoms and impact on the health-related quality... Read More about The development of the ICIQ-UAB: A patient reported outcome measure for underactive bladder.

What are the participants’ perspectives of taking melatonin for the treatment of nocturia in Multiple Sclerosis? -a qualitative study embedded within a double blind RCT (2018)
Journal Article
Khan, R., Uren, A., Canham, L., Cottrell, D., Drake, M., & Cotterill, N. (2018). What are the participants’ perspectives of taking melatonin for the treatment of nocturia in Multiple Sclerosis? -a qualitative study embedded within a double blind RCT. Multiple Sclerosis International, 2018, 4721505. https://doi.org/10.1155/2018/4721505

Background: Multiple Sclerosis (MS) is a chronic neurological disorder caused by neurodegeneration within the central nervous system. It results in impaired physical, cognitive and psychological functioning and can also lead to lower urinary tract sy... Read More about What are the participants’ perspectives of taking melatonin for the treatment of nocturia in Multiple Sclerosis? -a qualitative study embedded within a double blind RCT.

Results of a randomized, double blind, placebo controlled, crossover trial of melatonin for treatment of Nocturia in adults with multiple sclerosis (MeNiMS) (2018)
Journal Article
Drake, M., Canham, L., Cotterill, N., Delgado, D., Homewood, J., Inglis, K., …Cottrell, D. (2018). Results of a randomized, double blind, placebo controlled, crossover trial of melatonin for treatment of Nocturia in adults with multiple sclerosis (MeNiMS). BMC Neurology, 18(1), https://doi.org/10.1186/s12883-018-1114-4

© 2018 The Author(s). Background: Nocturia is a common urinary symptom of multiple sclerosis (MS) which can affect quality of life (QoL) adversely. Melatonin is a hormone known to regulate circadian rhythm and reduce smooth muscle activity such as in... Read More about Results of a randomized, double blind, placebo controlled, crossover trial of melatonin for treatment of Nocturia in adults with multiple sclerosis (MeNiMS).

Development and psychometric evaluation of ICIQ-PadPROM: A quality of life questionnaire to assess the treatment effect of absorbent continence products (2018)
Journal Article
Yearwood Martin, C., Murphy, C., Cotterill, N., Williams, S., Cottenden, A., & Fader, M. (2018). Development and psychometric evaluation of ICIQ-PadPROM: A quality of life questionnaire to assess the treatment effect of absorbent continence products. Neurourology and Urodynamics, 37(5), 1650-1657. https://doi.org/10.1002/nau.23389

© 2018 Wiley Periodicals, Inc. Aim: To describe the development and evaluation of the ICIQ-PadPROM, the first self-reported quality of life questionnaire to assess the treatment effect of absorbent continence products, a new addition to the set of IC... Read More about Development and psychometric evaluation of ICIQ-PadPROM: A quality of life questionnaire to assess the treatment effect of absorbent continence products.

Male synthetic sling versus artificial urinary sphincter trial for men with urodynamic stress incontinence after prostate surgery (MASTER): Study protocol for a randomised controlled trial (2018)
Journal Article
Constable, L., Cotterill, N., Cooper, D., Glazener, C., Drake, M. J., Forrest, M., …Abrams, P. (2018). Male synthetic sling versus artificial urinary sphincter trial for men with urodynamic stress incontinence after prostate surgery (MASTER): Study protocol for a randomised controlled trial. Trials, 19(1), https://doi.org/10.1186/s13063-018-2501-2

© 2018 The Author(s). Background: Stress urinary incontinence (SUI) is a frequent adverse effect for men undergoing prostate surgery. A large proportion (around 8% after radical prostatectomy and 2% after transurethral resection of prostate (TURP)) a... Read More about Male synthetic sling versus artificial urinary sphincter trial for men with urodynamic stress incontinence after prostate surgery (MASTER): Study protocol for a randomised controlled trial.

Development of a core set of outcome measures for OAB treatment (2017)
Journal Article
Foust-Wright, C., Wissig, S., Stowell, C., Olson, E., Anderson, A., Anger, J., …Milsom, I. (2017). Development of a core set of outcome measures for OAB treatment. International Urogynecology Journal, 28(12), 1785-1793. https://doi.org/10.1007/s00192-017-3481-6

© 2017, The Author(s). Introduction and hypothesis: Standardized measures enable the comparison of outcomes across providers and treatments giving valuable information for improving care quality and efficacy. The aim of this project was to define a m... Read More about Development of a core set of outcome measures for OAB treatment.

A randomised controlled trial to determine the clinical and cost effectiveness of thulium laser transurethral vaporesection of the prostate (ThuVARP) versus transurethral resection of the prostate (TURP) in the National Health Service (NHS) - the UNBLOCS trial: A study protocol for a randomised controlled trial (2017)
Journal Article
Swami, K. S., Noble, S. M., Brookes, S. T., Worthington, J., Taylor, H., Abrams, P., …Hashim, H. (2017). A randomised controlled trial to determine the clinical and cost effectiveness of thulium laser transurethral vaporesection of the prostate (ThuVARP) versus transurethral resection of the prostate (TURP) in the National Health Service (NHS) - the UNBLOCS trial: A study protocol for a randomised controlled trial. Trials, 18(1), https://doi.org/10.1186/s13063-017-1916-5

© 2017 The Author(s). Background: Transurethral resection of the prostate (TURP) has been the standard operation for benign prostatic obstruction (BPO) for 40 years, with approximately 25,000 procedures performed annually, and has remained largely un... Read More about A randomised controlled trial to determine the clinical and cost effectiveness of thulium laser transurethral vaporesection of the prostate (ThuVARP) versus transurethral resection of the prostate (TURP) in the National Health Service (NHS) - the UNBLOCS trial: A study protocol for a randomised controlled trial.

Qualitative Exploration of the Patient Experience of Underactive Bladder (2017)
Journal Article
Uren, A. D., Cotterill, N., Harding, C., Hillary, C., Chapple, C., Klaver, M., …Abrams, P. (2017). Qualitative Exploration of the Patient Experience of Underactive Bladder. European Urology, 72(3), 402-407. https://doi.org/10.1016/j.eururo.2017.03.045

© 2017 European Association of Urology Background Underactive bladder (UAB) is considered the symptom complex associated with the urodynamic diagnosis of detrusor underactivity. Objective The aim of this research was to investigate the patient report... Read More about Qualitative Exploration of the Patient Experience of Underactive Bladder.

Can a patient reported outcome be adequate without assessing quality of life in lower urinary tract dysfunction? (2017)
Journal Article
Cotterill, N., & Tubaro, A. (2017). Can a patient reported outcome be adequate without assessing quality of life in lower urinary tract dysfunction?. Neurourology and Urodynamics, 36(4), 943-948. https://doi.org/10.1002/nau.23177

© 2017 Wiley Periodicals, Inc. AIMS AND METHODS: A think tank was convened at the sixth ICI-RS meeting held in the United Kingdom on September 2015, to consider the adequacy of patient reported outcome (PRO) measurement if quality of life (QoL) evalu... Read More about Can a patient reported outcome be adequate without assessing quality of life in lower urinary tract dysfunction?.

Protocol for a randomized, double blind, placebo controlled, crossover trial of Melatonin for treatment of Nocturia in adults with Multiple Sclerosis (MeNiMS) (2017)
Journal Article
Delgado, D., Canham, L., Cotterill, N., Cottrell, D., Drake, M. J., Inglis, K., …White, P. (2017). Protocol for a randomized, double blind, placebo controlled, crossover trial of Melatonin for treatment of Nocturia in adults with Multiple Sclerosis (MeNiMS). BMC Neurology, 17(1), https://doi.org/10.1186/s12883-017-0845-y

© 2017 The Author(s). Background: Nocturia (the symptom of needing to wake up to pass urine) is common in progressive Multiple Sclerosis (MS) patients. Moderate-to-severe nocturia affects quality of life, can exacerbate fatigue and may affect capacit... Read More about Protocol for a randomized, double blind, placebo controlled, crossover trial of Melatonin for treatment of Nocturia in adults with Multiple Sclerosis (MeNiMS).

Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients (2016)
Journal Article
Scott, M., Dimidi, E., Dibley, L., Cotterill, N., Scott, S., Whelan, K., …Norton, C. (2016). Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients. Gastrointestinal Nursing, 14(8), 29-38. https://doi.org/10.12968/gasn.2016.14.8.29

© MA Healthcare Ltd. Patients' self-reported constipation symptoms, preferred terminology and quality of life (QoL) issues were explored through 14 semi-structured and five unstructured interviews. In a modified Delphi study, 11 clinicians rated the... Read More about Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients.

Psychometric equivalence of electronic and telephone completion of the ICIQ modules (2016)
Journal Article
Parke, S. E., Uren, A. D., Uren, A., Cotterill, N., Parke, S. E., & Abrams, P. (2017). Psychometric equivalence of electronic and telephone completion of the ICIQ modules. Neurourology and Urodynamics, 36(5), 1342-1349. https://doi.org/10.1002/nau.23103

© 2016 Wiley Periodicals, Inc. Aims: To assess the equivalence of touch-screen (hand-held iPad) and telephone completion of patient-completed International Consultation on Incontinence Questionnaire (ICIQ) modules by comparison with corresponding dat... Read More about Psychometric equivalence of electronic and telephone completion of the ICIQ modules.

Development and initial validation of a disease-specific bowel continence questionnaire for inflammatory bowel disease patients: The ICIQ-IBD (2016)
Journal Article
Bassett, P., Dibley, L., Norton, C., Cotterill, N., & Basssett, P. (2016). Development and initial validation of a disease-specific bowel continence questionnaire for inflammatory bowel disease patients: The ICIQ-IBD. European Journal of Gastroenterology and Hepatology, 28(2), 233-239. https://doi.org/10.1097/MEG.0000000000000513

© 2016 Wolters Kluwer Health, Inc. All rights reserved. Background and aims Faecal incontinence (FI) related to inflammatory bowel disease (IBD) affects up to 74% of patients and is often under-reported in clinical encounters. A previous study found... Read More about Development and initial validation of a disease-specific bowel continence questionnaire for inflammatory bowel disease patients: The ICIQ-IBD.

Development and psychometric evaluation of The ICIQ-LTCqol: A self-report quality of life questionnaire for long-term indwelling catheter users (2015)
Journal Article
Cotterill, N., Fowler, S., Avery, M., Cottenden, A., Wilde, M., Long, A., & Fader, M. (2015). Development and psychometric evaluation of The ICIQ-LTCqol: A self-report quality of life questionnaire for long-term indwelling catheter users. Neurourology and Urodynamics, 35(3), 423-428. https://doi.org/10.1002/nau.2272

Aims Long-term indwelling catheterisation may affect health related quality of life, but clinical assessment and monitoring of people with indwelling catheters is poorly recorded because there are no validated measures to capture these criteria. In... Read More about Development and psychometric evaluation of The ICIQ-LTCqol: A self-report quality of life questionnaire for long-term indwelling catheter users.

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