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All Outputs (14)

Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom (2019)
Journal Article

Objective: Having a child born with a cleft lip and/or palate (CL/P) poses several challenges for new parents and can have a significant psychological impact on the family as a whole. Previous research has indicated that dissatisfaction with health c... Read More about Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom.

Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals (2019)
Journal Article

Objective: A diagnosis of a congenital craniofacial condition can have a significant impact on the psychological wellbeing of the affected family. As the first health professionals likely to come into contact with families, non-specialists, such as... Read More about Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals.

Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers (2019)
Journal Article

© 2019, American Cleft Palate-Craniofacial Association. Objective: Psychosocial issues associated with craniofacial diagnoses and the ongoing burden of care can impact the quality of life of patients and families, as well as treatment adherence and o... Read More about Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers.

Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom (2019)
Journal Article

© 2019, American Cleft Palate-Craniofacial Association. Objectives: The importance of psychosocial aspects of care has received growing recognition in recent years. However, the evidence base for psychosocial intervention remains limited. Specialist... Read More about Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom.

Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition (2019)
Journal Article

© 2019, American Cleft Palate-Craniofacial Association. Background: The birth of a child with a congenital craniofacial anomaly (CFA) can have a profound psychological impact on the family. Despite the complexity and variability in treatment for thes... Read More about Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.

The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland (2019)
Journal Article

Background: From diagnosis through to adulthood, a cleft lip and/or palate (CL/P) poses a number of challenges for those affected. Alongside the care provided by clinical teams, complementary information and support is offered by charitable organizat... Read More about The contribution of a charitable organisation to regional cleft lip and palate services in England and Scotland.

“Exposed and Vulnerable”: Parent Reports of Their Child’s Experience of Multidisciplinary Craniofacial Consultations (2019)
Journal Article

Objective: Childhood is a period of extensive socioemotional development, which can be impacted by the presence of a congenital craniofacial anomaly (CFA). Complex multidisciplinary treatment and long-term follow-up are normally required, yet underst... Read More about “Exposed and Vulnerable”: Parent Reports of Their Child’s Experience of Multidisciplinary Craniofacial Consultations.

"Exposed and vulnerable": Parent reports of their child's experience of multidisiplinary craniofacial consultations (2019)
Journal Article

Objective: Childhood is a period of extensive socioemotional development, which can be impacted by the presence of a congenital craniofacial anomaly (CFA). Complex multidisciplinary treatment and long-term follow-up is normally required, yet understa... Read More about "Exposed and vulnerable": Parent reports of their child's experience of multidisiplinary craniofacial consultations.

Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis (2019)
Journal Article

Objective: Long-term outcomes of patients born with a cleft lip and palate (CLP) are scarcely investigated. Yet, this patient group is of particular interest, as they can provide a valuable retrospective view upon their treatment experiences and psyc... Read More about Quality of life and patient satisfaction in adults treated for a cleft lip and palate: A qualitative analysis.

Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate (2019)
Journal Article

Background: Receiving the news that their child has a health condition, such as a cleft lip and/or palate (CL/P), can have a considerable psychological impact on parents. Yet previous research has highlighted parental dissatisfaction and service-rela... Read More about Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate.