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All Outputs (100)

Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases (2025)
Journal Article

Objectives To explore patients’ perspectives on the impact of appearance changes attributed to glucocorticoid treatment. Methods We conducted a secondary inductive thematic analysis of the ‘Steroid PRO’ semi-structured interviews with patients with r... Read More about Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases.

Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German (2025)
Journal Article

Objective
Patient education is a cornerstone of rheumatology care, enabling patients to effectively and safely manage their condition. Standardized patient knowledge assessments are essential for benchmarking care quality and tailoring education to... Read More about Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German.

Impact of glucocorticoids on patients’ quality of life: A qualitative study assessing face validity and feasibility of the Steroid PRO in patients with inflammatory gastroenterology, respiratory and dermatology conditions (2025)
Journal Article

Objectives The Steroid PRO is a treatment-specific patient-reported outcome questionnaire which measures the impact of glucocorticoids on health-related quality of life. It has 15 items grouped into 4 domains (Social impact, Impact on Appearance, Psy... Read More about Impact of glucocorticoids on patients’ quality of life: A qualitative study assessing face validity and feasibility of the Steroid PRO in patients with inflammatory gastroenterology, respiratory and dermatology conditions.

Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study (2025)
Journal Article

Purpose: To compare treatment utilisation for osteoarthritis (OA) and satisfaction with OA management between individuals with and without comorbid metabolic conditions (e.g., diabetes, obesity, dyslipidaemia, hypertension). Methods: Secondary analys... Read More about Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study.

Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review (2024)
Journal Article

Introduction
The use of Janus kinase inhibitors (JAKis) in immune-mediated inflammatory diseases (IMIDs) beyond licence is expanding rapidly. The aim of this scoping review was to identify and present the available evidence on the efficacy of JAKis... Read More about Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review.

What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol (2024)
Journal Article

Background: Fibromyalgia Syndrome (FMS) is characterised by widespread and persistent pain, intrusive fatigue and cognitive issues, affecting approximately 5.4% of the UK population. Non‐pharmacological therapies and education are current management... Read More about What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol.

Geographical differences in the perspective of osteoarthritis care management: A cross-sectional study in Italy, Sweden and Russia (2024)
Journal Article

Background: This study aimed to explore the awareness, experiences, and beliefs of individuals with osteoarthritis (OA) regarding their healthcare management, along with assessing their overall satisfaction levels.

Methods: A cross-sectional onli... Read More about Geographical differences in the perspective of osteoarthritis care management: A cross-sectional study in Italy, Sweden and Russia.

Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: Results from an international survey (2024)
Journal Article

Objective
European Alliance of Associations for Rheumatology (EULAR) task forces (TF) requires participation of ≥2 junior members, a health professional in rheumatology (HPR) and two patient research partners for the development of recommendations o... Read More about Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: Results from an international survey.

Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial (2024)
Journal Article

Objectives To evaluate the effectiveness of a novel digital patient education (PE) programme in improving self-management in patients newly diagnosed with rheumatoid arthritis (RA). Methods This was a parallel, open-label, two arms, randomised contro... Read More about Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial.

Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review (2023)
Journal Article

Background: Chronic pain services in the UK are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by minority ethnic groups. Objective: To assess the available eviden... Read More about Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review.

EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis (2023)
Journal Article

Objective: To develop evidence-based recommendations for the non-pharmacological management of systemic lupus erythematosus (SLE) and systemic sclerosis (SSc). Methods: A task force comprising 7 rheumatologists, 15 other healthcare professionals and... Read More about EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis.

Educational readiness among health professionals in rheumatology: Low awareness of EULAR offerings and unfamiliarity with the course content as major barriers—results of a EULAR-funded European survey (2023)
Journal Article

BACKGROUND: Ongoing education of health professionals in rheumatology (HPR) is critical for high-quality care. An essential factor is education readiness and a high quality of educational offerings. We explored which factors contributed to education... Read More about Educational readiness among health professionals in rheumatology: Low awareness of EULAR offerings and unfamiliarity with the course content as major barriers—results of a EULAR-funded European survey.