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All Outputs (32)

Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: The SPIN-CLEAR Trials (2025)
Journal Article

Background
Research results are often not communicated to study participants or others with relevant lived experience. Effective communication of research results would help study participants understand their contribution to research and could impr... Read More about Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: The SPIN-CLEAR Trials.

Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases (2025)
Journal Article

Objectives To explore patients’ perspectives on the impact of appearance changes attributed to glucocorticoid treatment. Methods We conducted a secondary inductive thematic analysis of the ‘Steroid PRO’ semi-structured interviews with patients with r... Read More about Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases.

Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German (2025)
Journal Article

Objective
Patient education is a cornerstone of rheumatology care, enabling patients to effectively and safely manage their condition. Standardized patient knowledge assessments are essential for benchmarking care quality and tailoring education to... Read More about Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German.

Impact of glucocorticoids on patients’ quality of life: A qualitative study assessing face validity and feasibility of the Steroid PRO in patients with inflammatory gastroenterology, respiratory and dermatology conditions (2025)
Journal Article

Objectives The Steroid PRO is a treatment-specific patient-reported outcome questionnaire which measures the impact of glucocorticoids on health-related quality of life. It has 15 items grouped into 4 domains (Social impact, Impact on Appearance, Psy... Read More about Impact of glucocorticoids on patients’ quality of life: A qualitative study assessing face validity and feasibility of the Steroid PRO in patients with inflammatory gastroenterology, respiratory and dermatology conditions.

Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study (2025)
Journal Article

Purpose: To compare treatment utilisation for osteoarthritis (OA) and satisfaction with OA management between individuals with and without comorbid metabolic conditions (e.g., diabetes, obesity, dyslipidaemia, hypertension). Methods: Secondary analys... Read More about Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study.

Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review (2024)
Journal Article

Introduction
The use of Janus kinase inhibitors (JAKis) in immune-mediated inflammatory diseases (IMIDs) beyond licence is expanding rapidly. The aim of this scoping review was to identify and present the available evidence on the efficacy of JAKis... Read More about Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review.

What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol (2024)
Journal Article

Background: Fibromyalgia Syndrome (FMS) is characterised by widespread and persistent pain, intrusive fatigue and cognitive issues, affecting approximately 5.4% of the UK population. Non‐pharmacological therapies and education are current management... Read More about What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol.

Geographical differences in the perspective of osteoarthritis care management: A cross-sectional study in Italy, Sweden and Russia (2024)
Journal Article

Background: This study aimed to explore the awareness, experiences, and beliefs of individuals with osteoarthritis (OA) regarding their healthcare management, along with assessing their overall satisfaction levels.

Methods: A cross-sectional onli... Read More about Geographical differences in the perspective of osteoarthritis care management: A cross-sectional study in Italy, Sweden and Russia.

Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: Results from an international survey (2024)
Journal Article

Objective
European Alliance of Associations for Rheumatology (EULAR) task forces (TF) requires participation of ≥2 junior members, a health professional in rheumatology (HPR) and two patient research partners for the development of recommendations o... Read More about Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: Results from an international survey.

AB1429 Sociodemographic and clinical factors associated with health-related quality of life in patients with inflammatory rheumatic diseases treated with glucocorticoids: A cross-sectional study (2024)
Presentation / Conference Contribution

Background: Glucocorticoids (GCs) play a pivotal role in the management of inflammatory rheumatic conditions but they can adversely impact on patients in different ways. Conversely, there are certain patient charact... Read More about AB1429 Sociodemographic and clinical factors associated with health-related quality of life in patients with inflammatory rheumatic diseases treated with glucocorticoids: A cross-sectional study.

POS1477-HPR Understanding treatment utilisation in individuals with osteoarthritis and metabolic multimorbidity: A cross-sectional study (2024)
Presentation / Conference Contribution

Background: Osteoarthritis (OA) and metabolic conditions are major causes of disability. A growing hypothesis posits the presence of a metabolic OA phenotype where the co-occurrence of OA and metabolic conditions may worsen joint symptoms and overall... Read More about POS1477-HPR Understanding treatment utilisation in individuals with osteoarthritis and metabolic multimorbidity: A cross-sectional study.

AB1575-HPR Geographical differences in osteoarthritis care management: A European cross-sectional study (2024)
Presentation / Conference Contribution

Background: Osteoarthritis (OA) burdens individuals and healthcare systems across Europe. With limited curative options, symptom management becomes pivotal, yet underdiagnosis and varied healthcare professional education in OA prevail. The role of in... Read More about AB1575-HPR Geographical differences in osteoarthritis care management: A European cross-sectional study.

P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study (2024)
Presentation / Conference Contribution

Background/Aims Glucocorticoids (GCs) used in the treatment of inflammatory rheumatic conditions can impact on patients in different ways. The objective of this study was to identify socio-demographic and clinical factors associated with health-relat... Read More about P041 Health-related quality of life in patients receiving glucocorticoids for a rheumatic disease and associated factors: A cross-sectional study.

Association between metabolic conditions and satisfaction with care in people with knee or hip osteoarthritis: a survey-based study (2024)
Presentation / Conference Contribution

Purpose (the aim of the study): Satisfaction measures have been recommended as a core component for evaluating treatment outcomes in osteoarthritis (OA). People with comorbid metabolic conditions and OA need to rely on multiple interventions and may... Read More about Association between metabolic conditions and satisfaction with care in people with knee or hip osteoarthritis: a survey-based study.

Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial (2024)
Journal Article

Objectives To evaluate the effectiveness of a novel digital patient education (PE) programme in improving self-management in patients newly diagnosed with rheumatoid arthritis (RA). Methods This was a parallel, open-label, two arms, randomised contro... Read More about Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial.