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Estrangement between siblings in adulthood: A qualitative exploration (2022)
Journal Article
Blake, L., Bland, B., & Rouncefield-Swales, A. (in press). Estrangement between siblings in adulthood: A qualitative exploration. Journal of Family Issues, https://doi.org/10.1177/0192513X211064876

Relationships between siblings have been described as the longest lasting an individual can have, yet siblings both can and do become estranged from one another in adulthood. An online survey was disseminated to individuals who had sought support fro... Read More about Estrangement between siblings in adulthood: A qualitative exploration.

‘It doesn't feel like our house anymore’: The impact of medical technology upon life at home for families with a medically complex, technology-dependent child (2022)
Journal Article
Mitchell, T. K., Bray, L., Blake, L., Dickinson, A., & Carter, B. (2022). ‘It doesn't feel like our house anymore’: The impact of medical technology upon life at home for families with a medically complex, technology-dependent child. Health and Place, 74, https://doi.org/10.1016/j.healthplace.2022.102768

The study aimed to identify how medical technology impacts upon the home and life at home. Inductive auto-driven photo-elicitation or semi-structured interviews were conducted with technology-dependent children/young people (n = 2) and their family m... Read More about ‘It doesn't feel like our house anymore’: The impact of medical technology upon life at home for families with a medically complex, technology-dependent child.

How children in Sweden accessed and perceived information during the first phase of the Covid-19 pandemic (2021)
Journal Article
Rydström, L. L., Ångström-Brännström, C., Blake, L., Brayl, L., Carter, B., Forsner, M., …Lindholm Olinder, A. (2022). How children in Sweden accessed and perceived information during the first phase of the Covid-19 pandemic. Scandinavian Journal of Public Health, 50(1), 144-151. https://doi.org/10.1177/14034948211051884

Aim: To describe how children in Sweden accessed and perceived information about SARS-CoV2 and Covid-19 during the first phase of the outbreak. Methods: This study is a substudy of an international cross-sectional online mixed methods survey examinin... Read More about How children in Sweden accessed and perceived information during the first phase of the Covid-19 pandemic.

How parents share and limit their child’s access to information about COVID-19: A mixed methods online survey study (2021)
Journal Article
Garcia de Avila, M. A., Carter, B., Blake, L., Saron, H., Kirton, J., Protheroe, J., …Bray, L. (in press). How parents share and limit their child’s access to information about COVID-19: A mixed methods online survey study. Journal of Child Health Care, https://doi.org/10.1177/13674935211046724

This study aimed to understand the role that parents play in sharing or limiting their child’s access to information about coronavirus disease 2019 (COVID-19). A subset of data from an international mixed methods online survey study was analysed to e... Read More about How parents share and limit their child’s access to information about COVID-19: A mixed methods online survey study.

Children’s pictures of COVID-19 and measures to mitigate its spread: An international qualitative study (2021)
Journal Article
Bray, L., Blake, L., Protheroe, J., Nafria, B., de Avila, M. A. G., Ångström-Brännström, C., …Carter, B. (2021). Children’s pictures of COVID-19 and measures to mitigate its spread: An international qualitative study. Health Education Journal, 80(7), 811-832. https://doi.org/10.1177/00178969211019459

Objectives: To gain insight into children’s health-related knowledge and understanding of Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV2) and COVID-19, and measures adopted to mitigate transmission. Design: A child-centred qualitative cre... Read More about Children’s pictures of COVID-19 and measures to mitigate its spread: An international qualitative study.

“People play it down and tell me it can’t kill people, but I know people are dying each day”. Children’s health literacy relating to a global pandemic (COVID-19); an international cross sectional study (2021)
Journal Article
Bray, L., Carter, B., Blake, L., Saron, H., Kirton, J. A., Robichaud, F., …Protheroe, J. (2021). “People play it down and tell me it can’t kill people, but I know people are dying each day”. Children’s health literacy relating to a global pandemic (COVID-19); an international cross sectional study. PLoS ONE, 16(2), https://doi.org/10.1371/journal.pone.0246405

The aim of this study was to examine aspects of children's health literacy; the information sources they were accessing, their information preferences, their perceived understanding of and their reported information needs in relation to COVID-19. An... Read More about “People play it down and tell me it can’t kill people, but I know people are dying each day”. Children’s health literacy relating to a global pandemic (COVID-19); an international cross sectional study.

Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: The role of disease severity, age of onset, and embarrassment of the condition (2020)
Journal Article
Qualter, P., Rouncefield-Swales, A., Bray, L., Blake, L., Allen, S., Probert, C., …Carter, B. (2021). Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: The role of disease severity, age of onset, and embarrassment of the condition. Quality of Life Research, 30(2), 497-506. https://doi.org/10.1007/s11136-020-02653-9

Purpose: Adolescents and young adults (AYA) with Inflammatory Bowel Disease (IBD) report higher depressive symptoms and anxiety compared to healthy controls, with disease severity and abdominal pain being important factors. In the current study, buil... Read More about Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: The role of disease severity, age of onset, and embarrassment of the condition.

Sustaining, forming, and letting go of friendships for young people with Inflammatory Bowel Disease (IBD): A qualitative interview-based study (2020)
Journal Article
Rouncefield-Swales, A., Carter, B., Bray, L., Blake, L., Allen, S., Probert, C., …Qualter, P. (2020). Sustaining, forming, and letting go of friendships for young people with Inflammatory Bowel Disease (IBD): A qualitative interview-based study. International Journal of Chronic Diseases, 2020, https://doi.org/10.1155/2020/7254972

The acceptability and impact of the Xploro digital therapeutic platform to inform and prepare children for planned procedures in a hospital: Before and after evaluation study (2020)
Journal Article
Bray, L., Sharpe, A., Gichuru, P., Fortune, P. M., Blake, L., & Appleton, V. (2020). The acceptability and impact of the Xploro digital therapeutic platform to inform and prepare children for planned procedures in a hospital: Before and after evaluation study. Journal of Medical Internet Research, 22(8), https://doi.org/10.2196/17367

Background: There is increasing interest in finding novel approaches to improve the preparation of children for hospital procedures such as surgery, X-rays, and blood tests. Well-prepared and informed children have better outcomes (less procedural an... Read More about The acceptability and impact of the Xploro digital therapeutic platform to inform and prepare children for planned procedures in a hospital: Before and after evaluation study.

“I don’t like to make a big thing out of It”: A qualitative interview-based study exploring factors affecting whether young people tell or do not tell their friends about their IBD (2020)
Journal Article
Carter, B., Rouncefield-Swales, A., Bray, L., Blake, L., Allen, S., Probert, C., …Qualter, P. (2020). “I don’t like to make a big thing out of It”: A qualitative interview-based study exploring factors affecting whether young people tell or do not tell their friends about their IBD. International Journal of Chronic Diseases, 2020, 1-11. https://doi.org/10.1155/2020/1059025

Leveraging implementation science to reduce inequities in children’s mental health care: Highlights from a multidisciplinary international colloquium (2020)
Journal Article
Stadnick, N. A., Aarons, G. A., Blake, L., Brookman-Frazee, L. I., Dourgnon, P., Engell, T., …Barnett, M. L. (2020). Leveraging implementation science to reduce inequities in children’s mental health care: Highlights from a multidisciplinary international colloquium. BMC Proceedings, 14(S2), https://doi.org/10.1186/s12919-020-00184-2

Background and purpose Access to evidence-based mental health care for children is an international priority. However, there are significant challenges to advancing this public health priority in an efficient and equitable manner. The purpose of thi... Read More about Leveraging implementation science to reduce inequities in children’s mental health care: Highlights from a multidisciplinary international colloquium.

The difficulty in evidencing family estrangement to attain statutory finance in UK Higher Education (2019)
Journal Article
Bland, B., & Blake, L. (2020). The difficulty in evidencing family estrangement to attain statutory finance in UK Higher Education. Higher Education Quarterly, 74(4), 531-542. https://doi.org/10.1111/hequ.12232

Acquiring statutory funding to study in Higher Education brings complex difficulties for UK students under the age of 25 who are estranged from their family, but have not been part of the care system. This paper explores the experiences of 564 estran... Read More about The difficulty in evidencing family estrangement to attain statutory finance in UK Higher Education.

The counseling experiences of individuals who are estranged from a family member (2019)
Journal Article
Blake, L., Bland, B., & Imrie, S. (2020). The counseling experiences of individuals who are estranged from a family member. Family Relations, 69(4), 820-831. https://doi.org/10.1111/fare.12385

Objective: For the first time, this study explored the counseling experiences of individuals estranged from a family member and the ways in which therapy was helpful, unhelpful, or both. Background: Family relationships are often assumed to be perman... Read More about The counseling experiences of individuals who are estranged from a family member.

“It’s a lifeline”: Generating a sense of social connectedness through befriending parents of disabled children or children with additional need (2019)
Journal Article
Blake, L., Bray, L., & Carter, B. (2019). “It’s a lifeline”: Generating a sense of social connectedness through befriending parents of disabled children or children with additional need. Patient Education and Counseling, 102(12), 2279-2285. https://doi.org/10.1016/j.pec.2019.07.012

Objectives This study explored the influence of a parent-to-parent peer support scheme on the wellbeing of parents of disabled children or children with additional need who joined a befriending scheme. Methods A longitudinal concurrent mixed met... Read More about “It’s a lifeline”: Generating a sense of social connectedness through befriending parents of disabled children or children with additional need.

Delivery, setting and outcomes of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT): A scoping review (2018)
Journal Article
Carter, B., Carrol, E. D., Porter, D., Peak, M., Taylor-Robinson, D., Fisher-Smith, D., & Blake, L. (2018). Delivery, setting and outcomes of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT): A scoping review. BMJ Open, 8(11), https://doi.org/10.1136/bmjopen-2018-021603

Background There has been little detailed systematic consideration of the delivery, setting and outcomes of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT), although individual studies report that it is a safe and effective treatment. O... Read More about Delivery, setting and outcomes of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT): A scoping review.

Holding children for procedures: An international survey of health professionals (2018)
Journal Article
Bray, L., Carter, B., Ford, K., Dickinson, A., Water, T., & Blake, L. (2018). Holding children for procedures: An international survey of health professionals. Journal of Child Health Care, 22(2), 205-215. https://doi.org/10.1177/1367493517752499

Children undergoing clinical procedures can experience pain and/or anxiety. This may result in them being unwilling to cooperate and being held still by parents or health professionals. This study aimed to capture an international perspective of heal... Read More about Holding children for procedures: An international survey of health professionals.

A longitudinal study of families formed through reproductive donation: Parent-adolescent relationships and adolescent adjustment at age 14 (2017)
Journal Article
Golombok, S., Ilioi, E., Blake, L., Roman, G., & Jadva, V. (2017). A longitudinal study of families formed through reproductive donation: Parent-adolescent relationships and adolescent adjustment at age 14. Developmental Psychology, 53(10), 1966-1977. https://doi.org/10.1037/dev0000372

The aim of the 6th phase of this longitudinal study was to establish whether children born through assisted reproduction involving reproductive donation were at risk for psychological problems following the transition to adolescence at age 14 and, if... Read More about A longitudinal study of families formed through reproductive donation: Parent-adolescent relationships and adolescent adjustment at age 14.

Parent-to-parent peer support for parents of children with a disability: A mixed method study (2017)
Journal Article
Bray, L., Carter, B., Sanders, C., Blake, L., & Keegan, K. (2017). Parent-to-parent peer support for parents of children with a disability: A mixed method study. Patient Education and Counseling, 100(8), 1537-1543. https://doi.org/10.1016/j.pec.2017.03.004

Objectives This paper will report on the findings of a study which investigated the influence of a befriending (parent-to-parent peer support) scheme on parents whose children have a disability or additional need. The scheme operated from an acute c... Read More about Parent-to-parent peer support for parents of children with a disability: A mixed method study.