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All Outputs (49)

An interview study exploring clients' experiences of receiving therapeutic support for family estrangement in the UK (2022)
Journal Article

Many people experience estrangement from a family member, which is broadly understood to refer to negative relationships that are characterised by little or no contact. However, little is known about how people cope with family estrangement. To addre... Read More about An interview study exploring clients' experiences of receiving therapeutic support for family estrangement in the UK.

Clinical utility and acceptability of a whole-hospital, pro-active electronic paediatric early warning system (the DETECT study): A prospective e-survey of parents and health professionals (2022)
Journal Article

Background Paediatric early warning systems (PEWS) are a means of tracking physiological state and alerting healthcare professionals about signs of deterioration, triggering a clinical review and/or escalation of care of children. A proactive end-to-... Read More about Clinical utility and acceptability of a whole-hospital, pro-active electronic paediatric early warning system (the DETECT study): A prospective e-survey of parents and health professionals.

The efficacy of a facilitated support group intervention to reduce the psychological distress of individuals experiencing family estrangement (2022)
Journal Article

Background: Stand Alone is a charity operating in the United Kingdom that supports adults who are estranged from a family member. The charity recognises that those who experience estrangement from a family member experience sadness, anger and a sense... Read More about The efficacy of a facilitated support group intervention to reduce the psychological distress of individuals experiencing family estrangement.

‘I feel like my house was taken away from me’: Parents' experiences of having home adaptations for their medically complex, technology-dependent child (2022)
Journal Article

Technology-dependent children are a sub-population of seriously ill children with life-limiting conditions who are being cared for at home by their families. Although home-based care has been the model of care for these children since the late 1980s,... Read More about ‘I feel like my house was taken away from me’: Parents' experiences of having home adaptations for their medically complex, technology-dependent child.

‘It doesn't feel like our house anymore’: The impact of medical technology upon life at home for families with a medically complex, technology-dependent child (2022)
Journal Article

The study aimed to identify how medical technology impacts upon the home and life at home. Inductive auto-driven photo-elicitation or semi-structured interviews were conducted with technology-dependent children/young people (n = 2) and their family m... Read More about ‘It doesn't feel like our house anymore’: The impact of medical technology upon life at home for families with a medically complex, technology-dependent child.

How children in Sweden accessed and perceived information during the first phase of the Covid-19 pandemic (2021)
Journal Article

Aim: To describe how children in Sweden accessed and perceived information about SARS-CoV2 and Covid-19 during the first phase of the outbreak. Methods: This study is a substudy of an international cross-sectional online mixed methods survey examinin... Read More about How children in Sweden accessed and perceived information during the first phase of the Covid-19 pandemic.

How parents share and limit their child’s access to information about COVID-19: A mixed methods online survey study (2021)
Journal Article

This study aimed to understand the role that parents play in sharing or limiting their child’s access to information about coronavirus disease 2019 (COVID-19). A subset of data from an international mixed methods online survey study was analysed to e... Read More about How parents share and limit their child’s access to information about COVID-19: A mixed methods online survey study.

Children’s pictures of COVID-19 and measures to mitigate its spread: An international qualitative study (2021)
Journal Article

Objectives: To gain insight into children’s health-related knowledge and understanding of Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV2) and COVID-19, and measures adopted to mitigate transmission. Design: A child-centred qualitative cre... Read More about Children’s pictures of COVID-19 and measures to mitigate its spread: An international qualitative study.

“People play it down and tell me it can’t kill people, but I know people are dying each day”. Children’s health literacy relating to a global pandemic (COVID-19); an international cross sectional study (2021)
Journal Article

The aim of this study was to examine aspects of children's health literacy; the information sources they were accessing, their information preferences, their perceived understanding of and their reported information needs in relation to COVID-19. An... Read More about “People play it down and tell me it can’t kill people, but I know people are dying each day”. Children’s health literacy relating to a global pandemic (COVID-19); an international cross sectional study.

Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: The role of disease severity, age of onset, and embarrassment of the condition (2020)
Journal Article

Purpose: Adolescents and young adults (AYA) with Inflammatory Bowel Disease (IBD) report higher depressive symptoms and anxiety compared to healthy controls, with disease severity and abdominal pain being important factors. In the current study, buil... Read More about Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: The role of disease severity, age of onset, and embarrassment of the condition.

The acceptability and impact of the Xploro digital therapeutic platform to inform and prepare children for planned procedures in a hospital: Before and after evaluation study (2020)
Journal Article

Background: There is increasing interest in finding novel approaches to improve the preparation of children for hospital procedures such as surgery, X-rays, and blood tests. Well-prepared and informed children have better outcomes (less procedural an... Read More about The acceptability and impact of the Xploro digital therapeutic platform to inform and prepare children for planned procedures in a hospital: Before and after evaluation study.

Family estrangement and the Covid-19 crisis. A closer look at how broken family relationships have been impacted by the COVID-19 crisis (2020)
Report

This survey set out to explore the impact of the COVID-19 pandemic on estranged family relationships that are distant or inactive. The survey was disseminated to members of the Stand Alone community during May 2020. Data is presented from 801 individ... Read More about Family estrangement and the Covid-19 crisis. A closer look at how broken family relationships have been impacted by the COVID-19 crisis.

Leveraging implementation science to reduce inequities in children’s mental health care: Highlights from a multidisciplinary international colloquium (2020)
Journal Article

Background and purpose
Access to evidence-based mental health care for children is an international priority. However, there are significant challenges to advancing this public health priority in an efficient and equitable manner. The purpose of thi... Read More about Leveraging implementation science to reduce inequities in children’s mental health care: Highlights from a multidisciplinary international colloquium.

“It’s a lifeline”: Generating a sense of social connectedness through befriending parents of disabled children or children with additional need (2019)
Journal Article

Objectives
This study explored the influence of a parent-to-parent peer support scheme on the wellbeing of parents of disabled children or children with additional need who joined a befriending scheme.

Methods
A longitudinal concurrent mixed met... Read More about “It’s a lifeline”: Generating a sense of social connectedness through befriending parents of disabled children or children with additional need.