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Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries

Bennett, Sarah; Zangi, Heidi A; Larsson, Ingrid; Beauvais, Catherine; Boström, Carina; Domján, Andrea; Van Eijk-Hustings, Yvonne; Van Der Elst, Kristien; Fayet, Françoise; Ferreira, Ricardo J O; Fusama, Mie; Geneva-Popova, Mariela; Del Carmen, María; Manso, Herrero; Hoeper, Kirsten; Jones, Bethan; Kukkurainen, Marja Leena; Kwok, Suet Kei; Minnock, Patricia; Nava, Tiziana; Primdahl, Jette; Rawat, Roopa; Sierakowska, Matylda; Stoffer-Marx, Michaela; van Tubergen, Astrid; Ndosi, Mwidimi

Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries Thumbnail


Authors

Sarah Bennett

Heidi A Zangi

Ingrid Larsson

Catherine Beauvais

Carina Boström

Andrea Domján

Yvonne Van Eijk-Hustings

Kristien Van Der Elst

Françoise Fayet

Ricardo J O Ferreira

Mie Fusama

Mariela Geneva-Popova

María Del Carmen

Herrero Manso

Kirsten Hoeper

Bethan Jones

Marja Leena Kukkurainen

Suet Kei Kwok

Patricia Minnock

Tiziana Nava

Jette Primdahl

Roopa Rawat

Matylda Sierakowska

Michaela Stoffer-Marx

Astrid van Tubergen

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Dr Mwidimi Ndosi Mwidimi.Ndosi@uwe.ac.uk
Associate Professor in Nursing Rheumatology



Abstract

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asian countries and identify potential barriers and facilitators to their application. Methods: A parallel convergent mixed-methods design with an inductive approach was used. A web-based survey, available in 20 different languages, was distributed to health professionals by non-probability sampling. The level of agreement and applicability of each recommendation was assessed by (0-10) rating scales. Barriers and facilitators to implementation were assessed using free-text responses. Quantitative data were analysed descriptively and qualitative data by content analysis and presented in 16 categories supported by quotes. Results: A total of 1159 completed the survey; 852 (73.5%) were women. Most of the professionals were nurses (n=487), rheumatologists (n=320), physiotherapists (n=158). For all recommendations, the level of agreement was high but applicability was lower. The four most common barriers to application were lack of time, lack of training in how to provide patient education, not having enough staff to perform this task and lack of evaluation tools. The most common facilitators were tailoring patient education to individual patients, using group education, linking patient education with diagnosis and treatment and inviting patients to provide feedback on patient education delivery. Conclusions: This project has disseminated the EULAR recommendations for patient education to health professionals across 23 countries. Potential barriers to their application were identified and some are amenable to change, namely training patient education providers and developing evaluation tools.

Citation

Bennett, S., Zangi, H. A., Larsson, I., Beauvais, C., Boström, C., Domján, A., …Ndosi, M. (2022). Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries. Annals of the Rheumatic Diseases, 81, 1348-1357. https://doi.org/10.1136/annrheumdis-2022-222253

Journal Article Type Article
Acceptance Date May 19, 2022
Online Publication Date Jun 8, 2022
Publication Date Sep 12, 2022
Deposit Date Jun 9, 2022
Publicly Available Date Jul 9, 2022
Journal Annals of the Rheumatic Diseases
Print ISSN 0003-4967
Electronic ISSN 1468-2060
Publisher BMJ Publishing Group
Peer Reviewed Peer Reviewed
Volume 81
Pages 1348-1357
DOI https://doi.org/10.1136/annrheumdis-2022-222253
Keywords Patient education, Inflammatory arthritis, Recommendations, Dissemination, Implementation, Care Team, Health services research, Qualitative research, Arthritis
Public URL https://uwe-repository.worktribe.com/output/9579169
Publisher URL https://dx.doi.org/10.1136/annrheumdis2022-222253

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Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries (533 Kb)
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Licence
http://creativecommons.org/licenses/by-nc/4.0/

Publisher Licence URL
http://creativecommons.org/licenses/by-nc/4.0/

Copyright Statement
This article has been accepted for publication in Annals of the Rheumatic Diseases 2022 following peer review, and the Version of Record can be accessed online at http://dx.doi.org/10.1136/annrheumdis-2022-222253 Reuse of this manuscript version (excluding any databases, tables, diagrams, photographs and other images or illustrative material included where a another copyright owner is identified)is permitted strictly pursuant to the terms of theCreative Commons Attribution-Non Commercial 4.0 International (CC-BY-NC 4.0) http://creativecommons.org








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