A systematic review of patient-reported outcome measures used in adult burn research

Pleat, Jonathan; Griffiths, Catrin; Guest, Ella; White, Paul; Gaskin, Emma; Rumsey, Nichola; Harcourt, Diana

Abstract

Copyright © 2016 by the American Burn Association. Patient-reported outcome measures (PROMs) are vital for evaluating patient needs and therapeutic progress. This review aimed to identify the PROMs used in adult burn care and establish their quality. Computerized bibliographic searches of Psychinfo, Social Sciences Citation Index, Cinahl, Psycharticles, AMED, Medline, and HAPI were used to find English-language articles using English-language PROMs from January 2001 to September 2016. Psychometric quality assessment of the PROMs was conducted. A total of 117 studies achieved the entry criteria and reported using 77 different PROMs (71 generic and 6 burn-specific). Overall, the psychometric quality of the PROMs was low; only 17 (13 generic and 4 burn-specific) had psychometric evidence appropriate to adults with burn injuries completing an English language version of the PROM. Although this review identified a number of generic and burn-specific PROMs that have some psychometric evidence with adult burn patients, research is still needed to further examine these preexisting measures and validate them in different languages. This will enable researchers and clinicians to better understand the potential impact of a burn injury on adults, and evaluate the effectiveness of therapeutic interventions.

• Journal Article Type: Review
• Acceptance Date: Oct 25, 2016
• Online Publication Date: Mar 1, 2017
• Publication Date: Mar 1, 2017
• Deposit Date: Oct 31, 2016
• Publicly Available Date: Mar 15, 2018
• Journal: Journal of Burn Care and Research
• Print ISSN: 1559-047X
• Electronic ISSN: 1559-0488
• Publisher: Oxford University Press (OUP)
• Peer Reviewed: Peer Reviewed
• Volume: 38
• Issue: 2
• Pages: e521-e541
• DOI: https://doi.org/10.1097/BCR.0000000000000474
• Keywords: systematic review, patient reported outcome measures, PROM, adult, burn, visible difference
• Public URL: https://uwe-repository.worktribe.com/output/896785
• Publisher URL: http://dx.doi.org/10.1097/BCR.0000000000000474
• Additional Information: Additional Information : This is the author's accepted manuscript. The final version is available at http://dx.doi.org/10.1097/BCR.0000000000000474.
• Contract Date: Oct 31, 2016