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A qualitative evaluation of the appropriateness, validity, acceptability, feasibility and interpretability of the Bristol Impact of Hypermobility (BIoH) questionnaire

Manns, Sarah; Cramp, Fiona; Lewis, Rachel; Clark, Emma M.; Palmer, Shea

A qualitative evaluation of the appropriateness, validity, acceptability, feasibility and interpretability of the Bristol Impact of Hypermobility (BIoH) questionnaire Thumbnail


Authors

Fiona Cramp Fiona.Cramp@uwe.ac.uk
Professor in Long Term Conditions

Rachel Lewis

Emma M. Clark

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Shea Palmer Shea.Palmer@uwe.ac.uk
Professor in Allied Health Professions



Abstract

© 2018 Elsevier Ltd Background: The Bristol Impact of Hypermobility (BIoH) questionnaire is a condition-specific patient-reported outcome measure developed for adults with Joint Hypermobility Syndrome (JHS). It has previously demonstrated strong concurrent validity with the Short-Form 36 health questionnaire and excellent test-retest reliability. Objectives: This study aimed to evaluate its appropriateness, validity, acceptability, feasibility and interpretability. Design: A qualitative evaluation using semi-structured telephone interviews, incorporating a ‘think aloud’ exercise and additional prompts. Method: Adults with JHS (n = 11) were recruited through a patient organisation and physiotherapists with a professional interest in JHS (n = 9) were recruited through the same organisation and an online professional network. Interviews were transcribed and data synthesised using a framework matrix. Findings: Patients and physiotherapists commented positively on the appropriateness, validity, acceptability and feasibility of the BIoH questionnaire. Physiotherapists assessed the interpretability of the questionnaire and commented that, whilst further information might be captured, the value of that information might be limited. The questionnaire was considered comprehensive with only a very limited number of potential missing areas related to use of hand-held technology, hair washing/drying and intimacy. Interestingly, keyboard use and hair washing were excluded during initial questionnaire development as they were rated as relatively unimportant. Intimacy was not considered a comfortable addition for all participants. Conclusions: Patients and physiotherapists regarded the BIoH questionnaire as a welcome addition to the toolkit available to assess those with JHS. It was broadly accepted as reflecting the experience of people with JHS in sufficient detail to support management.

Citation

Manns, S., Cramp, F., Lewis, R., Clark, E. M., & Palmer, S. (2018). A qualitative evaluation of the appropriateness, validity, acceptability, feasibility and interpretability of the Bristol Impact of Hypermobility (BIoH) questionnaire. Musculoskeletal Science and Practice, 38, 69-76. https://doi.org/10.1016/j.msksp.2018.10.002

Journal Article Type Article
Acceptance Date Oct 2, 2018
Online Publication Date Oct 5, 2018
Publication Date Dec 1, 2018
Publicly Available Date Oct 6, 2019
Journal Musculoskeletal Science and Practice
Print ISSN 2468-8630
Electronic ISSN 2468-7812
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 38
Pages 69-76
DOI https://doi.org/10.1016/j.msksp.2018.10.002
Keywords benign hypermobility syndrome, Ehlers-Danlos syndrome,
hypermobility type, qualitative research, questionnaire design
Public URL https://uwe-repository.worktribe.com/output/855364
Publisher URL https://doi.org/10.1016/j.msksp.2018.10.002
Additional Information Additional Information : This is the author's accepted manuscript. The final published version is available here: 10.1016/j.msksp.2018.10.002.

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