Standards for the diagnosis and management of Complex Regional Pain Syndrome: Results of a European Pain Federation task force

Goebel, Andreas; Barker, Chris; Birklein, Frank; Brunner, Florian; Casale, Roberto; Eccleston, Chris; Eisenberg, E.; McCabe, Candy; Moseley, G. Lorimer; Perez, R.; Perrot, Serge; Terkelsen, Astrid; Thomassen, Ilona; Zyluk, Andrzey; Wells, Chris

Abstract

Background: Complex Regional Pain Syndrome is a painful and disabling post-traumatic primary pain disorder. Acute and chronic CRPS are major clinical challenges. In Europe progress is hampered by significant heterogeneity in clinical practice. We sought to establish standards for the diagnosis and management of CPRS.
Methods: The European Pain Federation established a pan-European task force of experts in CRPS who followed a four-stage consensus challenge process to produce mandatory quality standards worded as grammatically imperative (must-do) statements.
Results: We developed 17 standards in 8 areas of care. There are 2 standards in diagnosis, 1 in multi-disciplinary care, 1 on assessment, 3 for care pathways, 1 on information and education, 4 in pain management, 3 in physical rehabilitation, and 2 on distress management. The standards are presented, summarised, and their generation and consequences discussed. Also presented are domains of practice for which no agreement on a standard could be reached. Areas of research needed to improve the validity and uptake of these standards are discussed.
Conclusion: The European Pain Federation task force present 17 standards of the diagnosis and management of CPRS for use in Europe. These are considered achievable for most countries, and aspirational for a minority of countries depending on their healthcare resource and structures.
Significance: This position statement summarizes expert opinion on acceptable standards for CRPS care in Europe.

• Journal Article Type: Article
• Acceptance Date: Dec 12, 2018
• Online Publication Date: Jan 8, 2019
• Publication Date: Apr 1, 2019
• Deposit Date: Jan 15, 2019
• Publicly Available Date: Apr 15, 2019
• Journal: European Journal of Pain
• Print ISSN: 1090-3801
• Electronic ISSN: 1532-2149
• Publisher: Wiley
• Peer Reviewed: Peer Reviewed
• Volume: 23
• Issue: 4
• Pages: 641-651
• DOI: https://doi.org/10.1002/ejp.1362
• Keywords: Complex Regional Pain Syndrome, standards of care
• Public URL: https://uwe-repository.worktribe.com/output/847705
• Publisher URL: https://doi.org/10.1002/ejp.1362
• Related Public URLs: https://www.ncbi.nlm.nih.gov/pubmed/30620109
• Additional Information: Additional Information : This is the peer reviewed version of the following article: [Goebel, A., Barker, C., Birklein, F., Brunner, F., Casale, R., Eccleston, C., Eisenberg, E., McCabe, C., Moseley, G., Perez, R., Perot, S., Terkelson, A., Thomasson, I., Zyluk, A. and Wells, C. (2019) Standards for the diagnosis and management of Complex Regional Pain Syndrome: Results of a European Pain Federation task force. European Journal of Pain. ISSN 1090-3801], which has been published in final form at https://doi.org/10.1002/ejp.1362. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
• Contract Date: Jan 15, 2019